Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,204 members•40,206 posts

All posts for November 2014

Finally, a consultant who understands!

Finally, I've seen a consultant who seems to understand this wretched illness and the difficulty of reducing steroids without causing a flare up. He knew...

Finally, I've seen a consultant who seems to understand this wretched illness a...

maria40

•10 years ago

9 Replies

Feeling Down

down to 9mg Pred have GCA diagnosed 2years ago. Just dropped to 9 mg Monday. Have been having very sore left shoulder my rheumy said I had rotator cuff...

down to 9mg Pred have GCA diagnosed 2years ago. Just dropped to 9 mg Monday. H...

Vpankhurst

•10 years ago

11 Replies

Shropshire support group

Just arrived back from first meeting I was good to talk to people..

olive2709

•10 years ago

6 Replies

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Update

Saw my Rheumy today and as I am still in pain after reducing down to 20mg of preds and stopping methotrexate 2 weeks ago as it did not make any difference...

Saw my Rheumy today and as I am still in pain after reducing down to 20mg of pre...

Griggser

•10 years ago

2 Replies

A little Lisa update!

Ok, so after a week on Pred my CRP has gone from 86 to today it's 8' im now reducing to 30mg a day instead of 40mg, I'm feeling fine the only symptom I have...

Ok, so after a week on Pred my CRP has gone from 86 to today it's 8' im now redu...

Lisa630

•10 years ago

15 Replies

How long will benefit of 120mg Depo-Medrone injection last?

Hi, I'm Mark a 49yr old male recently diagnosed with PMR. For quite some months have been nagged by stiffness and pain which started in my left shoulder but...

Hi, I'm Mark a 49yr old male recently diagnosed with PMR. For quite some months ...

dundinha

•10 years ago

7 Replies

Does anyone have hand pain?

I'm back to 20 prednisone after a 2 year taper to 0. Within a couple of weeks of 0, I felt like the tin man. I'm supposed to taper to 15 tomorrow but still...

I'm back to 20 prednisone after a 2 year taper to 0. Within a couple of weeks o...

Hidden

•10 years ago

2 Replies

XMAS LIST

LO.it is a lovely crisp sunny day here,i have been for my walk in the park, just having a sarny.just thinking about my Xmas list for Santa have put Phillosan ?...

LO.it is a lovely crisp sunny day here,i have been for my walk in the park, just...

daveD

•10 years ago

2 Replies

GCA and Menstrual bleeding

Sorry guys I have to ask as rheamy is wondering if there is any connection here. . . SO MEN. . , please feel free to ignore if you'd rather not read. . . At...

Sorry guys I have to ask as rheamy is wondering if there is any connection here....

Lisa630

•10 years ago

8 Replies

Update on lisa630

Morning everyone just wanted to let you know I got admitted last night to A&E by GP. 7 hrs later I was released at 2.30 am. . On arrival they took my blood...

Morning everyone just wanted to let you know I got admitted last night to A&E by...

Lisa630

•10 years ago

14 Replies

Nearly there ... 48 Parkruns and counting

When I was really, really ill with the debilitating and chronic PMR pains I was restricted to a wheelchair and bed-bound. That was only 18 months ago and the...

When I was really, really ill with the debilitating and chronic PMR pains I was ...

Skinnyjonny

•10 years ago

2 Replies

From wheelchair to Nepal Himalaya again!

I'm (hopefully) in the final stages of my steroid reduction programme since starting on 20mg Pred in May 2013. Over the last year as I've been in remission...

I'm (hopefully) in the final stages of my steroid reduction programme since star...

Skinnyjonny

•10 years ago

4 Replies

I have GCA and have just been diagnosed with Parkinson's Disease

Is there anyone out there in the same boat? It is not nice. Now I don't know who or what to blame for my muscle weakness and inability to walk far. Perhaps it...

Is there anyone out there in the same boat? It is not nice. Now I don't know who...

Trenny

•10 years ago

9 Replies

Adrenal Insufficiency

5 months ago I wrote a post regarding a recommendation by my Endocrinologist to change from Prednisone to hydrocortisone in order to 'wake up' my adrenals. I...

5 months ago I wrote a post regarding a recommendation by my Endocrinologist to ...

hwigston

•10 years ago

8 Replies

The fight begins

I've pretty much managed my own PMR and GCA in the last 3 years. I'm on 10mgs Pred and can just function at this dose with plenty of little niggles to remind...

I've pretty much managed my own PMR and GCA in the last 3 years. I'm on 10mgs P...

Hidden

•10 years ago

15 Replies

GP doesn't believe it's PMR

Hi all, I posted previously as terrible bilateral upper arm pain for 6 weeks. GP was reluctant but did prescribe pred with almost immediate belief. She still...

Hi all, I posted previously as terrible bilateral upper arm pain for 6 weeks. GP...

TeePea

•10 years ago

8 Replies

Research Study into PMR and GCA

My 89 year old mum lost her sight literally overnight in January to GCA, she was diagnosed in 2009 with PMR but her symptoms were relieved by a 2 week course...

My 89 year old mum lost her sight literally overnight in January to GCA, she was...

4sibbs

•10 years ago

4 Replies

Always an icebox

I've noticed that come 3 o'clock in the afternoon I start to feel cold, and even with woollies everywhere - feet, leggings, etc this cold to the core persists....

I've noticed that come 3 o'clock in the afternoon I start to feel cold, and even...

Hidden

•10 years ago

7 Replies

Biopsy after 3 wks on pred

Sorry it's me again . . The newbie. . Been reading a few articles, thank you all so much, it does help, however I'm worried that most of you had the biopsy...

Sorry it's me again . . The newbie. . Been reading a few articles, thank you al...

Lisa630

•10 years ago

22 Replies

GCA symptoms

Hello there my name is Lisa . . Oh gosh where do I start and how do I make this short . . Ok, 2 months ago I started having ear pain had 2 courses of...

Hello there my name is Lisa . . Oh gosh where do I start and how do I make this ...

Lisa630

•10 years ago

10 Replies

pmr

Hi, PMR. As we all know there is no known cure for this horrible muscle pain and yes something should be done about it by the medical authorities as this...

Hi, PMR. As we all know there is no known cure for this horrible muscle pain a...

STANSQUASHFANATIC

•10 years ago

19 Replies

Steroid warning card

This is the first I have heard about a warninhg card and have had PMR for 6 years. How do you apply for one?

This is the first I have heard about a warninhg card and have had...

angelone2

•10 years ago

8 Replies

Energy levels

GCA developed almost 10 weeks ago get up feeling good don't push myself but by lunch wiped out on 30mg pred going down by 5mg every 4weeks till I get to 20...

GCA developed almost 10 weeks ago get up feeling good don't push myself but by ...

olive2709

•10 years ago

4 Replies

Amlodopine and PMR

Just started amlodopine for blood pressure. (160/103). Any words of wisdom regarding the drug and PMR. I'm at 6mg pred and getting ready to drop to 5.5 mg.

Just started amlodopine for blood pressure. (160/103). Any words of wisdom rega...

1Purplecrow

•10 years ago

5 Replies

Palpitations and weird dreams

Hi all. I'm wondering if the really strong palpitations that I keep having during the night along with the dreams are related to PMR/taking Pred. I'm currently...

Hi all. I'm wondering if the really strong palpitations that I keep having durin...

worriedaboutPMR

•10 years ago

4 Replies

methotrexate

i was put on Methotrexate in addition to my prednisone but just two months ago so the jury is still out on how much it will help. will keep you updated. one...

i was put on Methotrexate in addition to my prednisone but just two months ago s...

30048

•10 years ago

21 Replies

Advice

In retrospect I had undiagnosed PMR 3 years ago lasting for about a year and then suddenly disappearing, only to be followed by leg pain, also undiagnosed...

In retrospect I had undiagnosed PMR 3 years ago lasting for about a year and the...

Hidden

•10 years ago

13 Replies

Sorry for moaning

I had a right good moan on here the other day so thanks to everybody who responded. I am a little bit better in that the sciatica pain has receded mostly apart...

I had a right good moan on here the other day so thanks to everybody who respond...

kingharold11

•10 years ago

5 Replies

Pain in upper body

Sitting with my feet up watching a silly movie yesterday morning when pain started in my chest travelled up to my shoulders head face lasted about 10...

Sitting with my feet up watching a silly movie yesterday morning when pain start...

olive2709

•10 years ago

5 Replies

PMR/GCA PAIN RETURNED ON PRED REDUCTION

Hi. Just looking a bit of advice on reduction of Pred. I was diagnosed 4 months ago with GCA and PMR at only 49. Have more recently been diagnosed with...

Hi. Just looking a bit of advice on reduction of Pred. I was diagnosed 4 months ...

11caroline29

•10 years ago

29 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2014

Finally, a consultant who understands!

Feeling Down

Shropshire support group

Update

A little Lisa update!

How long will benefit of 120mg Depo-Medrone injection last?

Does anyone have hand pain?

XMAS LIST

GCA and Menstrual bleeding

Update on lisa630

Nearly there ... 48 Parkruns and counting

From wheelchair to Nepal Himalaya again!

I have GCA and have just been diagnosed with Parkinson's Disease

Adrenal Insufficiency

The fight begins

GP doesn't believe it's PMR

Research Study into PMR and GCA

Always an icebox

Biopsy after 3 wks on pred

GCA symptoms

pmr

Steroid warning card

Energy levels

Amlodopine and PMR

Palpitations and weird dreams

methotrexate

Advice

Sorry for moaning

Pain in upper body

PMR/GCA PAIN RETURNED ON PRED REDUCTION

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