Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,482 members • 38,446 posts

All posts for February 2018

How’s you all doing. Anyone not coughing.

Yep got rid of it. Doc put me on antibiotics 👍👍 🍀🍀🍀🍀

Rocketronzy

•6 years ago

6 Replies

PMR. Fibromyalgia

I have had PMR for 4 yrs,with 3 attempts to get off Prednisilone,getting down to 1 mgms ,but always being in great discomfort doing it,and having to go back to...

I have had PMR for 4 yrs,with 3 attempts to get off Prednisilone,getting down to...

moskin

•6 years ago

9 Replies

PMR post flu bout horrific muscle pain.

I have been wondering about this ... this week I have had one of the worst bouts of flu I can remember. In the past when I have had the usual hacking cough I...

I have been wondering about this ... this week I have had one of the worst bouts...

Hidden

•6 years ago

9 Replies

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12 years GCA.......turning 71 tomorrow.......aids!!

Bet that fooled you. No, I don't have aids. I have a little bit of humour to lighten these grey, wet, miz uk days.......... AIDS WARNING! To all of you...

Bet that fooled you. No, I don't have aids. I have a little bit of humour to lig...

karools16

•6 years ago

7 Replies

Prepping for Paddison Program

Hi everyone, I recently ran into a colleague of mine who has RA. I could not believe the difference in her. She looked pain-free and about 30 pounds slimmer....

Hi everyone, I recently ran into a colleague of mine who has RA. I could not bel...

Marie1479

•6 years ago

46 Replies

Advice

Please can anyone recommend a consultant in Devon or Cornwall that has an interest in P M R and Fibromyalgia. Thankyou. I could go privately if need be

Please can anyone recommend a consultant in Devon or Cornwall that has an intere...

moskin

•6 years ago

5 Replies

Next tapering chapter

Today, a few days earlier than originally planned, I taper down towards 15 from 20mg. However, this time I use Dorset Lady's advice and opt for 17.5 for two...

Today, a few days earlier than originally planned, I taper down towards 15 from ...

Pongo13

•6 years ago

5 Replies

Steroid injection

Has anyone had steroid injections? I am awaiting an appointment for my right shoulder to be done, as I'm right handed it's very hard to do usual task...

Has anyone had steroid injections? I am awaiting an appointment for my right sho...

Jamie345

•6 years ago

14 Replies

I've had an idea

On my last visit to the rheumy I explained that I'd had a flare when trying to reduce to 9mg after a month on 10. The flare was quite localised (rib cage and...

On my last visit to the rheumy I explained that I'd had a flare when trying to r...

Jontie

•6 years ago

10 Replies

Riddle Me This

...when is an ache, just an ache? Since starting mega does of steroids in November for PMR & GCA, I have felt a LOT of weird and unusual things, but "pain"...

...when is an ache, just an ache? Since starting mega does of steroids in Nove...

Hidden

•6 years ago

32 Replies

Cortisol and adrenals Pro where are you

My cortisol level was 1. Both my endocrinologist and rheumatologist did not seem concerned. My rheumatologist said my fatigue is mostly my arthritis and was...

My cortisol level was 1. Both my endocrinologist and rheumatologist did not seem...

Nap1

•6 years ago

18 Replies

Thoughts on Fosamax

Does anyone have information on Fosamax? I just had a bone density done and now Dr wants to add another drug. I’m on 20 mil of prednisone and I know it’s...

Does anyone have information on Fosamax? I just had a bone density done and now...

A-123

•6 years ago

7 Replies

Do the Giant Cells disappear?

I have not found this information anywhere. I know preds reduce the inflammation but by then the damage has already been done. Do the giant cells stay as part...

I have not found this information anywhere. I know preds reduce the inflammation...

Nagswoman

•6 years ago

19 Replies

How do I know if my adrenal gland is working properly? Will it work properly?

Anyone got any ideas? I reduced the preds yesterday from 5mg to 4.5mg and have had the usual feeling for most of the day as though I have had a bucketload of...

Anyone got any ideas? I reduced the preds yesterday from 5mg to 4.5mg and have h...

Nagswoman

•6 years ago

11 Replies

strangely funny day.

Mum to Daughter -- on visualizing image of our pair of elderly dogs lying on damp grass yawning in sync at the crack of dawn whilst she set off on her jog--"...

Mum to Daughter -- on visualizing image of our pair of elderly dogs lying on dam...

fren

•6 years ago

38 Replies

Can the GCA monster do an encore?

Hi Everyone, it has been a while since I have been on this site. Hope everyone is doing as good as possible. My question is can GCA return after being treated...

Hi Everyone, it has been a while since I have been on this site. Hope everyone i...

misaryk

•6 years ago

46 Replies

PMR and LVV

Thought this was an enlightening abstract ..a lot of us PMRers would relate ....

Gaijin

•6 years ago

28 Replies

Pmr help

Hi Ive noticed that every one has a rheumatologist on here ,I've had pmr for 4 years and my doctor has never suggested this . I go for a esr blood test once a...

Hi Ive noticed that every one has a rheumatologist on here ,I've had pmr for 4 y...

Lori23

•6 years ago

41 Replies

Advice please!

Hi I have had PMR for many years now and I am sure it is stress related. Almost a year ago I had to have a total hip replacement due to avascular necrosis....

Hi I have had PMR for many years now and I am sure it is stress related. Almost...

wendythom

•6 years ago

4 Replies

A Moment of Me

I was up and out early yesterday (Well, "early" is a relative term, isn't it? It was already 10:00 am!) It was my daily trek ( 0.4 miles) to the local...

I was up and out early yesterday (Well, "early" is a relative term, isn't it? It...

Hidden

•6 years ago

24 Replies

Another update on “Advice for a friend”

PMRpro my friend saw his doctor finally and asked for more advice on why he was getting pain at night but not in the day. You will not be surprised to hear...

PMRpro my friend saw his doctor finally and asked for more advice on why he was ...

Brixhamhampster

•6 years ago

6 Replies

Potassium Update

Hi Received the result of my second blood test and was told that potassium level is normal. Thanks for the reassurance given on what may have caused the...

Hi Received the result of my second blood test and was told that potassium level...

Mitziecat

•6 years ago

3 Replies

Very low cortisol.

I had a cortisol test yesterday and I came back at 4. Rheumatologist is trying to get a consult with endocrinologist for me. She said the endocrinologist...

I had a cortisol test yesterday and I came back at 4. Rheumatologist is trying ...

Leeleep

•6 years ago

22 Replies

Tocoilizumab, has anyone tried it yet?

I read about the new breakthrough drug they have for GCA & PMR. It says that 56% of the patients that tried it were able to stop taking prednisone within 1-...

I read about the new breakthrough drug they have for GCA & PMR. It says that 56%...

LarryLeek

•6 years ago

19 Replies

Dry eyes? Help from LupusUK

https://www.lupusuk.org.uk/dry-eyes-and-dry-mouth/ Every month the wonderful LupusUK publishes a Topic of the Month. This month it is about dryness of eyes and...

https://www.lupusuk.org.uk/dry-eyes-and-dry-mouth/ Every month the wonderful Lup...

PMRpro

Ambassador•6 years ago

7 Replies

Looking for a doctor in Essex

My friend has been diagnosed with PMR. She lives in London, Essex. Can someone recommend an NHS doctor that is good with PMR? Thank you!

My friend has been diagnosed with PMR. She lives in London, Essex. Can someone r...

Klah

•6 years ago

2 Replies

Ear popping

Has anyone else had wierd constant ear popping with PMR

Katrinaroper

•6 years ago

7 Replies

Sometimes, I wish I was a dog....

True confessions....I sometimes wish I was a dog. It seems like Chivas, my dog, never has trouble sleeping! These steroids are kicking my booty! Last night...

True confessions....I sometimes wish I was a dog. It seems like Chivas, my dog,...

micheleinnaples

•6 years ago

17 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2018

How’s you all doing. Anyone not coughing.

PMR. Fibromyalgia

PMR post flu bout horrific muscle pain.

12 years GCA.......turning 71 tomorrow.......aids!!

Prepping for Paddison Program

Advice

Next tapering chapter

Steroid injection

I've had an idea

Riddle Me This

Cortisol and adrenals Pro where are you

Thoughts on Fosamax

Do the Giant Cells disappear?

How do I know if my adrenal gland is working properly? Will it work properly?

strangely funny day.

Can the GCA monster do an encore?

PMR and LVV

Pmr help

Advice please!

A Moment of Me

Another update on “Advice for a friend”

Potassium Update

Very low cortisol.

Tocoilizumab, has anyone tried it yet?

Dry eyes? Help from LupusUK

Looking for a doctor in Essex

Ear popping

Sometimes, I wish I was a dog....

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