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Maybe PPMS?

Hi everyone,Like most of you it's taken a really long time to try and get a diagnosis and a plan. I started with gut issues and lots of weight loss. When...

Hi everyone,Like most of you it's taken a really long time to try and get a diag...

Mazha

•12 hours ago

8 Replies

Motivation for my doctor

to cure something. https://www.goodnewsnetwork.org/ape-treating-his-wound-using-medicinal-plant-is-a-world-first-for-a-wild-animal/ I expect to get over...

to cure something. https://www.goodnewsnetwork.org/ape-treating-his-wound-using...

falalalala

•1 day ago

6 Replies

Rainy dreary day today 🌧️

Good Morning been raining 🌧️ all night and a little gloomy today. It’s in the 40’s today and was 72 yesterday. Crazy weather 🤪 Rozy is laying by the garage...

Good Morning been raining 🌧️ all night and a little gloomy today. It’s in the 4...

Kenu

•2 days ago

8 Replies

Want to take advantage of all our features? Just log in!

Heartfelt Aaron Boster video on how to avoid losing money to scammers, plus tips to avoid identity theft and cyber crime.

Dr. Boster made this video because two of his MS patients got scammed out of a lot of money. He talks about how to recognize scams when people contact you....

Dr. Boster made this video because two of his MS patients got scammed out of a l...

CatsandCars

•3 days ago

17 Replies

This week has been rough! Introducing...

My MS Adventure Buddy has a name now! Introducing Finley Ashowen! Or Fin for short. Pictured above at my iron infusion last week. I did better with the iron...

My MS Adventure Buddy has a name now! Introducing Finley Ashowen! Or Fin for sho...

MSFlea

•3 days ago

15 Replies

MS, age, or both?😂

I see this in my future.

Robsmom

•3 days ago

9 Replies

Go Philly - Stronger Than MS Walk 2024!

Hello Everyone, The National MS Society 5K Walk is this morning! Actually Philly is doing multiple runs, including Blue Cross Broad Street Run on the same...

Hello Everyone, The National MS Society 5K Walk is this morning! Actually Philly...

stepsforNeeC

•3 days ago

11 Replies

recently diagnosed

Taking a minute to filter through emotions…ms did a factory reset on my body. Quite literally. Relearning how to walk, write, open a jar…it was so random and...

Taking a minute to filter through emotions…ms did a factory reset on my body. Qu...

SuperMom1921s

•4 days ago

7 Replies

H.O.P.E. Bracelet

mrsmike9 I was bored one day, seriously, who gets bored with ‘ms’, well anyway, I decided to make a bracelet. I used pretty pink mermaid beads, glow in the...

mrsmike9 I was bored one day, seriously, who gets bored with ‘ms’, well anyway,...

carolek572

CommunityAmbassador•4 days ago

53 Replies

Fight On!

Hello community, I started this week no doing so well. Thankful to be doing a lot better now. I'm sitting here typing with my cooling vest on. It helps a...

Hello community, I started this week no doing so well. Thankful to be doing a ...

drumbugg

•4 days ago

5 Replies

CD20 Therapies (Ocrevus, Kesimpta, etc.) and potentially serious dental problems

This was an interesting post on the MS-blog. You have to get past the Dustin Hoffman in Marathon Man reference (which was a memorable scene!) to get down to...

This was an interesting post on the MS-blog. You have to get past the Dustin Hof...

CatsandCars

•4 days ago

13 Replies

Foot drop

Has anyone with foot drop found a shoe type that works well? The shoe on my foot drop foot always scraps and wears out before the other one. Any...

Has anyone with foot drop found a shoe type that works well? The shoe on my foo...

punterstein

•5 days ago

11 Replies

Good Morning gang members it’s a little chilly and had couple inches of snow ❄️

Well finally feeling a little better and probably due a meeting today 👍🏼 Had a splurge of energy yesterday and dusted the house then vacuumed and mopped...

Well finally feeling a little better and probably due a meeting today 👍🏼 Had a...

Kenu

•5 days ago

19 Replies

As if MS wasn't enough, I have osteoporosis

HelloAs if MS wasn't enough, I now have osteoporosis. Which could be why I fell and broke my shoulder in December. My primary doctor has put me on boniva....

HelloAs if MS wasn't enough, I now have osteoporosis. Which could be why I fel...

jkdavid99

•6 days ago

11 Replies

DBS operation

I’ve been approved by Kaiser for a DBS (Deep Brain Stimulation) operation for my MS/essential tremors. Would like to talk to someone who’s had the same...

I’ve been approved by Kaiser for a DBS (Deep Brain Stimulation) operation for my...

Potatoskins

•6 days ago

3 Replies

Home from Neuro

Today was my 6 month appt with my Neuro. I told her about a horrible breakthrough migraine I had over the past weekend. I am to take 800mg of Ibroproferin. She...

Today was my 6 month appt with my Neuro. I told her about a horrible breakthroug...

bxrmom

•6 days ago

10 Replies

Lynnie THE BikerChick is back

I was very activein this grourp until last fall. Sometime between Oct. & Thanksgiving, I Just lost interest in everything. I do read along,but rarely...

I was very activein this grourp until last fall. Sometime between Oct. & Thanks...

CalfeeChick2

•6 days ago

8 Replies

Good chilly May morning 🥶

Good morning with windchill it’s 22 degrees in Pocatello Idaho that’s at least 20 degrees below average. I’m still toughening it out in my shorts 🩳 it is...

Good morning with windchill it’s 22 degrees in Pocatello Idaho that’s at least 2...

Kenu

•6 days ago

11 Replies

MS with normal MRI

Gavin Giovanoni at Bart's in the UK writes that it is possible to have MS with a normal MRI. I found this to be pretty surprising, so I thought I would share...

Gavin Giovanoni at Bart's in the UK writes that it is possible to have MS with a...

CatsandCars

•6 days ago

15 Replies

Thankful for another day!

Thankful that I feel good today! I appreciate everyone's comments on my last post. One thing that I didn't do in the beginning of my diagnosis was to quit...

Thankful that I feel good today! I appreciate everyone's comments on my last po...

drumbugg

•7 days ago

10 Replies

DMT's

Have no limits. My Ex-neurologist tried the same thing on me. I was 60 and taking tecfidera. Found another neuro (script writer). I am 62 and still on it....

Have no limits. My Ex-neurologist tried the same thing on me. I was 60 and tak...

Birdloverforever

•7 days ago

6 Replies

New to the community

Hi. I just joined the community today. I was diagnosed in the early 2000's after having optic neuritis twice. My neurologist thinks I had MS since at least...

Hi. I just joined the community today. I was diagnosed in the early 2000's aft...

jezebellydancer

•8 days ago

18 Replies

Renee

I was diagnosed with MS in1992 . I was in remission 1995, until about 2021 when I had symptoms which were worse than the first time. I have loss the use of...

I was diagnosed with MS in1992 . I was in remission 1995, until about 2021 when...

Renms-1950

•8 days ago

9 Replies

new symptoms

I’m 42 and was diagnosed with RRMS on 4/6/22. I started Kesimpta in June 2022. I guess 2 years is good. But I think I’m experiencing a relapse now. I have had...

I’m 42 and was diagnosed with RRMS on 4/6/22. I started Kesimpta in June 2022. I...

KissMyGrits

•8 days ago

7 Replies

hello there

Well let me try this again. My name is Gabi, I’ve had MS for most of my adult life. I love my family and I’m fortunate to live right next to them. My daughter...

Well let me try this again. My name is Gabi, I’ve had MS for most of my adult li...

HeilbronnerMaedel

•8 days ago

25 Replies

Hello there

Me name is Gabi and I’ve had to MS for most of my childhood. I’ve had

HeilbronnerMaedel

•8 days ago

4 Replies

Kesimpta and IVIG?

I have had many infections over the last 4 months. I have been on Kesimpta for 2years. Anyone else have that problem? Any luck with immuno therapy?...

I have had many infections over the last 4 months. I have been on Kesimpta for 2...

pihokken

•8 days ago

7 Replies

Fatigued!

I'm new here. Just wanted to see if anyone else feels how I do: Everyday I plan to be more productive. I just get so tired! I try to eat well, exercise as much...

I'm new here. Just wanted to see if anyone else feels how I do: Everyday I plan ...

drumbugg

•8 days ago

26 Replies

Age and therapies

Several years ago, when I turned 70, my neurologist took me off Ocrevus due to my age. I was doing good on it with no side effects except a migraine right...

Several years ago, when I turned 70, my neurologist took me off Ocrevus due to m...

Mom4JS

•8 days ago

19 Replies

Driving

Has anyoine ever had their car modified for hand controls for braking and accellerating? How much was the cost?

Has anyoine ever had their car modified for hand controls for braking and accell...

whwiechm

•8 days ago

13 Replies

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Posts - My MSAA Community | HealthUnlocked

My MSAA Community

Maybe PPMS?

Motivation for my doctor

Rainy dreary day today 🌧️

Heartfelt Aaron Boster video on how to avoid losing money to scammers, plus tips to avoid identity theft and cyber crime.

This week has been rough! Introducing...

MS, age, or both?😂

Go Philly - Stronger Than MS Walk 2024!

recently diagnosed

H.O.P.E. Bracelet

Fight On!

CD20 Therapies (Ocrevus, Kesimpta, etc.) and potentially serious dental problems

Foot drop

Good Morning gang members it’s a little chilly and had couple inches of snow ❄️

As if MS wasn't enough, I have osteoporosis

DBS operation

Home from Neuro

Lynnie THE BikerChick is back

Good chilly May morning 🥶

MS with normal MRI

Thankful for another day!

DMT's

New to the community

Renee

new symptoms

hello there

Hello there

Kesimpta and IVIG?

Fatigued!

Age and therapies

Driving

Search posts

Pinned Posts

Latest poll

Have you ever attended a webinar hosted by MSAA?

Topics

Archive