Renee : I was diagnosed with MS in199... - My MSAA Community

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Renee

Renms-1950 profile image
9 Replies

I was diagnosed with MS in1992 . I was in remission 1995, until about 2021 when I had symptoms which were worse than the first time. I have loss the use of my right hand and my balance is very poor . My symptoms have gotten progressively worse

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Renms-1950 profile image
Renms-1950
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9 Replies
CatsandCars profile image
CatsandCars

I'm so sorry you're having worse symptoms, but I'm glad you're here! This is a great group and you'll find a lot of support here. Best wishes to you.

sashaming1 profile image
sashaming1

There may be a MS med out there that could help you. Maybe a MRI or a Spinal Tap could see something. Do you see a Neurologist?

mrsmike9 profile image
mrsmike9

Are you on any meds for it? Is your neuro a specialist in MS?

Tazmanian profile image
Tazmanian

Please talk to your neurologist he can help you with medication to control your symptoms

Renms-1950 profile image
Renms-1950

I have been seeing a neurologist who specializes in MS. I have had a recent MRI. I cannot see th e Dr until July .I wonder if there is any new treatment for secondary progressive MS.

Greentime profile image
Greentime

Welcome! My neurologist recently told me that docs are pressing drug companies to focus on treatments for secondary progressive. Apparently there are drugs for a combo of relapsing and progressive, but not progressive alone. Fingers crossed something is offered soon. Good luck to you.

Mollyabigail profile image
Mollyabigail

Welcome, Renms! I understand about progressive symptoms. A friend told me this morning she pushes a basket thru stores, after 'making' herself get out of the house. I need to start pushing myself more too.Do you see an MS specialist? Hubs has prostate cancer & having to travel across 2 states to get treatment. I need to travel 1 state over in the opposite direction to see a specialist. Don't give up! I'm 63 & frustrated too, but let's not give up!!

carolek572 profile image
carolek572CommunityAmbassador

Welcome to the forum, Renms-1950 , and I am happy to have you here. I am sad to hear that your ‘ms’ is rearing its ugly head! I emphasize with you. Please visit mymsaa.org for resources that may help you. I look forward to hearing more from you, mon amie. Keep Smiling! :-D

Mollyabigail profile image
Mollyabigail

I forgot to say - the MS friend who pushes herself to walk through stores says her balance and her walking have greatly improved since she started. I am rural, so large stores are not just around a corner for me to utilize!! Seriously considering a small, no frills treadmill. But it has to have side rails to hang on! Falling is no fun!

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