Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,050 members • 4,597 posts

All posts for September 2017

Twitches

Ive got ataxia and neuropathy and my limbs have suddenly started massively twitching

Ive got ataxia and neuropathy and my limbs have suddenly started massively twitc...

Guyb

•7 years ago

7 Replies

Ataxia with involuntary eye movements.

I have involuntary eye movements, have tried wearing glasses and it helps a bit especially when im reading i feel i can see more closely but doesn't help as...

I have involuntary eye movements, have tried wearing glasses and it helps a bit ...

Regina75

•7 years ago

12 Replies

Re applying for your pip

Hi everyone Firstly sorry about my spelling Does anyone know if they were ever or have been turned down for reapplying for their pip as my one is due to...

Hi everyone Firstly sorry about my spelling Does anyone know if they were ever...

Art69

•7 years ago

16 Replies

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Out for a walk

Hi, today I went out for the first time (had to, no choice :) ) in a few weeks, travelling by bus, train and walking. In total spent about 2 hours just walking...

Hi, today I went out for the first time (had to, no choice :) ) in a few weeks, ...

Capricorn9157

•7 years ago

22 Replies

holiday

just been on holiday to corfu the apartments are wheelchair friendly, and i used my portable handrails in the bathroom, wso managed quite well, used the road...

just been on holiday to corfu the apartments are wheelchair friendly, and i used...

xray25

•7 years ago

11 Replies

Sleep and tiredness

Hi. Over the last few months I have found I am weary and tired all the time. My sleep patterns are haywire, some days sleeping for a couple of hours and other...

Hi. Over the last few months I have found I am weary and tired all the time. My ...

Capricorn9157

•7 years ago

9 Replies

Appetite

hi all, I think this prob has nothing at all to do with ataxia, but just in case I thought I'd see if anymore else has experienced the same problem. About 3...

hi all, I think this prob has nothing at all to do with ataxia, but just in cas...

wibblywobbly

•7 years ago

9 Replies

Electric wheelchair donation

Dear all, Our Helpline & Membership Officer here at Ataxia UK has been in touch with a Friend of the charity, Bill, who would like to donate his electric...

Dear all, Our Helpline & Membership Officer here at Ataxia UK has been in touch...

SMarley

•7 years ago

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Paraclimbing

https://www.facebook.com/claudiu.miu/videos/10154927748507876/ I know this video is not ataxia related, but so impressive I felt I must share

https://www.facebook.com/claudiu.miu/videos/10154927748507876/ I know this video...

Alex100

•7 years ago

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Drugs Vs Ataxia

Hello, I'm new here.... I have cerebellar ataxia Just wanted to ask people about drugs, is Cannabis and Ecstasy forbidden for me? If 'Gabapentin' and 'Lyrica'...

Hello, I'm new here.... I have cerebellar ataxia Just wanted to ask people about...

Satkus

•7 years ago

8 Replies

Wanna connect?

Hi I'm Sam, 39 from Bournemouth UK. I had a Brain Tumour removed at 4 with complications, hydrocephalus (I've got a VP shunt put in at 6, revised at 19 and...

Hi I'm Sam, 39 from Bournemouth UK. I had a Brain Tumour removed at 4 with compl...

Hidden

•7 years ago

10 Replies

Vitamin B

I am posting this information because as a patient with ataxia, I know how hopeless it feels at times and so even a glimmer of hope is better than none, BUT it...

I am posting this information because as a patient with ataxia, I know how hopel...

sunvox

•7 years ago

3 Replies

Ataxia Pancytopaenia

My consultants think I have Ataxia Pancytopaenia and I was just wondering if anyone else had this diagnosis

My consultants think I have Ataxia Pancytopaenia and I was just wondering if any...

hab29

•7 years ago

6 Replies

Jewish New Year

Just wanted to wish you a blessed year. Better health, weather, peace on Earth. May we all be inscribed in the ataxia free Book of Life Shana Tova.N

Just wanted to wish you a blessed year. Better health, weather, peace on Earth. ...

neta

•7 years ago

10 Replies

Hubby with ataxia

Hi my husband was diagnosed with cerebellar atrophy 8 yrs ago he was then 55yrs he's been in a wheelchair for the past 5 yrs and has deteriorated a lot. He...

Hi my husband was diagnosed with cerebellar atrophy 8 yrs ago he was then 55yrs ...

Dishy

•7 years ago

5 Replies

Labrinthitus

Hi guys I have Been suffering since June and have been on betahistine 3 times a day but had nausea just recently I have discovered bio concept ginger capsules...

Hi guys I have Been suffering since June and have been on betahistine 3 times a ...

Miche123

•7 years ago

4 Replies

SCA7 - AMD wet or dry?

I have macular degeneration as a result of having SCA7 - but I don't know if it is the wet or dry kind. Does anyone know which type SCA7 leads to? Thanks...

I have macular degeneration as a result of having SCA7 - but I don't know if it ...

patriciagrant

•7 years ago

6 Replies

Trelahose?

What happened to our trelahose discussion and Joe?

neta

•7 years ago

8 Replies

If you are new some resources for you

I am 50 yrs old from Orlando, 4th generation in SCA3 family , my daughter 5th generation has it. http://www.sunnyprom.com/sca3/ http://walkingwithataxia.com/...

I am 50 yrs old from Orlando, 4th generation in SCA3 family , my daughter 5th ge...

Sunny8088

•7 years ago

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Feeling very supported

Dear All I can't tell you how chuffed I am to have received so many responses. It has made me realise how beneficial it is belonging to a forum like this and...

Dear All I can't tell you how chuffed I am to have received so many responses. I...

Thomaslondon

•7 years ago

7 Replies

Hi everyone

Hi my name is Ashlee im 30 years old. My grandfather had sca3 and pasted it down to my uncle and my mother. My uncle just passed away at the age of 62 and my...

Hi my name is Ashlee im 30 years old. My grandfather had sca3 and pasted it down...

Ashleelouise30

•7 years ago

11 Replies

Introducing myself

Hi my name is Maria and my husband has been living with cerebellar ataxia for the past 10 years. It was late onset diagnosis but he is still only 55. The...

Hi my name is Maria and my husband has been living with cerebellar ataxia for th...

Thomaslondon

•7 years ago

28 Replies

New Zealand calling

Hello from New Zealand, After original diagnosis when I was in my twenties (I am now 78yrs old) have recently had genetic testing. My defective gene was...

Hello from New Zealand, After original diagnosis when I was in my twenties (I am...

icdowsettNZ

•7 years ago

4 Replies

Antidepressants

can anyone tell me which antidepressants they're taking please. I really need to go on some again. I took paradoxetine before, but I weaned myself off them...

can anyone tell me which antidepressants they're taking please. I really need t...

wibblywobbly

•7 years ago

16 Replies

Ataxia in children

Hi all new to this first post. Just learning about this condition my child has been diagnosed with it, she's only 5. Any advise will be appericiated

Hi all new to this first post. Just learning about this condition my child has b...

westbank26

•7 years ago

8 Replies

Difference between ataxia and ataxic gait?

Can anyone explain the difference between having ataxia and having an ataxic gait? Thanks

Can anyone explain the difference between having ataxia and having an ataxic gai...

rankin1st

•7 years ago

18 Replies

Long wait after wheelchair referral by GP

At the end of June my GP referred me to my local Wheelchair Service at the local Community Hospital after a deterioration in safe mobility. I was given an...

At the end of June my GP referred me to my local Wheelchair Service at the local...

Poweruser

•7 years ago

12 Replies

Acute Dizziness

As with other contributors, I apologise if this question has been posed elsewhere. I have acute dizziness that accompanies my tremors and jerkiness. Does...

As with other contributors, I apologise if this question has been posed elsewher...

Judepa

•7 years ago

5 Replies

Update On Confused and Driving Assessment

Hi Everyone. This is just an update for people who replied to my previous posts regarding being confused about a diagnosis and on how my friend coped with his...

Hi Everyone. This is just an update for people who replied to my previous posts...

sammie62king

•7 years ago

2 Replies

SCA6 Tremors in hands

Hello, I apologize if this has been asked before but I have not found anything in previous posts that apply to me. The tremor in my hands I believe is...

Hello, I apologize if this has been asked before but I have not found anything i...

SharonPS

•7 years ago

17 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for September 2017

Twitches

Ataxia with involuntary eye movements.

Re applying for your pip

Out for a walk

holiday

Sleep and tiredness

Appetite

Electric wheelchair donation

Paraclimbing

Drugs Vs Ataxia

Wanna connect?

Vitamin B

Ataxia Pancytopaenia

Jewish New Year

Hubby with ataxia

Labrinthitus

SCA7 - AMD wet or dry?

Trelahose?

If you are new some resources for you

Feeling very supported

Hi everyone

Introducing myself

New Zealand calling

Antidepressants

Ataxia in children

Difference between ataxia and ataxic gait?

Long wait after wheelchair referral by GP

Acute Dizziness

Update On Confused and Driving Assessment

SCA6 Tremors in hands

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive