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Hello again Hope everyone doing well 😊 I posted on here a few weeks back as my husband was going through tests as part of the work up for liver transplant. We had our Assessment in Kings last week and flew back to Belfast on Wednesday, we got the call on Friday to say he has been put on the list!!!
Hello again Hope everyone doing well 😊 I posted on here a few weeks back as my husband was going through tests as part of the work up for liver transplant. We had our Assessment in Kings last week and flew back to Belfast on Wednesday, we got the call on Friday to say he has been put on the list!!!
Dannythedog
in
British Liver Trust
5 years ago
What symptoms did you have from having CMV virus?
My spouse had his kidney transplant 9 months ago and for 7 months still has low iron stores and hemoglobin. Last week new issue of UTI (he does not feel symptoms) and also CVM is at 13,000 count in blood work. I am not sure if 13,000 is super bad or what to think. If you had CMV before, and I know it
My spouse had his kidney transplant 9 months ago and for 7 months still has low iron stores and hemoglobin. Last week new issue of UTI (he does not feel symptoms) and also CVM is at 13,000 count in blood work. I am not sure if 13,000 is super bad or what to think. If you had CMV before, and I know it
Gardner-NY
in
Kidney Transplant
5 years ago
Liver transplant one month in
Hi all just a quick update. Jason doing great. Just over one month in. He was out of hospital after 9 days. Bloods and liver function have been told is perfect. He’s a new man. Breathing good. He’s sleeping well now. We so thank the liver donor for this second chance in life. Never thought it
Hi all just a quick update. Jason doing great. Just over one month in. He was out of hospital after 9 days. Bloods and liver function have been told is perfect. He’s a new man. Breathing good. He’s sleeping well now. We so thank the liver donor for this second chance in life. Never thought it
Whitelock
in
British Liver Trust
5 years ago
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LIVING LIFE
Just wanted to share some pictures of one of the most fantastic places in the US! My daughter and her husband joined for a week in Glacier National Park, MT - one of the most beautiful places! We have been coming here since the '80's when my husband was active duty Air Force and stationed in Montana
Just wanted to share some pictures of one of the most fantastic places in the US! My daughter and her husband joined for a week in Glacier National Park, MT - one of the most beautiful places! We have been coming here since the '80's when my husband was active duty Air Force and stationed in Montana
WYOAnne
NKF Ambassador
in
Kidney Transplant
5 years ago
Help
Hi I feel terrible and guilty. I had a streeful couple of days I had a kidney transplant last year I had a few cigarettes yesterday. I ha e not had any since Can I get advice. I am depressed
Hi I feel terrible and guilty. I had a streeful couple of days I had a kidney transplant last year I had a few cigarettes yesterday. I ha e not had any since Can I get advice. I am depressed
Roadrunner1954
in
Kidney Transplant Patient Support
5 years ago
Hydronephrosis
Happy to be member of kidney tranplant i am year post kidney transplant and yesterday i just did for follow up ultrasound i discover i got mild hydronephrosis also i feel some leakage anyone who find that also thanks
Happy to be member of kidney tranplant i am year post kidney transplant and yesterday i just did for follow up ultrasound i discover i got mild hydronephrosis also i feel some leakage anyone who find that also thanks
Lusha19
in
Kidney Transplant
5 years ago
Transplant survival rate India VS US
Why is Kidney transplant survival low in India than in US? In India, only 5 to 10 yrs have been observed for a successful transplant but 15 to 20 yrs is common in US. My transplant failed in just 3 yrs, though it was a related live donor.
Why is Kidney transplant survival low in India than in US? In India, only 5 to 10 yrs have been observed for a successful transplant but 15 to 20 yrs is common in US. My transplant failed in just 3 yrs, though it was a related live donor.
ashok5085
in
Kidney Disease
5 years ago
Transplant Recovery Equated to One Year on Chemotherapy?
One of our contributors on HealthUnlocked was told, in her evaluation for transplant by the Hospital Transplant Team, that the first year of recovering from a kidney transplant was similar to that of being on chemotherapy for a year. I have NEVER been told that -- not by my Transplant Team, PD Dialysis
One of our contributors on HealthUnlocked was told, in her evaluation for transplant by the Hospital Transplant Team, that the first year of recovering from a kidney transplant was similar to that of being on chemotherapy for a year. I have NEVER been told that -- not by my Transplant Team, PD Dialysis
TaffyTwoshoes27
in
Kidney Dialysis
5 years ago
Lung Transplant Update
Hi Everyone... I wanted to share with you an update on my mums transplant listing 2 weeks ago we were devastated to be placed on hold on the list after Papworth team determined that my mother was too weak for surgery during review, yesterday we feared the worst but actually they placed mum back on the
Hi Everyone... I wanted to share with you an update on my mums transplant listing 2 weeks ago we were devastated to be placed on hold on the list after Papworth team determined that my mother was too weak for surgery during review, yesterday we feared the worst but actually they placed mum back on the
Queenbean
in
Lung Conditions Community Forum
5 years ago
Adoport
New to group. Have had liver transplant 6 years ago due to hep c through contaminated blood transfusion. Prograf used for immune suppressant but now been told I’ve to change to Adoport to save money. Cannot find any real info on adoport which is new product offered. I got hep c because government wanted
New to group. Have had liver transplant 6 years ago due to hep c through contaminated blood transfusion. Prograf used for immune suppressant but now been told I’ve to change to Adoport to save money. Cannot find any real info on adoport which is new product offered. I got hep c because government wanted
Tourguide
in
British Liver Trust
5 years ago
Survival With Sirolimus Plus Tacrolimus Maintenance Without Induction Therapy Compared With Standard Immunosuppression After Lung Transplant
Question Which immunosuppressive strategy is associated with the highest survival in lung transplantation? Findings In this cohort study of US recipients of lung transplants, sirolimus plus tacrolimus was associated with significantly better conditional survival from 1 year after transplant compared
Question Which immunosuppressive strategy is associated with the highest survival in lung transplantation? Findings In this cohort study of US recipients of lung transplants, sirolimus plus tacrolimus was associated with significantly better conditional survival from 1 year after transplant compared
2greys
in
Lung Conditions Community Forum
5 years ago
Today’s WSJ essay on the abject failure of medical science’s progress in dealing with this family of diseases and what must change.
An apparent extension of a highly recommended book that I had read some 8 plus years ago,,,”The Emperor of All Maladies”,,,Now a Ken Burns PBS documentary. The thrust of both books being that intensive treatment of the vast majority of cancers has for many years(4,000 in the case of “The Emperor of
An apparent extension of a highly recommended book that I had read some 8 plus years ago,,,”The Emperor of All Maladies”,,,Now a Ken Burns PBS documentary. The thrust of both books being that intensive treatment of the vast majority of cancers has for many years(4,000 in the case of “The Emperor of
Sxrxrnr1
in
Advanced Prostate Cancer
5 years ago
World Transplant Games 2019
I think a lot of people where quite surprised by the success of the World Transplant Games this year. It’s a shame there wasn’t more media coverage for this most wonderful event. There were some really ore inspiring stories, and I believe some people were drawn to tears by the sharing of these. I was
I think a lot of people where quite surprised by the success of the World Transplant Games this year. It’s a shame there wasn’t more media coverage for this most wonderful event. There were some really ore inspiring stories, and I believe some people were drawn to tears by the sharing of these. I was
Hidden
in
British Liver Trust
5 years ago
Update on my hubs
Hi all a few weeks ago. I wrote in here saying how my husband was in Icu, he pulled through and his now at the Qe being test to see if he's suitable to have a liver transplant. So I have everything crossed.
Hi all a few weeks ago. I wrote in here saying how my husband was in Icu, he pulled through and his now at the Qe being test to see if he's suitable to have a liver transplant. So I have everything crossed.
Linkinpark
in
British Liver Trust
5 years ago
New to the community
Hi all. I'm post liver transplant and have been writing for british liver trust website. I've faced lots and lots of complications with big effects to my physical and mental health. It's had a big impact on my life. I've been looking for help. I've even thought about palliative residential respite
Hi all. I'm post liver transplant and have been writing for british liver trust website. I've faced lots and lots of complications with big effects to my physical and mental health. It's had a big impact on my life. I've been looking for help. I've even thought about palliative residential respite
welshgareth
in
British Liver Trust
5 years ago
My sister
My sister is having a kidney transplant next Friday...oddly enough the donor is her husband...what is the best thing I can do for her or bring her?
My sister is having a kidney transplant next Friday...oddly enough the donor is her husband...what is the best thing I can do for her or bring her?
PoppyMott
in
Kidney Transplant
5 years ago
Side ache and naseau
I had my kidney transplant 18 months ago. It is on my left side. I have always experienced uncomfortable pressure on the transplant site. I understand this. However, I also experience considerable pain on both sides of my abdomen usually waking me up at night or early morning. Ironically, the ache is
I had my kidney transplant 18 months ago. It is on my left side. I have always experienced uncomfortable pressure on the transplant site. I understand this. However, I also experience considerable pain on both sides of my abdomen usually waking me up at night or early morning. Ironically, the ache is
Kernick
in
Kidney Transplant Patient Support
5 years ago
severe coronary arterial calcification
I am 1 year and 10 months post kidney transplant from a live donor. Last week I had 2 CT scans due to my ongoing bouts of excessive sweating and bouts of fatigue. The results came back normal except for one. This one stated that I had severe coronary arterial calcification. My blood work has always been
I am 1 year and 10 months post kidney transplant from a live donor. Last week I had 2 CT scans due to my ongoing bouts of excessive sweating and bouts of fatigue. The results came back normal except for one. This one stated that I had severe coronary arterial calcification. My blood work has always been
kidneytransplan
in
Kidney Transplant Patient Support
5 years ago
Incisional Hernia Experiences
Hello I had my liver transplant on the 15th August 2017 and a few months later started feeling a bit of pain on my right side and also a lump started to appear. This was identified as an incisional hernia and it became very large. It was repaired on the 23rd March this year but unfortunately I had a
Hello I had my liver transplant on the 15th August 2017 and a few months later started feeling a bit of pain on my right side and also a lump started to appear. This was identified as an incisional hernia and it became very large. It was repaired on the 23rd March this year but unfortunately I had a
AndyEssex
in
British Liver Trust
5 years ago
Stem cell transplant for Myelofibrosis
After 12 years with PV and then 2 years with MF I explained in a letter to my consultant that were the decision to have a transplant entirely mine it is what I would wish for. I'd been on Jakavi for a year and it had ceased to help. I then went onto the Pacritinib trial which curtailed night sweats
After 12 years with PV and then 2 years with MF I explained in a letter to my consultant that were the decision to have a transplant entirely mine it is what I would wish for. I'd been on Jakavi for a year and it had ceased to help. I then went onto the Pacritinib trial which curtailed night sweats
Dodders
in
MPN Voice
5 years ago
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