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Autologous stem cell transplant
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What I wish I had known about liver disease
My name is Rosemary and I am the wife of the FLF founder, Wayne Eskridge, who is an improving NASH/Cirrhosis patient. From 2010 to 2015, we were on a roller coaster ride, the type where you slowly get pulled up higher and higher, only to drop back down at stomach-turning speeds. Unfortunately, I hate
My name is Rosemary and I am the wife of the FLF founder, Wayne Eskridge, who is an improving NASH/Cirrhosis patient. From 2010 to 2015, we were on a roller coaster ride, the type where you slowly get pulled up higher and higher, only to drop back down at stomach-turning speeds. Unfortunately, I hate
nash2
Partner
in
Living with Fatty Liver and NASH
6 years ago
New system for allocating livers for transplant
From the British Liver Trust website. This should be of interest to all who may be a liver transplant candidate now or in the future. Jim https://www.britishlivertrust.org.uk/new-system-liver-transplant/
From the British Liver Trust website. This should be of interest to all who may be a liver transplant candidate now or in the future. Jim https://www.britishlivertrust.org.uk/new-system-liver-transplant/
LAJ123
in
British Liver Trust
6 years ago
Interesting Read.....I'm going to give Raw eating a try. What can it hurt?
Below is an article I found by googling "PBC and eating Raw." Also... I am not advocating anyone going off their medication. Anything anyone tries should first be run by your own medical professional. This is simply an article I came across and thought it was interesting enough to share. ❤ (Start)
Below is an article I found by googling "PBC and eating Raw." Also... I am not advocating anyone going off their medication. Anything anyone tries should first be run by your own medical professional. This is simply an article I came across and thought it was interesting enough to share. ❤ (Start)
Ktltel
in
PBC Foundation
6 years ago
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High GGT post treatment for Acute Myeloid Leukaemia
Hi I have a GGT reading of 900. It has been rising steadily since a successful stem cell transplant in August. I drink very little and am only a bit overweight. My disease is in remission but am still not feeling well. Many of my symptoms - nausea, fatigue and loss of appetite could be caused by liver
Hi I have a GGT reading of 900. It has been rising steadily since a successful stem cell transplant in August. I drink very little and am only a bit overweight. My disease is in remission but am still not feeling well. Many of my symptoms - nausea, fatigue and loss of appetite could be caused by liver
Hidden
in
British Liver Trust
6 years ago
reducing
haven,t posted for long time, but been reading some of your reduction plans, i started at 40 mg, oct 2016, got down to 10 mg last spring, when i told my rheumy in august last yr about my 49 yr son diagnosed , with cancer, multiple myeloma, and that he would be having a stem cell transplant in januar
haven,t posted for long time, but been reading some of your reduction plans, i started at 40 mg, oct 2016, got down to 10 mg last spring, when i told my rheumy in august last yr about my 49 yr son diagnosed , with cancer, multiple myeloma, and that he would be having a stem cell transplant in januar
arvine
in
PMRGCAuk
6 years ago
Getting the phone call today
Hi everyone today I find out whether I'm on the list for liver transplant and I'm.do nervous. Scared of the operation and scared if I don't The assessment went really well at Addenbrook Hospital. I'm 43yrs old single parent my son is 7.
Hi everyone today I find out whether I'm on the list for liver transplant and I'm.do nervous. Scared of the operation and scared if I don't The assessment went really well at Addenbrook Hospital. I'm 43yrs old single parent my son is 7.
Hidden
in
British Liver Trust
6 years ago
CALR Type 1 & 2 Have Contrasting OS Outcomes
Hey everyone, As an update, since my last post (ASXL1 Mutation Detected), I recently came across some very useful articles concerning the CALR mutations & ASXL1 and their ability to be included as Prognostically significant, and naturally wanted to share those findings hopefully to the benefit of others
Hey everyone, As an update, since my last post (ASXL1 Mutation Detected), I recently came across some very useful articles concerning the CALR mutations & ASXL1 and their ability to be included as Prognostically significant, and naturally wanted to share those findings hopefully to the benefit of others
socrates_8
in
MPN Voice
6 years ago
Can someone give me some advice.
I got on this forum because of my niece. She is the one that has the kidneys failing. She is in the hospital and just started dialysis. The dialysis is not cleaning her blood. They want to do a blood transfusion. The question is will this change the results of a kidney transplant, will the new kidney
I got on this forum because of my niece. She is the one that has the kidneys failing. She is in the hospital and just started dialysis. The dialysis is not cleaning her blood. They want to do a blood transfusion. The question is will this change the results of a kidney transplant, will the new kidney
Garianne
in
Dialysis Support
6 years ago
Hello Everyone
Hello members, my name is Justin Iorii a double kidney transplant patient and a dialysis survivor. If anyone has any questions or concerns on dialysis, pre-transplant, post-transplant, exercise or diet please message me, otherwise I will be on the look out for your posts !
Hello members, my name is Justin Iorii a double kidney transplant patient and a dialysis survivor. If anyone has any questions or concerns on dialysis, pre-transplant, post-transplant, exercise or diet please message me, otherwise I will be on the look out for your posts !
justinskidney
Moderator
in
Power2Save Transplant Community
6 years ago
Strength in numbers
A couple of weeks ago I visited the BLF Direct Helpline team up in Liverpool as part of my induction training after joining the BLF in December. I was enormously impressed by everything that I saw and what struck me the most was just how passionate, friendly and hard-working the whole team are. Their
A couple of weeks ago I visited the BLF Direct Helpline team up in Liverpool as part of my induction training after joining the BLF in December. I was enormously impressed by everything that I saw and what struck me the most was just how passionate, friendly and hard-working the whole team are. Their
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
6 years ago
The History of BMT
BMTInfonet’s video on the history of bone marrow and stem cell transplant. I have always been aware of the Anthony Nolan registry but never knew just what a profound impact it had worldwide. https://www.bmtinfonet.org/transplant-article/what-blood-stem-cell-transplant
BMTInfonet’s video on the history of bone marrow and stem cell transplant. I have always been aware of the Anthony Nolan registry but never knew just what a profound impact it had worldwide. https://www.bmtinfonet.org/transplant-article/what-blood-stem-cell-transplant
MFBMT2011
in
MPN Voice
6 years ago
Myelofibrosis & Yransplant Symposium
Currently in Denver where Lesley, my better half, and I attended a two day Bone Marrow Transplant Symposium and met fellow survivors. Have pasted my MPNForum Facebook post here to share. Day one at the BMTinfonet symposium in Denver. A couple of hundred present but the Myelofibrosis break out group
Currently in Denver where Lesley, my better half, and I attended a two day Bone Marrow Transplant Symposium and met fellow survivors. Have pasted my MPNForum Facebook post here to share. Day one at the BMTinfonet symposium in Denver. A couple of hundred present but the Myelofibrosis break out group
MFBMT2011
in
MPN Voice
6 years ago
Worried :( Esmya
I’ve currently been taking Esmya to shrink my fibroid. I’m down to my last weeks worth after 3 months. I’ve just read online that it’s been recalled in the uk due to causing liver damage. That women are meant to be called back monthly for a liver function test ‘ this is the first I’ve heard. No one has
I’ve currently been taking Esmya to shrink my fibroid. I’m down to my last weeks worth after 3 months. I’ve just read online that it’s been recalled in the uk due to causing liver damage. That women are meant to be called back monthly for a liver function test ‘ this is the first I’ve heard. No one has
ICSIBaby86
in
Fertility Network UK
6 years ago
Liver transplant waiting times.
My husband has NASH and HCC. His first liver tumour was treated by RFA. Now he has another one and he has just had TACE treatment and may still need ablation too. Although not assessed for a liver transplant, we've been asking how long the wait is. We're being told three years, is that a normal wait?
My husband has NASH and HCC. His first liver tumour was treated by RFA. Now he has another one and he has just had TACE treatment and may still need ablation too. Although not assessed for a liver transplant, we've been asking how long the wait is. We're being told three years, is that a normal wait?
Remainer
in
British Liver Trust
6 years ago
PIP Claim quesiton
Me again.... So, my “Ernie the Hernia” is causing me soooo much pain (not enough for A&E) but it’s 24/7 now with things it’s restricting me from doing. I’m not moaning as I’m blessed and lucky that my new liver is functioning perfectly. I can’t even grate cheese anymore, lift anything heavy out the
Me again.... So, my “Ernie the Hernia” is causing me soooo much pain (not enough for A&E) but it’s 24/7 now with things it’s restricting me from doing. I’m not moaning as I’m blessed and lucky that my new liver is functioning perfectly. I can’t even grate cheese anymore, lift anything heavy out the
nickiwj
in
British Liver Trust
6 years ago
Pre Assessment question
Hi everyone, I hope your all doing well. As mentioned in my previous post, I have my pre assessment on Tuesday for my incisional hernia operation. Saw Surgeons in February and confirmed my hernia was around 8cm x 8cm and it has got even bigger since then!!! I obvs had the 3 day assessments for my
Hi everyone, I hope your all doing well. As mentioned in my previous post, I have my pre assessment on Tuesday for my incisional hernia operation. Saw Surgeons in February and confirmed my hernia was around 8cm x 8cm and it has got even bigger since then!!! I obvs had the 3 day assessments for my
nickiwj
in
British Liver Trust
6 years ago
Pregnant with DE and now another Missed Miscarriage 😢
I've not posted on here for a while, purely out of worry and not wanting to tempt fate and at least try to get past the 7-8 wk mark, but as the post states, I had my first Doner Egg transfer on 23rd Feb of 2x day 6 blasts after convincing the clinic to let me have a more natural cycle which did work
I've not posted on here for a while, purely out of worry and not wanting to tempt fate and at least try to get past the 7-8 wk mark, but as the post states, I had my first Doner Egg transfer on 23rd Feb of 2x day 6 blasts after convincing the clinic to let me have a more natural cycle which did work
baby2016
in
Fertility Network UK
6 years ago
Chickenpox and immunosuppression
Hi just after some advice regarding chickenpox and immunosuppression. My partner is on immunosuppressants after a kidney transplant. I've read it's dangerous for anyone to be around chickenpox if they are immunosuppressed. My nephew has chickenpox at the moment and there is a family meal arranged for
Hi just after some advice regarding chickenpox and immunosuppression. My partner is on immunosuppressants after a kidney transplant. I've read it's dangerous for anyone to be around chickenpox if they are immunosuppressed. My nephew has chickenpox at the moment and there is a family meal arranged for
bluesgirl37
in
Headway
6 years ago
Transplant Viability
I started showing visible signs of AMN when I was 21 and am currently experiencing a constant, stiff aching pain in my legs from mid thigh down. I was diagnosed last year and the amount of study into my condition by the various health care teams has been admirable. Before the disease started having a
I started showing visible signs of AMN when I was 21 and am currently experiencing a constant, stiff aching pain in my legs from mid thigh down. I was diagnosed last year and the amount of study into my condition by the various health care teams has been admirable. Before the disease started having a
Laird_Mac
in
AMN EASIER
6 years ago
Compensated liver - cirrhosis symptoms 15 months post diagnosis
Hi I'm just after some advice - I was diagnosed with cirrhosis in November 2016 my liver was decompensated upon admission, i had spider novei on my chest (apologies if i've spelt that incorrectly), jaundiced eyes and portal hypertension I did not have ascites but I was put on spirolactone (100mg initially
Hi I'm just after some advice - I was diagnosed with cirrhosis in November 2016 my liver was decompensated upon admission, i had spider novei on my chest (apologies if i've spelt that incorrectly), jaundiced eyes and portal hypertension I did not have ascites but I was put on spirolactone (100mg initially
Nyork10
in
British Liver Trust
6 years ago
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