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A update on treatment/ and more.
I went for number two of a short three BCG course for my BC. The liquid BCG is inserted into bladder from a huge syringe into a catheter. A student nurse was present and my Urology Nurse a=said to het I had Muscle Invasive Bladder Cancer. news to me, I said and don't know why - I will now
I went for number two of a short three BCG course for my BC. The liquid BCG is inserted into bladder from a huge syringe into a catheter. A student nurse was present and my Urology Nurse a=said to het I had Muscle Invasive Bladder Cancer. news to me, I said and don't know why - I will now
Ern007
in
Lung Conditions Community Forum
10 months ago
Terrified I have PBC
hi, I saw a consultant today as was told my bloods flagged for an autoimmune disease marker which I now know to be AMA positive, I only know this as all the urgent blood test forms I have for Tommorrow state I tested positive for this. i have looked up all the blood tests and most are liver related
hi, I saw a consultant today as was told my bloods flagged for an autoimmune disease marker which I now know to be AMA positive, I only know this as all the urgent blood test forms I have for Tommorrow state I tested positive for this. i have looked up all the blood tests and most are liver related
Kelpop1
in
PBC Foundation
10 months ago
2 years post-thyroidectomy - Struggling with Tirosint and finding the right dose
Hi, To make a long storyshort, after a sever hyperthyroidism and toxic goiter, I got my thyroid removed 2 years ago. I started with Levothyroxine - 88mg , went to hypo so my doctor increased it to 4x100mg 3x88mg. I then went to hyper in less than 2 weeks during 2 months. As I also experience very
Hi, To make a long storyshort, after a sever hyperthyroidism and toxic goiter, I got my thyroid removed 2 years ago. I started with Levothyroxine - 88mg , went to hypo so my doctor increased it to 4x100mg 3x88mg. I then went to hyper in less than 2 weeks during 2 months. As I also experience very
Sophie4506
in
Thyroid UK
10 months ago
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Hydroxychloroquine
Hi, I have Sjogrens disease and the Hydroxychloroquine really helps me. It has been like a miracle drug for me actually. My immune system is very strong. I haven’t had a any problems with it. It has definitely helped with my raynauds and my stiffness in my hands and fingers as well.
Hi, I have Sjogrens disease and the Hydroxychloroquine really helps me. It has been like a miracle drug for me actually. My immune system is very strong. I haven’t had a any problems with it. It has definitely helped with my raynauds and my stiffness in my hands and fingers as well.
Juanburr1950
in
Scleroderma & Raynaud's UK (SRUK)
10 months ago
levo with statin
Is it safe for me to use atorvastatin, a statin medication, to lower my cholesterol levels while also taking levothyroxine?
Is it safe for me to use atorvastatin, a statin medication, to lower my cholesterol levels while also taking levothyroxine?
Abdullahdalmar
in
Thyroid UK
10 months ago
FND Symptoms
Hi! I’ve recently been diagnosed with FND by a neurologist and I would be really interested to know if anyone on this forum can relate to my symptoms. I realise that almost any neuro symptom can be attributed to FND, but would be keen to see whether mine match up with anyone else’s. me: Male, 40s
Hi! I’ve recently been diagnosed with FND by a neurologist and I would be really interested to know if anyone on this forum can relate to my symptoms. I realise that almost any neuro symptom can be attributed to FND, but would be keen to see whether mine match up with anyone else’s. me: Male, 40s
MiniChimp
in
Functional Neurological Disorder - FND Hope
10 months ago
Stronger sense of taste on Urso
Has anyone here noticed a stronger sense of taste whilst taking Urso? Specifically sweet and salty tastes seem much stronger since I have been taking them.
Has anyone here noticed a stronger sense of taste whilst taking Urso? Specifically sweet and salty tastes seem much stronger since I have been taking them.
MSJT
in
PBC Foundation
6 months ago
itchy 🤯
Hi everybody. I have an itchy scalp that is driving me mad. My skin itches too and I’m 100% certain it’s a side effect of the Rucaparib I am taking. Can anyone recommend a shampoo that will ease this ? I also suspect my hair is thinning so I don’t want to exacerbate that. I’m also worried about using
Hi everybody. I have an itchy scalp that is driving me mad. My skin itches too and I’m 100% certain it’s a side effect of the Rucaparib I am taking. Can anyone recommend a shampoo that will ease this ? I also suspect my hair is thinning so I don’t want to exacerbate that. I’m also worried about using
JustKBO
in
My Ovacome
10 months ago
Airing Pain 141: Living with Childhood and Young Adult Cancer
Pain Concern is delighted to announce that the second edition of our mini-series on the lasting impact of childhood pain is OUT NOW
Airing Pain 141: Living with Childhood and Young Adult Cancer
This edition of Airing Pain sheds light on the unique challenges of living with cancer as a child
Pain Concern is delighted to announce that the second edition of our mini-series on the lasting impact of childhood pain is OUT NOW
Airing Pain 141: Living with Childhood and Young Adult Cancer
This edition of Airing Pain sheds light on the unique challenges of living with cancer as a child
PainConcernProjects
Pain Concern
in
Pain Concern
6 months ago
Mebeverine
Hi….a nurse practitioner prescribed Mebeverine when I had a flare up of IBS a week or so ago. I take 3 a day of 135g and the pains have stopped. Do I now stop taking the tablets or are they like antibiotics where you finish the pack til they’re all gone? She prescribed 84… Thank you
Hi….a nurse practitioner prescribed Mebeverine when I had a flare up of IBS a week or so ago. I take 3 a day of 135g and the pains have stopped. Do I now stop taking the tablets or are they like antibiotics where you finish the pack til they’re all gone? She prescribed 84… Thank you
Veebucks
in
IBS Network
8 months ago
Serious Dry Eyes
Recently saw my ophthalmologist and I was told I have the worst dry eyes he’s ever seen. I have been using eye drops but now I am seriously using eye drops…Refresh eye drops 6x during the day, prednisone drops 2x a day, gel drops at night, moist heat eye compress 1x a day, new humidifier plus I have
Recently saw my ophthalmologist and I was told I have the worst dry eyes he’s ever seen. I have been using eye drops but now I am seriously using eye drops…Refresh eye drops 6x during the day, prednisone drops 2x a day, gel drops at night, moist heat eye compress 1x a day, new humidifier plus I have
MaryAZ
in
My MSAA Community
10 months ago
Gemzar Side Effects
Does anyone else experience any extreme back pain and/or pain under the breast bone with Gemzar?
Does anyone else experience any extreme back pain and/or pain under the breast bone with Gemzar?
TealBlooms
in
My Ovacome
10 months ago
Finally a specialist appointment...
I am looking forward to an appt in 2 days with a specialist in proctology and she is a colon surgeon and does pelvic floor therapy as well. My hemerrhoids - or whatever this is - are not getting better. Keeping the constipation under control with diet, water, miralax and occasional stool softener.
I am looking forward to an appt in 2 days with a specialist in proctology and she is a colon surgeon and does pelvic floor therapy as well. My hemerrhoids - or whatever this is - are not getting better. Keeping the constipation under control with diet, water, miralax and occasional stool softener.
NewEnglander
in
IBS Network
6 months ago
Haven’t posted for a while 😊
Well I have a a hard time these past couple of months I had my mother in law in and out of hospital she got cancer on one of her kidneys and had removed them in her bladder got that removed and now we are gonna start some type of therapy! As for my mom she has been ok we’re still with a low dose of
Well I have a a hard time these past couple of months I had my mother in law in and out of hospital she got cancer on one of her kidneys and had removed them in her bladder got that removed and now we are gonna start some type of therapy! As for my mom she has been ok we’re still with a low dose of
Eirinik
in
CLL Support
6 months ago
advise required
I am blind in my left eye it has a pressure reading of 36. I am taking Maxidex and azopt which makes my eye sting. I use a heat pad after using the computer which helps . Can I use the heat pad before putting the eye drops in? will this reduce the stinging?
I am blind in my left eye it has a pressure reading of 36. I am taking Maxidex and azopt which makes my eye sting. I use a heat pad after using the computer which helps . Can I use the heat pad before putting the eye drops in? will this reduce the stinging?
Lucydog
in
Glaucoma UK
10 months ago
Ganfort Preservative Free Eye Drop Side Effects
Hi all, Anyone here using Ganfort PF? I tried it one day it’s very effective but my eye red for whole day!🤦🏻♂️🤦🏻♂️🤦🏻♂️🤦🏻♂️ Just to check will the redness go away?😂😂😂
Hi all, Anyone here using Ganfort PF? I tried it one day it’s very effective but my eye red for whole day!🤦🏻♂️🤦🏻♂️🤦🏻♂️🤦🏻♂️ Just to check will the redness go away?😂😂😂
RonOng5267
in
Glaucoma UK
10 months ago
Precancerous polyps removed, new symptoms 8 years later
So 8 years ago I had a colonoscopy due to severe constipation, a backup in my bowels, mucus and slight bleeding. They removed seven polyps, four of which were pre-cancerous, the largest polyp being 7 mm. They told me to be checked again in 4 years which I was, and it came back clear. Lately, I'd say
So 8 years ago I had a colonoscopy due to severe constipation, a backup in my bowels, mucus and slight bleeding. They removed seven polyps, four of which were pre-cancerous, the largest polyp being 7 mm. They told me to be checked again in 4 years which I was, and it came back clear. Lately, I'd say
Incogkneetoe
in
Colon Cancer Connected
6 months ago
Ovarian cancer recurrence
Firstly, hi to anyone who may stumble across my post. Long story short, I was diagnosed with stage 4 ovarian cancer back in 2020. I had an ultra radical debulking surgery in August that year, followed by 6 rounds of carbo/taxol and maintenance via olaparib. I had a CT scan back in August which highlighted
Firstly, hi to anyone who may stumble across my post. Long story short, I was diagnosed with stage 4 ovarian cancer back in 2020. I had an ultra radical debulking surgery in August that year, followed by 6 rounds of carbo/taxol and maintenance via olaparib. I had a CT scan back in August which highlighted
Guitarplayinghobbit
in
My Ovacome
6 months ago
Any advice for gastro symptoms which respond to steroids, but no diagnosis? Does normal colonoscopy cover the small bowel?
hi all, I hope it's ok to post here - I don't have a diagnosis of crohn's or colitis but am looking for information. I'm diagnosed coeliac (6+ years ago) and autoimmune hypothyroid, with ongoing and increasing gastro symptoms - the main problem being that I feel extremely unwell like I've got flu
hi all, I hope it's ok to post here - I don't have a diagnosis of crohn's or colitis but am looking for information. I'm diagnosed coeliac (6+ years ago) and autoimmune hypothyroid, with ongoing and increasing gastro symptoms - the main problem being that I feel extremely unwell like I've got flu
Megaloo
in
Crohn's and Colitis Support
6 months ago
LOADED BOWEL
September I had a bowel impaction and after various doses of laxido and other laxitives plus three trips to A&E still not sorted! Blood test CT scan showed nothing amiss just loaded bowel .I have continued with a maintenace dose of laxido and senna which makes me go most days but still feel like there
September I had a bowel impaction and after various doses of laxido and other laxitives plus three trips to A&E still not sorted! Blood test CT scan showed nothing amiss just loaded bowel .I have continued with a maintenace dose of laxido and senna which makes me go most days but still feel like there
Shopnow1
in
IBS Network
6 months ago
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