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After 25 days back on prednisone...
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Biba5
in
PMRGCAuk
3 months ago
PERIODIC LIMB MOVEMENT DISORDER
I have not shared for a while. I would like to report that I have been taking the iron supplement every other day with orange juice. Also am taking 300 Gabapentin. I did a sleep study last year and it showed that the PLMD is not disturbing my sleep as it is now at a moderate amount. The sleep study
I have not shared for a while. I would like to report that I have been taking the iron supplement every other day with orange juice. Also am taking 300 Gabapentin. I did a sleep study last year and it showed that the PLMD is not disturbing my sleep as it is now at a moderate amount. The sleep study
Maximus01
in
Restless Legs Syndrome
11 months ago
Members' Day talk on steroid side-effects in PMR and GCA: the lived experience day to day
Our AGM and Members' Day is to be held on 9th September, 11am-1pm (BST). If you're a member of the charity, you should have received an email or letter with details of how to register. We are thrilled to be welcoming four speakers to the event: Dr Lorraine Watson PhD RD FHEA, NIHR SPCR Post-Doctoral
Our AGM and Members' Day is to be held on 9th September, 11am-1pm (BST). If you're a member of the charity, you should have received an email or letter with details of how to register. We are thrilled to be welcoming four speakers to the event: Dr Lorraine Watson PhD RD FHEA, NIHR SPCR Post-Doctoral
Fran_Benson
Partner
in
PMRGCAuk
11 months ago
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Virtual Reality Therapy Anyone?
I’ve asked my providers (PCP, Neuro, pain) about virtual reality therapy for ms issues. They’ve never heard of it being used or prescribed. I’ve read about it online only. The benefits for cognitive, physical and speech therapy sound solid. There are specific programs to suit your needs. Mental too,
I’ve asked my providers (PCP, Neuro, pain) about virtual reality therapy for ms issues. They’ve never heard of it being used or prescribed. I’ve read about it online only. The benefits for cognitive, physical and speech therapy sound solid. There are specific programs to suit your needs. Mental too,
Wtfisup
in
My MSAA Community
11 months ago
Value of LDH
I've been dealing with PCA 11 years and I've seen a number of doctors along the way but never have discussed or had my LDH tested. A young oncologist where I had my PSMA scan requested PSA, testosterone and LDH tests to go along with the scan. My LDH was at the low end of the "range" (but we still didn't
I've been dealing with PCA 11 years and I've seen a number of doctors along the way but never have discussed or had my LDH tested. A young oncologist where I had my PSMA scan requested PSA, testosterone and LDH tests to go along with the scan. My LDH was at the low end of the "range" (but we still didn't
fourputt
in
Advanced Prostate Cancer
11 months ago
Femara success?
Hi. I am about to try Femara as my final option for a 2nd child. We have done 5 rounds of IVF with 4 FET's. Our 1st transfer gave us our daughter, but since her, we have had one not implant, and 2 early miscarriages. I cant o any more rounds of IVF due to cost and the general pressure it puts on my
Hi. I am about to try Femara as my final option for a 2nd child. We have done 5 rounds of IVF with 4 FET's. Our 1st transfer gave us our daughter, but since her, we have had one not implant, and 2 early miscarriages. I cant o any more rounds of IVF due to cost and the general pressure it puts on my
Mrsjaytee
in
Fertility Network UK
11 months ago
Another trigger?
Twenty days on from my last PAF, thinking will probably clear another 40 days to the next as per usual pattern. Great day, trip to the seaside, lunch with old friends, home to relaxing small dinner, feet up. Had slight constipation last few days, thought I would give a try to a new version of Fybogel
Twenty days on from my last PAF, thinking will probably clear another 40 days to the next as per usual pattern. Great day, trip to the seaside, lunch with old friends, home to relaxing small dinner, feet up. Had slight constipation last few days, thought I would give a try to a new version of Fybogel
50568789
in
Atrial Fibrillation Support
1 year ago
Sleep Depravation
My question is has anybody got any advice regarding medication that can
aid
his
sleep
? thank you
My question is has anybody got any advice regarding medication that can
aid
his
sleep
? thank you
Northants1
in
PSP Association
10 months ago
APNEA v RLS - something else
I have recently been diagnosed with Sleep Apnea & have been given a CPAP machine to use but it seems the drugs I take for RLS (Oxycodone & Gabapentin) are conflicting with the efficacy of the CPAP kit and not bring down my incidence of AHI during the night. The consultant has asked me to row back
I have recently been diagnosed with Sleep Apnea & have been given a CPAP machine to use but it seems the drugs I take for RLS (Oxycodone & Gabapentin) are conflicting with the efficacy of the CPAP kit and not bring down my incidence of AHI during the night. The consultant has asked me to row back
joepublic
in
Restless Legs Syndrome
1 year ago
progynova prior IVF
hello! my doctor put on progynova 2 tablets x 3 times a day. I’m worrying that is way too much (12mg a day) my lining went from 2mm to 7mm . I took it for 21 days then 7 days of progestin, I just restarted progynova but this time the doctor said to take it for 8 weeks. Is it too much? Do you think that
hello! my doctor put on progynova 2 tablets x 3 times a day. I’m worrying that is way too much (12mg a day) my lining went from 2mm to 7mm . I took it for 21 days then 7 days of progestin, I just restarted progynova but this time the doctor said to take it for 8 weeks. Is it too much? Do you think that
Silvi23
in
Fertility Network UK
1 year ago
Ampyra
I have been on Ampyra/Dalfampridine for about 4 years. I am thinking of stopping as it is expensive. What effect may it have on my MS? does anyone have any thoughts?
I have been on Ampyra/Dalfampridine for about 4 years. I am thinking of stopping as it is expensive. What effect may it have on my MS? does anyone have any thoughts?
whwiechm
in
My MSAA Community
1 year ago
Seeking advice for London private fertility clinics
Hi everyone, I’m now 36, living in NW London. Previously diagnosed abroad with PCOS and prescribed oral clomiphene citrate with an unsatisfactory result. Only conducted basic tests and screening requested by GP for the sake of secondary care referral in NHS. While waiting for my first appointment at
Hi everyone, I’m now 36, living in NW London. Previously diagnosed abroad with PCOS and prescribed oral clomiphene citrate with an unsatisfactory result. Only conducted basic tests and screening requested by GP for the sake of secondary care referral in NHS. While waiting for my first appointment at
fupafupa
in
Fertility Network UK
1 year ago
Asking employer for accommodations - yes, no, maybe?
Quick background:BCRed about 2.5 years after adjuvant RT to prostatic bed after RARP. Started Firmagon in May 2022 after nothing seen on PSMA PET/CT with PSA at 0.4. Switched to Orgovyx in November since injection site reaction was compromising QoL. Just before BCR was detected, I started taking adderall
Quick background:BCRed about 2.5 years after adjuvant RT to prostatic bed after RARP. Started Firmagon in May 2022 after nothing seen on PSMA PET/CT with PSA at 0.4. Switched to Orgovyx in November since injection site reaction was compromising QoL. Just before BCR was detected, I started taking adderall
farmanerd
in
Advanced Prostate Cancer
1 year ago
Neupro Patch
I saw a consultant in the UK a month or so ago and explained that my transition from Mirapexin to Pregabalin was not going well. At that time, I was taking 150mg Pregabalin and 4 x 0.088 Mirapexin and that at that level i was getting some relief but that any reduction from that in the Mirapexin left
I saw a consultant in the UK a month or so ago and explained that my transition from Mirapexin to Pregabalin was not going well. At that time, I was taking 150mg Pregabalin and 4 x 0.088 Mirapexin and that at that level i was getting some relief but that any reduction from that in the Mirapexin left
Ced60
in
Restless Legs Syndrome
1 year ago
CPAP Machines and Chest Infections
Recently, I had a flare up of Bronchiectasis. I was issued Doxy that has helped and I'm due for a CT Scan in a couple of weeks. I was pondering why it suddenly flared up and my wife suggested my CPAP machine. I thought I was pretty good at keeping the reservoir, hose and mask free from mould. However
Recently, I had a flare up of Bronchiectasis. I was issued Doxy that has helped and I'm due for a CT Scan in a couple of weeks. I was pondering why it suddenly flared up and my wife suggested my CPAP machine. I thought I was pretty good at keeping the reservoir, hose and mask free from mould. However
Curryandchips
in
Lung Conditions Community Forum
1 year ago
FND diagnosis and not coping well with it
Saw neurologist today for my brain MRI results. Confirmed results as normal , no abnormalities seen. Wasn’t shown MRI which I thought I would . Diagnosed me with FND as symptoms not relative to any other neurological disorder. Been told no medication will help , it’s all in my sub conscious/mind and
Saw neurologist today for my brain MRI results. Confirmed results as normal , no abnormalities seen. Wasn’t shown MRI which I thought I would . Diagnosed me with FND as symptoms not relative to any other neurological disorder. Been told no medication will help , it’s all in my sub conscious/mind and
Maynan17
in
Functional Neurological Disorder - FND Hope
1 year ago
Afib, sleep apnea and diverticulitis from aerophagia
Hi. I have afib and sleep apnea. As you know, some think that sleep apnea may be a causitive factor in afib. I have been using cpap and bipap machines for some years for the apnea, and have a problem of swallowing air (aerophagia). Before the improvements in cpap technology, I would wake up after a
Hi. I have afib and sleep apnea. As you know, some think that sleep apnea may be a causitive factor in afib. I have been using cpap and bipap machines for some years for the apnea, and have a problem of swallowing air (aerophagia). Before the improvements in cpap technology, I would wake up after a
nmack
in
Atrial Fibrillation Support
1 year ago
Melatonin with AF medication
Melatonin is supposed to
aid
sleep
, does anyone on the group have experience using melatonin with the above , the pharmacist I’ve spoken to said there shouldn’t be a problem but didn’t sound too reassuring.
Melatonin is supposed to
aid
sleep
, does anyone on the group have experience using melatonin with the above , the pharmacist I’ve spoken to said there shouldn’t be a problem but didn’t sound too reassuring.
Skipandted
in
AF Association
1 year ago
Anyone tried Sulbutiamine to help with fatigue etc?? If so how did you get on??
Just had a broad spectrum blood test as I still feel like I have just been dug up from the local cemetery … Everything seems fine (Liver, kidneys, B12, adrenals, they even mentioned my bones) … But I (As most of us poor lot do) feel like crap, and utterly fatigued .. Now I’m looking into some stuff like
Just had a broad spectrum blood test as I still feel like I have just been dug up from the local cemetery … Everything seems fine (Liver, kidneys, B12, adrenals, they even mentioned my bones) … But I (As most of us poor lot do) feel like crap, and utterly fatigued .. Now I’m looking into some stuff like
Quasarlis
in
Thyroid UK
1 year ago
Does anyone use ‘Active Iron’ in UK?
I searched for ferrous bisglycinate on Amazon UK which came up with Active Iron 25mg. I’ve now received it and found it contains ferrous sulfate 25mg! Now I don’t know if this is the right product or dose. Can anyone help?
I searched for ferrous bisglycinate on Amazon UK which came up with Active Iron 25mg. I’ve now received it and found it contains ferrous sulfate 25mg! Now I don’t know if this is the right product or dose. Can anyone help?
Dires
in
Restless Legs Syndrome
1 year ago
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