Search
Search
About
Log in
Join
Experiences with
Pain-Eze
Posts
Communities
15,419 public posts
Filter results
dry eyes and mouth?
hi again all! I am very depleted in ferritin and am awaiting an infusion. I also started b12 injections 3 months ago for PA but I don’t think they’ve been often enough (1x/month). Also just got diagnosed with subclinical hashimotos (thyroid levels are still normal). I’m grasping at straws trying to
hi again all! I am very depleted in ferritin and am awaiting an infusion. I also started b12 injections 3 months ago for PA but I don’t think they’ve been often enough (1x/month). Also just got diagnosed with subclinical hashimotos (thyroid levels are still normal). I’m grasping at straws trying to
Lhood08
in
Pernicious Anaemia Society
1 month ago
Airport travel with Injections
Can some experienced travellers who use Pegasys give me some advice please. I am travelling this week from the UK to Mexico, and have bought a Disoncare insulin cooler to keep my Pegasys syringes in whilst travelling. I will keep this in my Hand Luggage, but I’m not sure what to do with the needle
Can some experienced travellers who use Pegasys give me some advice please. I am travelling this week from the UK to Mexico, and have bought a Disoncare insulin cooler to keep my Pegasys syringes in whilst travelling. I will keep this in my Hand Luggage, but I’m not sure what to do with the needle
swimswam
in
MPN Voice
1 month ago
Treatment changes - Rituximab?
Finally saw my consultant again last week. Think he was quite surprised at how swollen my hands have become and he said I'd done well to keep going. So am feeling a little more positive, though I'm battling through a lot of pain. The steroid jabs I had in my finger and thumb base seem to have given
Finally saw my consultant again last week. Think he was quite surprised at how swollen my hands have become and he said I'd done well to keep going. So am feeling a little more positive, though I'm battling through a lot of pain. The steroid jabs I had in my finger and thumb base seem to have given
whitedog
in
NRAS
1 month ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
combined therapy help
Hi a little advise if possible: normally levo 125mg and thybon 5mg. A new endo has taken me off thybon to try and work out if I have diabetes inspidius (water balance issues). I think I was slightly too hyper but 3 weeks later and I feel terrible - weight gain, constipation, no apetite. I don’t think
Hi a little advise if possible: normally levo 125mg and thybon 5mg. A new endo has taken me off thybon to try and work out if I have diabetes inspidius (water balance issues). I think I was slightly too hyper but 3 weeks later and I feel terrible - weight gain, constipation, no apetite. I don’t think
DancerLisboa
in
Thyroid UK
1 month ago
Dry eye following Trabeculectomy
Hello I had a right trabeculectomy nearly 4 months ago & all was well until about a week ago. I have used regular lubricating drops as I have had the same surgery in my left eye that was complicated by uveitis. I have tried a variety of lubricating drops & eventually Theoloz gel was recommended & worked
Hello I had a right trabeculectomy nearly 4 months ago & all was well until about a week ago. I have used regular lubricating drops as I have had the same surgery in my left eye that was complicated by uveitis. I have tried a variety of lubricating drops & eventually Theoloz gel was recommended & worked
Mitziecat
in
Glaucoma UK
1 month ago
Newly diagnosed PMR
Hello everyone, I was diagnosed with PMR as recently as Friday 20th October 2 days after my 58th birthday. My symptoms started in July with neck pain which quickly spread till I was in so much pain, I couldn't get up the stairs without a handrail. My Inflammation levels in August were 16 which is why
Hello everyone, I was diagnosed with PMR as recently as Friday 20th October 2 days after my 58th birthday. My symptoms started in July with neck pain which quickly spread till I was in so much pain, I couldn't get up the stairs without a handrail. My Inflammation levels in August were 16 which is why
MalloryMoss
in
PMRGCAuk
7 months ago
Zapain analgesic
Hi I have recently managed to stop my pred after decreasing by 1mg every couple of months and finally by 0.5 -0mg. This took me about a year I would say down from 9mg. My question is regarding Zapain 30/500 … I have been getting stiffness and pains in all my muscles but I don’t know if it is the polymyalgia
Hi I have recently managed to stop my pred after decreasing by 1mg every couple of months and finally by 0.5 -0mg. This took me about a year I would say down from 9mg. My question is regarding Zapain 30/500 … I have been getting stiffness and pains in all my muscles but I don’t know if it is the polymyalgia
Tayzee
in
PMRGCAuk
7 months ago
Stretching and exercising after cataract ops
Hi! I did skim this site to see if anyone recently asked about my question, but didn't see anything. I have cataract operations on 12 and 19 June (I also have high IOP but generally below 21; I'm astigmatic (which the ops should correct), and a form of strabismus, where my eye muscles don't line
Hi! I did skim this site to see if anyone recently asked about my question, but didn't see anything. I have cataract operations on 12 and 19 June (I also have high IOP but generally below 21; I'm astigmatic (which the ops should correct), and a form of strabismus, where my eye muscles don't line
711debbie
in
Glaucoma UK
1 month ago
advice
Hi all I’m new here. I’m really struggling and don’t know what to do. I had a hysterectomy 10 years ago at the age of 28 due to severe endometriosis and multiple surgeries. Over the last few years the pain has returned but after visiting GP all I get is the pain can’t be endometriosis because of the
Hi all I’m new here. I’m really struggling and don’t know what to do. I had a hysterectomy 10 years ago at the age of 28 due to severe endometriosis and multiple surgeries. Over the last few years the pain has returned but after visiting GP all I get is the pain can’t be endometriosis because of the
Hidden
in
Endometriosis UK
7 months ago
NICE: Teprotumumab for treating thyroid eye disease ID 6432 - being scoped
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
I have just noticed a new NICE guideline has been started. Only a skeleton at present - in the guideline scoping state. It will probably be years before it is completed. It is good that it has been selected for further work but must be devastating for anyone suffering TED to see how far away this (potential
helvella
Thyroid UK
in
Thyroid UK
1 month ago
Frequent styes
I know that this is not a serious symptom, but I was just wondering if anyone else keeps getting styes. I seem to get rid of one and then a week later get another. My eyes are very sore.I do all the recommended things with eye hygiene, changing makeup regularly and heat pad on my lids. Could this be
I know that this is not a serious symptom, but I was just wondering if anyone else keeps getting styes. I seem to get rid of one and then a week later get another. My eyes are very sore.I do all the recommended things with eye hygiene, changing makeup regularly and heat pad on my lids. Could this be
Pippapot
in
MPN Voice
1 month ago
PMR UPDATE
Just get you up to speed. I found that 15mg of pred was relieving pain I had been experiencing for a year. I did not believe it was PMR because it presented differently then the last time. The pain is not bilateral. But my inflamation marks have been high for a long time. The relief has been so amazing
Just get you up to speed. I found that 15mg of pred was relieving pain I had been experiencing for a year. I did not believe it was PMR because it presented differently then the last time. The pain is not bilateral. But my inflamation marks have been high for a long time. The relief has been so amazing
Amkoffee
in
PMRGCAuk
8 months ago
Eye drops
Hello, I would like your advice regarding eye drops. I am very myopic and also have cataracts. I use hyabak often throughout the day but my eyes still feel dry and uncomfortable which I think is making my sight even worse! I’m wondering whether I should try longer lasting eye drops. Any suggestions would
Hello, I would like your advice regarding eye drops. I am very myopic and also have cataracts. I use hyabak often throughout the day but my eyes still feel dry and uncomfortable which I think is making my sight even worse! I’m wondering whether I should try longer lasting eye drops. Any suggestions would
Waddy72
in
Macular Society
1 month ago
Vibrating Sensation
Hi Everyone First time writing, please forgive any mistakes I make I suffer terrible brain fog. This may seem like a weird question but does anyone on here suffer a vibrating sensation throughout their body? The best way I can describe what I have is a vibrating sensation, I have spoken to GP
Hi Everyone First time writing, please forgive any mistakes I make I suffer terrible brain fog. This may seem like a weird question but does anyone on here suffer a vibrating sensation throughout their body? The best way I can describe what I have is a vibrating sensation, I have spoken to GP
AlphaWolf5195
in
Fibromyalgia Action UK
8 months ago
Unilateral or bilateral procedure?
I was recently referred by my optician as slight differences were noted since last year’s appointment. My referral outcome letter says my optician was “…… querying cupping of the left eye in particular “ and ends with “… Disc ocular coherence topography shows suspicious optic disc on the left side in
I was recently referred by my optician as slight differences were noted since last year’s appointment. My referral outcome letter says my optician was “…… querying cupping of the left eye in particular “ and ends with “… Disc ocular coherence topography shows suspicious optic disc on the left side in
GreyhoundFriend
in
Glaucoma UK
1 month ago
Low eye pressure
I have Normal Tension Glaucoma and had a Deep Scleretomy operation on my right eye 18 months ago ( I believe this is a similar operation to a trab, the aim being to lower the pressure) and I have a bleb under my eyelid. Immediately after surgery the pressure dropped to 3 but gradually over eight months
I have Normal Tension Glaucoma and had a Deep Scleretomy operation on my right eye 18 months ago ( I believe this is a similar operation to a trab, the aim being to lower the pressure) and I have a bleb under my eyelid. Immediately after surgery the pressure dropped to 3 but gradually over eight months
Ella59
in
Glaucoma UK
2 months ago
4.10 a.m. and up again!
I am soo tired of this ! I said that I hate to moan and I really do but I'm in such pain and so tired and my toes and leg's hurt! How's that for a moan ?! I think that I will sit in my Dr.s Surgery until they really help me ! I don't know whether Buprenorphine is expensive but I know that cost is really
I am soo tired of this ! I said that I hate to moan and I really do but I'm in such pain and so tired and my toes and leg's hurt! How's that for a moan ?! I think that I will sit in my Dr.s Surgery until they really help me ! I don't know whether Buprenorphine is expensive but I know that cost is really
Danni54
in
Restless Legs Syndrome
8 months ago
onset of symptoms after shot
Hi All, Does anyone experience quick onset of symptoms after injecting? My feet and hands go numb and I get dizzy and nauseous. Sometimes I get arm twitching floaters in my eyes dry eyes and mouth and feels like I’m going to faint . The symptoms do pass after awhile but it definitely is happening after
Hi All, Does anyone experience quick onset of symptoms after injecting? My feet and hands go numb and I get dizzy and nauseous. Sometimes I get arm twitching floaters in my eyes dry eyes and mouth and feels like I’m going to faint . The symptoms do pass after awhile but it definitely is happening after
Jjjmmm
in
Pernicious Anaemia Society
2 months ago
A few questions about being a. ‘Glaucoma suspect’
Hi, first post for me. I’ve been reading your messages since February and they have been very helpful so thank you all!! This is the rather longwinded background: My husband was picked up at a routine eye test as having some changes suggestive of glaucoma. He was seen pretty quickly (within 2-3 weeks
Hi, first post for me. I’ve been reading your messages since February and they have been very helpful so thank you all!! This is the rather longwinded background: My husband was picked up at a routine eye test as having some changes suggestive of glaucoma. He was seen pretty quickly (within 2-3 weeks
NCFCfan
in
Glaucoma UK
2 months ago
CLL - Leukemia Cutis
Hello everyone. CLL Dx 2002, unmutated, Trisomy12, Notch 1. O+I 2 years, Off meds 2 years (heart surgery), WBC has been slowly rising ove4r the past 4 or 5 months, but I was never at MRD. A biopsy of a "rash" on my scalp shows Leukemia Cutis - most likely CLL related. Has anyone else had this? How
Hello everyone. CLL Dx 2002, unmutated, Trisomy12, Notch 1. O+I 2 years, Off meds 2 years (heart surgery), WBC has been slowly rising ove4r the past 4 or 5 months, but I was never at MRD. A biopsy of a "rash" on my scalp shows Leukemia Cutis - most likely CLL related. Has anyone else had this? How
misterbee
in
CLL Support
2 months ago
1
...
19
20
21
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Endometriosis UK
2454 results
NRAS
1142 results
Fibromyalgia Action UK
1101 results
View top 10 communities
Sort by
Most Relevant
Newest