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Feeling very hopeless at this point.
My husband was diagnosed in 2011 at age 52, gleason 8, 11 of 12 cores positive. We went for many many 2nd opinions, surgery or radiation? finally chose radiation as all doctors said it had spread already and would need radiation anyway after surgery. Treated with Snuffy Myers in Virginia until his
My husband was diagnosed in 2011 at age 52, gleason 8, 11 of 12 cores positive. We went for many many 2nd opinions, surgery or radiation? finally chose radiation as all doctors said it had spread already and would need radiation anyway after surgery. Treated with Snuffy Myers in Virginia until his
Judymin
in
Advanced Prostate Cancer
8 months ago
CMV PCR for blood <2.0E+2 IU/mL
Does anyone know what this means. It showed up on my bloodwork for the first time. I am in a clinical trial and am currently taking Idelalisib. The rest of my blood work is good. Jack
Does anyone know what this means. It showed up on my bloodwork for the first time. I am in a clinical trial and am currently taking Idelalisib. The rest of my blood work is good. Jack
rcusher
in
CLL Support
8 months ago
what’s wrong with me?
It’s my son’s 9th birthday weekend and I set up a scavenger hunt for him, had a pizza movie night with his friend with cake and presents. Tomorrow we’re going out to eat to celebrate with family and he’s so happy and feels really special but I am miserable. I feel so guilty for feeling depressed even
It’s my son’s 9th birthday weekend and I set up a scavenger hunt for him, had a pizza movie night with his friend with cake and presents. Tomorrow we’re going out to eat to celebrate with family and he’s so happy and feels really special but I am miserable. I feel so guilty for feeling depressed even
MarileeKemp
in
Anxiety and Depression Support
8 months ago
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Coming back again for some lovely support 😊
Hello I haven’t been on here in a while but I need a boost of some of the wonderful wonderful support that I always get here. I had postnatal psychosis and a new diagnosis of bipolar last June 2022, and I haven’t been stable since then. My mood is now stuck in a pattern of n 10ish good days and then
Hello I haven’t been on here in a while but I need a boost of some of the wonderful wonderful support that I always get here. I had postnatal psychosis and a new diagnosis of bipolar last June 2022, and I haven’t been stable since then. My mood is now stuck in a pattern of n 10ish good days and then
MotherOfBears
in
Action on Postpartum Psychosis
8 months ago
Sensory Overload (I think?)
Yesterday was absolutely awful for no big reason. Everything was good and fine and then I started getting a little irritable so I went on lunch. I only had 30 minutes. Right before being hospitalized about 2 weeks ago I had ordered a ring from Kay jewelers to be shipped to the store in town (nothing
Yesterday was absolutely awful for no big reason. Everything was good and fine and then I started getting a little irritable so I went on lunch. I only had 30 minutes. Right before being hospitalized about 2 weeks ago I had ordered a ring from Kay jewelers to be shipped to the store in town (nothing
GhostKitty
in
Anxiety and Depression Support
8 months ago
Mebeverine
Hi….a nurse practitioner prescribed Mebeverine when I had a flare up of IBS a week or so ago. I take 3 a day of 135g and the pains have stopped. Do I now stop taking the tablets or are they like antibiotics where you finish the pack til they’re all gone? She prescribed 84… Thank you
Hi….a nurse practitioner prescribed Mebeverine when I had a flare up of IBS a week or so ago. I take 3 a day of 135g and the pains have stopped. Do I now stop taking the tablets or are they like antibiotics where you finish the pack til they’re all gone? She prescribed 84… Thank you
Veebucks
in
IBS Network
8 months ago
My boy
Coming home in January. I can't wait to see him. I got him a dog I know he'll love after our whippet died he swore he'd never want another dog. It's the XL bully that's making the news weekly, giving them a bad name because of a few gang members who used them to protect their stash. Dumping them when
Coming home in January. I can't wait to see him. I got him a dog I know he'll love after our whippet died he swore he'd never want another dog. It's the XL bully that's making the news weekly, giving them a bad name because of a few gang members who used them to protect their stash. Dumping them when
Dodoguitarman
in
Anxiety and Depression Support
8 months ago
How to find a MO Specializing in PCa
I just completed a clinical trial lasting two years. My PSA has slowly risen from 0.06 to 0.12 over the last 15 months or so. My medical team was surgical and now I'd like to move to monitoring with a qualified MO as my PSA moves upward. Where does one start to find an MO who's focused on PCa? The
I just completed a clinical trial lasting two years. My PSA has slowly risen from 0.06 to 0.12 over the last 15 months or so. My medical team was surgical and now I'd like to move to monitoring with a qualified MO as my PSA moves upward. Where does one start to find an MO who's focused on PCa? The
NJWarrior
in
Advanced Prostate Cancer
8 months ago
CRP and ESR
I am in US and on Actemra 24 weeks and prednisone 12.5 and having right temple pain and right eye pain ...started at 60 mg prednisone in August-Sept 2022 ...don't remember exact month.... told Rheumy about my pain and he said he doesn't think pain is from GCA and to continue at this dose because my
I am in US and on Actemra 24 weeks and prednisone 12.5 and having right temple pain and right eye pain ...started at 60 mg prednisone in August-Sept 2022 ...don't remember exact month.... told Rheumy about my pain and he said he doesn't think pain is from GCA and to continue at this dose because my
Joseph14612
in
PMRGCAuk
1 year ago
Desperate
Hi,I have suffered from anxiety all my life, I've always been nervous and have little confidence. In 2020, I was diagnosed with CPTSD, and initially had a few sessions of EMDR, and also hypnotise, neither of which worked. I subsequent developed chronic panic attacks, which were more like seizures/ fits
Hi,I have suffered from anxiety all my life, I've always been nervous and have little confidence. In 2020, I was diagnosed with CPTSD, and initially had a few sessions of EMDR, and also hypnotise, neither of which worked. I subsequent developed chronic panic attacks, which were more like seizures/ fits
Patkin50
in
Mental Health Support
6 months ago
Tara, a chatbot that matches patients to clinical trials
[i]Screenshot of Tara chatbot conversation courtesy of Belong.Life[/i] Newest service from Belong.Life provides automated solution for cancer clinical trial matching and recruitment. Cancer patients hoping to be part of a clinical trial for a new therapy often have difficulty locating and applying
[i]Screenshot of Tara chatbot conversation courtesy of Belong.Life[/i] Newest service from Belong.Life provides automated solution for cancer clinical trial matching and recruitment. Cancer patients hoping to be part of a clinical trial for a new therapy often have difficulty locating and applying
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
8 months ago
what meds worked for any of you out there with gad and depression? And have you used cbt or act therapy?
I will be talking to someone about medication for my gad and depression, but , I wanted to hear from anyone that has it as to what works for them ? And preferably something with fewer side effects . I would like to try something to help until therapy . Hoping to do cbt or Act therapy and that it can
I will be talking to someone about medication for my gad and depression, but , I wanted to hear from anyone that has it as to what works for them ? And preferably something with fewer side effects . I would like to try something to help until therapy . Hoping to do cbt or Act therapy and that it can
Pinkgurl
in
Anxiety and Depression Support
8 months ago
Health Insurance
Trying to arrange something through the Post Office. It's online and I can't represent my condition properly and there's no phone number.Basically my diagnosis to date is Paroxysmal Tachycardia Type Unknown. The PO don't allow that as an option, closest was Paroxysmal AF. So far my Cardiologist is saying
Trying to arrange something through the Post Office. It's online and I can't represent my condition properly and there's no phone number.Basically my diagnosis to date is Paroxysmal Tachycardia Type Unknown. The PO don't allow that as an option, closest was Paroxysmal AF. So far my Cardiologist is saying
Oggy99
in
Arrhythmia Alliance
8 months ago
Slow colonic transit
I have been diagnosed with slow colonic transit after having all the usual bowel investigations. I have been suffering suffering from chronic constipation for several years. I have been taking Prucalopride for almost a month but unfortunately it has made no difference. My consultant has recommended
I have been diagnosed with slow colonic transit after having all the usual bowel investigations. I have been suffering suffering from chronic constipation for several years. I have been taking Prucalopride for almost a month but unfortunately it has made no difference. My consultant has recommended
Riccar24
in
IBS Network
8 months ago
Too much!!
Hi everyone. Oh there's a lot that I'd like to share as such I might be all over the place but I'll start small. I'm not professionally diagnosed with anxiety or depression but I am definitely experiencing one or both but mostly I believe it's anxiety. I am an honors student and oh boy I feel like
Hi everyone. Oh there's a lot that I'd like to share as such I might be all over the place but I'll start small. I'm not professionally diagnosed with anxiety or depression but I am definitely experiencing one or both but mostly I believe it's anxiety. I am an honors student and oh boy I feel like
PuppyN
in
Anxiety and Depression Support
8 months ago
Ileostomy problems
Hi everyone, Just wanted to introduce myself and hope that I’m ok to be here to chat and listen to all things ostomy!! I hope that this finds you all well(ish) and happy 😀🙏 I’ve had my Ileostomy now for 16 yrs give or take 2 yrs when I had a reversal with a J-pouch formed. Unfortunately, after 18
Hi everyone, Just wanted to introduce myself and hope that I’m ok to be here to chat and listen to all things ostomy!! I hope that this finds you all well(ish) and happy 😀🙏 I’ve had my Ileostomy now for 16 yrs give or take 2 yrs when I had a reversal with a J-pouch formed. Unfortunately, after 18
SelfSoothe
in
Living with a Stoma
8 months ago
Here are the facts, what do I do?
So the facts of my life at this moment:Last night I literally broke into a lock box to get to my medications so I would have the choice to live or die while in a state of extreme mental distress. (Its a cheap lock box but it was way easier to bust into than I thought.) I hate myself. And that is not
So the facts of my life at this moment:Last night I literally broke into a lock box to get to my medications so I would have the choice to live or die while in a state of extreme mental distress. (Its a cheap lock box but it was way easier to bust into than I thought.) I hate myself. And that is not
GhostKitty
in
Anxiety and Depression Support
8 months ago
CLL and mRNA Vaccines
Just saw this abstract, which is one of the papers being presented at the Boston CLL conference: https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1004157 I don't understand most of it, but this is one of the "Findings": [i]CLL patients and other immunocompromised populations
Just saw this abstract, which is one of the papers being presented at the Boston CLL conference: https://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1004157 I don't understand most of it, but this is one of the "Findings": [i]CLL patients and other immunocompromised populations
BWHR
in
CLL Support
8 months ago
Severe Anxiety & Relationship Grief
I need help with my current mental state. I recently ended a long-term relationship and feel betrayed by this person. I've spent the last 11 years with them and we were engaged to be married. Right now I have been waking up in a complete panic and feeling extreme anxiety and depression nonstop. I can't
I need help with my current mental state. I recently ended a long-term relationship and feel betrayed by this person. I've spent the last 11 years with them and we were engaged to be married. Right now I have been waking up in a complete panic and feeling extreme anxiety and depression nonstop. I can't
nmgarcia
in
Anxiety and Depression Support
8 months ago
Webinar: Diabetic Macular Oedema Trial Results
For our second My Macular and Me webinar of the month, we are joined by Professor of Ophthalmology, Noemi Lois, as she talks about the results of a recent trial for patients with diabetic macular oedema (DMO). The trial set out to test two types of laser for treating patients with DMO, one standard
For our second My Macular and Me webinar of the month, we are joined by Professor of Ophthalmology, Noemi Lois, as she talks about the results of a recent trial for patients with diabetic macular oedema (DMO). The trial set out to test two types of laser for treating patients with DMO, one standard
Carol_MacularSociety
Partner
in
Macular Society
1 year ago
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