Search
Search
About
Log in
Join
Experiences with
Aplastic anaemia
Posts
Communities
7,533 public posts
Filter results
Levothyroxine and itchyness
Hi, Long time since I posted however I've been having rashes in the groin area and general itching all over for nearly two years and I finally got a face to face appointment with dermatology a few weeks ago and a full blood test. Results have come back and they say "your thyroid function tests are
Hi, Long time since I posted however I've been having rashes in the groin area and general itching all over for nearly two years and I finally got a face to face appointment with dermatology a few weeks ago and a full blood test. Results have come back and they say "your thyroid function tests are
nigelm
in
Thyroid UK
5 months ago
Thinking About Trazodone? Think Again.
I noticed my RLS worsen after having Covid, but I also started to take Trazodone 25mg several times a week around this time. I doubled my iron and all was fine. Since October I’ve been taking 50mg of Trazodone every night. I have developed “sleep anxiety” whenever I have an early morning meeting, doctors
I noticed my RLS worsen after having Covid, but I also started to take Trazodone 25mg several times a week around this time. I doubled my iron and all was fine. Since October I’ve been taking 50mg of Trazodone every night. I have developed “sleep anxiety” whenever I have an early morning meeting, doctors
DesertOasis
in
Restless Legs Syndrome
5 months ago
Injecting three forms of B12 at the same time?
Has anyone tried injecting three forms of B12 at the same time? I am designing a new trial and am considering staying with my amount of 2mg mg 5 hours apart including setting an alarm to inject in the night so my body is never without enough B12 for my cells to heal and injecting the three forms.
Has anyone tried injecting three forms of B12 at the same time? I am designing a new trial and am considering staying with my amount of 2mg mg 5 hours apart including setting an alarm to inject in the night so my body is never without enough B12 for my cells to heal and injecting the three forms.
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Acalabrutinib to treat CLL & AIHA
I have been on W&W since 2018 but in this last year have had four admissions to hospital with Auto Immune Haemolytic Anaemia, all admissions required blood transfusions and I felt pretty poorly with breathlessness, fatigue and very low Hb. My CLL is still relatively low level and ordinarily would not
I have been on W&W since 2018 but in this last year have had four admissions to hospital with Auto Immune Haemolytic Anaemia, all admissions required blood transfusions and I felt pretty poorly with breathlessness, fatigue and very low Hb. My CLL is still relatively low level and ordinarily would not
Wen_dy
in
CLL Support
5 months ago
TSH increase
I recently had blood tests due to feeling really fatigued especially after exercising. I’ve been on levo for 13 years for Hashimoto’s. Levels have been up and down. Last test was 0.75 and I felt fine. That was 9 months ago. Most recent test it was 7.16! No wonder I feel bad. All vits tested on the low
I recently had blood tests due to feeling really fatigued especially after exercising. I’ve been on levo for 13 years for Hashimoto’s. Levels have been up and down. Last test was 0.75 and I felt fine. That was 9 months ago. Most recent test it was 7.16! No wonder I feel bad. All vits tested on the low
Pegasus12
in
Thyroid UK
5 months ago
Iron Panel Results Advice
Hi, could you kindly offer advice on my iron panel:
Results 22 Dec 2023
Iron 22.9 umol-l (5.8-34.5) Ferritin 55.28 ug_l (9.999-120) TIBC 61.0 umol-l (44.8-80.6) Transferrin 2.75 g_l (2.00-3.80) Transferrin Saturation 38 % (15-50) Thank you.
Hi, could you kindly offer advice on my iron panel:
Results 22 Dec 2023
Iron 22.9 umol-l (5.8-34.5) Ferritin 55.28 ug_l (9.999-120) TIBC 61.0 umol-l (44.8-80.6) Transferrin 2.75 g_l (2.00-3.80) Transferrin Saturation 38 % (15-50) Thank you.
Sami-M
in
Thyroid UK
5 months ago
Root cause of autoimmune B12 def
Hello- I was just diagnosed with PA and was prescribed injections (cyanocobalamin unfortunately). This was from a hematology referral for low white blood cells. That turned out to be ok, but the doc noticed my B12 was "low" at 310. I was already supplementing B12 so she just said keep doing that.
Hello- I was just diagnosed with PA and was prescribed injections (cyanocobalamin unfortunately). This was from a hematology referral for low white blood cells. That turned out to be ok, but the doc noticed my B12 was "low" at 310. I was already supplementing B12 so she just said keep doing that.
mchimes
in
Pernicious Anaemia Society
5 months ago
14 day trial of methylcobalamin and adenosylcobalamin
After 3 years of researching I was able to obtain pharmaceutical grade adenosylcobalamin to. I choose not to share my source due to risk to myself and my source. Unfortunate but the reality. I considered if I wanted to post at all about it and went with I would want to know. I injected 1mg/1ml of
After 3 years of researching I was able to obtain pharmaceutical grade adenosylcobalamin to. I choose not to share my source due to risk to myself and my source. Unfortunate but the reality. I considered if I wanted to post at all about it and went with I would want to know. I injected 1mg/1ml of
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
blood results
hi, I hope you can help me understand my blood test results. The first and only time asking questions on here I was given 100% answers thanks. It’s been a little over three months since I started B12 self injections every other day for two weeks and some of my issues went so I si once a week and they
hi, I hope you can help me understand my blood test results. The first and only time asking questions on here I was given 100% answers thanks. It’s been a little over three months since I started B12 self injections every other day for two weeks and some of my issues went so I si once a week and they
Tattlee
in
Pernicious Anaemia Society
5 months ago
Blood test results..interpretation/advice.
I was diagnosed with B12 deficiency at the beginning of the month and have received a prescription for loading dose (I self administered without approval or support as the first appointment was nearly 2 months away).I've since had a further blood test which revealed no anaemia or macrocytic anaemia but
I was diagnosed with B12 deficiency at the beginning of the month and have received a prescription for loading dose (I self administered without approval or support as the first appointment was nearly 2 months away).I've since had a further blood test which revealed no anaemia or macrocytic anaemia but
Betwelvepatient
in
Pernicious Anaemia Society
5 months ago
Prolia
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
Purplegloss
in
PMRGCAuk
5 months ago
UK NHS - PA treatment & management experiences
I was diagnosed (by my GP) with PA about 2 months ago and so far I’m on the ‘standard’ NHS protocol having had my 6 loading injections of B12 and awaiting the next injection in 2-3 months (this period seems a bit hazy). To be honest, my GP appears to be ‘simply’ following the prescribed script so I’
I was diagnosed (by my GP) with PA about 2 months ago and so far I’m on the ‘standard’ NHS protocol having had my 6 loading injections of B12 and awaiting the next injection in 2-3 months (this period seems a bit hazy). To be honest, my GP appears to be ‘simply’ following the prescribed script so I’
Pa234aw
in
Pernicious Anaemia Society
5 months ago
PDF of Hopkins or Mayo DA Withdrawal protocol??
Hi, I seem to remember a while back finding a link (here I think, maybe on Reddit?) to a PDF someone had gotten from Hopkins, or one of the other big clinics, detailing their precise protocol and what to "expect" when finally off of a DA in terms of days, etc. Can someone please repost that? I went
Hi, I seem to remember a while back finding a link (here I think, maybe on Reddit?) to a PDF someone had gotten from Hopkins, or one of the other big clinics, detailing their precise protocol and what to "expect" when finally off of a DA in terms of days, etc. Can someone please repost that? I went
Avart
in
Restless Legs Syndrome
5 months ago
CCUS/MDS and B12 def
Best members , I inject hydroxocobalamin EOD since october 2022. I had amongst all other classical symptoms the most terrible kimd of burning parestisias from my waist to my knees, terrible burning waves, I consider this as symptomd from subacute combined degeneration of spinal cord. Last weeks I am
Best members , I inject hydroxocobalamin EOD since october 2022. I had amongst all other classical symptoms the most terrible kimd of burning parestisias from my waist to my knees, terrible burning waves, I consider this as symptomd from subacute combined degeneration of spinal cord. Last weeks I am
Annaunge
in
Pernicious Anaemia Society
5 months ago
It is not me it is you.
I think I may have an understanding. "Those on this forum which refer to my work and the accomplishments I experience as the results of that work as finding what works by experimentation, can not fathom that I can review the current information and methodology used to design protocols and design a
I think I may have an understanding. "Those on this forum which refer to my work and the accomplishments I experience as the results of that work as finding what works by experimentation, can not fathom that I can review the current information and methodology used to design protocols and design a
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Symptoms of Vitamin B12 deficiency - that I cannot find an answer to....
I had a low Vitamin B12 (125 mg/L) and low folate. One of my symptoms was severe pins and needles - particularly my legs, feet and genital areas. Is it common to have more severe symptoms in one leg more than the other? I have quite severe pins and needs in my left leg, and milder pins and needles
I had a low Vitamin B12 (125 mg/L) and low folate. One of my symptoms was severe pins and needles - particularly my legs, feet and genital areas. Is it common to have more severe symptoms in one leg more than the other? I have quite severe pins and needs in my left leg, and milder pins and needles
Madman070578
in
Pernicious Anaemia Society
5 months ago
my story
I started on cobalamin injections pre Covid then when lockdown arrived was put on Tablet form which remained until last July when a retired Doctor in our practice noticed I’d been requesting to be given B12 injections once more. I’d gone for a different reason but I felt so well by next day it convinced
I started on cobalamin injections pre Covid then when lockdown arrived was put on Tablet form which remained until last July when a retired Doctor in our practice noticed I’d been requesting to be given B12 injections once more. I’d gone for a different reason but I felt so well by next day it convinced
Beadbuddy
in
Pernicious Anaemia Society
5 months ago
Pernicious anaemia triggered transverse myelitis.
I’m on two methyl injections a day. From Monday I’ll move on to 3 a day. The dosage is 2500mcg. I previously was on hydroxo eod. This is really effecting my life. I currently am unable to walk unaided. I use my crutches.
I’m on two methyl injections a day. From Monday I’ll move on to 3 a day. The dosage is 2500mcg. I previously was on hydroxo eod. This is really effecting my life. I currently am unable to walk unaided. I use my crutches.
qwertystar
in
Pernicious Anaemia Society
5 months ago
Vitamin b12/Folate deficiency
Hi all, Firstly can I say how helpful I’ve found this forum with the issues I’ve had with my health recently. I’ve recently been diagnosed by my GP with b12 and folate deficiency. I had a blood test (in the UK) and was told my level was 125 (not sure what unit of measure). It was suggested I had a
Hi all, Firstly can I say how helpful I’ve found this forum with the issues I’ve had with my health recently. I’ve recently been diagnosed by my GP with b12 and folate deficiency. I had a blood test (in the UK) and was told my level was 125 (not sure what unit of measure). It was suggested I had a
Madman070578
in
Pernicious Anaemia Society
5 months ago
Blood work
I recently got my blood tested so I could check for ferritin levels and my ferritin was at 329. I had gotten my blood test a year ago when I first saw the doctor for RLS but they’d didn't test ferritin levels at that time. My doctor just messaged me about my new results and said my results showed elevation
I recently got my blood tested so I could check for ferritin levels and my ferritin was at 329. I had gotten my blood test a year ago when I first saw the doctor for RLS but they’d didn't test ferritin levels at that time. My doctor just messaged me about my new results and said my results showed elevation
Tbone87
in
Restless Legs Syndrome
5 months ago
1
...
9
10
11
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Pernicious Anaemia Society
3476 results
Thyroid UK
2408 results
Restless Legs Syndrome
336 results
View top 10 communities
Sort by
Most Relevant
Newest