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Somatic tinnitus
Hi All, I have had T for 7 months. It isn’t hearing related. However, as I have been on this journey, I have noticed that I have the T constant 24/7 that often changes with random spikes. However, I am also experiencing somatic T that I wasn’t fully aware of before. I was diagnosed with TMD and have
Hi All, I have had T for 7 months. It isn’t hearing related. However, as I have been on this journey, I have noticed that I have the T constant 24/7 that often changes with random spikes. However, I am also experiencing somatic T that I wasn’t fully aware of before. I was diagnosed with TMD and have
Sassyjax1
in
Tinnitus UK
7 months ago
What's on at Ovacome next week? (week commencing Monday 6 May 2024)
Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 7 May - Gentle strengthening exercise class between 11:00am – 12:00pm : https://www.ovacome.org.uk/Event/exercise-class - Coventry &
Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week. Tuesday 7 May - Gentle strengthening exercise class between 11:00am – 12:00pm : https://www.ovacome.org.uk/Event/exercise-class - Coventry &
OvacomeSupport
My Ovacome Team
in
My Ovacome
25 days ago
Pluvicto Treatment
So, I just completed my 3rd round of Pluvicto and my primary oncologist wanted me to do a CT scan w/contrast and a bone scan. The Ct showed some increase in cancer in the liver and a number of other spots. I am only doing Pluvicto and no other treatment as requested. Are there other people who are receiving
So, I just completed my 3rd round of Pluvicto and my primary oncologist wanted me to do a CT scan w/contrast and a bone scan. The Ct showed some increase in cancer in the liver and a number of other spots. I am only doing Pluvicto and no other treatment as requested. Are there other people who are receiving
Parscore
in
Advanced Prostate Cancer
25 days ago
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Dual ARi in mCRPCa - Antonarakis = 'Combo of 2 AR-directed agents should not be utilized in clinical practice at this time', MedPage 7/20/23
Posted without comment for the SOC crowd. [i]
Emmanuel Antonarakis, MD, on Dual Androgen Receptor Inhibition in Metastatic Castration-Resistant Prostate Cancer– 'Combination of two androgen-directed agents should not be utilized in clinical practice at this time', MedPage Today, ASCO > Prostate Cancer
Posted without comment for the SOC crowd. [i]
Emmanuel Antonarakis, MD, on Dual Androgen Receptor Inhibition in Metastatic Castration-Resistant Prostate Cancer– 'Combination of two androgen-directed agents should not be utilized in clinical practice at this time', MedPage Today, ASCO > Prostate Cancer
cujoe
in
Fight Prostate Cancer
10 months ago
Thyroid Cancer Reoccurrence?
I'm having a bit of a panic. Had my thyroid panel done through medichecks with THYROGLOBULIN of 12. Had a TT for papillary thyroid cancer 13 years ago when I was 26. I was discharged from oncology 2 years ago and thyroglobulin not been checked since. I was always told it should be undectable. Should
I'm having a bit of a panic. Had my thyroid panel done through medichecks with THYROGLOBULIN of 12. Had a TT for papillary thyroid cancer 13 years ago when I was 26. I was discharged from oncology 2 years ago and thyroglobulin not been checked since. I was always told it should be undectable. Should
DarkStar85
in
Thyroid UK
26 days ago
interesting concepts (not applicable yet): Modulating extracellular matrix stiffness - a strategic approach to boost cancer immunotherapy
”How can targeting ECM stiffness be optimized to achieve maximal efficacy in various types of cancer immunotherapy?”….now that’s a hell of a question! https://www.nature.com/articles/s41419-024-06697-4
”How can targeting ECM stiffness be optimized to achieve maximal efficacy in various types of cancer immunotherapy?”….now that’s a hell of a question! https://www.nature.com/articles/s41419-024-06697-4
Maxone73
in
Advanced Prostate Cancer
26 days ago
Prednisolene
Good Morning . I was diagnosed with Rheumatoid Arthritis nearly three years ago . My private consultant started me on 15 mg of steroids for a month followed by a slow taper along with 15 mg methotrexate . I had a really good 18 months playing tennis and generally feeling really well with CRP around
Good Morning . I was diagnosed with Rheumatoid Arthritis nearly three years ago . My private consultant started me on 15 mg of steroids for a month followed by a slow taper along with 15 mg methotrexate . I had a really good 18 months playing tennis and generally feeling really well with CRP around
Portopetro
in
PMRGCAuk
7 months ago
V + O for R/R CLL post FCR
I sent this to skyshark based on some info he posted but I was[u] hoping for the whole group to chime in.[/u] I had 3 rounds of FCR in 2018 stopped because of profound neutropenia. I relapsed exactly 2 years later and though I did not start Tx until the 5 year point in 2023, would have gladly started
I sent this to skyshark based on some info he posted but I was[u] hoping for the whole group to chime in.[/u] I had 3 rounds of FCR in 2018 stopped because of profound neutropenia. I relapsed exactly 2 years later and though I did not start Tx until the 5 year point in 2023, would have gladly started
skipro
in
CLL Support
2 days ago
tp53 mutation
Hi All, my dad has been diagnosed with CLL and has just had it confirmed that he has the TP53 mutation/deletion. He is stable at the moment and is currently on watch & wait. His consultant has said if and when he starts treatment it will be for life or until it isn’t effective. I’ve read lots that say
Hi All, my dad has been diagnosed with CLL and has just had it confirmed that he has the TP53 mutation/deletion. He is stable at the moment and is currently on watch & wait. His consultant has said if and when he starts treatment it will be for life or until it isn’t effective. I’ve read lots that say
Fortheloveoffarming
in
CLL Support
26 days ago
liquid biopsy lung cancer
Hello everyone, Does anyone have experience of a liquid biopsy either via the NHS or privately? We got a second opinion, discussed the case with a professor who recommended a guardant 360 liquid biopsy due to the unusual spread into the other lung & appearance during biopsy which is apparently usually
Hello everyone, Does anyone have experience of a liquid biopsy either via the NHS or privately? We got a second opinion, discussed the case with a professor who recommended a guardant 360 liquid biopsy due to the unusual spread into the other lung & appearance during biopsy which is apparently usually
Clark74517796
in
The Roy Castle Lung Cancer Foundation
26 days ago
Different mutation?
I was just checking via my NHS app what had been sent to my GP, when I noticed on a letter from Guys this - it listed my mutations - CGN - normal karotype, NGS - CALR, L2AF1, ASXL2. (High risk markers) Previously I thought I was ASXL1, it could be a typo I suppose but does anyone know the difference
I was just checking via my NHS app what had been sent to my GP, when I noticed on a letter from Guys this - it listed my mutations - CGN - normal karotype, NGS - CALR, L2AF1, ASXL2. (High risk markers) Previously I thought I was ASXL1, it could be a typo I suppose but does anyone know the difference
lizzziep
in
MPN Voice
27 days ago
EXERCISE is our best med.
I wrote this in response to a post that seems to have disappeared This is one of the most important post topics on this board. [i] In another large, phase 3 clinical trial funded by Movember, Chan and epidemiologists Stacey Kenfield and Lorelei Mucci, with principal investigators Rob Newton and
I wrote this in response to a post that seems to have disappeared This is one of the most important post topics on this board. [i] In another large, phase 3 clinical trial funded by Movember, Chan and epidemiologists Stacey Kenfield and Lorelei Mucci, with principal investigators Rob Newton and
Scout4answers
in
Advanced Prostate Cancer
27 days ago
Recently diagnosed and trying to work out what to do! All advice gratefully received.
I was diagnosed this week. Still in shock a bit as I am a fit and very active 58 with no real symptoms. I have a psa of 7.7. Gleason Score 3+4 = 7 one in 10 cores with a 2.5mm tumour length whoich is 20% of the core involved. 30% of cores showed cribreform pattern 4 glands. Area of concern on MRIs
I was diagnosed this week. Still in shock a bit as I am a fit and very active 58 with no real symptoms. I have a psa of 7.7. Gleason Score 3+4 = 7 one in 10 cores with a 2.5mm tumour length whoich is 20% of the core involved. 30% of cores showed cribreform pattern 4 glands. Area of concern on MRIs
welshsky
in
Prostate Cancer Network
27 days ago
Always hit pca hard especially in the beginning and follow your instincts, You are Your Own Best Advocate.
Update Husband fighting with Stage 4 pca 06/2022 3 lytic lesions Seen same Medical Oncologist since 07/2022 Received a call from PA after only in this fight for 1.8 years and my husband has liver metastaties We don’t know how many or how big, as MO has not released pet scan of course we are devastated
Update Husband fighting with Stage 4 pca 06/2022 3 lytic lesions Seen same Medical Oncologist since 07/2022 Received a call from PA after only in this fight for 1.8 years and my husband has liver metastaties We don’t know how many or how big, as MO has not released pet scan of course we are devastated
Shorehousejam
in
Advanced Prostate Cancer
27 days ago
Today was a good day
My husband had his PSMA scan today and it was negative for mets!! I am so relieved! He also had his PSA tested today and no change since December. I feel like I can breathe for a moment. We also met with the radiation oncologist this morning to discuss brachytherapy boost and it was a very positive meeting
My husband had his PSMA scan today and it was negative for mets!! I am so relieved! He also had his PSA tested today and no change since December. I feel like I can breathe for a moment. We also met with the radiation oncologist this morning to discuss brachytherapy boost and it was a very positive meeting
EvFC
in
Advanced Prostate Cancer
27 days ago
better delivery for better results: nanolipid particles work well in vivo
”Mitchell and postdoctoral fellow Lulu Xue were able to achieve therapeutic mRNA delivery into the lungs, helping to eradicate metastatic lung cancer in preclinical mouse model studies. ” https://www.thedp.com/article/2024/04/penn-lipid-nanoparticles-michael-mitchell-research
”Mitchell and postdoctoral fellow Lulu Xue were able to achieve therapeutic mRNA delivery into the lungs, helping to eradicate metastatic lung cancer in preclinical mouse model studies. ” https://www.thedp.com/article/2024/04/penn-lipid-nanoparticles-michael-mitchell-research
Maxone73
in
Advanced Prostate Cancer
27 days ago
Surgery or radiotheraphy?
Hi, I writing this post on behalf if my husband who is 41 and was diagnosed with an acoustic neuroma in January. He has been referred to The Queen Elizabeth under Richard Irving and we had a lengthy discussion last week about options as the tumour is at a size where it needs treatment. My husband is
Hi, I writing this post on behalf if my husband who is 41 and was diagnosed with an acoustic neuroma in January. He has been referred to The Queen Elizabeth under Richard Irving and we had a lengthy discussion last week about options as the tumour is at a size where it needs treatment. My husband is
Zhad
in
Acoustic Neuroma Support
28 days ago
Does Immunotherapy cause Vasculitis?
Hi, my Mum had vasculitis in 2013 following a bad infection, she continues to take 5mg prednisone to this day.Sadly she has been diagnosed with a stage 2 tumor of the cecum which because of her age and frailty at 81 years old is suggested to be inoperable. Genetic testing reveals its a type of cancer
Hi, my Mum had vasculitis in 2013 following a bad infection, she continues to take 5mg prednisone to this day.Sadly she has been diagnosed with a stage 2 tumor of the cecum which because of her age and frailty at 81 years old is suggested to be inoperable. Genetic testing reveals its a type of cancer
luggsey
in
Vasculitis UK
28 days ago
What to expect with mets and no treatment
4 months of study everywhere online- future life reading all the suffering here on this forum with side effects, impotence, recurrence, hormone therapy, other side effects, etc. My heart goes out to all of you, and my hats off to you warriors, who have chosen to fight this battle with conventional
4 months of study everywhere online- future life reading all the suffering here on this forum with side effects, impotence, recurrence, hormone therapy, other side effects, etc. My heart goes out to all of you, and my hats off to you warriors, who have chosen to fight this battle with conventional
Nwdx
in
Advanced Prostate Cancer
28 days ago
Weightlifting (machines) during SBRT?
(duplicate post) I am starting my five SBRT sessions tomorrow, April 29, 2024. I was not supposed to lift over ten pounds between my MRI/CT scan to locate my fiducials and my SBRT. I miss my workouts. Can I return to the gym with workouts on machines that isolate my muscle groups and avoid stress
(duplicate post) I am starting my five SBRT sessions tomorrow, April 29, 2024. I was not supposed to lift over ten pounds between my MRI/CT scan to locate my fiducials and my SBRT. I miss my workouts. Can I return to the gym with workouts on machines that isolate my muscle groups and avoid stress
Worked_the_World
in
Advanced Prostate Cancer
28 days ago
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