PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

Another injury, wrist this time

Just the other day, for unknown reason, memory of an old acquaintance popped ino my mind, specifically her frequent use of the expression, "What fresh hell is...

Just the other day, for unknown reason, memory of an old acquaintance popped ino...

HeronNS

•3 days ago

49 Replies

New & Confused with GCA

Hello, I’m asking for help and advice as the wife (and carer) for my husband who was diagnosed with GCA on April 1st…I wish it had been an Fools’ Day prank,...

Hello, I’m asking for help and advice as the wife (and carer) for my husband who...

Hidden

•1 month ago

158 Replies

Coopersmummy7

Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long...

Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and f...

Angelsmummy

•10 days ago

82 Replies

Covid vaccination in England for 75 & over & those on 20mg steroids at this moment, & 20mg for over one month

I arrived at my appointment for Covid vax this morning, and told the truth, the whole truth & nothing but the truth. I suffer fromPolymyalgia Rheumatica,...

I arrived at my appointment for Covid vax this morning, and told the truth, the...

Pixix

•13 days ago

93 Replies

More Challenges to Overcome!

Some of you may recall that for some years, I've frequently experienced ectopic beats. They've been calmed down with a lowish dose of a beta blocker...

Some of you may recall that for some years, I've frequently experienced ectopic ...

Kendrew

•1 month ago

129 Replies

Working

Is it possible to continue living normally with PMR as before? Work, light sports training? My rheumy says I can continue to work 80% as a clerk and ride my...

Is it possible to continue living normally with PMR as before? Work, light sport...

Swizzly

•5 days ago

49 Replies

A&E AGAIN!!

So, not only have I enjoyed the delights of sampling A&E, Colchester a few weeks ago but I was also given the opportunity to sample Warwicks A&E offering on...

So, not only have I enjoyed the delights of sampling A&E, Colchester a few weeks...

Kendrew

•7 days ago

57 Replies

Turmeric Drink Shots

Mmmmmm. I am trying out Turmeric shots as a way to alleviate pain and aches... I had my first one at about noon and the aching and pains have gone. Just that...

Mmmmmm. I am trying out Turmeric shots as a way to alleviate pain and aches... ...

discoballs

•8 days ago

59 Replies

Skin problems at low dose

I was so happy to finally get down to 5mg after 4+ years PMR and GCA...though attempts to get below this are so far not working but I am being patient. However...

I was so happy to finally get down to 5mg after 4+ years PMR and GCA...though at...

Waves2

•18 hours ago

17 Replies

Is this a flare ?

Hi all. I don't post on here often but I read lots of other posts so know you all know so much more about this than me. I have had PMR for about 4 years and...

Hi all. I don't post on here often but I read lots of other posts so know you al...

lindtbunnynut

•1 day ago

22 Replies

No Cominarty Vaccine!!

I've had the call for my Spring covid booster, but unfortunately I can't have Spikevax (Moderna) as last time I was given it I spent the next 6mths sorting out...

I've had the call for my Spring covid booster, but unfortunately I can't have Sp...

Kendrew

•2 days ago

22 Replies

Disappointed and worried

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went through my history of pain, I was initially diagnosed with PMR in sept last year...

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went thr...

Cooper02

•14 days ago

64 Replies

Cortisol issues

I'm fortunate in having a good GP who is very concerned about my total exhaustion and inability to cope with everyday life. She wrote to my rheumy who...

I'm fortunate in having a good GP who is very concerned about my total exhaustio...

Sammo47

•18 days ago

71 Replies

Good bye and good luck to you all !

I am leaving PMRGCA uk and this group sadly I have to deal with terminal lung cancer that has moved into the bones. The NHS cannot cure only seek containment....

I am leaving PMRGCA uk and this group sadly I have to deal with terminal lung ca...

DevonMichael

•1 month ago

95 Replies

Prednisolone and diabetes / high bp worried sick about all the side effects

hi everyone I was diagnosed with PMR in February this year And despite being a diabetic with high bp was put on Prednisolone and alendronic acid - I was...

hi everyone I was diagnosed with PMR in February this year And despite being a d...

Pol53

•13 days ago

59 Replies

Holiday at last!

Well, finally made it to Isle of Wight, despite delaying one day owing to apprehension. Drove camper-van for first time in 6 months. So glad I went. Change of...

Well, finally made it to Isle of Wight, despite delaying one day owing to appreh...

random901

•2 days ago

22 Replies

Thoughts please on dissolving Prednisolone in water to drink instead of swallowing whole.

I only spotted this yesterday on the information in the Prednisolone tablets. In "Method of administration" section it says: "The tablets can be swallowed...

I only spotted this yesterday on the information in the Prednisolone tablets. In...

Positive__

•15 days ago

57 Replies

PMR and covid vaccination

I’ve been asked to have a seasonal covid vaccination because of my weakened autoimmune system, due to PMR. There’s a lot online about covid vaccines and PMR,...

I’ve been asked to have a seasonal covid vaccination because of my weakened auto...

Freshairfiend

•6 days ago

35 Replies

Impact of a Mediterranean Diet

Hello all I don't post often now but wanted to share some very positive news, that might be useful to some of you. I'm 4.5 years into PMR and am currently...

Hello all I don't post often now but wanted to share some very positive news, th...

Coffeebeans

•7 days ago

37 Replies

Tapering experience

Hi All, I haven’t posted for a couple of months but have been reading the site everyday and gaining valuable information while trying to come to terms with...

Hi All, I haven’t posted for a couple of months but have been reading the site ...

Specialised

•2 days ago

19 Replies

Is it a flare or not??

In August I will have had PMR for 4 years but I still struggle knowing whether I’m flaring or not. I have trouble reducing my Prednisolone dose despite doing...

In August I will have had PMR for 4 years but I still struggle knowing whether I...

Tiggy70

•24 days ago

63 Replies

Incidence of Large Vessel Vasculitis in late diagnosis of PMR

When I read members’ experiences of prompt PMR diagnoses I’m truly pleased for them but I have to admit to feeling a degree of envy. My diagnosis arrived...

When I read members’ experiences of prompt PMR diagnoses I’m truly pleased for t...

123-go

•11 days ago

42 Replies

Unexplained “rash”

I’m currently into 6 years of PMR, having had my fair share of ups and downs, and am now on 3.5mg of Pred, which the Rheumatologist thinks will be necessary...

I’m currently into 6 years of PMR, having had my fair share of ups and downs, an...

Janann25

•3 days ago

23 Replies

New to PMR

I just wanted to introduce myself and to say thank you for the wealth of information and advice from those on this forum. I was given a diagnosis of PMR by my...

I just wanted to introduce myself and to say thank you for the wealth of informa...

Trentside

•6 days ago

30 Replies

Finally off Prednisolone and methotrexate

I have had PMR /GCA for 9 years and started at 60mg of prednisolone and shortly after was prescribed Methotrexate. I am pleased to say that finally I have been...

I have had PMR /GCA for 9 years and started at 60mg of prednisolone and shortly ...

Sorop

•28 days ago

64 Replies

Biopsy Negative for GCA

The vascular surgeon said the biopsy for GCA was negative. I asked him if the biopsy result depends on where he took the biopsy. He said no and that it’s...

The vascular surgeon said the biopsy for GCA was negative. I asked him if the b...

Moaningxcat

•6 days ago

30 Replies

GCA? or something else?

Yesterday was an even more stressful day than most others. I had worked, as I usually do, for about 4 hours online, when I got a twinge of a headache in my...

Yesterday was an even more stressful day than most others. I had worked, as I u...

agingfeminist

•11 days ago

40 Replies

UPDATE ON CATARACT SURGERY

Hi all! Had my right eye done yesterday. Seems to have gone very well. Easy peezy. Good drugs. Took about 20 minutes at the most. Everything is so much...

Hi all! Had my right eye done yesterday. Seems to have gone very well. Easy peez...

Missus835

•27 days ago

61 Replies

Adrenal fatigue?

I have been suffering the most dreadful fatigue and breathlessness recently with gentle exercise such as walking. I can go to work OK, I'm a plumber and...

I have been suffering the most dreadful fatigue and breathlessness recently with...

Trainy

•12 days ago

41 Replies

Severe mental reaction to prednisolone

As you can see if you read my profile I have spent almost the whole of the last 4 months struggling with a long list of frightening mood changes which have and...

As you can see if you read my profile I have spent almost the whole of the last ...

tinlid

•12 days ago

39 Replies

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Patience

A Rough Guide to PMR GCA uk history : so far May 2020 - by a...

PMR Guidelines 2015: https://www.rheumatology.org/Portals/0/...

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