Vasculitis UK | HealthUnlocked

Hello, recently diagnosed with renal-limited vasculitis and trying to adjust lifestyle as best I can. Quit alcohol and eating a healthy diet which feels...

Hi, just saying, I had the Covid booster on Monday ,on Tuesday I was extremely ill , Temperature of 38.6 ,tremors on and of all day , face swollen ,hearing...

ERN RITA & EUVAS webinar: Infections in ANCA Associated Vasculitis Save the date: Tuesday 21 May 2024, 12:00-13:00 CET | You can find all ERN RITA...

Hello, tomorrow I have my 2nd vasculitis treatment (high-dose steroids plus rituximab) and just wondering if there is much difference between the 1st and 2nd...

We have noticed that the awareness posts have been dominating the community page and we see less posts from our members. Therefore, with exception of the...

Our chair Dorothy Ireland has a special birthday today! Happy 70th Dorothy! May - Day 11 #vasculitis awareness month. Let's celebrate Dorothy's special...

Today is International Vasculitis Awareness Day! Spread the word! May - Day 15 #vasculitis awareness month. Life is beautiful, don't let vasculitis tell...

May - Day 14 #vasculitis awareness month. Vasculitis is a life changing illness! Take a moment to read Wendy's story! To donate to #VasculitisUK ‘s...

Hi, Has anyone else experienced this? I’ve woken up today with rust like staining, mainly on my left hand with a little on my right. No logical cause from...

Susan , Charlotte , Laura (our grant co-ordinator) and I manned the VUK stand at the British Society of Rheumatology's annual conference.It was busy, but at a...

Hello everyone. Hope all is well. I have been diagnosed with Urticaria Vasculitis since 2022. I have just turned 30 and with youth spirit, I have been hoping...

Vasculitis UK is supporting this study and we would welcome those eligible to take the opportunity to have their say. Your personal experience and opinion...

Hello, My daughter has recently been diagnosed with IgA Vasculitis, with Gastro-intestinal involvement. She is currently living in France and being treated...

Do you live with vasculitis, lupus, scleroderma or Sjögren's syndrome and are a UK resident? Please participate in the survey :...

hi Does anyone know if partners / carers of clinically extremely vulnerable people are eligible for the Covid boosters in April. I am under 75 years of age....

May - Day 13 #vasculitis awareness month. Behcets is a very rare type of vasculitis and not an easy one to live with. Take a moment to read Helen's story!...

Hi, my Mum had vasculitis in 2013 following a bad infection, she continues to take 5mg prednisone to this day.Sadly she has been diagnosed with a stage 2 tumor...

Spring COVID Vaccine 2024 booster eligibility The government has announced a Spring 2024 dose of COVID-19 vaccine for: people aged 75 years and over those...

this morning I paid for a Covid vaccine £65. I was given the Novavax. Excellent service, not far to travel but annoying that I was not given it on the NHS as...

For more details - https://www.vasculitis.org.uk/news/are-you-suffering-with-anca-vasculitis

May - Day 10 #vasculitis awareness month. Vasculitis can present in many different ways. GPA can affect the nose and make it collapse, it causes saddle nose....

May - Day 3 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is an ANCA assosiated vasculitis and can be severe, even...

May - Day 9 #vasculitis awareness month. Takayasu Arteritis is a rare type of Vasculitis with the initial symptoms arising in those between 5 and 40 years of...

May - Day 8 #vasculitis awareness month. Vasculitis can be severe, even fatal if not treated in time and correctly. GPA can severily affect kidneys and lungs...

May - Day 7 #vasculitis awareness month. Fatigue is not tiredness, you don't need a good night's sleep to get over it. It is more about pacing and accepting...

May - Day 6 #vasculitis awareness month. Granulomatosis of Polyangiitis or GPA (former Wegener's) is the most common of the ANCA associated vasculitisdes,...

May - Day 5 Vasculitis Awareness Month. #vasculitis is a chronic autoimmune rheumatic disease. Living with it can be very challenging, not only physically,...

May - Day 4 Vasculitis Awareness Month. #vasculitis is a chronic autoimmune rheumatic disease. Flare ups are common. Eary diagnosis and early and correct...

This will be very interesting and I encourage you to attend in person if you can or online. It is an opportunity to raise the patients' voice . If you will...

May is vasculitis awareness month. Microscopic Polyangiitis (MPA) is inflammation of the small and sometimes medium sized blood vessels. It usually affects...