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Meningioma
hi I’m looking for help with my
Meningioma
. I have had surgery but the tumour is growing again and I have been offered radiology treatment. What have you all been offered/done.
hi I’m looking for help with my
Meningioma
. I have had surgery but the tumour is growing again and I have been offered radiology treatment. What have you all been offered/done.
Godoone22
in
Meningioma Support
4 months ago
radiation
I’m interested in any long term side effects of radiation treatment on
meningioma
grade 1 but regrowing.
I’m interested in any long term side effects of radiation treatment on
meningioma
grade 1 but regrowing.
Sharkdiver3
in
Meningioma Support
13 days ago
Meningioma advice
There, they found a 'well defined partly enhancing
meningioma
along the falx anteriorly'. On the phone call where he told me this the neurologist has stated that my headaches are unlikely to be because of this and suggested I go back on amitriptyline again.
There, they found a 'well defined partly enhancing
meningioma
along the falx anteriorly'. On the phone call where he told me this the neurologist has stated that my headaches are unlikely to be because of this and suggested I go back on amitriptyline again.
Calannmc
in
Meningioma Support
25 days ago
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Meningioma and post-operative shunt
I know shunts are mostly used for hydrocephalus, but I’m most interested in the experience of people who had/have
meningioma
and meningiocele. Many thanks David Pollak
I know shunts are mostly used for hydrocephalus, but I’m most interested in the experience of people who had/have
meningioma
and meningiocele. Many thanks David Pollak
Sebastian49
in
Headway
3 months ago
Clear
No change in the appearence of the
meningioma
. Another scan recommended in a years time. I'm pleased about that.
No change in the appearence of the
meningioma
. Another scan recommended in a years time. I'm pleased about that.
Hidden
in
Meningioma Support
6 months ago
Flying with a meningioma
Is it safe to fly with a
Meningioma
. Whose advice do I go on? Any advice would be very much appreciated.
Is it safe to fly with a
Meningioma
. Whose advice do I go on? Any advice would be very much appreciated.
Limegreen2024
in
Meningioma Support
3 months ago
Solenoid/optic meningioma experience?
My husband just got diagnosed with
meningioma
behind his eye and solenoid area. We don't have surgical options. Does anyone have experience living with this type? What treatment did you get?
My husband just got diagnosed with
meningioma
behind his eye and solenoid area. We don't have surgical options. Does anyone have experience living with this type? What treatment did you get?
Naturemom11
in
Meningioma Support
6 months ago
Anyone else have a DNET?
Have had quite a few issues & now have an incidental
meningioma
. Get next to no monitoring. Hope to hear from someone in maybe not the same boat but as near as.
Have had quite a few issues & now have an incidental
meningioma
. Get next to no monitoring. Hope to hear from someone in maybe not the same boat but as near as.
BettytheYeti
in
The Brain Tumour Charity
3 months ago
Meningioma !!
Morning all.1st ever seizure 23/07/22 ..14hrs in AnE...called back for a MRI scan 25/07/22 diagnosed with
Meningioma
brain tumour! Situated just above and behind my left ear.
Morning all.1st ever seizure 23/07/22 ..14hrs in AnE...called back for a MRI scan 25/07/22 diagnosed with
Meningioma
brain tumour! Situated just above and behind my left ear.
MadTrucker
in
Meningioma Support
9 months ago
just had a craniotomy
I had my surgery 3 weeks ago to remove a
meningioma
which I’ve known about and had annual MRIs for the last 12 years. I’m kicking goals with my recovery was sent home 24 hrs after surgery due to no space in hospital .
I had my surgery 3 weeks ago to remove a
meningioma
which I’ve known about and had annual MRIs for the last 12 years. I’m kicking goals with my recovery was sent home 24 hrs after surgery due to no space in hospital .
Meningioma12
in
Meningioma Support
25 days ago
Meningioma
On the 14th of August I was diagnosed with a
meningioma
it has been pushing on my optic nerve of my left eye leaving me practically bind in that eye. I suffer from headaches and sharp pains behind my eye. Am awaiting an appointment with neurosurgeon. What can I expect
On the 14th of August I was diagnosed with a
meningioma
it has been pushing on my optic nerve of my left eye leaving me practically bind in that eye. I suffer from headaches and sharp pains behind my eye. Am awaiting an appointment with neurosurgeon. What can I expect
Rocket20
in
Meningioma Support
9 months ago
Going through recurrent meningioma and growth in cystic encephalomalacia. Please share if anyone is going through cystic encephalomalacia.
HelloI had a craniotomy in 2020 for Atypical
meningioma
grade 2. Last week MRI showed recurrent
meningioma
and growth in cystic encephalomalacia. I am suffering from neuropathic pain. Please share if anyone is going through the same situation.
HelloI had a craniotomy in 2020 for Atypical
meningioma
grade 2. Last week MRI showed recurrent
meningioma
and growth in cystic encephalomalacia. I am suffering from neuropathic pain. Please share if anyone is going through the same situation.
nidhi123
in
Meningioma Support
10 months ago
New diagnosis
Hi I have just been diagnosed with sphenoid
meningioma
and also with dehisence semi circular canal , which is a problem with bones that affect balance in inner ear. Can't believe I received diagnosis unexpectedly in a letter.
Hi I have just been diagnosed with sphenoid
meningioma
and also with dehisence semi circular canal , which is a problem with bones that affect balance in inner ear. Can't believe I received diagnosis unexpectedly in a letter.
Creamteas
in
Meningioma Support
1 month ago
atypical meningioma 2 aggressive
has anyone had a recurrence of atypical
meningioma
and if so how long after first surgery
has anyone had a recurrence of atypical
meningioma
and if so how long after first surgery
Clayden
in
Meningioma Support
10 months ago
Facebook support group
I highly recommend to follow
Meningioma
Support Group on Facebook. Great community of people and information ☀️.
I highly recommend to follow
Meningioma
Support Group on Facebook. Great community of people and information ☀️.
DeeMay16
in
Meningioma Support
10 months ago
meningioma headaches
anyone still suffering severe headaches that wake them I’m almost 14 weeks post surgery headaches unbearable so tired . Feel left in the dark by doctors I wasn’t explained much about tumour it’s still bit surreal into hospital on a Thursday operated 6 days later and feel worse ever since I would love
anyone still suffering severe headaches that wake them I’m almost 14 weeks post surgery headaches unbearable so tired . Feel left in the dark by doctors I wasn’t explained much about tumour it’s still bit surreal into hospital on a Thursday operated 6 days later and feel worse ever since I would love
Clayden
in
Meningioma Support
9 months ago
Insomnia
My daughter had radiotherapy for a
meningioma
in the frontal lobe 8 months ago and has been suffering with severe insomnia.She is so tired but just cannot sleep.She has tried melatonin and zopiclone and neither has helped.Has anyone else had this problem and found something that helps?
My daughter had radiotherapy for a
meningioma
in the frontal lobe 8 months ago and has been suffering with severe insomnia.She is so tired but just cannot sleep.She has tried melatonin and zopiclone and neither has helped.Has anyone else had this problem and found something that helps?
stormcloud
in
Meningioma Support
9 months ago
Watch and wait
I was diagnosed with a 3cm benign
Meningioma
last March after suffering with severe vertigo..
I was diagnosed with a 3cm benign
Meningioma
last March after suffering with severe vertigo..
Limegreen2024
in
Meningioma Support
4 months ago
My journey with Sarcoidosis
Follow up PET Scans show my lymph glands are ok and the
Meningioma
is stable.
Follow up PET Scans show my lymph glands are ok and the
Meningioma
is stable.
Veebeegeebee
in
SarcoidosisUK
2 months ago
Petrocival meningioma
Hi I’ve been diagnosed with a giant petroclival
Meningioma
and am awaiting surgery. I’m very worried about the outcome of the surgery and wanted to chat with someone whose had this surgery please
Hi I’ve been diagnosed with a giant petroclival
Meningioma
and am awaiting surgery. I’m very worried about the outcome of the surgery and wanted to chat with someone whose had this surgery please
Bordermum
in
Meningioma Support
11 months ago
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