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High risk treatment - go conventional or experimental?
Hello Folks, Lots of great posts and discussions on this site. I thought I'd come aboard and get some feedback. 58 yrs old great health except for Gleason 4+4 = 8, in 3/6 biopsy cores (one side of prostate). Not sure why they only took 6 cores. PSA 24.1 back in November. Did a bone scan and a question
Hello Folks, Lots of great posts and discussions on this site. I thought I'd come aboard and get some feedback. 58 yrs old great health except for Gleason 4+4 = 8, in 3/6 biopsy cores (one side of prostate). Not sure why they only took 6 cores. PSA 24.1 back in November. Did a bone scan and a question
LongTimeRunning
in
Prostate Cancer Network
1 year ago
how do you deal with sudden dizziness
hi My husband has a fib since being diagnosed in 2018. He is an otherwise fit and healthy 76 year old. Walks a lot not overweight no smoking and no alcohol since diagnosis. Is on digoxin and Rivaroxaban once a day. He gets a fib on average for about 24 hours every few weeks. Never found a trigger.
hi My husband has a fib since being diagnosed in 2018. He is an otherwise fit and healthy 76 year old. Walks a lot not overweight no smoking and no alcohol since diagnosis. Is on digoxin and Rivaroxaban once a day. He gets a fib on average for about 24 hours every few weeks. Never found a trigger.
Janau
in
Atrial Fibrillation Support
2 years ago
What should i do? Been in afib for over 48 hrs.
Hi all, i have been in afib for over 48 hrs. Prior to the AFib episode while struggling somewhat to clamber up sand dunes with my dog i became aware of pain between shoulder blades and across shoulders which was a minor concern at the time but the pain continued way into the night. Not sure if I had
Hi all, i have been in afib for over 48 hrs. Prior to the AFib episode while struggling somewhat to clamber up sand dunes with my dog i became aware of pain between shoulder blades and across shoulders which was a minor concern at the time but the pain continued way into the night. Not sure if I had
dragon51
in
AF Association
2 years ago
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AMG 509 and CC-94676 Clinical Trials
Has anyone participated in the AMG 509 (immunotherapy) clinical trial or the CC-94676 (oral hormonal therapy) clinical trial? What side effects have you experienced? Were positive results achieved? Does anyone know if you choose one over the other, are you precluded from participating in the remaining
Has anyone participated in the AMG 509 (immunotherapy) clinical trial or the CC-94676 (oral hormonal therapy) clinical trial? What side effects have you experienced? Were positive results achieved? Does anyone know if you choose one over the other, are you precluded from participating in the remaining
Coop68
in
Advanced Prostate Cancer
1 year ago
Is it worth taking magnesium supplements?
On Christmas Day our family gathered at our place and after dinner, as usual, the conversation turned to medical topics. My aunt told us that her neighbor told her that Magnesium may prime the immune system to fight cancer and infections. Dr. Hess and scientists in Switzerland have now discovered that
On Christmas Day our family gathered at our place and after dinner, as usual, the conversation turned to medical topics. My aunt told us that her neighbor told her that Magnesium may prime the immune system to fight cancer and infections. Dr. Hess and scientists in Switzerland have now discovered that
donits
in
Advanced Prostate Cancer
1 year ago
can you stay paroxysmal and never progress.?
it’s the million dollar question I suppose.? but I was talking to a elderly gentleman recently and he was diagnosed with AFIB thirty years ago and he is still paroxysmal.!! How common is this would you say. Or should I say how uncommon is this.???? Any thoughts or views..!!!
it’s the million dollar question I suppose.? but I was talking to a elderly gentleman recently and he was diagnosed with AFIB thirty years ago and he is still paroxysmal.!! How common is this would you say. Or should I say how uncommon is this.???? Any thoughts or views..!!!
Jetcat
in
Atrial Fibrillation Support
2 years ago
Why is it critical to achieve a deep molecular response ?
»Reaching a Deep Molecular Remission is now considered a goal of therapy by many clinicians. The importance of a DMR for patients aiming to achieve Treatment Free Remission is recognized by the inclusion of DMR as an endpoint measure in clinical trials. Additionally, TFR is increasingly acknowledged
»Reaching a Deep Molecular Remission is now considered a goal of therapy by many clinicians. The importance of a DMR for patients aiming to achieve Treatment Free Remission is recognized by the inclusion of DMR as an endpoint measure in clinical trials. Additionally, TFR is increasingly acknowledged
Manouche
in
MPN Voice
1 year ago
Pluvicto advisable for low volume disease? A recent PSA scan showed one tumor in my spine and one and a rib but also castrate resistant
I’ve been on Orgovyx for the last 15 months and three months ago my PSA started to rise and is now at .44. I’ve been hearing rumors about clinical trials for low volume disease but don’t know anything more about it. Can anyone recommend a clinic in Europe that might be experimenting on this level?
I’ve been on Orgovyx for the last 15 months and three months ago my PSA started to rise and is now at .44. I’ve been hearing rumors about clinical trials for low volume disease but don’t know anything more about it. Can anyone recommend a clinic in Europe that might be experimenting on this level?
SViking
in
Advanced Prostate Cancer
1 year ago
Are Blood Pressure levels relevant to the Anticoagulant decision?
That excellent communicator York cardiology has just done a video on blood pressure https://www.youtube.com/watch?v=q7V7DssSbSE . This included the simple definitions: The Systolic blood pressure. This is when the heart is pumping and ejecting blood into the vascular system and therefore is the highest
That excellent communicator York cardiology has just done a video on blood pressure https://www.youtube.com/watch?v=q7V7DssSbSE . This included the simple definitions: The Systolic blood pressure. This is when the heart is pumping and ejecting blood into the vascular system and therefore is the highest
secondtry
in
AF Association
2 years ago
when to go to hospital with an afib episode
its 6am and I'm still in an afib episode with average heart rate 175 on my kardia since 4.30am. Feel terrible. How long should I wait before a trip to hospital? I'm on bisoprolol and flacinide. Due to take it at 9am should I take it now? Any adevice greatly received.
its 6am and I'm still in an afib episode with average heart rate 175 on my kardia since 4.30am. Feel terrible. How long should I wait before a trip to hospital? I'm on bisoprolol and flacinide. Due to take it at 9am should I take it now? Any adevice greatly received.
Youngest
in
AF Association
2 years ago
Any one know about new immune response clinical trials for metastatic prostate cancer?
inhave a friend that had stage 4 prostate cancer he was treated with surgery and chemo but it has returned and is aggressive and spread. His PSA also went up, Trying to find out about the new trials that are aimed at him
inhave a friend that had stage 4 prostate cancer he was treated with surgery and chemo but it has returned and is aggressive and spread. His PSA also went up, Trying to find out about the new trials that are aimed at him
Zigzagzig
in
Prostate Cancer And Gay Men
1 year ago
Yesterday was a surprising day
I met my new cardiologist on Monday and I thought that I liked him. I had a call that afternoon to tell me I was scheduled for an echo cardiogram on Friday morning. on Thursday they called to confirm and give me those last minute things they tell you about what not to eat etc somehow it came up that
I met my new cardiologist on Monday and I thought that I liked him. I had a call that afternoon to tell me I was scheduled for an echo cardiogram on Friday morning. on Thursday they called to confirm and give me those last minute things they tell you about what not to eat etc somehow it came up that
DawnTX
in
AF Association
2 years ago
Splenomegaly in Polycythemia Vera: Its Clinical Significance and its Relation to Symptoms
Background: Splenomegaly (SPML) in PV has been considered a diagnostic hallmark, associated with symptoms, affected clinical trial design, and influenced governmental approval of ropeginterferon α-2b. Whether SPML affects myelofibrosis-free and overall survival (MFS and OS) is unknown. Because of uncertainty
Background: Splenomegaly (SPML) in PV has been considered a diagnostic hallmark, associated with symptoms, affected clinical trial design, and influenced governmental approval of ropeginterferon α-2b. Whether SPML affects myelofibrosis-free and overall survival (MFS and OS) is unknown. Because of uncertainty
Manouche
in
MPN Voice
1 year ago
Anti-Congulant Dilema
Hi everyone, Previous advice you have given was so helpful so wonder whether you could help me again with this one please … I am a 52 yr old female diagnosed with Afib in august this year. Went to GP complaining of chest pain/indigestion. He managed to capture AFib on ECG. Went down private route to
Hi everyone, Previous advice you have given was so helpful so wonder whether you could help me again with this one please … I am a 52 yr old female diagnosed with Afib in august this year. Went to GP complaining of chest pain/indigestion. He managed to capture AFib on ECG. Went down private route to
Jojasp
in
AF Association
2 years ago
Zytiga failure after 4 years what now
Hi Diagnosed in 2016 had SBRT . Life good 2 years and found 1 met in lung . Did Lupron/zytiga PSA drop to under .1 for 2 years. Requested a vacation . 15 months later PSA rises do PSMA . One met on vertibrae only . Did SBRT and doc said let’s do lung met at the same time even though it’s not showing
Hi Diagnosed in 2016 had SBRT . Life good 2 years and found 1 met in lung . Did Lupron/zytiga PSA drop to under .1 for 2 years. Requested a vacation . 15 months later PSA rises do PSMA . One met on vertibrae only . Did SBRT and doc said let’s do lung met at the same time even though it’s not showing
Db999
in
Advanced Prostate Cancer
1 year ago
AF problems...
I have had months of problems with my AF. Feeling tired and fatigued most days. My Kardia showing daily AF with TC 200 bpm and BC 40..50bpm. I do get a positive ok result most days. My GP referred me for a 7 day Holter .....the report says" sinus rhythm throughout with ventricular rates 44 and
I have had months of problems with my AF. Feeling tired and fatigued most days. My Kardia showing daily AF with TC 200 bpm and BC 40..50bpm. I do get a positive ok result most days. My GP referred me for a 7 day Holter .....the report says" sinus rhythm throughout with ventricular rates 44 and
samuela5
in
AF Association
2 years ago
Did you Know? 🤔
Did you know 80% of sudden cardiac deaths could be avoided if a defibrillator was used together with CPR within a few minutes? These two simple steps can save thousands of lives each year in UK. Our #DefibsSaveLives campaign promotes the need to equip communities with these life saving devices: https
Did you know 80% of sudden cardiac deaths could be avoided if a defibrillator was used together with CPR within a few minutes? These two simple steps can save thousands of lives each year in UK. Our #DefibsSaveLives campaign promotes the need to equip communities with these life saving devices: https
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
2 years ago
Zhittya announces "Safe and Effective" treatment for PD
I know many of us (including myself) are skeptical about this company (they charge 50 thousand if you want to be a 'volunteer test subject'). I don't begrudge anyone an honest living. So let's just hope they come up with some good results to help us. --------------------------------- "FGF-1, Zhittya
I know many of us (including myself) are skeptical about this company (they charge 50 thousand if you want to be a 'volunteer test subject'). I don't begrudge anyone an honest living. So let's just hope they come up with some good results to help us. --------------------------------- "FGF-1, Zhittya
PDWarrior1900
in
Cure Parkinson's
1 year ago
2022 Emerging Leaders Prize Awarded to 3 Researchers in UK
Awardees received a total of £220K funded by the will of scientist with the disease by Patricia Valerio, PhD | December 8, 2022 The Medical Research Foundation has awarded its sixth Emerging Leaders Prize to three lupus researchers in the U.K. The scientists received a total of £220,000 (around
Awardees received a total of £220K funded by the will of scientist with the disease by Patricia Valerio, PhD | December 8, 2022 The Medical Research Foundation has awarded its sixth Emerging Leaders Prize to three lupus researchers in the U.K. The scientists received a total of £220,000 (around
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Do I need an Ablation ?
I had a recent cardioversion which put me back into sinus rhythm for just one week. During this week I hadn't notice any significant difference in how I felt, with the exception of feeling quite lively for about half a day ( I assumed this was maybe something to do with the anaesthetic) In a recent
I had a recent cardioversion which put me back into sinus rhythm for just one week. During this week I hadn't notice any significant difference in how I felt, with the exception of feeling quite lively for about half a day ( I assumed this was maybe something to do with the anaesthetic) In a recent
Rhythmking
in
AF Association
2 years ago
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