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New RLS member
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
First and foremost, I really have to thank all on here that contribute so much time and knowledge to those of us in need. It is very much appreciated. My basic history: I remember back in college around 1998, my calves would go crazy at night like spiders crawling under my skin. It would come and
Ddski5
in
Restless Legs Syndrome
6 months ago
Strange Results
Hi, I was diagnosed with PA in 2013/14 and was given injections for a while but that stopped a good few years ago. I had tests done via Endo a while back and they said my levels were fine despite no injections/supplements. I had tests done in May 2023 and the active b12 came back as high. It showed
Hi, I was diagnosed with PA in 2013/14 and was given injections for a while but that stopped a good few years ago. I had tests done via Endo a while back and they said my levels were fine despite no injections/supplements. I had tests done in May 2023 and the active b12 came back as high. It showed
DownAndDesperate
in
Pernicious Anaemia Society
2 months ago
Switched from Methadone at 10 mg to Buprenorphine 10 mcg
Good Morning, As of June 2023, I began with 5 mg of methadone, and gradually increased it to 20 mg by August. I reported to the forum in early November, a transformation occurred, with the leg spasms virtually gone, caused by RLS at night. I began tapering off, and reduced it to 7.5 mg and have remained
Good Morning, As of June 2023, I began with 5 mg of methadone, and gradually increased it to 20 mg by August. I reported to the forum in early November, a transformation occurred, with the leg spasms virtually gone, caused by RLS at night. I began tapering off, and reduced it to 7.5 mg and have remained
vikkitennis
in
Restless Legs Syndrome
6 months ago
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Help Interpreting Results
Hi. Can I have advice on results? These are from a while back for anyone who has read my recent posts. I was on 1 tablet of T3 a day at this point. I previously had high thyroid antibodies but the LDN I take seems to have lowered them to be in range. I was wondering if the same has happened with pernicious
Hi. Can I have advice on results? These are from a while back for anyone who has read my recent posts. I was on 1 tablet of T3 a day at this point. I previously had high thyroid antibodies but the LDN I take seems to have lowered them to be in range. I was wondering if the same has happened with pernicious
DownAndDesperate
in
Thyroid UK
2 months ago
Genetic test
Got a copy of my Tempest test. My MO says "No actionable results" meaning plan of action doesn't change (Triplet Therapy). He also stated I had nothing to pass on to my son as far as hereditary gene problems. I have no clue what any of it means. DNA mismatch expression (normal) Homologous recombination
Got a copy of my Tempest test. My MO says "No actionable results" meaning plan of action doesn't change (Triplet Therapy). He also stated I had nothing to pass on to my son as far as hereditary gene problems. I have no clue what any of it means. DNA mismatch expression (normal) Homologous recombination
APK3
in
Advanced Prostate Cancer
6 months ago
how long before?
just wondering how long T4 takes to kick in ! Recently (4 weeks) had increase of levo but not really any signs of improvement and still feel “wrecked”
just wondering how long T4 takes to kick in ! Recently (4 weeks) had increase of levo but not really any signs of improvement and still feel “wrecked”
AustinHealeySprite
in
Thyroid UK
6 months ago
TSH and T4 raising on medications
Hi Initially, my TSH level was 8 mIU/L (normal range 0.4 to 4.0 mIU/L), with T3 and T4 within normal ranges. Upon starting a 0.25 euthyrox (T4) dosage, my TSH surged to 18, coinciding with the onset of mild discomfort in my rectal area, which I suspect may be hemorrhoids. Despite a dosage increase to
Hi Initially, my TSH level was 8 mIU/L (normal range 0.4 to 4.0 mIU/L), with T3 and T4 within normal ranges. Upon starting a 0.25 euthyrox (T4) dosage, my TSH surged to 18, coinciding with the onset of mild discomfort in my rectal area, which I suspect may be hemorrhoids. Despite a dosage increase to
Biotamo
in
Thyroid UK
2 months ago
New test results-can someone advise please.
I posted previous Medichecks Thyroid tests and have just had the results of the one I did on Monday morning! 9 am, fasting. No thyroxine for 26 hours. Usually take 112.5 mcg, thyroxine and 5 mcg T3 at around 6 am. [u]Inflammation[/u] (I have an upset tum at the moment after a course antibiotics
I posted previous Medichecks Thyroid tests and have just had the results of the one I did on Monday morning! 9 am, fasting. No thyroxine for 26 hours. Usually take 112.5 mcg, thyroxine and 5 mcg T3 at around 6 am. [u]Inflammation[/u] (I have an upset tum at the moment after a course antibiotics
Hidden
in
Thyroid UK
4 months ago
Starting T3
Hi I had appointment with private GP and the plan is for me to start T3. I am currently taking 75/100 mg Levothyroxine alternate days. My latest results were TSH 1.28, T3 4, T4 20.4 I’m told my conversion rate is poor at 5.1. It’s suggested that I take 2.5 mcg 3 times a day to begin. If I feel ok after
Hi I had appointment with private GP and the plan is for me to start T3. I am currently taking 75/100 mg Levothyroxine alternate days. My latest results were TSH 1.28, T3 4, T4 20.4 I’m told my conversion rate is poor at 5.1. It’s suggested that I take 2.5 mcg 3 times a day to begin. If I feel ok after
Pebbles33
in
Thyroid UK
2 months ago
Pregablin
Morning, I'm off my CITALOPRAM and iron infusion raised ferritin to 178.Legs still horrific without pregabalin which is great but at 200mg I'm in a coma for almost 14 hours so working feeling drugged and impacted, I'm only allowed to stay on this for 3 months then they'll ween me off ....but to what
Morning, I'm off my CITALOPRAM and iron infusion raised ferritin to 178.Legs still horrific without pregabalin which is great but at 200mg I'm in a coma for almost 14 hours so working feeling drugged and impacted, I'm only allowed to stay on this for 3 months then they'll ween me off ....but to what
Baz33
in
Restless Legs Syndrome
6 months ago
T3/T4 combo maintaining in range TSH
I’m just wondering, does anybody do this either by design or by accident?
I’m just wondering, does anybody do this either by design or by accident?
Laundretta
in
Thyroid UK
2 months ago
test results . help please? just received but appt this morning with endo
hi I have just had the following results and also a note from GP wanting to talk about my 'worrying' thryoid (I assume TSH) results My cholesterol has been high and he wanted me on statins but i have been hoping if I get my thyroid going the cholesterol would come down (endo thinks that is not possible
hi I have just had the following results and also a note from GP wanting to talk about my 'worrying' thryoid (I assume TSH) results My cholesterol has been high and he wanted me on statins but i have been hoping if I get my thyroid going the cholesterol would come down (endo thinks that is not possible
lauriegraham
in
Thyroid UK
4 months ago
Does this sound like Hashimoto's please?
Hello, My thyroid has been under suspicion for many years but I cannot seem to get any answers. Postnatally, (four months after giving birth), some fifteen years ago, my TSH was tested and was 12.6. Nothing was done about this. ( I have only just seen this on my NHS app). Fast forward to eight years
Hello, My thyroid has been under suspicion for many years but I cannot seem to get any answers. Postnatally, (four months after giving birth), some fifteen years ago, my TSH was tested and was 12.6. Nothing was done about this. ( I have only just seen this on my NHS app). Fast forward to eight years
Gyrosgirl
in
Thyroid UK
2 months ago
Tried Bovine Thyroid Supplement - feel very ill!
I could really use some help. I just started on a beef thyroid supplement this morning (Grassfed Beef Thyroid by Ancestral Supplements). And it looks like my body is reacting the same way it reacted when I tried 2 porcine thyroid supplements in the past - heart palpitations and severe fatigue. Although
I could really use some help. I just started on a beef thyroid supplement this morning (Grassfed Beef Thyroid by Ancestral Supplements). And it looks like my body is reacting the same way it reacted when I tried 2 porcine thyroid supplements in the past - heart palpitations and severe fatigue. Although
Betterhealth4me
in
Thyroid UK
6 months ago
T3 only blood results
Hello, I moved from a combination of ERFA/T3 last November to exclusively on T3. Initially, I was splitting my doses three times a day and gradually building up from a starting dose of only 10mcg at 4am/ 5mcg at 11am and 5 mcg at 3pm.. I worked up to 30mg at 4am/5mcg at 11am and 10mcg at 3pm. I
Hello, I moved from a combination of ERFA/T3 last November to exclusively on T3. Initially, I was splitting my doses three times a day and gradually building up from a starting dose of only 10mcg at 4am/ 5mcg at 11am and 5 mcg at 3pm.. I worked up to 30mg at 4am/5mcg at 11am and 10mcg at 3pm. I
RydeBeach
in
Thyroid UK
3 months ago
Returning to my surgery about getting thyroid bloods done🤦♀️
Hi everyone ❤️So after last Friday seeing my gp who prescribed antihistamines to counter act me having an intolorence to the teva t4 and me finding out the antihistamine contains mannitol and other fillers I know I'm intolorent to, and the teva t4 containing mannitol also, I decided not to take the
Hi everyone ❤️So after last Friday seeing my gp who prescribed antihistamines to counter act me having an intolorence to the teva t4 and me finding out the antihistamine contains mannitol and other fillers I know I'm intolorent to, and the teva t4 containing mannitol also, I decided not to take the
birkie
in
Thyroid UK
4 months ago
mixing different t3 meds
I was taking cytomel for 6 years. Tsh went successfully down, but I never could reach normal ft3 because of my poor adrenals. Now when my thyroid worsened, tsh went from 0 to 4,5, anti TPO increased and anti TG appeared though never had them before, ft4 at lowest and ft3 aroung middleof the range. I
I was taking cytomel for 6 years. Tsh went successfully down, but I never could reach normal ft3 because of my poor adrenals. Now when my thyroid worsened, tsh went from 0 to 4,5, anti TPO increased and anti TG appeared though never had them before, ft4 at lowest and ft3 aroung middleof the range. I
Viv123
in
Thyroid UK
2 months ago
male hormones
Hi Ladies and Gents I wanted to ask if anyone knows where I can find a group/expert about male hormones? It’s for my husband, he has no thyroid issues, it’s about other hormones. He did a Randox test and it turns out he has elevated FSH, LH, Prolactin and Oestradiol. His Testosterone is ok, he is
Hi Ladies and Gents I wanted to ask if anyone knows where I can find a group/expert about male hormones? It’s for my husband, he has no thyroid issues, it’s about other hormones. He did a Randox test and it turns out he has elevated FSH, LH, Prolactin and Oestradiol. His Testosterone is ok, he is
Amazon07
in
Thyroid UK
4 months ago
Large lesion on liver - 10cm x 5cm
I am after a bit of advice from anyone that may have been in a similar position to me. I had blood tests done towards the end of last year due to on going acid reflux symptoms. In the last 6 months I have been on the cancer pathway for investigations for throat and stomach, all biopsies came back clear
I am after a bit of advice from anyone that may have been in a similar position to me. I had blood tests done towards the end of last year due to on going acid reflux symptoms. In the last 6 months I have been on the cancer pathway for investigations for throat and stomach, all biopsies came back clear
purplecatlady1
in
British Liver Trust
5 days ago
Update to last post.
As suggested I wrote a request, via Patches, asking for a Gp to refer me to a private endo. I got an appointment for Today to speak to a clincian, who turned out to be a paramedic. He informed me that 'They' do not write referrals to private endos. I would need to approach one myself and if He/She wanted
As suggested I wrote a request, via Patches, asking for a Gp to refer me to a private endo. I got an appointment for Today to speak to a clincian, who turned out to be a paramedic. He informed me that 'They' do not write referrals to private endos. I would need to approach one myself and if He/She wanted
PurpleOliver
in
Thyroid UK
3 months ago
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