Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

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Diffuse SSc Diagnosis

hey everyone, I’m new here and was diagnosed with SSc in 2022. I am still waiting for a formal diagnosis for the type I have but due to the strongly positive...

hey everyone, I’m new here and was diagnosed with SSc in 2022. I am still wait...

Prettyfalcon

•35 minutes ago

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Introduction

Hello everyone, I am new to this site so let me introduce myself I live with my husband on the outskirts of Llandudno on the North Wales coast. I am very...

Hello everyone, I am new to this site so let me introduce myself I live with my...

Ildivolover

•1 day ago

4 Replies

swelling of feet knees ankles wrists new symptom

good morning all so I have started getting swelling randomly in my extremities and it feels like an injury one of my new symptoms I can only describe as hot...

good morning all so I have started getting swelling randomly in my extremities ...

Jaq1971

•1 day ago

1 Reply

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Systemic Sclerosis - lip augmentation at Royal Free?

Hi all, has anyone ever considered a lip augmentation (ie not lip fillers!) at the Royal free? The process takes fat from one part of your body and deposits it...

Hi all, has anyone ever considered a lip augmentation (ie not lip fillers!) at t...

Nw6London

•2 days ago

4 Replies

compression gloves

Does any one use compression/arthritis gloves for raynuds? do they work?

Lulet99

•2 days ago

4 Replies

Esomeprazole and metoclopramide

Hello everyone I’ve been enjoying the posts on What’s in a Title and thank you to all involved. On a more mundane matter, I had a telephone consultation with...

Hello everyone I’ve been enjoying the posts on What’s in a Title and thank you ...

Halfwayuphill

•4 days ago

11 Replies

Night Terrors

Good morning everyone, I last posted about my night terrors , so I visited my doctor who changed the 30mg lansoprazole I was taking to 20 Esomeprazole but...

Good morning everyone, I last posted about my night terrors , so I visited m...

lmpieroni

•5 days ago

11 Replies

Abnormal ECG

Hi all Having a panic so thought I would see if anyone can give any advice or just generally calm me down abit. Had a heart scan last year that showed some...

Hi all Having a panic so thought I would see if anyone can give any advice or j...

Helenlouise40

•8 days ago

8 Replies

Home Remedies & Herbal Treatments

Hi, I'm a student researching scleroderma. I want to hear about scleroderma from people who actually suffer from the condition, so that I can write accurately...

Hi, I'm a student researching scleroderma. I want to hear about scleroderma from...

SophieMed

•10 days ago

3 Replies

Pain Relief

I have posted before regarding Scleroderma and Raynauds and the problems which relate to this. I have osteoarthritis in my knees and they are so very...

I have posted before regarding Scleroderma and Raynauds and the problems which r...

creditcrunchie

•14 days ago

4 Replies

inflammation on hydroxychloroquine and 5mg of prednisolone

hello, I saw my rheumatologist today after complaining about my painful hands and wrists. The doctor mentioned that I don’t show any signs of inflammation on...

hello, I saw my rheumatologist today after complaining about my painful hands a...

Morepasta

•15 days ago

4 Replies

raynauds

do anyone know if you can get a hand cream for redness and sweaty hands for a 11 year old

do anyone know if you can get a hand cream for redness and sweaty hands for a 11...

Hidden

•15 days ago

2 Replies

Pins and needles, sensitivity to water 6 months after severe Raynaud's attack with ischaemia

Hi there! My octogenarian mum finally saw the Rheumatologist again since last Nov. Nov23 she had a serious Raynaud's attack pre-diagnosis. We had no idea what...

Hi there! My octogenarian mum finally saw the Rheumatologist again since last No...

CarerEdi

•18 days ago

5 Replies

digital ulcers/sores

Hello all I had thought that I would have some answers to questions that I was going to ask rheumatologist yesterday, but my appointment was cancelled. So......

Hello all I had thought that I would have some answers to questions that I was ...

Brychni

•26 days ago

3 Replies

SSC and Vitamin D

I have SSc (Scleroderma)/Reynauds/Pulmonary Fibrosis/Inflamatory Arthritis. And other stuff!. 2010 diagnosis. The stuff on the web address below is hard...

I have SSc (Scleroderma)/Reynauds/Pulmonary Fibrosis/Inflamatory Arthritis. And ...

homeat42

•27 days ago

6 Replies

Newbie help for my partner

Hi All, My wife has just been diagnosed with raynauds by the doctor ... her hands get so cold they hurt and so do her feet How do you all manage it in the...

Hi All, My wife has just been diagnosed with raynauds by the doctor ... her hand...

Chip_y2kuk

•27 days ago

13 Replies

Cracked skin

Hi ,ive just joined the group and just looking for some answers. I was diagnosed with Raynards early last year,but around the last 7-8 months my skin on my...

Hi ,ive just joined the group and just looking for some answers. I was diagnosed...

Bernewfie

•29 days ago

3 Replies

how did your GI/gut symptoms start?

Hi All I hope everyone is doing well. looking for some insight - I’ve been diagnosed nearly 2 years. recently I have been having some minor gut issues and...

Hi All I hope everyone is doing well. looking for some insight - I’ve been di...

ruablue

•1 month ago

14 Replies

Low BP

I've used Amlodipine for long time to help Raynauds, recently BP has become quite low so have stopped Amlodipine. Has anyone used Naftidrofuryl as it has been...

I've used Amlodipine for long time to help Raynauds, recently BP has become quit...

Fishie1

•1 month ago

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Nightmares

Hi everyone I haven't posted anything for a long time but I'm just wondering does anyone else suffer from night terrors and think it might be linked to...

Hi everyone I haven't posted anything for a long time but I'm just wondering doe...

lmpieroni

•1 month ago

13 Replies

Really itchy face and tiny spots

Hi I was diagnosed with scleroderma 2019 and since then I've always had itchy skin on my body so I'm on ceterizine 4x10mg a day but over the last week my face...

Hi I was diagnosed with scleroderma 2019 and since then I've always had itchy sk...

Who48

•1 month ago

6 Replies

Dry eyes and cataract operation

I have scleroderma and am suffering with dry eyes for which I use drops and a night ointment.I have been advised to have cataract surgery. Anyone any...

I have scleroderma and am suffering with dry eyes for which I use drops and a ni...

KathleenMary

•1 month ago

7 Replies

Recently diagnosed

Hi - This is my first post - I was only recently diagnosed with scleroderma after what feels like an eternity of basically figuring out and chasing most of it...

Hi - This is my first post - I was only recently diagnosed with scleroderma afte...

Pippa222

•1 month ago

21 Replies

Raynaud's in dark skinned patients

Hi all! My mum has secondary Raynaud's, like triggered by heart meds that unfortunately, she has to take. Diagnosis came very late as she didn't get the...

Hi all! My mum has secondary Raynaud's, like triggered by heart meds that unfort...

CarerEdi

•2 months ago

12 Replies

Tinnitus

I wonder if anyone else is suffering from tinnitus. I have noticed my tinnitus is getting worse and was reading up on it. So it seems it can affect people with...

I wonder if anyone else is suffering from tinnitus. I have noticed my tinnitus i...

LuckyLucy007

•2 months ago

6 Replies

Nifedipine/blood pressure

it’s been a long time since I posted . I do however read other people’s stories and I think the conversations are amazing with so much advice been given thus...

it’s been a long time since I posted . I do however read other people’s stories...

creditcrunchie

•2 months ago

3 Replies

Elimination of symptoms through change of diet (such as AIP) - has anyone tried it?

Hi all, Has anyone ever tried AIP (Autoimmune Protocol) Diet or any other diet to get rid of symptoms of auto immune diseases? I have been speaking with the...

Hi all, Has anyone ever tried AIP (Autoimmune Protocol) Diet or any other diet ...

hunkyd0ry

•2 months ago

6 Replies

Constant, crippling nausea: gastroparesis

Hi all, I have Dssc and medicated x2 twice daily mycophenolate which I've been on for about a year. My symptoms are generally under control after I began...

Hi all, I have Dssc and medicated x2 twice daily mycophenolate which I've been o...

Nw6London

•2 months ago

6 Replies

Tofacitinib

Hi, I’ve posted on here a few times about large areas of calcinosis ( I have diffuse systemic sclerosis) but as it’s a rare side of dSSc I have had very...

Hi, I’ve posted on here a few times about large areas of calcinosis ( I have d...

Eden1234

•2 months ago

8 Replies

Sclerosing Mesenteritis

hi folks this is my first time posting here, I have lupus SLE and recently been diagnosed with sclerosing Mesenteritis which is extremely rare - I have ended...

hi folks this is my first time posting here, I have lupus SLE and recently been ...

svfarmer

•2 months ago

7 Replies

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Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

Diffuse SSc Diagnosis

Introduction

swelling of feet knees ankles wrists new symptom

Systemic Sclerosis - lip augmentation at Royal Free?

compression gloves

Esomeprazole and metoclopramide

Night Terrors

Abnormal ECG

Home Remedies & Herbal Treatments

Pain Relief

inflammation on hydroxychloroquine and 5mg of prednisolone

raynauds

Pins and needles, sensitivity to water 6 months after severe Raynaud's attack with ischaemia

digital ulcers/sores

SSC and Vitamin D

Newbie help for my partner

Cracked skin

how did your GI/gut symptoms start?

Low BP

Nightmares

Really itchy face and tiny spots

Dry eyes and cataract operation

Recently diagnosed

Raynaud's in dark skinned patients

Tinnitus

Nifedipine/blood pressure

Elimination of symptoms through change of diet (such as AIP) - has anyone tried it?

Constant, crippling nausea: gastroparesis

Tofacitinib

Sclerosing Mesenteritis

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