Posts - PBC Foundation | HealthUnlocked

Administrator•3 minutes ago

from Dr Jones' book - Cholestyramine (Questran) is the first line treatment for the itching. If this doesn't work, then taking Rifampicin is the next line...

more of Dr. Jones' '2 minutes versions'

from Dr Jones' book - Cholestyramine (Questran) is the first line treatment fo...

Administrator•13 hours ago

Oh my, I am so sorry I nearly forgot post this. No excuses... What have you done lately to take care of yourself mentally and/or physically?...

Monday "Me"

Oh my, I am so sorry I nearly forgot post this. No excuses... What have you d...

Administrator•17 hours ago

Curious if anyone experiences random liver area discomfort. Not pain, just a tender discomfort. Last usually 7 or so hours, then its good. Causes? PBC since...

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Random liver discomfort

Curious if anyone experiences random liver area discomfort. Not pain, just a te...

TanGram

•2 days ago

4 Replies

anybody?

Someone who facilitates another support group is looking for someone from Algeria - or someone who speaks Arabic or French. We just need to connect some folks...

Someone who facilitates another support group is looking for someone from Algeri...

Administrator•3 days ago

We are asking for your help. 4/6/2024 Very directly. Very succinctly. We need your help. This is the most important thing the Foundation has ever worked...

Important from The PBC Foundation....

We are asking for your help. 4/6/2024 Very directly. Very succinctly. We need...

from the PBC Foundation...... We Need You! We are calling for change and your voice must be heard . If you are part of the #PBCCommunity a patient, family...

Administrator•4 days ago

6 Replies

Please Read!

from the PBC Foundation...... We Need You! We are calling for change and yo...

Administrator•4 days ago

If you could only listen to one song for the rest of your life, what would it be?

Friday Fun question

If you could only listen to one song for the rest of your life, what would it be...

Can lichen planus affect your skin ? I do not have anything orally, but this sure look suspicious.

Administrator•4 days ago

5 Replies

Lichen Planus

Can lichen planus affect your skin ? I do not have anything orally, but this su...

What - if anything - has been positive about being diagnosed with PBC?

•4 days ago

4 Replies

Thursday's Thoughts

Urso responder........ Right now the criteria used is that the patients' alkaline phosphatase result is LESS than 1.67 times the upper...

Administrator•5 days ago

9 Replies

Wednesday's Word

Urso responder........ Right now the criteria used is that the patients' alkali...

Why do you think so many of us still have a difficult time making time for ourselves? Why is it so hard to just do something that takes...

Administrator•6 days ago

12 Replies

Tuesday's Thoughts

Why do you think so many of us still have a difficult time making time for ourse...

Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book The Definitive Guide for Patients Who...

Administrator•7 days ago

5 Replies

Dr. Jones' Knowledge

Several times a week I want to share some of Dr. Jones' statements regarding PBC...

What have you done for yourself in the last week or so? How have you taken care of 'you' either physically or mentally lately?...

Administrator•8 days ago

2 Replies

It's Monday 'Me'....

What have you done for yourself in the last week or so? How have you taken care...

Administrator•8 days ago

I have been on finofibrate and rifampcin for my itch but neither helped. My pharmacist told me colesevelam can help. Has anyone here tried it, and was it...

Colesevelam for itch

I have been on finofibrate and rifampcin for my itch but neither helped. My phar...

Carly92

•9 days ago

6 Replies

Friday Fun Question

Anyone have a bucket list? What's at the top of it?

i am actually writing this for a young lady whom i found out has PBC and is a former student. She is not fifty, and seems to have an aggressive form of PBC....

Administrator•11 days ago

6 Replies

Bruising easily

i am actually writing this for a young lady whom i found out has PBC and is a fo...

i am actually writing this for a young lady whom i found out has PBC and is a former student. She is not fifty, and seems to have an aggressive form of PBC....

•11 days ago

8 Replies

Bruising easily

i am actually writing this for a young lady whom i found out has PBC and is a fo...

DO’S Tepid showers Dove or baby soap/shower gels Exfoliating gloves using quick, easy strokes Coconut oil in the shower – and afterwards Meds –...

•11 days ago

1 Reply

Hints regarding itching...

DO’S Tepid showers Dove or baby soap/shower gels Exfoliating gloves using qui...

What makes you think you are doing 'ok' since diagnosis? Do you feel you are 'ok'? By 'ok, that includes mentally as well as...

Administrator•12 days ago

2 Replies

Thursday's Thoughts

What makes you think you are doing 'ok' since diagnosis? Do you feel you are ...

Administrator•12 days ago

i am at wit’s end with this pain, that appears much worse at night~. Is this a symptom? I am in agony

Pain upper thighs, lower back

i am at wit’s end with this pain, that appears much worse at night~. Is this a s...

I have to apologize to the group for being so lax about posting some key points from Dr. Jones's book The Definitive Guide for the Patient With Primary...

•13 days ago

20 Replies

Sorry...

I have to apologize to the group for being so lax about posting some key points...

Second line therapy This a term used In PBC a patient does not respond to Urso - usually within a year's time from the...

Administrator•13 days ago

7 Replies

Wednesday's Word

Second line therapy This a term used In PBC a patient does not respond to Urs...

Administrator•13 days ago

Hello everyone! I recently started taking ocaliva. I don't know if they help, I'm due to go and have some blood tests done. Pros...the sharp pain I used to...

Ocaliva and side effects

Hello everyone! I recently started taking ocaliva. I don't know if they help, I'...

Beatris03

•14 days ago

12 Replies

Tuesday's Tips

Who or what helped you the most getting over the initial shock of your diagnosis?

Who or what helped you the most getting over the initial shock of your diagnosis...

Here in the states we are celebrating Memorial Day.. a day to remember all of those who gave their lives for our country. Gorgeous sunny day.....I hope we all...

Administrator•14 days ago

4 Replies

Today..

Here in the states we are celebrating Memorial Day.. a day to remember all of th...

Administrator•15 days ago

PRACTICE GUIDANCE Primary biliary cholangitis: 2021 practice guidance update from the American Association for the Study of Liver Diseases Lindor, Keith...

Two updates in the Guidelines for PBC

PRACTICE GUIDANCE Primary biliary cholangitis: 2021 practice guidance update ...

Administrator•18 days ago

It's 'ok'.....

Be kind to yourself....

Administrator•18 days ago

What song do you think could be your life's theme song?

Friday Fun Question

Administrator•18 days ago

Over the next week or so, I'd like to familiarize you with the guidelines officially established regarding PBC. I will post of a section of the Guidelines....

One piece at a time.....

Over the next week or so, I'd like to familiarize you with the guidelines offici...