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LUPUS UK

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Covid lupus

hi everyone I have had two nerve conduction tests done 2022 and 2023 and when I ask for results they have never sent me them I asked twice on both occasions...

hi everyone I have had two nerve conduction tests done 2022 and 2023 and when ...

Geeforce99

•4 hours ago

3 Replies

Upper Spine Pain

Hi everyone, Has anyone experienced upper spine pain. It's feels like I can no longer function. Constant pain. Nothing works. I am thinking of chiropractor...

Hi everyone, Has anyone experienced upper spine pain. It's feels like I can no l...

LalSD

•4 hours ago

2 Replies

Neuropsychiatric pro dromes SLE

https://lupusuk.org.uk/neuropsychiatric-prodromes-and-sle/ There is also the full article of the research if you can't find it let me know I can attach it for...

https://lupusuk.org.uk/neuropsychiatric-prodromes-and-sle/ There is also the ful...

KnitSewPurl

•13 hours ago

12 Replies

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Rib pain in back?

hello! has anyone experienced rib pain on their back? This doesn’t feel like my typical “lupus pain” .. this is more like a stabbing/throbbing pain. It can...

hello! has anyone experienced rib pain on their back? This doesn’t feel like my...

BlondeSammy

•16 hours ago

4 Replies

This is not how I am 😕

I saw my rheumatologist yesterday. A couple of weeks earlier than scheduled because I've felt very depressed. I feel no joy, no focus, no energy/vibe. My...

I saw my rheumatologist yesterday. A couple of weeks earlier than scheduled beca...

AnonLupi

•1 day ago

14 Replies

CRPS meaning

Hello. Just to amend CRPS to correct meaning. It's Complex regional pain syndrome. ( Predictive text!!).

Hello. Just to amend CRPS to correct meaning. It's Complex regional pain syndrom...

littleeed

•2 days ago

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CRPS anyone?

Good evening everyone. I broke my wrist, distal radius fracture. I knew that something wasn't right when the cast was on but was assured that everything was...

Good evening everyone. I broke my wrist, distal radius fracture. I knew that som...

littleeed

•2 days ago

1 Reply

Amputation

Hi there I am just wondering if anyone knows how I can convince my specialist to agree to me having my index finger amputated. I suffered from sceladoma...

Hi there I am just wondering if anyone knows how I can convince my specialist to...

Pixieluna1

•2 days ago

3 Replies

Anyone with SLE taking collagen??

Hi, I've got sle, aps and inflammatory arthritis. I'm just getting over yet another infection this time a kidney infection with 3 day temps of 40.3 and nearly...

Hi, I've got sle, aps and inflammatory arthritis. I'm just getting over yet anot...

Sara_A

•2 days ago

7 Replies

Does this look like lupus rash?

Hi everyone. I started with a flat purple rash last Tuesday. It’s spread across my stomach and down the front of my thighs. Then a more sporadic raised rash...

Hi everyone. I started with a flat purple rash last Tuesday. It’s spread acros...

Robyn1973f

•3 days ago

9 Replies

Don't know what's real anymore...

Some know my story so far, but briefly, rheumatologist diagnosed sjogren's after several years of UCTD and has now referred but to a sjogren's specialist. I...

Some know my story so far, but briefly, rheumatologist diagnosed sjogren's after...

Mctd

•3 days ago

10 Replies

Itch, scratch, repeat......

Hi all.Hope you are as well as you can be. I wasn't going to post this but if another person can relate it will help to know If this is common with others who...

Hi all.Hope you are as well as you can be. I wasn't going to post this but if an...

Lucylou72

•4 days ago

17 Replies

One for the newbies especially IOW

I sent this to a lupie friend of mine for Christmas and thought I'd post it for those new lupies currently struggling to get to grips with a new way of life....

I sent this to a lupie friend of mine for Christmas and thought I'd post it for ...

Spanielmadlady

•4 days ago

8 Replies

I have skin lupus but I feel like I have other symptoms too? I have no idea about my condition pls help!

hi all, I apologise in advance as it’s a long one and also if this comes across as dumb but - I’ve been diagnosed with lupus for 12 years and I still am...

hi all, I apologise in advance as it’s a long one and also if this comes across...

Paellaqueen

•4 days ago

1 Reply

unknown face rash

hi— My five-year-old son has had a rash on his face for over a month now. The rash initially started on his ear but resolved,, however the face stayed the...

hi— My five-year-old son has had a rash on his face for over a month now. The r...

Demaso33

•5 days ago

8 Replies

HAIR LOSS

Hi all Looking to see if any one has problem with hair thinning although no recent change in medication. Las summer Dermatologists prescribed BETACAP SCALP...

Hi all Looking to see if any one has problem with hair thinning although no r...

Haired

•5 days ago

6 Replies

Laugh and/or cry! I hope it makes you smile

Quick back story... my rheumatologist told me to stay out of the sun. I mean in no uncertain terms. So I did exactly that. I apply spf50 regularly throughout...

Quick back story... my rheumatologist told me to stay out of the sun. I mean in ...

AnonLupi

•5 days ago

13 Replies

I cannot bear this life

MESSAGE FROM HU SUPPORT: This post contains information that could be upsetting. If you are feeling vulnerable, do take care if you choose to read this post....

MESSAGE FROM HU SUPPORT: This post contains information that could be upsetting....

IsleofWight1

•5 days ago

42 Replies

Dermaguard uv protective film

Hello. I’m sun sensitive and travelling in the front of a car in the summer is a nightmare. It makes driving difficult and it’s not the first time I’ve had...

Hello. I’m sun sensitive and travelling in the front of a car in the summer is ...

Barbara17

•6 days ago

11 Replies

A little moan about the NHS and positive outcome come on my private consultation with 2 consultants Hip and Back

Ok so I have been having serious issues with my Back and hip both separate issues and the NHS seem to take it as my back as a degenerative issue even after...

Ok so I have been having serious issues with my Back and hip both separate issue...

KnitSewPurl

•7 days ago

5 Replies

Nightmares latest research

Husband told me he’d read this thought may be of interest. I get them most nights 😏never made the connection . Definitely worth adding to your list of...

Husband told me he’d read this thought may be of interest. I get them most night...

Tiggywoos

•7 days ago

6 Replies

Newbie question re exercise

Hello all! I'm having a lot of joint and muscle pain and I find it gets much worse in the evening and during the night. I do yoga in the mornings (adapted cos...

Hello all! I'm having a lot of joint and muscle pain and I find it gets much wo...

eurocat

•8 days ago

4 Replies

symptoms?

My first journey to this site was to this forum in my search for answers after symptoms were dismissed as being ‘all in your head’. I was convinced I had...

My first journey to this site was to this forum in my search for answers after s...

Nonameme

•10 days ago

2 Replies

Any info on the drug Dapaglifozen?

Lupus sufferer already on the usual drugs Mycophenolic , Steroids ,Quinine etc

Will1408

•10 days ago

1 Reply

Cutie Face Number Two

Hello Forum FriendsJust popping into show you these beautiful 'cutie faces' of a proud new Mum with her baby. The little one is Kobo a month old Gelada...

Hello Forum FriendsJust popping into show you these beautiful 'cutie faces' of ...

misty14

•11 days ago

33 Replies

PIP Whistleblowers spill the beans.

https://apple.news/AEeR_2DOIRH-jTyn2VlfnUg Today’s article where PIP assessors admit what a shamble the system is. Hopefully this is the beginning of a...

https://apple.news/AEeR_2DOIRH-jTyn2VlfnUg Today’s article where PIP assessors ...

LilyMistri2

•12 days ago

4 Replies

Immunosuppressed- whooping cough

I just wondered if there’s anyone else going through this at the moment? I’ve never had this before and imagine being immunosuppressed due to lupus is a...

I just wondered if there’s anyone else going through this at the moment? I’ve n...

SF1000

•12 days ago

13 Replies

MTHFR and Lupus

I noticed that some members have both of these diagnosis as well as Sjogrens. No one ever checked my homocysteine level until after I had Complete Heart Block...

I noticed that some members have both of these diagnosis as well as Sjogrens. No...

DogHospiceMom

•13 days ago

4 Replies

Teesside Lupus Group

Hello everyone Just to let you know that our Lupus group has started having morning and afternoon meetings in the area. Anyone interested in joining our...

Hello everyone Just to let you know that our Lupus group has started having mor...

Pipido36

•13 days ago

Be the first to reply

discharge summary

hi had biopsy today and recovered well from anaesthetic 👏 but somewhat miffed as just looked at discharge letter when got home and says escalation plans and...

hi had biopsy today and recovered well from anaesthetic 👏 but somewhat miffed a...

stiff19

•13 days ago

42 Replies

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Posts - LUPUS UK | HealthUnlocked

LUPUS UK

Covid lupus

Upper Spine Pain

Neuropsychiatric pro dromes SLE

Rib pain in back?

This is not how I am 😕

CRPS meaning

CRPS anyone?

Amputation

Anyone with SLE taking collagen??

Does this look like lupus rash?

Don't know what's real anymore...

Itch, scratch, repeat......

One for the newbies especially IOW

I have skin lupus but I feel like I have other symptoms too? I have no idea about my condition pls help!

unknown face rash

HAIR LOSS

Laugh and/or cry! I hope it makes you smile

I cannot bear this life

Dermaguard uv protective film

A little moan about the NHS and positive outcome come on my private consultation with 2 consultants Hip and Back

Nightmares latest research

Newbie question re exercise

symptoms?

Any info on the drug Dapaglifozen?

Cutie Face Number Two

PIP Whistleblowers spill the beans.

Immunosuppressed- whooping cough

MTHFR and Lupus

Teesside Lupus Group

discharge summary

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