Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

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FND and ADHD medication

My 18 year old daughter was diagnosed with FND about 2 weeks ago after sudden speech and gait problems. She has been taking ADHD medication for 5 months and...

My 18 year old daughter was diagnosed with FND about 2 weeks ago after sudden sp...

•23 hours ago

Large FMD Study on Specialised Physio

https://pubmed.ncbi.nlm.nih.gov/38768621/ Specialist physiotherapy for functional motor disorder in England and Scotland (Physio4FMD): a pragmatic,...

https://pubmed.ncbi.nlm.nih.gov/38768621/ Specialist physiotherapy for functiona...

•1 day ago

My FND

Hi all, well after going to the doctors for nearly 5yrs, sat there struggling to walk or speak having a seizures once a week, nothing wrong with you never...

Hi all, well after going to the doctors for nearly 5yrs, sat there struggling t...

•2 days ago

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Some practical tips for distraction and gait recovery

see link below https://fndrecovery.com/2022/07/09/distraction/

see link below https://fndrecovery.com/2022/07/09/distraction/

•2 days ago

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Moving forward

Before my diagnosis, I had various symptoms that I could not control, and afterward would lose parts of my memories, it was people's names and events later I...

Before my diagnosis, I had various symptoms that I could not control, and afterw...

•4 days ago

Compass 31

As this was mentioned in our Education Classes as an assessment tool (still to catch up on recording), I have started to draft an article and I wondered if...

As this was mentioned in our Education Classes as an assessment tool (still to c...

•4 days ago

Clicking Joints Suggestions

Hi all! My joints crack frequently, but normally I feel a sense of relief afterwords. Lately, my right elbow has been hurting, so I tried popping it to...

Hi all! My joints crack frequently, but normally I feel a sense of relief afte...

•6 days ago

Eye and Head Movement Tasks, poss a new diagnosis method for FMD and PPPD? To guide treatment?

Hot off the press, a brand new article published this week called: “Experimental evidence for a robust, transdiagnostic marker in functional disorders:...

Hot off the press, a brand new article published this week called: “Experimental...

•8 days ago

FND/pelvic pain

hey I’ve been reading lots of the stories on here and so much great info regarding this.. can I ask has much people suffered with chronic pelvic pain and...

hey I’ve been reading lots of the stories on here and so much great info regardi...

•11 days ago

Re-Active Pie Chart

Hi, I just got permission to share this chart, its in our Handbook and it really was the start of our Education. We ranked our symptoms and as where they fell...

Hi, I just got permission to share this chart, its in our Handbook and it really...

•13 days ago

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FND, hypermobility and EDS

There is a higher incidence of functional symptoms in people with EDS. Plus there is a higher incidence of hypermobility in people with FND. (Fernandez et al...

There is a higher incidence of functional symptoms in people with EDS. Plus ther...

•15 days ago

Education Group

Hi. I've been invited to a Virtual FND General Education Group, organised by South London and Maudsley NHS Foundation Trust who work closely the Neurology...

Hi. I've been invited to a Virtual FND General Education Group, organised by Sou...

•17 days ago

Factors influencing triage to rehabilitation in FMD ..Feb 2024

It would be interesting to know if any in the FND community have ever experienced 'a triage' before they were given their rehab treatment ....that is if any...

It would be interesting to know if any in the FND community have ever experience...

•17 days ago

FND as mental disorder

I have finally figured out why FND is classified as a mental disorder. We do not start out crazy but the symptoms of this disorder are completely out of this...

I have finally figured out why FND is classified as a mental disorder. We do n...

•18 days ago

COVID, FND, and Cymbalta Ruined My Life

This is a long story, and I apologize in advance for any, bitter angry undertones. I'll skip all of the grief I've had in life and the hard times that I've...

This is a long story, and I apologize in advance for any, bitter angry undertone...

LoverOfAllThings

•19 days ago

need resources for hospitals that have fnd rehabilitation programs

hello my daughter was recently diagnosed with FND. She is currently inpatient and we need to find a facility that does pediatric inpatient rehabilitation....

hello my daughter was recently diagnosed with FND. She is currently inpatient an...

•20 days ago

Hello again

Hi. Ive had to shut down and rejoin the group. HU was,playing up. I have such great comments and ideas,already from Lady4 and others, so thank you. Below was,...

Hi. Ive had to shut down and rejoin the group. HU was,playing up. I have such gr...

•20 days ago

Antidepressants and FND

Hello. I was wondering how many of you are taking anti depressants with FND. Have you found them helpful or the opposite?

Hello. I was wondering how many of you are taking anti depressants with FND. Hav...

•23 days ago

One of David Tuller's aims is to look into the actual rather than the reported misdiagnosis stats re FND. He is hugely supportive of ...

... people with FN(C)D (sometimes known as 'Medically Unexplained Symptoms') and looking into the misdiagnosis stats should, down the line, help to ensure that...

... people with FN(C)D (sometimes known as 'Medically Unexplained Symptoms') and...

•25 days ago

goose bumps and Anxiety

Do any of you suffer from anxiety? Iv been suffer with the same bumps in my left arm for many years, well before Covid. In that time, Iv noted a pattern....

Do any of you suffer from anxiety? Iv been suffer with the same bumps in my l...

MollyNamespetra

•27 days ago

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How to practise Positive Thinking

I was reading this earlier and thought good advice in general but could help our Community members become more resilient in our times of adversity. "While...

I was reading this earlier and thought good advice in general but could help our...

•27 days ago

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FND Stories

A video that was just shared, you are not alone, try and focus on the things that you can control: Hope: FND Stories (youtube.com) Another post I just read on...

A video that was just shared, you are not alone, try and focus on the things tha...

•28 days ago

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FND rule in signs

Found this on a poster at FND Action: https://www.fndaction.org.uk/diagnosis/ Its at the bottom with other "rule in" signs which I tried to add.

Found this on a poster at FND Action: https://www.fndaction.org.uk/diagnosis/ ...

•1 month ago

Functional neurological disorder: Engaging patients in treatment

Apologises if posted somewhere before, but it was the date of this article and the recommended Care Model that caught my eye, I was searching for "rule in"...

Apologises if posted somewhere before, but it was the date of this article and t...

•1 month ago

Newly Diagnosed

Hi All, Last year I developed a chronic sinus infection (went on for 6 months in the end) that was misdiagnosed as an ear issue solely. The stress, months of...

Hi All, Last year I developed a chronic sinus infection (went on for 6 months i...

•1 month ago

recently diagnosed

hi all, I was recently diagnosed with FND after being admitted to the hospital with weakness/stiffness in my legs and my arm. My symptoms stated in early...

hi all, I was recently diagnosed with FND after being admitted to the hospital...

•1 month ago

frustrated

Hi I’m 24 years old, I live in the USA. I was recently diagnosed with PNES and I’m having symptoms of FND. I remember having my first seizure at 17 years old...

Hi I’m 24 years old, I live in the USA. I was recently diagnosed with PNES and I...

•1 month ago

Sensory Processing and PTSD

I found this article really interesting (yet to read it all, initially attracted to images):...

I found this article really interesting (yet to read it all, initially attracted...

•1 month ago

OT and FND - the therapist you should have on your team

https://www.neurology.org/doi/10.1212/CPJ.0000000000200286 The highlight: Following a sensory-based OT intervention, 62% of individuals with FND were...

https://www.neurology.org/doi/10.1212/CPJ.0000000000200286 The highlight: Foll...

•1 month ago

FND Research Article

This isn't new research but interesting: https://www.york.ac.uk/news-and-events/news/2021/research/research-reveals-cause-mystery-condition/

This isn't new research but interesting: https://www.york.ac.uk/news-and-events/...

•1 month ago

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