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Lung Conditions Community Forum

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Help with rare condition

HiI was born with Dextrocardia situs invirtus totalis and have Kartagener syndrome , Primary Ciliary dyskinesia. Three months ago I had a really bad lung...

HiI was born with Dextrocardia situs invirtus totalis and have Kartagener syndro...

modace

•2 hours ago

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Sometimes the solution is simple !

Getting through the winter isn’t isn’t easy, is it friends ? This one was a long one and once the spring is on its way my energy levels, enthusiasm and...

Getting through the winter isn’t isn’t easy, is it friends ? This one was a long...

PaulineHM

•13 hours ago

9 Replies

Bipap machine

Hello I am on oxygen 24/7 and am now retaining carbon dioxide. My consultant wants to trial me on a Bipap machine to see how I get in she says I will feel...

Hello I am on oxygen 24/7 and am now retaining carbon dioxide. My consultant wan...

cazza34

•16 hours ago

6 Replies

Want to take advantage of all our features? Just log in!

STILL IN HOSPITAL

Hi Everyone Im still in hospital & have been for the last 2 weeks with my Interstitial Lung Disease & Pulmomary Disease god knows when I am discharged in the...

Hi Everyone Im still in hospital & have been for the last 2 weeks with my Inter...

Sara_2611

•2 days ago

36 Replies

oxygen carrier wheels.

your oxygen bottle if you contact the oxygen nurse who visits you ask for a two wheel trolley which the bottle sits in and has a long thin handle which you can...

your oxygen bottle if you contact the oxygen nurse who visits you ask for a two ...

oooodicky

•2 days ago

3 Replies

Azithromycin

Discharged recently from hospital after a long period of exacerbations and then pneumonia. After weeks of oral antibiotics and steroids had to have IV...

Discharged recently from hospital after a long period of exacerbations and then ...

kenta

•2 days ago

10 Replies

First time nebulising update

Morning everyone, firstly thank you to everyone who responded to my request for advice on using a nebuliser for the first time. It’s very humbling how friends...

Morning everyone, firstly thank you to everyone who responded to my request for ...

LizPat30

•2 days ago

4 Replies

hackers

i have hackers on my router. Now they keep interfering. Give me hiccups and can only delete some of them. Very wearingwearin wear g. See whatwha ateha I mean!...

i have hackers on my router. Now they keep interfering. Give me hiccups and can ...

Jaybird19

•2 days ago

4 Replies

Two Comic Kitties in Fantasy Kitties Garden and Seven Impressionist Hydrangeas.

I did not think I would get to do a painting. been on eye drops for two weeks, to get rid of eye infection so I can have eye injection. I managed to do a...

I did not think I would get to do a painting. been on eye drops for two weeks, t...

Ern007

•3 days ago

56 Replies

Xrossstitch

my husband has pulmonary fibrosis, On no medication for it, coughs continuously especially on waking in the morning and brining up a small amount of phlegm....

my husband has pulmonary fibrosis, On no medication for it, coughs continuously...

Xrossstich

•3 days ago

9 Replies

She wasn't best pleased with Mr Stallion trying his luck 😂

🩷🧡💛💚💙

Blackbird8

•3 days ago

53 Replies

Lung health supplements

Does anybody know anything about Tiger Milk Mushroom and/or methylsolonylmethane pills for lung conditions & lung health ?

Does anybody know anything about Tiger Milk Mushroom and/or methylsolonylmethan...

GeoffSpark

•3 days ago

4 Replies

Ambulatory Oxygen Too Heavy

The only provided options I have seen for ambulatory oxygen involve carrying on a shoulder strap. The weight involved (6-8 lb) is a lot for those with back...

The only provided options I have seen for ambulatory oxygen involve carrying on ...

Difficul

•3 days ago

31 Replies

First Time Nebuliser Use

Hi everyone, my Respiratory Consultant has suggested I try nebulising with saline to help clear my chest and hopefully reduce the problem of mucus plugging...

Hi everyone, my Respiratory Consultant has suggested I try nebulising with salin...

LizPat30

•5 days ago

49 Replies

update on grumpy Grampy

hi everyone I haven’t posted for a while but thought I’d update you all. Grumpy Grampy is doing well, he’s off the steroids, after two years. Struggling a...

hi everyone I haven’t posted for a while but thought I’d update you all. Grumpy ...

Grinninggranny

•5 days ago

9 Replies

Its grim up north

Back to wearing winter woollies, temp this morning 11 degrees it was 22 last week but at least I can breathe easier.

Back to wearing winter woollies, temp this morning 11 degrees it was 22 last wee...

6538

•5 days ago

37 Replies

I. L. D

Can anyone give information on lung disease. Iam 60yr female never smoked and been diagnosed with I. LD. Is there anything that can be done for this. I have...

Can anyone give information on lung disease. Iam 60yr female never smoked and be...

makemepainfree

•5 days ago

22 Replies

Oxyfit breather

Morning everyone. Haven't posted for a while since joining, recently had a syrometry test, results are inconclusive /borderline copd but my hyperinflaged lungs...

Morning everyone. Haven't posted for a while since joining, recently had a syrom...

Katoune

•5 days ago

14 Replies

New News

Hi everyone just to let you know I have a hospital appointment for next Wednesday afternoon , am presuming it is for test results and follow up decisions.

Hi everyone just to let you know I have a hospital appointment for next Wednesda...

katieoxo60

•5 days ago

34 Replies

Diagnosing Early

https://www.medicalnewstoday.com/articles/how-diagnosing-and-treating-asthma-copd-early-can-significantly-improve-quality-of-life?slot_pos=article_2&utm_source=

https://www.medicalnewstoday.com/articles/how-diagnosing-and-treating-asthma-cop...

Elpojohn

•6 days ago

4 Replies

Update on tests etc

hi all. Just an update after my recent CT scan, and the dreaded bronchoscopy on Tuesday this week. Obviously haven't had full results of latest CT scan,...

hi all. Just an update after my recent CT scan, and the dreaded bronchoscopy on ...

Tiggertheterrier

•6 days ago

18 Replies

Inspired by Claude Monet - Poppy Field..

This picture probably needs an introduction. ________________________________________________ I named this (quite rightly) "Inspired by Claude Monet"...

This picture probably needs an introduction. ________________________________...

Ern007

•6 days ago

33 Replies

mullein tea

I’m told mullein tea is good for the lungs Has anyone tryed it and does it improve breathing

I’m told mullein tea is good for the lungs Has anyone tryed it and does it impr...

saturdayangel

•8 days ago

6 Replies

sarcoidosis and misdiagnoses as Bipolar 1

I was misdiagnosed as having Bipolar 1 (please accept I have peer reviewed research-based proof) and found studies that confirmed this medical condition is...

I was misdiagnosed as having Bipolar 1 (please accept I have peer reviewed resea...

LittleOneAmadeus

•8 days ago

4 Replies

Hospital appointment

Dodgy lungs damaged by clots but not getting worse when checked except that they are because my lungs are being restricted by my back getting more humped...

Dodgy lungs damaged by clots but not getting worse when checked except that th...

Jaybird19

•9 days ago

12 Replies

Flying with oxygen

I have just posted this link onto the COPD friends site. Thought I would post it here as well. Hope it helps. https://travelwithoxygen.com/ Go well,...

I have just posted this link onto the COPD friends site. Thought I would post ...

PaulineHM

•9 days ago

5 Replies

Sun lotion for oxygen user?

Hi there looking for a Sun lotion for my mother inlaw as a oxygen user the Skin can react to lotion with petroleum paraffin or any oil based product .advice...

Hi there looking for a Sun lotion for my mother inlaw as a oxygen user the Skin ...

Nonny567

•9 days ago

16 Replies

Safe sun cream for oxygen users

I am a 16hour constant flow oxygen user, also use ambulatory oxygen on exertion. Dies anyone know a safe sun screen for oxygen users,

I am a 16hour constant flow oxygen user, also use ambulatory oxygen on exertion....

Canalbarge

•9 days ago

7 Replies

Kidney stones?

Morning everyone, just wondered if anyone has had kidney stones. I have been experiencing pain in my left groin and lower back and side for a few weeks. It...

Morning everyone, just wondered if anyone has had kidney stones. I have been exp...

70michael

•9 days ago

4 Replies

Hi travels by airline

I want to fly my oxegen nurse said she doesn't do fit to fly letters my dr won't do 1 because he doesn't supply the oxegen so if I flew without this and no...

I want to fly my oxegen nurse said she doesn't do fit to fly letters my dr won't...

Bigz09

•10 days ago

44 Replies

Write a post or ask a question

Posts - Lung Conditions Community Forum | HealthUnlocked

Lung Conditions Community Forum

Help with rare condition

Sometimes the solution is simple !

Bipap machine

STILL IN HOSPITAL

oxygen carrier wheels.

Azithromycin

First time nebulising update

hackers

Two Comic Kitties in Fantasy Kitties Garden and Seven Impressionist Hydrangeas.

Xrossstitch

She wasn't best pleased with Mr Stallion trying his luck 😂

Lung health supplements

Ambulatory Oxygen Too Heavy

First Time Nebuliser Use

update on grumpy Grampy

Its grim up north

I. L. D

Oxyfit breather

New News

Diagnosing Early

Update on tests etc

Inspired by Claude Monet - Poppy Field..

mullein tea

sarcoidosis and misdiagnoses as Bipolar 1

Hospital appointment

Flying with oxygen

Sun lotion for oxygen user?

Safe sun cream for oxygen users

Kidney stones?

Hi travels by airline

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