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Switch from Besremi to Ruxolitinib
Dear all After 18 months on Besremi my oncologist and I made the decision to move on and so am starting on Rux. In brief, I titrated up from 100 ug (Sep 2022) to 500 ug Bes and was at that dose for 9 months. I was CHR for the last 5 months of this period. My platelet count however crashed in Oct
Dear all After 18 months on Besremi my oncologist and I made the decision to move on and so am starting on Rux. In brief, I titrated up from 100 ug (Sep 2022) to 500 ug Bes and was at that dose for 9 months. I was CHR for the last 5 months of this period. My platelet count however crashed in Oct
gjh8733
in
MPN Voice
3 months ago
Itching and Hives
hello!! I was wondering if anyone has the same problems as me and can offer some advice! Since about age 9 (I am 26 now) I have been getting hives throughout my whole body every single day. My doctors can’t figure out what’s going on and no medication helps! I am on Plaquenil, Gabapentin, Zyrtec,
hello!! I was wondering if anyone has the same problems as me and can offer some advice! Since about age 9 (I am 26 now) I have been getting hives throughout my whole body every single day. My doctors can’t figure out what’s going on and no medication helps! I am on Plaquenil, Gabapentin, Zyrtec,
Shubertrachel
in
Fibromyalgia Action UK
4 months ago
New to MPN Voice
Hi, I'm in my upper 40s, diagnoses with PV several years ago. My platelets were just shy of 1.1M at the peak before starting Besremi in May 2023. At that time I was getting a phlebotomy about every 2.5 months to keep HCT below 45. Like others have said on this board, it seems the evidence is strong
Hi, I'm in my upper 40s, diagnoses with PV several years ago. My platelets were just shy of 1.1M at the peak before starting Besremi in May 2023. At that time I was getting a phlebotomy about every 2.5 months to keep HCT below 45. Like others have said on this board, it seems the evidence is strong
Luthorville
in
MPN Voice
4 months ago
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Itchy skin, scratchy eyes, heat and humidity…. 🤔
Good morning from Brisbane, Australia 👋🏻 I’ve got ET JAK2 pos and have started to get the itchies 😆 I have read that it’s common with PV but I wondered about ET? I’ve been trially contact lenses and my eyes aren’t so happy with them. I’ve tried a variety, some monthly’s, some dailies. My left eye
Good morning from Brisbane, Australia 👋🏻 I’ve got ET JAK2 pos and have started to get the itchies 😆 I have read that it’s common with PV but I wondered about ET? I’ve been trially contact lenses and my eyes aren’t so happy with them. I’ve tried a variety, some monthly’s, some dailies. My left eye
Pachena
in
MPN Voice
5 months ago
Help - What This Allergy or Asthma Can Be?
Hi guys, I need your help as my doctors do not give me much information or to be precise been with two allergy doctors, both gave me different opinions so i don't know what to do. Long story short, i'm a runner and after flu a year ago I started having issues with chest tightness during some of my runs
Hi guys, I need your help as my doctors do not give me much information or to be precise been with two allergy doctors, both gave me different opinions so i don't know what to do. Long story short, i'm a runner and after flu a year ago I started having issues with chest tightness during some of my runs
Desoo
in
Asthma Community Forum
6 months ago
Ra and ear problems
I have ra and am taking rinvoq. only recently started having some ear problems fluid on ears and a full feeling causing me to have trouble sleeping. I haven't had any signs of cold or allergies either. the doctor said to use Zyrtec which did not help and I was wondering if anyone has had any ear issues
I have ra and am taking rinvoq. only recently started having some ear problems fluid on ears and a full feeling causing me to have trouble sleeping. I haven't had any signs of cold or allergies either. the doctor said to use Zyrtec which did not help and I was wondering if anyone has had any ear issues
gnstric66
in
NRAS
7 months ago
Anxiety and A-Fib
I had anxiety over getting a Cochlear Implant done. I was taking Atarax on top of Zyrtec which causes QT Elongation. So I was diagnosed with AFIB and sent to the ER. Prescribed Metoprolol and a 81 mg aspirin. I didn't take the Metoprolol because it was on a Recall list by the FDA for 3 months as it
I had anxiety over getting a Cochlear Implant done. I was taking Atarax on top of Zyrtec which causes QT Elongation. So I was diagnosed with AFIB and sent to the ER. Prescribed Metoprolol and a 81 mg aspirin. I didn't take the Metoprolol because it was on a Recall list by the FDA for 3 months as it
FiberedOut555
in
AF Association
1 year ago
Update 7.6
Happy to say that the news remains favorable on all fronts. I reviewed my PV status with the MPN Specialist at Johns Hopkins. I remain in a complete hematologic response at 150mcg Besremi. Tolerance remains the same, with mild lymphopenia, borderline neutropenia, and mild itching. I switched to
Happy to say that the news remains favorable on all fronts. I reviewed my PV status with the MPN Specialist at Johns Hopkins. I remain in a complete hematologic response at 150mcg Besremi. Tolerance remains the same, with mild lymphopenia, borderline neutropenia, and mild itching. I switched to
hunter5582
in
MPN Voice
1 year ago
Improved chances of success with ADT?
I'm a Gleason 4+3, group T2C. I completed five sessions of SBRT but the radiation oncologist says staying on Lupron for six months total will improve the odds of success. What I see online, though, is that ADT only improves the odds of success by 1-2 percentage points. If that's the case, it's not worth
I'm a Gleason 4+3, group T2C. I completed five sessions of SBRT but the radiation oncologist says staying on Lupron for six months total will improve the odds of success. What I see online, though, is that ADT only improves the odds of success by 1-2 percentage points. If that's the case, it's not worth
ADT-first-timer
in
Advanced Prostate Cancer
1 hour ago
Enzalutamide Plus 5-Alpha Reductase Inhibitors for Castrate-Sensitive Prostate Cancer
Phase II trial exploring the combination of enzalutamide with five alpha-reductase inhibitors (ARIs) for castrate-sensitive prostate cancer. Driven by observations from geriatric oncology, the study seeks alternatives to androgen deprivation therapy (ADT) for older, frail men who struggle with its side
Phase II trial exploring the combination of enzalutamide with five alpha-reductase inhibitors (ARIs) for castrate-sensitive prostate cancer. Driven by observations from geriatric oncology, the study seeks alternatives to androgen deprivation therapy (ADT) for older, frail men who struggle with its side
God_Loves_Me
in
Advanced Prostate Cancer
8 hours ago
Mortality Risk Up for Cancer Survivors With Elevated Loneliness
Especially with men on ADT with the attendant mood swings, depression, fat gain, & loss of libido, I can see how that could occur. https://www.practiceupdate.com/news/45931/2/1?elsca1=emc_enews_daily-digest&elsca2=email&elsca3=practiceupdate_onc&elsca4=oncology&elsca5=newsletter&rid=MjgxNTg3Njk1MzQzS0&
Especially with men on ADT with the attendant mood swings, depression, fat gain, & loss of libido, I can see how that could occur. https://www.practiceupdate.com/news/45931/2/1?elsca1=emc_enews_daily-digest&elsca2=email&elsca3=practiceupdate_onc&elsca4=oncology&elsca5=newsletter&rid=MjgxNTg3Njk1MzQzS0&
dockam
in
Advanced Prostate Cancer
8 hours ago
blood results
hello, can you tell me how my bloods look? On NDT 1 3/4 am 1 1/2 pm. All well except constant hair loss which is really worrying me now. I will be doing my hormones next month so will add them.
hello, can you tell me how my bloods look? On NDT 1 3/4 am 1 1/2 pm. All well except constant hair loss which is really worrying me now. I will be doing my hormones next month so will add them.
TheresaGreen1967
in
Thyroid UK
10 hours ago
Signifficant PSA LEVELS
I'm an 81 year old man who has had an enlarged prostate for several months. PSA tests levels 9.1 and 8.1 (several months apart). My Father died of prostate cancer, which had spread to other parts of his body. Follwing a Digital Anal test, my prostate was reported as "smoothly enlarged and sulcus palpable
I'm an 81 year old man who has had an enlarged prostate for several months. PSA tests levels 9.1 and 8.1 (several months apart). My Father died of prostate cancer, which had spread to other parts of his body. Follwing a Digital Anal test, my prostate was reported as "smoothly enlarged and sulcus palpable
apttony
in
Prostate Cancer Network
12 hours ago
Does PSA drop after starting ADT tell us anything?
My husband started Firmagon shots a month ago. Before starting his PSA was 5.9. It was tested a few days ago and it’s 1.4 now. Does this tell us anything of any significance? Thanks!
My husband started Firmagon shots a month ago. Before starting his PSA was 5.9. It was tested a few days ago and it’s 1.4 now. Does this tell us anything of any significance? Thanks!
EvFC
in
Advanced Prostate Cancer
22 hours ago
Terrible sleep issues
So now I’m 10+ weeks into treatment consisting of Lupron+Abiraterrone and have completed 5 of 20 radiation sessions. In many ways things seem to be going very well. My PSA numbers have gone from 8.4 to .2 and still falling. My side effects have been minimal , only lately have I seen some mild hot
So now I’m 10+ weeks into treatment consisting of Lupron+Abiraterrone and have completed 5 of 20 radiation sessions. In many ways things seem to be going very well. My PSA numbers have gone from 8.4 to .2 and still falling. My side effects have been minimal , only lately have I seen some mild hot
Willie51
in
Prostate Cancer And Gay Men
1 day ago
Please advice
My latest PSA on 6/11/24 was 1.06 up from 0.65 on 4/2/24. I have a meeting with my MO on 4/26 to discuss the next step. I was taking Opdivo immunotherapy from 2/2023 to 2/2024 for bladder cancer. so far my bladder cancer is in check so now I can focus on my PCA. Should I get a PSMA pet? is it time to
My latest PSA on 6/11/24 was 1.06 up from 0.65 on 4/2/24. I have a meeting with my MO on 4/26 to discuss the next step. I was taking Opdivo immunotherapy from 2/2023 to 2/2024 for bladder cancer. so far my bladder cancer is in check so now I can focus on my PCA. Should I get a PSMA pet? is it time to
old64horn
in
Advanced Prostate Cancer
1 day ago
Why is my RO changing from Degerelix to Lupron after a month?
my husband started ADT treatment and RO informed him that after a month he will switch to Lupron. Is there a reason why he is doing this? As Lupron I read causes depression, anxiety. And if hopefully Degerelix works why change it? Can we request he not ? TIA.
my husband started ADT treatment and RO informed him that after a month he will switch to Lupron. Is there a reason why he is doing this? As Lupron I read causes depression, anxiety. And if hopefully Degerelix works why change it? Can we request he not ? TIA.
SherryKahn
in
Advanced Prostate Cancer
2 days ago
Interpreting blood tests
I've been on ADT for 4 months in preparation for RT and then HDR BT. I have localised G8 with an initial PSA of 8.1 Prior to commencing ADT, my PSA inexplicably dropped to 4.94 but then rose to 5.37 within 2 months. Anyway, here are my test results before starting ADT; These are Aussie measurements
I've been on ADT for 4 months in preparation for RT and then HDR BT. I have localised G8 with an initial PSA of 8.1 Prior to commencing ADT, my PSA inexplicably dropped to 4.94 but then rose to 5.37 within 2 months. Anyway, here are my test results before starting ADT; These are Aussie measurements
Mike58
in
Advanced Prostate Cancer
2 days ago
Thank you
I stumbled on this forum about 15 to 18 months ago. Just to show you how little I knew and how clueless I was I had no idea there was run of the mill prostrate cancer or an advanced form. I just knew I had prostrate cancer and needed to make a decision - surgery or radiation. I stumbled through this
I stumbled on this forum about 15 to 18 months ago. Just to show you how little I knew and how clueless I was I had no idea there was run of the mill prostrate cancer or an advanced form. I just knew I had prostrate cancer and needed to make a decision - surgery or radiation. I stumbled through this
Mgtd
in
Advanced Prostate Cancer
2 days ago
False positives
All is not cancer that lights up on the scans! In February, a PSMA PET/CT found nothing abnormal, just a minimal PSMA signal from rib 10 right. But the NaF PET/CT: "On the right, rib 10 has abnormal PET uptake (SUVmax 27.3). The same rib uptake can be seen in previous bone scintigraphy and as a minimal
All is not cancer that lights up on the scans! In February, a PSMA PET/CT found nothing abnormal, just a minimal PSMA signal from rib 10 right. But the NaF PET/CT: "On the right, rib 10 has abnormal PET uptake (SUVmax 27.3). The same rib uptake can be seen in previous bone scintigraphy and as a minimal
Purple-Bike
in
Advanced Prostate Cancer
2 days ago
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