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Experiences with
Interstitial lung disease (ILD)
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Anyone been diagnosed with Interstitial Lung Disease
Today I received a CT report that says I may have
Interstitial
Lung
Disease
. I have been researching to see the connection between PMR and that disease. The prognosis is not favorable. Has anyone else been diagnosed with this disease? Thanks for any help.
Today I received a CT report that says I may have
Interstitial
Lung
Disease
. I have been researching to see the connection between PMR and that disease. The prognosis is not favorable. Has anyone else been diagnosed with this disease? Thanks for any help.
singingloud
in
PMRGCAuk
1 month ago
oxygen on flights
Hi I have
interstitial
lung
disease
and have some lung removed due to lung cancer. However I do not need oxygen or inhaler(lung stats of 52 pev) and am generally well. However my rheumatologist has suggested that the cabin pressure might cause me an issue when flying.
Hi I have
interstitial
lung
disease
and have some lung removed due to lung cancer. However I do not need oxygen or inhaler(lung stats of 52 pev) and am generally well. However my rheumatologist has suggested that the cabin pressure might cause me an issue when flying.
Lovemydogs1
in
Lung Conditions Community Forum
4 months ago
Has anyone been prescribed Mycophenolate for stiff and painful hands rather than for ILD?
Has anyone else been prescribed it for reasons other than
interstitial
lung
disease
?
Has anyone else been prescribed it for reasons other than
interstitial
lung
disease
?
lynntregaron
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
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Hydroxycarbamide and lungs
I was surprised to read that this medicine can cause
interstitial
lung
disease
such as pulmonary fibrosis. I don’t remember it being mentioned on the forum. Of course some diseases with stop you from communicating freely. Any comments? Jumbo4
I was surprised to read that this medicine can cause
interstitial
lung
disease
such as pulmonary fibrosis. I don’t remember it being mentioned on the forum. Of course some diseases with stop you from communicating freely. Any comments? Jumbo4
Zeigler
in
MPN Voice
6 months ago
oxygen on flight advice sought
I have
interstitial
lung
disease
and had a small part of lung removed due to lung cancer. My lung stats are 52 pev. I would like to fly short haul later in the year. My rheumatologist has suggested I may struggle with cabin pressure.
I have
interstitial
lung
disease
and had a small part of lung removed due to lung cancer. My lung stats are 52 pev. I would like to fly short haul later in the year. My rheumatologist has suggested I may struggle with cabin pressure.
Lovemydogs1
in
LUPUS UK
4 months ago
Appointments
Hi not been on here for a long time as I've had nothing to say ,but I've a question I was diagnosed with non specific
interstitial
lung
pneumonitis /hypersensitivity spectrum
interstitial
lung
disease
in 2020 heavy scaring to both lungs my consultant was brilliant in the first 2 yrs scans breathing
Hi not been on here for a long time as I've had nothing to say ,but I've a question I was diagnosed with non specific
interstitial
lung
pneumonitis /hypersensitivity spectrum
interstitial
lung
disease
in 2020 heavy scaring to both lungs my consultant was brilliant in the first 2 yrs scans breathing
ProudYorky
in
Living with Interstitial Lung Disease (ILD)
4 months ago
Bands pulmonary fibrosis tomography
x-ray and linear opacities appeared, the diagnosis was
interstitial
lung
disease
, post-covid 19 sequelae, I was not given any treatment, now I started having breathing difficulties again, the pulse oximeter shows spo2 97-98%, it doesn't matter if I make an effort or sit, I have difficulties.
x-ray and linear opacities appeared, the diagnosis was
interstitial
lung
disease
, post-covid 19 sequelae, I was not given any treatment, now I started having breathing difficulties again, the pulse oximeter shows spo2 97-98%, it doesn't matter if I make an effort or sit, I have difficulties.
Petre84
in
Lung Conditions Community Forum
6 months ago
PMR and Parkinson's Disease
I used to also take 25mg Methotrexate weekly but this was stopped in 2022 when I was hospitalised with Methotrexate-induced
interstitial
lung
disease
(now resolved). Current situation: My GP suspects I now also have Parkinson’s Disease (PD). I saw the Neurologist on Friday.
I used to also take 25mg Methotrexate weekly but this was stopped in 2022 when I was hospitalised with Methotrexate-induced
interstitial
lung
disease
(now resolved). Current situation: My GP suspects I now also have Parkinson’s Disease (PD). I saw the Neurologist on Friday.
JanetRosslyn
in
PMRGCAuk
7 months ago
Methotrexate-induced lung disease
Towards the end of last year I was hospitalised for about a week with a dry cough/breathlessness that turned out to be Methotrexate-induced
Interstitial
Lung
Disease
(previous posts - cough cough cough). The MTX was stopped immediately but I was warned the damage may be permanent.
Towards the end of last year I was hospitalised for about a week with a dry cough/breathlessness that turned out to be Methotrexate-induced
Interstitial
Lung
Disease
(previous posts - cough cough cough). The MTX was stopped immediately but I was warned the damage may be permanent.
JanetRosslyn
in
PMRGCAuk
9 months ago
Feel like giving up.
A shadow area was found on my
lung
with suspected
interstitial
lung
disease
( possibly RA related) , breathing tests and CT Scan ordered, which I had in January.
A shadow area was found on my
lung
with suspected
interstitial
lung
disease
( possibly RA related) , breathing tests and CT Scan ordered, which I had in January.
3LittleBirds2
in
NRAS
2 months ago
#AskChatGPT - Top ADC Treatment for prostate cancer
The median duration of response was 4.4 months, with notable toxicities including
interstitial
lung
disease
and cytopenia (https://www.onclive.com/view/adcs-novel-targets-represent-next-wave-of-treatment-advances-in-mcrpc).
The median duration of response was 4.4 months, with notable toxicities including
interstitial
lung
disease
and cytopenia (https://www.onclive.com/view/adcs-novel-targets-represent-next-wave-of-treatment-advances-in-mcrpc).
God_Loves_Me
in
Advanced Prostate Cancer
1 month ago
STILL IN HOSPITAL
Hi Everyone Im still in hospital & have been for the last 2 weeks with my
Interstitial
Lung
Disease
& Pulmomary Disease god knows when I am discharged in the " normal way" When I say " normal" its going to be a Hospice or a .hospital ( a choice i have said No No -) back at home & i said im sure thats
Hi Everyone Im still in hospital & have been for the last 2 weeks with my
Interstitial
Lung
Disease
& Pulmomary Disease god knows when I am discharged in the " normal way" When I say " normal" its going to be a Hospice or a .hospital ( a choice i have said No No -) back at home & i said im sure thats
Sara_2611
in
Lung Conditions Community Forum
18 days ago
Rituximab...
Fast forward 6 months later and I now have RA
Interstitial
Lung
Disease
and the treatment for this is Rituximab, my lung specialist has said abatacept doesn't work on the lungs and Rituximab is their go to for ILD.
Fast forward 6 months later and I now have RA
Interstitial
Lung
Disease
and the treatment for this is Rituximab, my lung specialist has said abatacept doesn't work on the lungs and Rituximab is their go to for ILD.
RAat13
in
NRAS
1 year ago
Nottingham health and well being event
Hello all, Our next Information Day is taking place at the Mercure hotel, Sherwood Forrest Nottingham on Tuesday 2nd July. The day will feature a range of speakers, stalls and an opportunity to share experiences with other people affected by lung cancer. The event will focus on health and wellbeing
Hello all, Our next Information Day is taking place at the Mercure hotel, Sherwood Forrest Nottingham on Tuesday 2nd July. The day will feature a range of speakers, stalls and an opportunity to share experiences with other people affected by lung cancer. The event will focus on health and wellbeing
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
9 hours ago
Had lung surgery - would you be willing to share your experience?
We have been asked to share this survey that is being carried out to seek the views of people who have had surgery across the UK and Europe. The survey is being carried out by an organisation called LUCE and supported by a distinguished UK based surgeon. The short questionaire can be completed
We have been asked to share this survey that is being carried out to seek the views of people who have had surgery across the UK and Europe. The survey is being carried out by an organisation called LUCE and supported by a distinguished UK based surgeon. The short questionaire can be completed
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
4 days ago
Bra after lung surgery?
What bras did you find most comfortable post surgery or maybe I should be asking, what bras did you find most tolerable? (Not initially after but a few weeks after surgery). Thanks in advance for your responses. I'm asking on behalf of someone else. Also, we are currently working to create a lung cancer
What bras did you find most comfortable post surgery or maybe I should be asking, what bras did you find most tolerable? (Not initially after but a few weeks after surgery). Thanks in advance for your responses. I'm asking on behalf of someone else. Also, we are currently working to create a lung cancer
Miranda_GO2
Partner
in
Lung Cancer Support
9 days ago
Interested in joining GO2's Mind Over Matter group?
What is Mind Over Matter (also known as MOM)?
In this group, you will learn tips and tools to handle the big feelings that often come up after a cancer diagnosis and treatment. This 5-week group can help you deal with the fears, worries, and sadness that come up for many people.
Who can join
What is Mind Over Matter (also known as MOM)?
In this group, you will learn tips and tools to handle the big feelings that often come up after a cancer diagnosis and treatment. This 5-week group can help you deal with the fears, worries, and sadness that come up for many people.
Who can join
Miranda_GO2
Partner
in
Lung Cancer Support
9 days ago
Post radiotherapy for lung cancer
Can someone please share with me their experience after going thru radiotherapy for lung cancer? My dad had a radiotherapy for his lung cancer in Oct 2023. The radiotherapy went well with him not going thru any adverse side effects. However, now, 7 months later, he is experiencing shortness of breath
Can someone please share with me their experience after going thru radiotherapy for lung cancer? My dad had a radiotherapy for his lung cancer in Oct 2023. The radiotherapy went well with him not going thru any adverse side effects. However, now, 7 months later, he is experiencing shortness of breath
Hokiun
in
The Roy Castle Lung Cancer Foundation
16 days ago
Please join us Tuesday,May 21st, for our Living Room discussion on Is a Clinical Trial Right for You?
Hello, Please join us in our San Carlos office Tuesday May 21st in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Jorge J. Nieva, MD, Associate Professor of Clinical Medicine, Keck School of Medicine of USC, Medical Oncologist
Hello, Please join us in our San Carlos office Tuesday May 21st in person or if you don’t live in the area, you can join us virtually on GO2's YouTube Live channel. We are thrilled to have Jorge J. Nieva, MD, Associate Professor of Clinical Medicine, Keck School of Medicine of USC, Medical Oncologist
Michelezeh
Partner
in
Lung Cancer Support
28 days ago
New approval for treatment of Small Cell Lung Cancer (SCLC)
FDA Approves Imdelltra (tarlatamab-dlle) for Extensive Stage Small Cell Lung Cancer Written by colleague, Matthew Reiss, MSE, PhD, Manager, Precision Medicine & Navigation, GO2 for Lung Cancer On May 16, 2024, the U.S. Food and Drug Administration (FDA) granted Imdelltra (tarlatamab-dlle) accelerated
FDA Approves Imdelltra (tarlatamab-dlle) for Extensive Stage Small Cell Lung Cancer Written by colleague, Matthew Reiss, MSE, PhD, Manager, Precision Medicine & Navigation, GO2 for Lung Cancer On May 16, 2024, the U.S. Food and Drug Administration (FDA) granted Imdelltra (tarlatamab-dlle) accelerated
Miranda_GO2
Partner
in
Lung Cancer Support
28 days ago
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