Search
Search
About
Log in
Join
Experiences with
ANA test
Posts
Communities
148,387 public posts
Filter results
Ablation
Hi All, I am wondering if anyone has gone the ablation route with non small cell lung cancer? I had cyberknife in my lower right lung back in 2011. It was effective with minimal side effects. In 2020, the cancer came back in my upper left lung. Now in 2024, it is back in my upper right lung. Apparently
Hi All, I am wondering if anyone has gone the ablation route with non small cell lung cancer? I had cyberknife in my lower right lung back in 2011. It was effective with minimal side effects. In 2020, the cancer came back in my upper left lung. Now in 2024, it is back in my upper right lung. Apparently
Karuna2
in
Lung Cancer Support
3 months ago
not so great Petscan
Friday I had my first Petscan after two cycles of Ibrance and one on Kisqali. I was really hoping for all good results. Unfortunately, it was a mixed bag. My metastasis is my my lungs and there were three spots, two were biopsies and one too small was just assumed to be my breast cancer cells. Well
Friday I had my first Petscan after two cycles of Ibrance and one on Kisqali. I was really hoping for all good results. Unfortunately, it was a mixed bag. My metastasis is my my lungs and there were three spots, two were biopsies and one too small was just assumed to be my breast cancer cells. Well
jltorcz
in
SHARE Metastatic Breast Cancer
3 months ago
Haematologist’s unsupportive B12 response
In a recent pathology test, my gastroenterologist was concerned with my low haemoglobin count and a high reticulocyte count. She mentioned that although I’m low in ferritin (40) I’m not yet needing an iron infusion just yet. My white cell count was seemingly low also and she suggested that I should get
In a recent pathology test, my gastroenterologist was concerned with my low haemoglobin count and a high reticulocyte count. She mentioned that although I’m low in ferritin (40) I’m not yet needing an iron infusion just yet. My white cell count was seemingly low also and she suggested that I should get
GoneWithTheWind1972
in
Pernicious Anaemia Society
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
To Trial or not to Trial?
I have decided not to trial. Going to just do the Venetaclax & Obin protocol. I’m just not in the mood for the extra appointments and brain damage that invariably comes with them. I’m waiting for a start date. Had the bone marrow biopsy and endless other tests this week - decided not to peek at the
I have decided not to trial. Going to just do the Venetaclax & Obin protocol. I’m just not in the mood for the extra appointments and brain damage that invariably comes with them. I’m waiting for a start date. Had the bone marrow biopsy and endless other tests this week - decided not to peek at the
SunnyCA
in
CLL Support
5 months ago
response regarding my endocrinologist complaint
Hi, I am sharing the letter I received from the hospital ( it’s taken them well over 6 months). I was so ‘cheesed off’ with the reply that it’s taken me 3 days to read it again and then I spilt coffee on it 🥴. I don’t know why I thought I’d get anything better, but the response is actually farcicle
Hi, I am sharing the letter I received from the hospital ( it’s taken them well over 6 months). I was so ‘cheesed off’ with the reply that it’s taken me 3 days to read it again and then I spilt coffee on it 🥴. I don’t know why I thought I’d get anything better, but the response is actually farcicle
Rowing2
in
Thyroid UK
2 months ago
Proton Treatment - When to start the ADT relative to simulation and CT of the prostate
I am talking to two radiologists who have a strong difference of opinion. One radiologist tells me I should start ADT two months before I do the space OAR, markers and simulation, and then start the radiation. Another doctor tells me I should start the ADT at the same time as I do the space OAR and simulation
I am talking to two radiologists who have a strong difference of opinion. One radiologist tells me I should start ADT two months before I do the space OAR, markers and simulation, and then start the radiation. Another doctor tells me I should start the ADT at the same time as I do the space OAR and simulation
CBRD
in
Advanced Prostate Cancer
3 months ago
Pleur x catheter
Update:- good news: l don't need pericardial effusion window surgery. - l did get a pleur x catheter placed last Friday. The procedure went well. I've had 2 drainage at home so far. - l would appreciate showering advice. I wrapped the dressing in place and seal plastic wrap but water still seeped into
Update:- good news: l don't need pericardial effusion window surgery. - l did get a pleur x catheter placed last Friday. The procedure went well. I've had 2 drainage at home so far. - l would appreciate showering advice. I wrapped the dressing in place and seal plastic wrap but water still seeped into
NPmary
in
SHARE Metastatic Breast Cancer
3 months ago
Got GP appointment but what to say to get him to test anything more than TSH
Hi 3 months ago I wrote a post about my daughters results since 2018 & her vitamin levels which are dire. It has taken her this long to manage to get a telephone appointment with a GP next Wednesday. My question is what does she say to convince them to test more than just her TSH. I went through
Hi 3 months ago I wrote a post about my daughters results since 2018 & her vitamin levels which are dire. It has taken her this long to manage to get a telephone appointment with a GP next Wednesday. My question is what does she say to convince them to test more than just her TSH. I went through
Otto11
in
Thyroid UK
2 months ago
lymphedema from prostate cancer, any advice on how to manage?
One of my dad’s biggest issues with prostate cancer is severe lymphedema from the waist down. He used to just have it in his right leg from lymph node removal during RP. Since being on the lynparza in January both sides have swelled up as well as scrotum and everything else below the waist. He was told
One of my dad’s biggest issues with prostate cancer is severe lymphedema from the waist down. He used to just have it in his right leg from lymph node removal during RP. Since being on the lynparza in January both sides have swelled up as well as scrotum and everything else below the waist. He was told
LJGD
in
Advanced Prostate Cancer
3 months ago
Really lost - doctor advised me to stop injecting and now B12 keeps going down
Hi everyone, First, I want to say how much this group has been a help and source of comfort and much needed information! Thank you. In Feb 2019 I was diagnosed as having "Vitamin B12 deficiency anemia due to intrinsic factor deficiency." At the time I was 35. My doctor did not say "Pernicious Anemia
Hi everyone, First, I want to say how much this group has been a help and source of comfort and much needed information! Thank you. In Feb 2019 I was diagnosed as having "Vitamin B12 deficiency anemia due to intrinsic factor deficiency." At the time I was 35. My doctor did not say "Pernicious Anemia
marlesk
in
Pernicious Anaemia Society
2 months ago
Blood test results
Hi all, can i have some help with blood test results? went to GP with symptoms of Hypothyroid, family history as both parents are diagnosed hypo. I was sent for full bloods incluing thyroid function 1/5/24 (bloods taken about 11am) HbA1c 31 mmol n/a Haemantinic serum vit b12 322ng/l 189-883
Hi all, can i have some help with blood test results? went to GP with symptoms of Hypothyroid, family history as both parents are diagnosed hypo. I was sent for full bloods incluing thyroid function 1/5/24 (bloods taken about 11am) HbA1c 31 mmol n/a Haemantinic serum vit b12 322ng/l 189-883
cheekysaph
in
Thyroid UK
23 days ago
10yo daughters results…HELP!
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
RachelP03
in
Pernicious Anaemia Society
4 months ago
10yo daughters results HELP!
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
Hello, I have posted before regarding my daughter who is 10yo but we have just had some very unusual and worrying results which may explain her health issues. She has a long term history of low platelets and I’ve been trying to solve this for her as it has been unexplained. We have strong family history
RachelP03
in
Thyroid UK
4 months ago
Advancements on drugs delivery: interesting review (and with drugs I meant medicine!)
A review on advancements in the application of starch-based nanomaterials in biomedicine: Precision drug delivery and cancer therapy, just one of the many delivery strategies that are being developed sometimes I forget that we have plenty of chemotherapeutics, also new ones that can diversify our strategy
A review on advancements in the application of starch-based nanomaterials in biomedicine: Precision drug delivery and cancer therapy, just one of the many delivery strategies that are being developed sometimes I forget that we have plenty of chemotherapeutics, also new ones that can diversify our strategy
Maxone73
in
Advanced Prostate Cancer
3 months ago
Day 2 or Day 5 transfer? Help!!!
Hi Guys!!! I need to hear from anyone that had experience with a day 2 transfer. Im definitely not new to ivf, I have had 3 egg retrievals ( the last one was yesterday) and 5 embryo transfers so far in the space of 4 yrs, all unsuccessful..... I have actually never seen a positive pregnancy test 😩 I
Hi Guys!!! I need to hear from anyone that had experience with a day 2 transfer. Im definitely not new to ivf, I have had 3 egg retrievals ( the last one was yesterday) and 5 embryo transfers so far in the space of 4 yrs, all unsuccessful..... I have actually never seen a positive pregnancy test 😩 I
Islandgrl
in
Fertility Network UK
5 months ago
Pluvicto and low Hemoglobin
Hi all, My dad received his second infusion of pluvicto on February 14. About a week ago his hemoglobin dropped to 65. After a unit of blood it went up to around 85 and then every 3 days or so it drops back down the high 60’s. My dad does have prostrate cancer in his bones and lymph nodes. My question
Hi all, My dad received his second infusion of pluvicto on February 14. About a week ago his hemoglobin dropped to 65. After a unit of blood it went up to around 85 and then every 3 days or so it drops back down the high 60’s. My dad does have prostrate cancer in his bones and lymph nodes. My question
Uman101
in
Advanced Prostate Cancer
3 months ago
Getting the NDT dosage right
Hello again friends, I'm writing again in the hope that your collective expertise will come up with a solution for me. I switched from Levothyroxine to NDT (NP Thyroid) some time back, and I've been testing every 12 weeks and tweaking the dose trying to get it right. The latest results, which arrived
Hello again friends, I'm writing again in the hope that your collective expertise will come up with a solution for me. I switched from Levothyroxine to NDT (NP Thyroid) some time back, and I've been testing every 12 weeks and tweaking the dose trying to get it right. The latest results, which arrived
lutepavan
in
Thyroid UK
2 months ago
Interesting article about the effects of Covid19 on your blood
Having caught Covid19 a short time after my allo SCT and with my anaemia ongoing, I was interested to see this article. This is not CLL specific but worth a read. "[i]Several studies have reported, in COVID-19 patients, hematological abnormalities. Most of these alterations are associated with a higher
Having caught Covid19 a short time after my allo SCT and with my anaemia ongoing, I was interested to see this article. This is not CLL specific but worth a read. "[i]Several studies have reported, in COVID-19 patients, hematological abnormalities. Most of these alterations are associated with a higher
Jm954
Administrator
in
CLL Support
5 months ago
exciting clinical trial
My very long time (20 years!) MBC changed from E+ to triple negative a few months ago and yesterday I was looking on line for clinical trials for TNBC and found one that looks exciting to me, whether I qualify for it or not. It's sponsored by Lyell Immunopharma and targets CAR T cells. I have no idea
My very long time (20 years!) MBC changed from E+ to triple negative a few months ago and yesterday I was looking on line for clinical trials for TNBC and found one that looks exciting to me, whether I qualify for it or not. It's sponsored by Lyell Immunopharma and targets CAR T cells. I have no idea
PJBinMI
in
SHARE Metastatic Breast Cancer
3 months ago
Heading down hospice road too…
I’m so sorry to hear about your dad 😢 I’m in a very similar situation with my dad, age 71, Gleason 9 with Mets to bone, lungs, lymph nodes and now a tumor in his bladder. Zytiga worked for him for years, but last January started with more bone Mets and lymph nodes, zytiga restarted and failed. Tried
I’m so sorry to hear about your dad 😢 I’m in a very similar situation with my dad, age 71, Gleason 9 with Mets to bone, lungs, lymph nodes and now a tumor in his bladder. Zytiga worked for him for years, but last January started with more bone Mets and lymph nodes, zytiga restarted and failed. Tried
LJGD
in
Advanced Prostate Cancer
3 months ago
1
...
69
70
71
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
68259 results
Pernicious Anaemia Society
6050 results
Fertility Network UK
5973 results
View top 10 communities
Sort by
Most Relevant
Newest