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PMRGCAuk

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fatigue as I taper

many thanks for the reply’s at least I know I am not going mad my intention is to stay at 10mg for at least 8 weeks the try for 9mg this is assuming things...

many thanks for the reply’s at least I know I am not going mad my intention is t...

Northernarcher

•14 minutes ago

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fatigue as I taper

hi just stated my tapering journey gone from 15mg (3 weeks) to 12.5mg (4weeks) now on 10mg been on 10mg for 12days now I am starting to feel tired all the...

hi just stated my tapering journey gone from 15mg (3 weeks) to 12.5mg (4weeks) ...

Northernarcher

•1 hour ago

2 Replies

vomited after pred

Sorry for descriptive post. Overnight I have had pain in my lower back (left side) running around the front to my groin. Not sure if this a muscular pain...

Sorry for descriptive post. Overnight I have had pain in my lower back (left si...

Iloveholidays

•2 hours ago

7 Replies

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holiday advice

should I go on Bridge playing holiday to Sicily in October. I should be on 6mg of Prednisolone by then . I have GCA

should I go on Bridge playing holiday to Sicily in October. I should be on 6mg o...

Havanahula

•2 hours ago

2 Replies

Covid vaccine or not

A retired cardiologist’s advice is very simple - Covid can kill steroids cannot.

A retired cardiologist’s advice is very simple - Covid can kill steroids cannot....

Porridgeandgrapes

•5 hours ago

2 Replies

Hands & Shoulders Pain When Tapering from 8mg

Hi All, I was tapering down great and doing a lot of cardio in the gym three times per week. As I got fitter, I started doing some lightweight repetitions. I...

Hi All, I was tapering down great and doing a lot of cardio in the gym three ti...

Lickle

•6 hours ago

3 Replies

Covid vaccine or not ?

Thoughts on whether or not to vaccinate for covid please ? Any relevant data out there ? My last jab was October 2023 , I got covid in December. Given I got it...

Thoughts on whether or not to vaccinate for covid please ? Any relevant data out...

Pastamama

•15 hours ago

26 Replies

Tapering again.

Hi all 👋 It's been probably 18 months since I last dabbled in tapering. My rheumy has been keen for me to drop from 10mg per day to 9mg for months but I...

Hi all 👋 It's been probably 18 months since I last dabbled in tapering. My rh...

IdasMum

•21 hours ago

9 Replies

Side effects

Hi all, Mum takes cortisol acertate for adrenal insuffiency. I understand you take hydrocortisone for arthritus. I think it has the same side effects, like...

Hi all, Mum takes cortisol acertate for adrenal insuffiency. I understand you ...

quicklyinsignificant

•1 day ago

7 Replies

PMR and Itching

Hi Group, Any thoughts on itching skin as a result of tapering? I am down to ½ mg pred/day, and itch mainly at night. I take pred around 8am. It's been 5+...

Hi Group, Any thoughts on itching skin as a result of tapering? I am down to ½...

rj74

•2 days ago

6 Replies

taper from 2

how on earth do you taper from 2 and not exceed 10%??? I was going to go to 1.5 after few weeks but terrified!!! Having knee replacement in June. Hoped to be...

how on earth do you taper from 2 and not exceed 10%??? I was going to go to 1.5...

Booch

•2 days ago

10 Replies

cataracts

I had a routine eye test yesterday and apparently I now have cataracts. Another side effect of steroids. Bah. Sorry , just needed a moan.

I had a routine eye test yesterday and apparently I now have cataracts. Another ...

Yellow-dog

•2 days ago

27 Replies

Side effects of Prednisone

I started taking Prednisone in March 24 for Polymyalgia . Immediately pain free but have put on a bit of weight (not a problem) have been reducing Prednisone...

I started taking Prednisone in March 24 for Polymyalgia . Immediately pain free ...

budgies4

•2 days ago

49 Replies

Kellgren Centre, Manchester Royal Infirmary - is anyone on here under their care please?

I have both GCA & PMR and am looking for alternative treatment to just Pred… eg TCZ. I have made an appointment to see Professor Ben Parker privately after...

I have both GCA & PMR and am looking for alternative treatment to just Pred… e...

AmberGamble

•2 days ago

8 Replies

PMR flare? Reluctant to keep on highish doses of steroids.

Diagnosed in Feb 2022 Started with pain right hip and slightly in ankle, before it became generalised and responded dramatically within 3-4 hours to 20 mg...

Diagnosed in Feb 2022 Started with pain right hip and slightly in ankle, before ...

turquoiserainbow

•3 days ago

15 Replies

Reducing Effects

I just read DL’s very helpful article, Reducing Steroids & Activating the Adrenal Glands. So grateful for all the information and support here. It would’ve...

I just read DL’s very helpful article, Reducing Steroids & Activating the Adrena...

Lenore58

•3 days ago

18 Replies

Cardiac arrhythmia

Does anyone know the problem with cardiac arrhythmia on Pred? Specially at night? I am currently on 15mg, started with 20mg.

Does anyone know the problem with cardiac arrhythmia on Pred? Specially at night...

Swizzly

•3 days ago

19 Replies

Free of polymyalgia

Hi I just wanted to tell everyone that you can finally be free of polymyalgia.I was diagnosed in 2020 and it was horrendous. The pain was terrible but it took...

Hi I just wanted to tell everyone that you can finally be free of polymyalgia.I ...

Rosshigh

•3 days ago

69 Replies

Appointment with Professor Dasgupta

After being ill for two years with 'atypical' PMR and waiting nearly a year for an NHS appointment, my Rheumatologist has said he is baffled and doesn't know...

After being ill for two years with 'atypical' PMR and waiting nearly a year for ...

FleetRose

•3 days ago

13 Replies

Further developments in the 'back muscle strain' saga

Last October when changing bed sheets, I injured my back. Went to A & E in excruciating pain and they sent me off with a single dose of morphine deciding it...

Last October when changing bed sheets, I injured my back. Went to A & E in excru...

strawclutching

•3 days ago

81 Replies

losing weight

Hi all, I know the usual gripe is about gaining weight on pred, and certainly the first time round I gained a huge amount which just wouldn’t shift. This time...

Hi all, I know the usual gripe is about gaining weight on pred, and certainly t...

artisam

•3 days ago

11 Replies

decrease in Pred after hospital admission

I had been admitted via A&E to hospital with a small rupture to the large intestine and diverticulitis flare, it was a rough time and on lots of meds to...

I had been admitted via A&E to hospital with a small rupture to the large intest...

Crwbin1

•3 days ago

16 Replies

PMR flare?

Good morning ....my saga with rheumatologist and strange symptoms continue.I was succesfully tapering Pred got right down to 17.5mg, after a few attempts and...

Good morning ....my saga with rheumatologist and strange symptoms continue.I was...

Den73

•3 days ago

5 Replies

Post Moderna covid vaccination

I had my covid vaccination just over a week ago, it was Moderna, my first time for this brand. I had been feeling really great. However I now feel dreadful,...

I had my covid vaccination just over a week ago, it was Moderna, my first time ...

KASHMIRI1

•3 days ago

4 Replies

GCA dizziness

hello , I am asking this question to help my brother who has just been diagnosed with GCA. He had the classic symptoms so was put on 50 prednisone daily. He is...

hello , I am asking this question to help my brother who has just been diagnosed...

Chopin002

•3 days ago

12 Replies

Rheumatologist appointment

After seeing the doctor today for the first visit, I would like to get the thoughts of some of the knowledgeable people on this forum. He didn’t rule out PMR,...

After seeing the doctor today for the first visit, I would like to get the thoug...

Aqua47

•4 days ago

15 Replies

GCA-Diagnosis

So far on my journey after diagnosis of GCA was put on 60 mg Prednisone and went down slowly to none. Have been on Actemra shot weekly for 16 months now with...

So far on my journey after diagnosis of GCA was put on 60 mg Prednisone and went...

LRevell

•4 days ago

11 Replies

Hello methtextrate

So another visit to eye clinic and AGAIN they are going to drop my pred...BUT due to oral thrush. and the other flipping side effects the opto lady said she...

So another visit to eye clinic and AGAIN they are going to drop my pred...BUT d...

Alliekat65

•4 days ago

32 Replies

Hair loss

I am at 8.5 mg of prednisone after starting on 20 mg on September 2023. I have lost half the volume of my hair. (gauged by the thickness of my pony tail now...

I am at 8.5 mg of prednisone after starting on 20 mg on September 2023. I have ...

proactive

•4 days ago

33 Replies

Flares trying to get from 9 mg to 8 mg

I got PMR in May 2023 and I was diagnosed in Sept 2023. I started on 20 mg and have tapered down to 9 with just one flare. I did a 5 week taper March 1st,...

I got PMR in May 2023 and I was diagnosed in Sept 2023. I started on 20 mg and h...

proactive

•4 days ago

14 Replies

Write a post or ask a question

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

fatigue as I taper

fatigue as I taper

vomited after pred

holiday advice

Covid vaccine or not

Hands & Shoulders Pain When Tapering from 8mg

Covid vaccine or not ?

Tapering again.

Side effects

PMR and Itching

taper from 2

cataracts

Side effects of Prednisone

Kellgren Centre, Manchester Royal Infirmary - is anyone on here under their care please?

PMR flare? Reluctant to keep on highish doses of steroids.

Reducing Effects

Cardiac arrhythmia

Free of polymyalgia

Appointment with Professor Dasgupta

Further developments in the 'back muscle strain' saga

losing weight

decrease in Pred after hospital admission

PMR flare?

Post Moderna covid vaccination

GCA dizziness

Rheumatologist appointment

GCA-Diagnosis

Hello methtextrate

Hair loss

Flares trying to get from 9 mg to 8 mg

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