Posts - My Ovacome | HealthUnlocked

My Ovacome

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Not sure how to help/plan

Hi all, I'm not really sure what I'm looking for, but felt like typing this might somehow make something better. I'm late 30s, single, only child, single...

Hi all, I'm not really sure what I'm looking for, but felt like typing this mi...

sasissad

•6 hours ago

1 Reply

Feeling worried

I've been on this journey for over 4 years now. I was diagnosed in 2020 with stage 4 OC. Had chemo then radical debulking more chemo. Then olaparib for just 2...

I've been on this journey for over 4 years now. I was diagnosed in 2020 with sta...

Casamimosa

•9 hours ago

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Datar Cancer Test

Has anyone gone ahead with any genomic testing, specifically the datar blood or tissue test? Thank you :)

Has anyone gone ahead with any genomic testing, specifically the datar blood or ...

Worrieddaughter95

•10 hours ago

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Feeling lonely - first time posting

Hi all, Have been reading lots of helpful posts on here so thought I’d bite the bullet and share something also. My mum (71) was diagnosed with stage 3b...

Hi all, Have been reading lots of helpful posts on here so thought I’d bite th...

Fourbytwo93

•1 day ago

8 Replies

Working and OC - Freelancers

Hello wonderful women I'm wondering if anyone is on here who is totally freelance? As in, not running their own business as such but hire themselves out to...

Hello wonderful women I'm wondering if anyone is on here who is totally freelanc...

Emcee71

•1 day ago

7 Replies

What's on at Ovacome next week? (week starting Monday 17 June 2024)

Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good morning everyone, This is our weekly post to let you know about the diff...

OvacomeSupport

Partner•2 days ago

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Secondary surgery

Hello I just had my CT scan and it shows some disease progression in the liver area where a small bit of tumour couldn’t be removed at initial surgery. My...

Hello I just had my CT scan and it shows some disease progression in the liver ...

Kamloops

•2 days ago

4 Replies

chemo nausea/vomiting

hi all! I seem to have posted a lot this week - apologies! mum starts frontline chemo on Monday and is really worried about vomiting while she’s still so...

hi all! I seem to have posted a lot this week - apologies! mum starts frontlin...

georgiageorgia182

•2 days ago

11 Replies

CA125

Has anyone had a rising CA 125 but no recurrence?

Survivor-thank

•2 days ago

7 Replies

A survey of your experiences of one-piece closed stoma bags

Hello everyone, I am posting about the submission we are making to the National Institute for Health and Care Excellence (NICE ) for their Late-Stage...

Hello everyone, I am posting about the submission we are making to the Nation...

OvacomeSupport

Partner•2 days ago

2 Replies

CA125 rising

Just got results back for CA125. It has been rising monthly. My oncologist was taking a wait and see approach as it was normal in April then rose to 70 in May...

Just got results back for CA125. It has been rising monthly. My oncologist was t...

Hockeymom52

•3 days ago

8 Replies

MH500- Marian Harding

It is with a heavy heart I would like to announce the passing of my wife Marian Harding (MH500), she battled with this disease for 8 years and 4 recurrances,...

It is with a heavy heart I would like to announce the passing of my wife Marian ...

KH501

•4 days ago

39 Replies

peewee

I had surgery in 2020 I have never been right since. I feel ok in the morning but as soon as I try to do stuff my stomach starts to feel sore and tight does...

I had surgery in 2020 I have never been right since. I feel ok in the morning b...

Peewe

•4 days ago

4 Replies

Terratoma with a neuroendocrine tumour stage 1 3c, anybody

I think I might be clutching at straws here, anybody have anything similar. Apparently it's rare as hens teeth.I had a 5 kilo terratoma removed, it was on my...

I think I might be clutching at straws here, anybody have anything similar. App...

Dottieparton22

•4 days ago

10 Replies

pains 10 weeks after hysterectomy

hi I’m just wondering as anyone suffered pains in left side under ribs and upper back pain since having hysterectomy I’m still waiting on my 3 month scan so...

hi I’m just wondering as anyone suffered pains in left side under ribs and upper...

Marketlover

•6 days ago

9 Replies

Stomach cramps

Hi lovely ladies! My mum is 6 weeks post primary debulking surgery, and bowel resection and is still having some bowel issues. She's had pretty bad stomach...

Hi lovely ladies! My mum is 6 weeks post primary debulking surgery, and bowel re...

georgiageorgia182

•7 days ago

3 Replies

Rucaparib

hello, I was on Rucaparib until today. My ovarian cancer has reoccurred three times in three years. I was taking this for three months my CA125 was 27 after...

hello, I was on Rucaparib until today. My ovarian cancer has reoccurred three ...

Peewe

•7 days ago

14 Replies

Could ovarian cancer and high TIBC (Total Iron Binding Capacity) be linked?

I was just looking back on my medical records and both last year and in 2022 and my TIBC was high both times but my iron was normal. The doctor said she didn't...

I was just looking back on my medical records and both last year and in 2022 and...

starrynight5626

•8 days ago

2 Replies

niraparib

Hi everyone. I have sought your wonderful advices before so I hope you can help me again. My daughter is having trouble tolerating niraparib. Her...

Hi everyone. I have sought your wonderful advices before so I hope you can help...

BrandyHorse

•8 days ago

18 Replies

What's on at Ovacome next week? (week commencing Monday 10 June 2024)

Good afternoon everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next......

Good afternoon everyone, This is our weekly post to let you know about the di...

OvacomeSupport

Partner•8 days ago

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Why would a doctor ask for an MRI both with and without contrast to see if I have just a fibroid or if there is an ovarian mass as well?

I had both a CT and ultrasound and they couldn't be 100% sure if I had a mass on my ovary or if it is a pedunculated fibroid. My doctor wrote to the OB/GYN and...

I had both a CT and ultrasound and they couldn't be 100% sure if I had a mass on...

starrynight5626

•9 days ago

5 Replies

3 months since ovarian mass was an incidental find on CT scan and still waiting for my MRI.

I've posted on here before about this but I'm getting antsy. A fibroid and possible ovarian mass were found on a CT when I went in for stomach pains (which...

I've posted on here before about this but I'm getting antsy. A fibroid and poss...

starrynight5626

•9 days ago

18 Replies

Need advice for a friend

A friend has been diagnosed with late stage cervical cancer and needs a 2nd opinion, i know our group is for ovarian but thought maybe someone would know a...

A friend has been diagnosed with late stage cervical cancer and needs a 2nd opin...

Newbery3

•9 days ago

8 Replies

You are invited to our Birmingham Health and Wellbeing Day - 29 June 2024

Good afternoon everyone, Our next Health and Wellbeing day is coming up soon in Birmingham on 29 June 10:00am - 4:00pm. This will be an opportunity to...

Good afternoon everyone, Our next Health and Wellbeing day is coming up soon in...

OvacomeSupport

Partner•9 days ago

Be the first to reply

Pain around bikini line.

Looking for a possible explanation. Diagnosed Oct 2021. HG serous carcinoma stage 3c peritoneal/ovarian. I am on 4th line chemo carbo/gem ( I have found...

Looking for a possible explanation. Diagnosed Oct 2021. HG serous carcinoma s...

NewtonEmma1900

•10 days ago

2 Replies

Port, any day.

Definitely port for me. My veins were getting more difficult to find. The port is painless, and I wish I had it inserted earlier.

Definitely port for me. My veins were getting more difficult to find. The port i...

Pawpaw22

•11 days ago

1 Reply

Elahare

I am a 12 year survivor currently on Elahare. Just had my fourth round of treatment and noticed that my CA125 has gone up. I am afraid that I will be taken off...

I am a 12 year survivor currently on Elahare. Just had my fourth round of treatm...

yo207

•13 days ago

12 Replies

Covid Vaccination

Good Morning. In 2021 I had Covid my CA125 went down.A fortnight ago I had my Covid Vaccination ,I had a blood test on Wednesday and got the result yesterday...

Good Morning. In 2021 I had Covid my CA125 went down.A fortnight ago I had my C...

Inchellon

•14 days ago

3 Replies

Is it possible to get back to Platinum based chemo?

Hello beautiful ladies, My mum has been living with ovarian cancer since 2020. After debulking surgery and many treatments, her cancer was declared...

Hello beautiful ladies, My mum has been living with ovarian cancer since 2020...

violettatolz

•15 days ago

8 Replies

Mom's ovarian cancer spread to brain

Hi all,My mom was diagnosed with 3c ovarian cancer 2 years ago. It was inoperable and she has had 6-7 lines of chemo, most recently Enhertu. After the first 2...

Hi all,My mom was diagnosed with 3c ovarian cancer 2 years ago. It was inoperabl...

Chatterbox76

•15 days ago

4 Replies

Write a post or ask a question

Posts - My Ovacome | HealthUnlocked

My Ovacome

Not sure how to help/plan

Feeling worried

Datar Cancer Test

Feeling lonely - first time posting

Working and OC - Freelancers

What's on at Ovacome next week? (week starting Monday 17 June 2024)

Secondary surgery

chemo nausea/vomiting

CA125

A survey of your experiences of one-piece closed stoma bags

CA125 rising

MH500- Marian Harding

peewee

Terratoma with a neuroendocrine tumour stage 1 3c, anybody

pains 10 weeks after hysterectomy

Stomach cramps

Rucaparib

Could ovarian cancer and high TIBC (Total Iron Binding Capacity) be linked?

niraparib

What's on at Ovacome next week? (week commencing Monday 10 June 2024)

Why would a doctor ask for an MRI both with and without contrast to see if I have just a fibroid or if there is an ovarian mass as well?

3 months since ovarian mass was an incidental find on CT scan and still waiting for my MRI.

Need advice for a friend

You are invited to our Birmingham Health and Wellbeing Day - 29 June 2024

Pain around bikini line.

Port, any day.

Elahare

Covid Vaccination

Is it possible to get back to Platinum based chemo?

Mom's ovarian cancer spread to brain

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