ear issues

[Fluffycloudinthesky]

Hi

I’m currently going through the diagnosis process.

I have recently had terrible ear pain- possibly an infection and perforated ear drum. But only in the last 6 months had ear issues. Could this be connected or just a random illness ontop?

thanks for any advice.

[Star13]

Look up the symptoms of Chondritis as that can be connected. Mention it to your specialist.

[lovenothate]

I’m not aware of a direct link between ear problems and Behçets, but I have had ‘ulcerated’ ear drums. Incredibly painful and healed up with steroid ear drops.

[Lubyluboo]

I have had ear problems for over 10 years now and was diagnosed with Behcet’s in 2021.. Never been told it is linked but maybe it could be.

[Star13]

There is a condition that has an acronym called Magic (nothing magic about it) which is a crossover of Relapsing Polychondritis and Behcets where you get some of the chondritis and the ulcers of Behcets. You might want to research it.

[012703060610]

I have MAGIC that was mentioned. The key for Relapsing Polychondritis is a very red and inflamed pinna of the ear. Not red down to the lobe, but in a flare it's the upper parts of the cartilage. The ear drum seems like a one off potentially but certainly get this all checked out. I am sorry for your suffering. I know all to well how the autoimmune spiral goes. I have four autoimmune diseases with colitis being the only "normal" one.