LUPUS UK | HealthUnlocked

Hi folks thought I would post this pic of the lupins In my garden, they have self seeded all over the path and look beautiful . An update on me, I’m due to...

MESSAGE FROM HU SUPPORT: This post contains information that could be upsetting. If you are feeling vulnerable, do take care if you choose to read this post....

I saw my rheumatologist yesterday. A couple of weeks earlier than scheduled because I've felt very depressed. I feel no joy, no focus, no energy/vibe. My...

Hello, do any of you have a severe reaction to insect bites? I’ve always had a little bit more of a reaction but nothing like this! I recently got bitten, by...

Hi all, Long post warning. Have Lupus SLE for nearly 2 years. Due to UTI symptoms being worse last night phoned 111 for advice and had out of hours appt at...

hi had biopsy today and recovered well from anaesthetic 👏 but somewhat miffed as just looked at discharge letter when got home and says escalation plans and...

Hello Forum FriendsJust popping into show you these beautiful 'cutie faces' of a proud new Mum with her baby. The little one is Kobo a month old Gelada...

On Friday 3rd May we said goodbye to Millie our 15 Yr old spaniel. She got me through so much over the years from the death of my OH in 2009 to becoming...

Does anyone choose to live like this instead of hiding away from the light and conserving energy?

Yesterday morning I was so happy. With a good friend I was going for a decent walk: great company, beautiful surroundings, some longed for warm, dry weather...

https://pubmed.ncbi.nlm.nih.gov/8369810/

I have had a week of ill health (hellish) following every vaccine but my body seems to accept the Pfizer !! so this time round was hopeful. However there is...

Hello all I've very recently been diagnosed with Lupus and am yet to begin treatment. I have a few questions if you could be so kind to help me out. ....

Hello EveryoneJust thought i'd pop up to show you these special golden cuties. Nine year old Retriever Trigger has fathered more than 300 puppies. This latest...

I noted that Lupus sufferers over 50 were supposed to be eligible for the Shingrix jab. However, after requesting one from the Surgery the receptionist said...

I have had Sunsense sunblock on prescription for years now but a good while ago (well over a year easily) now my pharmacy (inhouse pharmacy at my rural GP...

Morning everyone, just a quick question. A new rheumatologist is questioning my Sjogrens diagnosis and told me to stop taking Amitryptiline. He thinks that...

Hi all.Hope you are as well as you can be. I wasn't going to post this but if another person can relate it will help to know If this is common with others who...

https://lupusuk.org.uk/neuropsychiatric-prodromes-and-sle/ There is also the full article of the research if you can't find it let me know I can attach it for...

I joined here back in 2018 when I was certain my symptoms fit lupus. However a professor of rheumatology disagreed and I’ve since been diagnosed with multiple...

I have been photosensitive for about three years now but this year I seem to be struggling with quite intense eye pain and subsequent headache (around the...

Hi. I have started Hydroxychloroquine a week and a half ago, 400mg, for Lupus Tumidus (cutaneous). I am very up and down side effect wise. This morning I...

hi 👋 Hope you’re all doing as well as u can has anyone had both Fibro fog and long covid? I don’t know which is affecting me I have more issues with word...

Hello, this is my first time posting so please bear with me.I am a 40 year old female. I was diagnosed with discoid lupus in 2005. Then a few years later,...

Today I feel very overwhelmed with the uglies of lupus on my face. I’ve begun a flare of my own fault getting maybe 5 minutes of sun. My face is attacked...

in my constant quest for understanding so I can help myself I have made a big discovery. About 5 years ago I was diagnosed with Sjogren’s and I understood to...

Does anyone else live with a sore side and bottom of their tongue with sjorgens?

Hi everyone, Has anyone experienced upper spine pain. It's feels like I can no longer function. Constant pain. Nothing works. I am thinking of chiropractor...

Hi all, Hope everyone is as well as they can be, bear with me it's a bit of a long one. So I have finally come off of steroids and I am now only on colchicine...

Quick back story... my rheumatologist told me to stay out of the sun. I mean in no uncertain terms. So I did exactly that. I apply spf50 regularly throughout...