Vasculitis Treatment 2

[Atimlin_1]

Hello, tomorrow I have my 2nd vasculitis treatment (high-dose steroids plus rituximab) and just wondering if there is much difference between the 1st and 2nd treatment in terms of reactions and side effects? Grateful for any feedback, thank you.

[Dazler99]

Hi Atimlin,

I’ve now had 4 Rituximab treatments and did not experience any different reactions or side effects. The only thing that you might find is that if you had no issues with the 1st infusion they might slightly speed up the rate of infusion for your 2nd infusion. My rate was marginally increased which reduced the overall infusion time by about 1/2 hour.

I hope all goes well for you.

Regards

[Atimlin_1 in reply to Dazler99]

Thank you very much, they are indeed increasing the rate today without issue. I appreciate the helpful feedback. Kind regards Allan

[yogarita1955]

I have had the same and no differences at all for me better really because I new what to expect second time best thing ever ritixamab

[Atimlin_1 in reply to yogarita1955]

Thank you for your input, much appreciated, Allan

[Kafkaontheshore]

I had no issues with the second treatment. It has made such a positive difference to me so I hope it does you too. 👍

[Atimlin_1 in reply to Kafkaontheshore]

So far so good, thanks for your well wishes! Allan

[artists]

l was really ill during first infusion . I had to got very slowly . High blood pressure ,sickness . The second and subsequent infusions were fine . I am so much better .

[Atimlin_1 in reply to artists]

I'm happy to hear that about #2 onward, thank you for sharing, Allan

[Investigator1]

Hi Atamilin _1 had 7 infusions about to go for my eighth it’s a bit quicker these days taking about 2.5-3 hours as opposed to 4.5-5 same old side effects, tiredness and fatigue after about 48 hours for a week then feel like crap after about 12 weeks for a couple of weeks then all good. Good luck. Nick.

[Atimlin_1 in reply to Investigator1]

Thank you Nick I hope your side effects continue to get better in future, warm regards Allan

[GinnyMa]

hi Atimlin! In two days I will have my 8th and final infusion of Rituximab. I say final because my doctor said that we now wait and see if I stay in remission. It has taken 2 years. The whole process was easy for me with no side effects. I have Microscopic Polyangiitis , MPA. I am so grateful for this drug!

[Atimlin_1 in reply to GinnyMa]

Thank you Ginny, I'm glad to hear your journey was somewhat easy for you...that is encouraging. I hope #8 is your final! Kind regards Allan