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Blood biopsy
My last PET scan showed progression in my T1, manumbrium (top part of the sternum) and in my pelvis. My oncologist ordered a blood biopsy and the results show that there is no treatment for my mutations. So I had 5 sessions of radiation, each time treating all 3 of my lesions. She is keeping me on
My last PET scan showed progression in my T1, manumbrium (top part of the sternum) and in my pelvis. My oncologist ordered a blood biopsy and the results show that there is no treatment for my mutations. So I had 5 sessions of radiation, each time treating all 3 of my lesions. She is keeping me on
sevoia
in
SHARE Metastatic Breast Cancer
4 months ago
The ratty feeling won't go!
My temper can be pretty short. I got angry yesterday, my husband, who won't take instructions and won't educate himself about gardening was hacking away "helping" on the allotment. Obviously at the moment I don't have much energy for it, but I don't want it done wrong, because that creates more work
My temper can be pretty short. I got angry yesterday, my husband, who won't take instructions and won't educate himself about gardening was hacking away "helping" on the allotment. Obviously at the moment I don't have much energy for it, but I don't want it done wrong, because that creates more work
Oneash
in
Pernicious Anaemia Society
4 months ago
Help with Results and Hair Loss
Hi, I was diagnosed with hypothyroidism formally in July 2020, and put on 50mg Levo initially although my TSH levels had been over 5 for the 2 years prior to 2020 with the GP saying they would just monitor 🤦🏼‍♀️ subsequent blood tests after starting Levo showed the TSH was up and down, but GP kept
Hi, I was diagnosed with hypothyroidism formally in July 2020, and put on 50mg Levo initially although my TSH levels had been over 5 for the 2 years prior to 2020 with the GP saying they would just monitor 🤦🏼‍♀️ subsequent blood tests after starting Levo showed the TSH was up and down, but GP kept
Henwood
in
Thyroid UK
4 months ago
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need advice
Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my levels to normal but hasn’t changed my symptoms. She then prescribed blood tests for parietal cell antibodies and intrinsic factor antibodies. Both were negative. She says therefore I only need B12 orally and not injections
Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my levels to normal but hasn’t changed my symptoms. She then prescribed blood tests for parietal cell antibodies and intrinsic factor antibodies. Both were negative. She says therefore I only need B12 orally and not injections
Tiredycake
in
Pernicious Anaemia Society
4 months ago
Itchy and soreness.
I’ve was diagnosed with lupus in 2013. I’ve had a few flares with the skin and last summer was one of the worst. I was put on hydroxychloroquine at first, but last year I had methotrexate and folic acid to my medication as well as still taking hydroxychloroquine. I’ve now developed a rash again on my
I’ve was diagnosed with lupus in 2013. I’ve had a few flares with the skin and last summer was one of the worst. I was put on hydroxychloroquine at first, but last year I had methotrexate and folic acid to my medication as well as still taking hydroxychloroquine. I’ve now developed a rash again on my
elizabeth-57
in
LUPUS UK
4 months ago
Worried about TSH levels :( 0.04mlU/L
I am taking a small 3mg of T3 with a private prescription and my NHS endo has said, this prescription is causing my lower TSH - but that feels like I'm being gaslight again. I'm feeling soo fatigued and stressed trying to get it sorted. I know I need to my levels on the lower side due to previous thyroid
I am taking a small 3mg of T3 with a private prescription and my NHS endo has said, this prescription is causing my lower TSH - but that feels like I'm being gaslight again. I'm feeling soo fatigued and stressed trying to get it sorted. I know I need to my levels on the lower side due to previous thyroid
LittleMissTeapot
in
Thyroid UK
4 months ago
Father with Stage 4 prostate cancer in 8 bones.
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
lgutman
in
Advanced Prostate Cancer
4 months ago
Advice
How long should you supplement b12 before starting folate?
How long should you supplement b12 before starting folate?
Popcorn12345
in
Pernicious Anaemia Society
4 months ago
Can sibo cause bloody stools
Was wondering how to get tested for sibo and if this can cause really excessive wind that is extremely bad smelling, noisy stomach upon eating dairy and bloody stools with alot of bloating in the stomach. Also does it cause a high calprotectin result.Any advice will be most appreciated. Thank you all
Was wondering how to get tested for sibo and if this can cause really excessive wind that is extremely bad smelling, noisy stomach upon eating dairy and bloody stools with alot of bloating in the stomach. Also does it cause a high calprotectin result.Any advice will be most appreciated. Thank you all
Sooty712
in
IBS Network
4 months ago
How to persuade TSH-obsessed Endo I'm not over-replaced (on T3-only)?
Hello, I am posting because I'm hoping for some advice for an Endo meeting on Tuesday. There is a possibility that the NHS Endocrinology team at my local hospital might just be contemplating 'widening' their approach to T3 (historically for me, a violent slam in the face 'NO! Get off T3 immediately or
Hello, I am posting because I'm hoping for some advice for an Endo meeting on Tuesday. There is a possibility that the NHS Endocrinology team at my local hospital might just be contemplating 'widening' their approach to T3 (historically for me, a violent slam in the face 'NO! Get off T3 immediately or
lolapops1978
in
Thyroid UK
4 months ago
Update
I no longer experienced severe symptoms associated with B12 deficiency after 6 months of injecting 3 mg of Hydroxocablamin three times a day and supplementing methylcobalamin and adenosylcobalamin 5 mg combined three times a day in sublingual liquid for 8 months. The 3 years +- prior I did improve
I no longer experienced severe symptoms associated with B12 deficiency after 6 months of injecting 3 mg of Hydroxocablamin three times a day and supplementing methylcobalamin and adenosylcobalamin 5 mg combined three times a day in sublingual liquid for 8 months. The 3 years +- prior I did improve
WIZARD6787
in
Pernicious Anaemia Society
4 months ago
Mild TI inflammation
Hi, I've just had my third colonoscopy and I found it very painful. I was in agony during various times of it being done. I managed to get a report (some pictures this time too!) On the report they wrote for the procedure discomfort: Mild: More than 2 episodes of discomfort without distress. On my report
Hi, I've just had my third colonoscopy and I found it very painful. I was in agony during various times of it being done. I managed to get a report (some pictures this time too!) On the report they wrote for the procedure discomfort: Mild: More than 2 episodes of discomfort without distress. On my report
Sunita77
in
Bowel Disease Support
25 days ago
Risk vs reward in clinical trials
Morning folks, I just finished reading my clinical protocol consent paperwork and don’t get the good warm feeling that the risk is worth the reward. This trial is through Sarah Cannon Research and involves a first in human investigational drug called TAK 280. It utilizes an approach already in clinical
Morning folks, I just finished reading my clinical protocol consent paperwork and don’t get the good warm feeling that the risk is worth the reward. This trial is through Sarah Cannon Research and involves a first in human investigational drug called TAK 280. It utilizes an approach already in clinical
Pmann
in
Advanced Prostate Cancer
4 months ago
What should I do - follow-ups not feeling thorough
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
Hi everyone, before I start my question I want to send out love to everyone on here and I really wish being well for everyone. I wish there wasn’t a load of experts on here because it means we are all in this. I was diagnosed in 2022 - they thought they would find ovarian but they were surprised to
OrdinarySoul
in
My Ovacome
4 months ago
Medichecks results, please advise
Hi Everyone, posting my 1st ever private blood tests. Please can anyone comment, I'm quite new to this. The results came with a Dr's overview, so I'll be taking Vit D supplements but the other results appeared 'normal'. What do you think? And do the autoimmunity antibodies indicate Hashimoto's or am
Hi Everyone, posting my 1st ever private blood tests. Please can anyone comment, I'm quite new to this. The results came with a Dr's overview, so I'll be taking Vit D supplements but the other results appeared 'normal'. What do you think? And do the autoimmunity antibodies indicate Hashimoto's or am
PotatoFan
in
Thyroid UK
4 months ago
Neuroendocrine prostate cancer could be restored to a state that responds to treatment
[i]It may be possible to restore drug-resistant neuroendocrine prostate cancer to a state that responds to treatment by depletion of a certain protein in cancer cells. A recent study published in Communications Biology by the University of Eastern Finland found that this protein, DPYSL5, is expressed
[i]It may be possible to restore drug-resistant neuroendocrine prostate cancer to a state that responds to treatment by depletion of a certain protein in cancer cells. A recent study published in Communications Biology by the University of Eastern Finland found that this protein, DPYSL5, is expressed
Don_1213
in
Advanced Prostate Cancer
4 months ago
Very low blood sugar - anyone had anything similar ?
Hello wise kind ones. I am/was? prediabetic prior to knowing about underactive thyroid.
Checked my blood sugar levels today. Very low. 2.1 to 4 range
. I tracked blood sugar from Dec 22 to April 23 and it was in range 5 to 8 range. HbA1c now about 43(Jan) 45 (Nov) was 47 in past a couple
Hello wise kind ones. I am/was? prediabetic prior to knowing about underactive thyroid.
Checked my blood sugar levels today. Very low. 2.1 to 4 range
. I tracked blood sugar from Dec 22 to April 23 and it was in range 5 to 8 range. HbA1c now about 43(Jan) 45 (Nov) was 47 in past a couple
Sleepman
in
Thyroid UK
4 months ago
Where to buy Feb 2024
Hi eveyone. Until now I have bought my B12 1mg/1ml Depot yearly but now it looks like things have changed. My regular German supplier says they no longer deliver to the UK so I have tried a few others with similar outcomes. It also seems like stock is very limited, if any at all. Can anybody recommend
Hi eveyone. Until now I have bought my B12 1mg/1ml Depot yearly but now it looks like things have changed. My regular German supplier says they no longer deliver to the UK so I have tried a few others with similar outcomes. It also seems like stock is very limited, if any at all. Can anybody recommend
HecticGem
in
Pernicious Anaemia Society
4 months ago
Vitamins for PBC
Does anyone know if particular vitamins should be taken if you have PBC? Thanks
Does anyone know if particular vitamins should be taken if you have PBC? Thanks
MSJT
in
PBC Foundation
6 months ago
treatment side effects vs cancer side effects
”Pain” vs “discomfort” in abdomen region following radiation and on Lupron- is it side effects or the cancer itself? Dad was diagnosed November 2023 and received radiation for 5 weeks that ended Jan 3rd. Started Lupron end of November. Cancer has spread to part of hip bone and pelvic lymph nodes.
”Pain” vs “discomfort” in abdomen region following radiation and on Lupron- is it side effects or the cancer itself? Dad was diagnosed November 2023 and received radiation for 5 weeks that ended Jan 3rd. Started Lupron end of November. Cancer has spread to part of hip bone and pelvic lymph nodes.
alysona828
in
Advanced Prostate Cancer
4 months ago
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