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After ADT
Dear fellows, see my post "Adjuvant ADT". My question there was what to expect after completion of 24 months of ADT (22 june 2023). Now we are six weeks later and first results are in. PSA remained <0.1, whereas my T. rose from <0.4 to 0.9. Coming thursday I am seeing my oncologist/radiotherapist. Is
Dear fellows, see my post "Adjuvant ADT". My question there was what to expect after completion of 24 months of ADT (22 june 2023). Now we are six weeks later and first results are in. PSA remained <0.1, whereas my T. rose from <0.4 to 0.9. Coming thursday I am seeing my oncologist/radiotherapist. Is
Nomiskneh
in
Prostate Cancer Network
10 months ago
After ADT
Dear fellows, see my post "Adjuvant ADT". My question there was what to expect after completion of 24 months of ADT (22 june 2023). Now we are six weeks later and first results are in. PSA remained <0.1, whereas my T. rose from <0.4 to 0.9. Coming thursday I am seeing my oncologist/radiotherapist. Is
Dear fellows, see my post "Adjuvant ADT". My question there was what to expect after completion of 24 months of ADT (22 june 2023). Now we are six weeks later and first results are in. PSA remained <0.1, whereas my T. rose from <0.4 to 0.9. Coming thursday I am seeing my oncologist/radiotherapist. Is
Nomiskneh
in
Prostate Cancer Network
10 months ago
Uric Acid [UA] & PCa Mortality
I once had a gouty foot. It was self-induced - I was having a brief but intense craving for high-purine foods, particularly anchovies. (Perhaps PCa was driving the craving - lol.) At some point I looked at the PCa / Uric Acid [UA] literature (more than I expected), but it was mixed & failed to impress
I once had a gouty foot. It was self-induced - I was having a brief but intense craving for high-purine foods, particularly anchovies. (Perhaps PCa was driving the craving - lol.) At some point I looked at the PCa / Uric Acid [UA] literature (more than I expected), but it was mixed & failed to impress
pca2004
in
Fight Prostate Cancer
10 months ago
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CLL - Next Generation Sequencing
I'm curious about Next Generation Sequencing for CLL. To my understanding, this type of test identifies resistant mutations, i.e., NOTCH1, ZAP-70, SF3B1, etc., and this can help your doctor to determine a targeted therapy that's more personalized. Not sure I have this correct so hopefully someone here
I'm curious about Next Generation Sequencing for CLL. To my understanding, this type of test identifies resistant mutations, i.e., NOTCH1, ZAP-70, SF3B1, etc., and this can help your doctor to determine a targeted therapy that's more personalized. Not sure I have this correct so hopefully someone here
Cave123
in
CLL Support
1 year ago
Update on my daddy- 8 years stage four
Hello guys! I wanted to give a little update on my dad. He was diagnosed stage four prostate cancer in June 2015, with a PSA of 257 and a single lymph node involved. His prostate was so enlarged at the time that he had to have double nephrostomy bags. He started hormone therapy and chemo immediately
Hello guys! I wanted to give a little update on my dad. He was diagnosed stage four prostate cancer in June 2015, with a PSA of 257 and a single lymph node involved. His prostate was so enlarged at the time that he had to have double nephrostomy bags. He started hormone therapy and chemo immediately
Lynsi13
in
Advanced Prostate Cancer
10 months ago
The ParkinsonNet dream
ParkinsonNet is on a mission to improve the lives and guarantee the best possible care for those people impacted by Parkinson’s disease.
We are ParkinsonNet and would love to have your country on board of our global network.
ParkinsonNet was founded in 2004 in the Netherlands, were patient centered
ParkinsonNet is on a mission to improve the lives and guarantee the best possible care for those people impacted by Parkinson’s disease.
We are ParkinsonNet and would love to have your country on board of our global network.
ParkinsonNet was founded in 2004 in the Netherlands, were patient centered
Esperanto
in
Cure Parkinson's
1 year ago
Latest test results
Hi, Slow Dragon kindly suggested I submit my latest test results , given that I continue with episodic fatigue. ( also heat/sweats). I’ve had a number of blood tests over the past 6 months all apparently normal but of course only TSH tested in respect of my diagnosis of hypothyroidism, prescribed currently
Hi, Slow Dragon kindly suggested I submit my latest test results , given that I continue with episodic fatigue. ( also heat/sweats). I’ve had a number of blood tests over the past 6 months all apparently normal but of course only TSH tested in respect of my diagnosis of hypothyroidism, prescribed currently
Calceolaria
in
Thyroid UK
10 months ago
Red light therapy
Hi , I’ve read up a lot about red light therapy & have held back but now considering buying one. Just interested to know if any of you have bought one, how you have got on with it, re results, plus if so any recommendations. I know I have seen posts in the past where people have mentioned they use one
Hi , I’ve read up a lot about red light therapy & have held back but now considering buying one. Just interested to know if any of you have bought one, how you have got on with it, re results, plus if so any recommendations. I know I have seen posts in the past where people have mentioned they use one
Durrell
in
NRAS
1 year ago
IBRT/SBRT Radiation and ADT
I have heard so many horrifying things here about adverse reactions to those who were prescribed ADT in conjunction with or shortly after radiation treatment. Has anyone forgone taking ADT therapy or does that ruin any progress made from radiation? I have read there is no evidence ADT actually improves
I have heard so many horrifying things here about adverse reactions to those who were prescribed ADT in conjunction with or shortly after radiation treatment. Has anyone forgone taking ADT therapy or does that ruin any progress made from radiation? I have read there is no evidence ADT actually improves
805guy
in
Prostate Cancer And Gay Men
10 months ago
3 Months post ADT (Orgovyx) Still having hot flashes and fatigue-doing blood test in two weeks..for hopefully nadir..
Stopped taking Orgovyx May 30th .... August 30th will be my 90 day blood test I presume to see if my Testosterone is BACK TO NORMAL (I hope) and my PSA is less than .o2 ?? I understand that the Testosterone back to NORMAL is more possible in the short term (90 days) than longer term use of adt? Is
Stopped taking Orgovyx May 30th .... August 30th will be my 90 day blood test I presume to see if my Testosterone is BACK TO NORMAL (I hope) and my PSA is less than .o2 ?? I understand that the Testosterone back to NORMAL is more possible in the short term (90 days) than longer term use of adt? Is
JWS13
in
Prostate Cancer Network
9 months ago
The effect of light exposure on insomnia and nocturnal movement in Parkinson's disease: an open label, retrospective, longitudinal study
The effect of light exposure on insomnia and nocturnal movement in Parkinson's disease: an open label, retrospective, longitudinal study 2018 https://sci-hub.ru/10.1016/j.sleep.2018.01.001
Abstract
Insomnia, hypersomnia and REM Sleep Behavior Disorder (RSBD) during sleep are major problems for
The effect of light exposure on insomnia and nocturnal movement in Parkinson's disease: an open label, retrospective, longitudinal study 2018 https://sci-hub.ru/10.1016/j.sleep.2018.01.001
Abstract
Insomnia, hypersomnia and REM Sleep Behavior Disorder (RSBD) during sleep are major problems for
Bolt_Upright
in
Cure Parkinson's
1 year ago
Constipation caused by pelvic floor dysfunction
I have been diagnosed with obstructive defecation syndrome (pelvic floor dysfunction) from a proctogram - I’ve been given physiotherapy and it hasn’t worked. I’ve asked to be referred for biofeedback and my doctor says they won’t do anything else. Does anyone have any advice? It’s severely impacting
I have been diagnosed with obstructive defecation syndrome (pelvic floor dysfunction) from a proctogram - I’ve been given physiotherapy and it hasn’t worked. I’ve asked to be referred for biofeedback and my doctor says they won’t do anything else. Does anyone have any advice? It’s severely impacting
Pinkcrystal5
in
Pelvic Pain Support Network
1 year ago
Assessment tomorrow morning
I've got my autism assessment tomorrow morning and my mum has her part about me on a separate day this week. I'm so so scared and nervous and just don't like the unknown. But also I'm not sure how I want the result to go. Because if I am it's for life with no treatment or suport really But if I'm not
I've got my autism assessment tomorrow morning and my mum has her part about me on a separate day this week. I'm so so scared and nervous and just don't like the unknown. But also I'm not sure how I want the result to go. Because if I am it's for life with no treatment or suport really But if I'm not
Rugby3
in
Autism Support
1 year ago
The CRP:Albumin ratio & CRPC Survival
New paper from Portugal below [1]. Here is another study showing the consequences of subclinical inflammation. The inflammation markers used were C-reactive protein [CRP] & albumin. {The useful Modified Glasgow Prognostic Score uses the same markers, but in a cruder way.} It is always better
New paper from Portugal below [1]. Here is another study showing the consequences of subclinical inflammation. The inflammation markers used were C-reactive protein [CRP] & albumin. {The useful Modified Glasgow Prognostic Score uses the same markers, but in a cruder way.} It is always better
pca2004
in
Fight Prostate Cancer
11 months ago
Heart-healthy foods.
New study [1]. It's well-known that men with PCa have a higher risk for cardiovascular disease. Even before ADT. Mark Moyad coined the phrase "heart-healthy is prostate healthy" and I think he is correct. The American "food pyramid" is a disaster imo, with grains at the bottom & fats at the
New study [1]. It's well-known that men with PCa have a higher risk for cardiovascular disease. Even before ADT. Mark Moyad coined the phrase "heart-healthy is prostate healthy" and I think he is correct. The American "food pyramid" is a disaster imo, with grains at the bottom & fats at the
pca2004
in
Fight Prostate Cancer
10 months ago
SHBG test through Medichecks?
I'm set with an appointment with a menopause clinic in a couple of weeks for an HRT consult and noticed that their charges for some of the tests were quite a bit higher than Medichecks, and they are running a 20% off sale that ends tonight. I've had my thyroid tests done with them already, so I believe
I'm set with an appointment with a menopause clinic in a couple of weeks for an HRT consult and noticed that their charges for some of the tests were quite a bit higher than Medichecks, and they are running a 20% off sale that ends tonight. I've had my thyroid tests done with them already, so I believe
wavedancers
in
Thyroid UK
10 months ago
Treatment after Zoladex/Prostrap
I’m due to go back to the consultant next week and I’m just wondering what your experiences were a) coming off Zoladex/prostrap and b) what treatment options are next. For context I have been on the injections for 11 months now, and HRT for the past 5 months. I know everyone’s experiences have been different
I’m due to go back to the consultant next week and I’m just wondering what your experiences were a) coming off Zoladex/prostrap and b) what treatment options are next. For context I have been on the injections for 11 months now, and HRT for the past 5 months. I know everyone’s experiences have been different
Hfm89
in
Endometriosis UK
10 months ago
Morphea treatment - PUVA or triamcinolone injections?
hello, looking for a bit of advice as I was diagnosed with Morphea a few months ago. I’m under the care of dermatology department. It affects my whole left arm, part of my rib cage and some of my right arm. The worst area is around my left wrist where the skin is particularly tight around the joint
hello, looking for a bit of advice as I was diagnosed with Morphea a few months ago. I’m under the care of dermatology department. It affects my whole left arm, part of my rib cage and some of my right arm. The worst area is around my left wrist where the skin is particularly tight around the joint
Katie46
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
Anyone with PSP-PAGF
I am from India and new to this association. My husband age 69 was diagnosed (mis?) as Parkinson's patient in 2019. He was having speech issues and slow movements Last month, he started freezing and can only walk with baby steps. Consulted a movement disorder specialist who diagnosed it as PSP-PAGF.
I am from India and new to this association. My husband age 69 was diagnosed (mis?) as Parkinson's patient in 2019. He was having speech issues and slow movements Last month, he started freezing and can only walk with baby steps. Consulted a movement disorder specialist who diagnosed it as PSP-PAGF.
Sharsuk
in
PSP Association
1 year ago
Speech therapy advice
Hello My brother Chris had a severe brain injury 5 months ago. He’s currently in rehab (NHS) where he’s been for 2 months as it took time to get a suitable rehab placement. Chris’ injury was on the left side of his head. Initially, he couldn’t move his right arm but quickly got mobility and some
Hello My brother Chris had a severe brain injury 5 months ago. He’s currently in rehab (NHS) where he’s been for 2 months as it took time to get a suitable rehab placement. Chris’ injury was on the left side of his head. Initially, he couldn’t move his right arm but quickly got mobility and some
HopeForChris
in
Headway
1 year ago
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