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Prednisone
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advice on not taking meds for a day
hi me again, can anyone advise me on this. I have a gastroscope booked for tomorrow with sedation. I had a pre assessment today and they had no idea what GCA is and was going to Google it. 🙈 They have told me not to take my steroid’s tomorrow and it will not matter. I’ve tried to contact the the rheumatologist
hi me again, can anyone advise me on this. I have a gastroscope booked for tomorrow with sedation. I had a pre assessment today and they had no idea what GCA is and was going to Google it. 🙈 They have told me not to take my steroid’s tomorrow and it will not matter. I’ve tried to contact the the rheumatologist
lennysmummy
in
PMRGCAuk
10 months ago
PET/CT Scan Results
DX 8/21 Started ADT Lupron, Abiraterone,
Prednisone
. PSA <0.64 until 1/31 Blood work PSA .253. MO ordered PET Pyarify (F18 PSMA) Scan 02/14/2023. Results: Head/Neck, Chest, Abdomen/Pelvis – No suspicious physiologic activity elsewhere.
DX 8/21 Started ADT Lupron, Abiraterone,
Prednisone
. PSA <0.64 until 1/31 Blood work PSA .253. MO ordered PET Pyarify (F18 PSMA) Scan 02/14/2023. Results: Head/Neck, Chest, Abdomen/Pelvis – No suspicious physiologic activity elsewhere.
alperk
in
Advanced Prostate Cancer
1 year ago
Best Arthur description I’ve read!
Found this on the South Wales Police Facebook page, of all places. Describes our illness so well… #HumansOfSWP | 💬 "I suffer with rheumatoid arthritis (RA), which is an autoimmune and inflammatory disease. In basic terms it means my immune system attacks healthy cells in my body by mistake, causing
Found this on the South Wales Police Facebook page, of all places. Describes our illness so well… #HumansOfSWP | 💬 "I suffer with rheumatoid arthritis (RA), which is an autoimmune and inflammatory disease. In basic terms it means my immune system attacks healthy cells in my body by mistake, causing
Llanberisman
in
NRAS
11 months ago
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PMR resurgence
I’ve just finished a course of antibiotics for a bladder infection so am going for a fresh set of bloods, urine and poo today to try to establish if PMR has returned. It certainly feels like it! Since completing a 950km bike ride in France over 11 days I have been absolutely floored. I started
I’ve just finished a course of antibiotics for a bladder infection so am going for a fresh set of bloods, urine and poo today to try to establish if PMR has returned. It certainly feels like it! Since completing a 950km bike ride in France over 11 days I have been absolutely floored. I started
Mervetheswerve
in
PMRGCAuk
11 months ago
Post-Lupron, Zytiga, pred, radiation--pain in joints
Husband has been off Lupron, Zytiga for about six months now and finally weaned of the small amount of
prednisone
a couple of months ago. He's been slamming supplements and kicking up his exercise, and testosterone is slowing coming back (at about 80 right now.)
Husband has been off Lupron, Zytiga for about six months now and finally weaned of the small amount of
prednisone
a couple of months ago. He's been slamming supplements and kicking up his exercise, and testosterone is slowing coming back (at about 80 right now.)
ElizabethMedora
in
Advanced Prostate Cancer
1 year ago
Has anyone had cardiac catheterization or heart surgery with GCA or PMR?
The next step is a cardiac catheterization and I am wondering if anyone has had this and whether I should increase
prednisone
ahead of time (I am down to 7.5 mg).
The next step is a cardiac catheterization and I am wondering if anyone has had this and whether I should increase
prednisone
ahead of time (I am down to 7.5 mg).
Charkha
in
PMRGCAuk
1 year ago
???Flare ..or not ?
Good afternoon, So been down to 5mg Prednisolone for over 2 months now for PMR and seem to go up and down in terms of aches in my ribs , shoulders and hips. They are not severe and would be more than manageable on their own but it’s the awful fatigue . Two weeks ago I actually felt completely normal
Good afternoon, So been down to 5mg Prednisolone for over 2 months now for PMR and seem to go up and down in terms of aches in my ribs , shoulders and hips. They are not severe and would be more than manageable on their own but it’s the awful fatigue . Two weeks ago I actually felt completely normal
5goFlotilla
in
PMRGCAuk
11 months ago
Xofigo should stop or continue.
86-year-old, Dx with advanced prostate cancer in 2018, done, Zytiga with
prednisone
, EBRT, Xtandi, Earlida, Nubequa and Docetaxel chemo up to 4th done, then, had to stopped because psa continue rising from 1420 from 845 in a 4weeks. Akl Phos also climb up to 1194 from 706 in 4wks.
86-year-old, Dx with advanced prostate cancer in 2018, done, Zytiga with
prednisone
, EBRT, Xtandi, Earlida, Nubequa and Docetaxel chemo up to 4th done, then, had to stopped because psa continue rising from 1420 from 845 in a 4weeks. Akl Phos also climb up to 1194 from 706 in 4wks.
11redtomato_41
in
Advanced Prostate Cancer
1 year ago
Please Help Explain Results Please help explain Pathology report after Davinci Radical Prostatectomy w/ Extended Lymph Node DissectionÂ
Please help explain Pathology report after Davinci Radical Prostatectomy w/ Extended Lymph Node Dissection Diagnosed 07/2022 PSA 964.40 Gleason 8 4+4 Ductal Subtype Cribform Architecture Had / Currently Triplicate Therapy Firmagon @28 days Zytiga Daily
Prednisone
5mg Metformin 500mg
Please help explain Pathology report after Davinci Radical Prostatectomy w/ Extended Lymph Node Dissection Diagnosed 07/2022 PSA 964.40 Gleason 8 4+4 Ductal Subtype Cribform Architecture Had / Currently Triplicate Therapy Firmagon @28 days Zytiga Daily
Prednisone
5mg Metformin 500mg
Shorehousejam
in
Advanced Prostate Cancer
1 year ago
living with GCA
hi everyone I’m just looking for a bit of guidance on how to deal with the side effects of the prednisolone. I’m struggling to manage my weight as I can’t exercise as much as I would like due to working long hours. I’m having really bad anxiety and a feeling of not being myself I don’t recognise the
hi everyone I’m just looking for a bit of guidance on how to deal with the side effects of the prednisolone. I’m struggling to manage my weight as I can’t exercise as much as I would like due to working long hours. I’m having really bad anxiety and a feeling of not being myself I don’t recognise the
Amydyton02
in
PMRGCAuk
11 months ago
Paroxysmal AF and Asthma
Here I am again, asking questions about PAF! I also have bronchiectasis and asthma. I hadn't had an AF episode since mid April which was great. However over the last couple of weeks I have been having frequent asthma attacks. It came to a head on Sunday/Monday when I had been up most of the night
Here I am again, asking questions about PAF! I also have bronchiectasis and asthma. I hadn't had an AF episode since mid April which was great. However over the last couple of weeks I have been having frequent asthma attacks. It came to a head on Sunday/Monday when I had been up most of the night
PAP48
in
Atrial Fibrillation Support
11 months ago
nearly there
After nearly 10 years of prednisolone I am down to daily dose 0.5mg,/ 0.5mg /zero (recurring). I am feeling fairly tired most days and on bad days I have joint pain, slight nausea which is cured by two paracetamol and going back to bed. I am unsure if I should keep going and my system will eventually
After nearly 10 years of prednisolone I am down to daily dose 0.5mg,/ 0.5mg /zero (recurring). I am feeling fairly tired most days and on bad days I have joint pain, slight nausea which is cured by two paracetamol and going back to bed. I am unsure if I should keep going and my system will eventually
Crochetgirl65_
in
PMRGCAuk
11 months ago
Problems with generic Plaquenil
Then Last month I had Covid and I stopped the Plaquenil because I was put on
prednisone
because it triggers my a fib. Then when I resumed the Plaquenil now I am getting itching again. Not sure if I should maybe cut the pill in 4’s and take an antihistamine with it to see if I can get back on it .
Then Last month I had Covid and I stopped the Plaquenil because I was put on
prednisone
because it triggers my a fib. Then when I resumed the Plaquenil now I am getting itching again. Not sure if I should maybe cut the pill in 4’s and take an antihistamine with it to see if I can get back on it .
Jances13
in
Sjogren's Support
1 year ago
Prednisolone and red cheeks and taking hot flushes
This wonderful group has kept me sane over the past months since my mums GCA diagnosis begin March answering many queries ive had along the way.My mum had been on pregabalin 100mg twice a day which after her GCA diagnosis and the fact all her aches and pains disappeared once on prednisolone our GP decided
This wonderful group has kept me sane over the past months since my mums GCA diagnosis begin March answering many queries ive had along the way.My mum had been on pregabalin 100mg twice a day which after her GCA diagnosis and the fact all her aches and pains disappeared once on prednisolone our GP decided
Buchanan16
in
PMRGCAuk
11 months ago
gca symptoms
i've had pmr for almost five years now. i keep trying to reduce my dosage of prednisolone but each time i reach 8mgs the symptoms flare up again. i'm presently on 10mgs for the past two weeks. recently i've been having irritation in my eyes burning and blurred vision. it seems to be worse in the evening
i've had pmr for almost five years now. i keep trying to reduce my dosage of prednisolone but each time i reach 8mgs the symptoms flare up again. i'm presently on 10mgs for the past two weeks. recently i've been having irritation in my eyes burning and blurred vision. it seems to be worse in the evening
Reclus
in
PMRGCAuk
11 months ago
Stress, thrush, flare
I have been on 4mg of
prednisone
and yesterday added another 5mg to make 9 mg. I will do this for the next eight days. I have been off my Actemra injections for six months. I was injecting once a month. My question- should I start Actemra injections again?
I have been on 4mg of
prednisone
and yesterday added another 5mg to make 9 mg. I will do this for the next eight days. I have been off my Actemra injections for six months. I was injecting once a month. My question- should I start Actemra injections again?
Blackcatlover
in
PMRGCAuk
1 year ago
Fine tremors all over!
Is this the PMR or the
prednisone
or is something else going on?.. I am seeing my Rhumy on the 24th I’ll be asking him, but I’m a bit worried about it! Any ideas please at all?…
Is this the PMR or the
prednisone
or is something else going on?.. I am seeing my Rhumy on the 24th I’ll be asking him, but I’m a bit worried about it! Any ideas please at all?…
Heidiypi1
in
PMRGCAuk
1 year ago
Do I or dont I?
Have been home for two weeks now following my stay in hospital after a heart attack. Am on Apixaban, Bisoprolol, Atorvastatin and Ramapril alongside my Prednisolone. Not happy at this mixture of pills but needs must at present I am thinking…. Was stable on 6.5mg Pred before the event and didnt increase
Have been home for two weeks now following my stay in hospital after a heart attack. Am on Apixaban, Bisoprolol, Atorvastatin and Ramapril alongside my Prednisolone. Not happy at this mixture of pills but needs must at present I am thinking…. Was stable on 6.5mg Pred before the event and didnt increase
jaycee444
in
PMRGCAuk
11 months ago
Lansoprazole
I was diagnosed with PMR in december 2021 and a subsequent blood test told me that my bloods were up but only slightly. Consultant put me on a tapered course of Prednisolone.Starting with 15mg and gradually tapering down to finish July 2023.The last time i saw my consultant was in may 2023 and he said
I was diagnosed with PMR in december 2021 and a subsequent blood test told me that my bloods were up but only slightly. Consultant put me on a tapered course of Prednisolone.Starting with 15mg and gradually tapering down to finish July 2023.The last time i saw my consultant was in may 2023 and he said
Tony558
in
PMRGCAuk
11 months ago
Is it Adrenal Insufficiency
I am down to 4.5mg Prednisolone. It has been up and down but OK. Two weeks or longer on this dose before I even start trying for 4mg. Yesterday I took the train for London for a DEXA scan and BT prior to seeing Rheumy next week. It was awful. The train was crowded with snotty coughing kids - standing
I am down to 4.5mg Prednisolone. It has been up and down but OK. Two weeks or longer on this dose before I even start trying for 4mg. Yesterday I took the train for London for a DEXA scan and BT prior to seeing Rheumy next week. It was awful. The train was crowded with snotty coughing kids - standing
Ridge
in
PMRGCAuk
11 months ago
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