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Tall Cell Agressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Portugal-2
in
Thyroid Cancer Support
5 months ago
Should I reduce dose slightly? T3/T4 combination therapy
Hello lovely people. I recently had my bloods done and met with my endocrinologist, and wanted to ask your thoughts. I am currently on 87.5mcg Levothyroxine and 25mcg T3 daily. I feel better than I have in a long time, though possibly slightly anxious (difficult to tell though as I am prone to anxiety
Hello lovely people. I recently had my bloods done and met with my endocrinologist, and wanted to ask your thoughts. I am currently on 87.5mcg Levothyroxine and 25mcg T3 daily. I feel better than I have in a long time, though possibly slightly anxious (difficult to tell though as I am prone to anxiety
CatACat1
in
Thyroid UK
5 months ago
help 4 yr old
Hi, My daughter has expressive speech deficit and severe ADHD - she goes to speech therapy 1-2 sessions per week. I am having tough time getting her attention to teach her or practice with her - she would not even sit through the story -please any tips or suggestions that helped you and how long does
Hi, My daughter has expressive speech deficit and severe ADHD - she goes to speech therapy 1-2 sessions per week. I am having tough time getting her attention to teach her or practice with her - she would not even sit through the story -please any tips or suggestions that helped you and how long does
mvb29
in
CHADD's ADHD Parents Together
5 months ago
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Radiation Sessions
I am considering proton therapy radiation for my DICS cancer found in the left breast. Six months ago, I had a dissection B - TAVAR for a torn aorta. I am very concerned about the radiation penetrating to heart and lungs. The main concern is if proton therapy radiation is so advanced, why is the standard
I am considering proton therapy radiation for my DICS cancer found in the left breast. Six months ago, I had a dissection B - TAVAR for a torn aorta. I am very concerned about the radiation penetrating to heart and lungs. The main concern is if proton therapy radiation is so advanced, why is the standard
AVOCADOtastes
in
SHARE Breast Cancer Support
5 months ago
Research paper about T3/T4combination treatment. What happened there?
I became aware of this through "Endocrinology Advisor": https://pubmed.ncbi.nlm.nih.gov/38124252/ The link to the paper was not given. I found it myself. "Conclusions: Six months of combination therapy with twice-daily LT3 dose adapted according to TSH-level do not significantly change peripheral tissue
I became aware of this through "Endocrinology Advisor": https://pubmed.ncbi.nlm.nih.gov/38124252/ The link to the paper was not given. I found it myself. "Conclusions: Six months of combination therapy with twice-daily LT3 dose adapted according to TSH-level do not significantly change peripheral tissue
buddy99
in
Thyroid UK
5 months ago
Thyroid Education Day, Birmingham (Edgbaston), January 26th
https://www.thyroideducationday.com This is the first event of this kind. Is someone here from Thyroid U.K. or anyone else who is a member of this group attending? Seems vital a) to have someone to put our case there and b) to have a record of discussions and developments, for current and future
https://www.thyroideducationday.com This is the first event of this kind. Is someone here from Thyroid U.K. or anyone else who is a member of this group attending? Seems vital a) to have someone to put our case there and b) to have a record of discussions and developments, for current and future
HowNowWhatNow
in
Thyroid UK
5 months ago
Research Participation Opportunity!
The following research participation opportunity may be of interest. Please see below for more information.
Share Your Thoughts about Ovarian Cancer Treatments
Evidera, a patient-centered research organization, is conducting a 60-minute virtual interview on behalf of a pharmaceutical company
The following research participation opportunity may be of interest. Please see below for more information.
Share Your Thoughts about Ovarian Cancer Treatments
Evidera, a patient-centered research organization, is conducting a 60-minute virtual interview on behalf of a pharmaceutical company
SHAREPrograms
Partner
in
SHARE Ovarian Cancer Support
5 months ago
Do I declare Esophageal varices (no longer found) on travel insurance?
Hi All, I've booked a holiday for April next year and I'm looking for a bit of advice regarding my travel insurance. Due to having a blood clot in my portal vein because of my MPN I was diagnosed with having Esophageal varices (bloated blood vessels). However, I recently had an endoscopic examination
Hi All, I've booked a holiday for April next year and I'm looking for a bit of advice regarding my travel insurance. Due to having a blood clot in my portal vein because of my MPN I was diagnosed with having Esophageal varices (bloated blood vessels). However, I recently had an endoscopic examination
MarkD6701
in
MPN Voice
9 months ago
newly diagnosed
my friend is newly diagnosed with CLL. It’s not at the stage of needing medical intervention. She wants to be proactive. Does anyone have experience of natural health treatments that work? Such as oxygen therapy or high levels of vitamin c? I would be very interested to hear of positive outcomes.
my friend is newly diagnosed with CLL. It’s not at the stage of needing medical intervention. She wants to be proactive. Does anyone have experience of natural health treatments that work? Such as oxygen therapy or high levels of vitamin c? I would be very interested to hear of positive outcomes.
Oxygenlover
in
CLL Support
5 months ago
Venetoclax
Hi all Well we finally got to see a specialist. They did a bone marrow biopsy which showed 50% CLL infiltration on top of the pancytopenia. They have suggested treatment with Venetoclax only which they have said may reduce the frequency of transfusions which is currently weekly. I have only ever
Hi all Well we finally got to see a specialist. They did a bone marrow biopsy which showed 50% CLL infiltration on top of the pancytopenia. They have suggested treatment with Venetoclax only which they have said may reduce the frequency of transfusions which is currently weekly. I have only ever
JoeMcDote
in
CLL Support
5 months ago
Neurological Disorders: How Regenerative Medicines Help in Treating Nervous System Diseases
In this insightful discussion, the revolutionary field of regenerative medicine and its profound impact on treating neurological disorders are being discussed. Discover cutting-edge techniques such as stem cell therapy, gene therapy, and surgical innovations that are reshaping the landscape of neurology
In this insightful discussion, the revolutionary field of regenerative medicine and its profound impact on treating neurological disorders are being discussed. Discover cutting-edge techniques such as stem cell therapy, gene therapy, and surgical innovations that are reshaping the landscape of neurology
Farooqji
in
Cure Parkinson's
5 months ago
AB-1005
By posting this I am not necessarily advocating this treatment just trying to find out more information on how it is made and how it is administered [u]Gene therapy AB-1005 found safe in Phase 1b Parkinson’s trial[/u] https://parkinsonsnewstoday.com/news/gene-therapy-ab-1005-safe-phase-1b-trial/?utm_source
By posting this I am not necessarily advocating this treatment just trying to find out more information on how it is made and how it is administered [u]Gene therapy AB-1005 found safe in Phase 1b Parkinson’s trial[/u] https://parkinsonsnewstoday.com/news/gene-therapy-ab-1005-safe-phase-1b-trial/?utm_source
Boscoejean
in
Cure Parkinson's
5 months ago
NHS Endo - South East - Pro T3 - Three referral choices...
Hi, I went T3 only 3 weeks ago after trying combination therapy for 6 months. At around the same I had my local surgery test for blood FBC, blood sugar, cholesterol, calcium folate, B12 Iron etc. This was just to check for my self that I wasn't encountering any other issues. To my surprise they also
Hi, I went T3 only 3 weeks ago after trying combination therapy for 6 months. At around the same I had my local surgery test for blood FBC, blood sugar, cholesterol, calcium folate, B12 Iron etc. This was just to check for my self that I wasn't encountering any other issues. To my surprise they also
joey82
in
Thyroid UK
5 months ago
new immune therapy phase 1-2 trial: targeting NK cells
The first patient with metastatic castration-resistant prostate cancer (mCRPC) has been dosed in the phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy https://www.targetedonc.com/view/first-patient-dosed-with-inkmune-therapy-in-phase-1-2-trial-for-mcrpc
The first patient with metastatic castration-resistant prostate cancer (mCRPC) has been dosed in the phase 1/2 CaRe PC trial (NCT06056791) evaluating INKmune, a biologic therapy https://www.targetedonc.com/view/first-patient-dosed-with-inkmune-therapy-in-phase-1-2-trial-for-mcrpc
Maxone73
in
Advanced Prostate Cancer
5 months ago
The relief of a tablet!
Well, I'm not one to moan about my health condition, but since June I've been suffering with terrible headaches ( cluster) they've been absolutely been brutal. I've been on a long term medication previously and it stopped working, and I've just started taking a new medication 💊, the headaches were so
Well, I'm not one to moan about my health condition, but since June I've been suffering with terrible headaches ( cluster) they've been absolutely been brutal. I've been on a long term medication previously and it stopped working, and I've just started taking a new medication 💊, the headaches were so
Cb1963
in
Anxiety and Depression Support
6 months ago
TRIMBOW HELP
Hello everyone , I need advice from those who use trimbow; I have COPD and have been living with only one lung for 5 years, I have never used bronchodilators but I have always relied on exercises, a good diet and of course no smoking or alcohol. I must say that I did very well, especially because
Hello everyone , I need advice from those who use trimbow; I have COPD and have been living with only one lung for 5 years, I have never used bronchodilators but I have always relied on exercises, a good diet and of course no smoking or alcohol. I must say that I did very well, especially because
pasquino
in
Lung Conditions Community Forum
6 months ago
BioMax Red Light Therapy
https://platinumtherapylights.com/products/biomax-rlt Any users of these panels on here? Can apparently improve mitochondrial health so I’m seriously considering investing. Wondered if you thought worth your hard earned cash and time. General health benefits? Any noticeable PD improvements? And
https://platinumtherapylights.com/products/biomax-rlt Any users of these panels on here? Can apparently improve mitochondrial health so I’m seriously considering investing. Wondered if you thought worth your hard earned cash and time. General health benefits? Any noticeable PD improvements? And
JCRO
in
Cure Parkinson's
6 months ago
Feeling Right
Feeling Right Feeling Right... I'm a 73yo retired physician who's struggled with OCD most of my life. While initially tic like as a child, it has evolved into obsessive thoughts (like trying to figure out what time it would be if I interchanged the hands of a clock, constantly calculating exchange
Feeling Right Feeling Right... I'm a 73yo retired physician who's struggled with OCD most of my life. While initially tic like as a child, it has evolved into obsessive thoughts (like trying to figure out what time it would be if I interchanged the hands of a clock, constantly calculating exchange
Stratocaster78
in
My OCD Community
6 months ago
threadworm fibromyalgia link?
Morning all, I’ve recently been diagnosed with fibro and even more recently been researching if there is a link between it and thread worm as 5yrs ago I had threadworm then the other night I’ve realised they are back so was wondering if anyone else has found a link as my fibro flares have been so much
Morning all, I’ve recently been diagnosed with fibro and even more recently been researching if there is a link between it and thread worm as 5yrs ago I had threadworm then the other night I’ve realised they are back so was wondering if anyone else has found a link as my fibro flares have been so much
Emmybird2
in
Fibromyalgia Action UK
10 months ago
AAV-GAD Gene Therapy
Did anyone hear of AAV-GAD gene therapy? I have a chance to get into a phase 1/2 trial, but information is somewhat limited. The original developing company went bankrupt, and a new company bought the rights to the therapy. The trails are being held at reputable sites like Yale, Columbia , and Cornell
Did anyone hear of AAV-GAD gene therapy? I have a chance to get into a phase 1/2 trial, but information is somewhat limited. The original developing company went bankrupt, and a new company bought the rights to the therapy. The trails are being held at reputable sites like Yale, Columbia , and Cornell
JohnP65
in
Cure Parkinson's
6 months ago
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