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Reminder - comments due Tuesday
https://aasm.org/aasm-invites-public-comment-on-draft-guideline-for-the-treatment-of-restless-legs-syndrome-and-periodic-limb-
movement
-
disorder
/
https://aasm.org/aasm-invites-public-comment-on-draft-guideline-for-the-treatment-of-restless-legs-syndrome-and-periodic-limb-
movement
-
disorder
/
SueJohnson
in
Restless Legs Syndrome
2 months ago
Is my diagnosis of Periodic Limb Movement Disorder Correct?
In February this year I went to Guys Hospital Sleep Clinic for an overnight Sleep Study. My experience was that I didn't sleep all night. I know this because I heard the entirity of my audiobook, every word! I knew the story and I know when I miss parts of an audio book out overnight. I was aware
In February this year I went to Guys Hospital Sleep Clinic for an overnight Sleep Study. My experience was that I didn't sleep all night. I know this because I heard the entirity of my audiobook, every word! I knew the story and I know when I miss parts of an audio book out overnight. I was aware
YoginiDancer
in
Restless Legs Syndrome
9 hours ago
To see a neurologist or aps dr at lupus centre?
So Im thinking do I go and see a
movement
disorder
neurologist (Professor Kailash Bhatia) who has written papers about aps and
movement
disorder
so he has a good understanding of an aps specialist who has dealt with patients with aps and
movement
disorder
?
So Im thinking do I go and see a
movement
disorder
neurologist (Professor Kailash Bhatia) who has written papers about aps and
movement
disorder
so he has a good understanding of an aps specialist who has dealt with patients with aps and
movement
disorder
?
Charts
in
Hughes Syndrome APS Forum
9 months ago
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updates in theraupetics for Parkinson's disease
The speaker was Gaurav Chattree, MD,
movement
disorder
specialist at Stanford. He addressed the "phase 3" or "almost phase 3" research pipeline for disease-modification treatments and for symptomatic therapies https://m.youtube.com/watch?v=yUt1kipWfKk
The speaker was Gaurav Chattree, MD,
movement
disorder
specialist at Stanford. He addressed the "phase 3" or "almost phase 3" research pipeline for disease-modification treatments and for symptomatic therapies https://m.youtube.com/watch?v=yUt1kipWfKk
Farooqji
in
Cure Parkinson's
1 month ago
Not sure whether I should be pleased or disappointed. Sleep study results
PLMD (Passive limb
movement
disorder
) = a little twitchy in the legs at night, but nothing significant (Personal thought, I think of cats twitching during sleep – nothing to worry about?)
PLMD (Passive limb
movement
disorder
) = a little twitchy in the legs at night, but nothing significant (Personal thought, I think of cats twitching during sleep – nothing to worry about?)
Spurdog1
in
Restless Legs Syndrome
3 months ago
movement disorder
I’m a little freaked out right now. I have had a occasional twitch in my wrist, no big deal. It’s getting worse. Now my arm goes where it wants. Sometimes I feel really weird on the inside like it’s vibrating or something. I know I will have to tell my doctor. I’m scared to death it’s Parkinsons. Does
I’m a little freaked out right now. I have had a occasional twitch in my wrist, no big deal. It’s getting worse. Now my arm goes where it wants. Sometimes I feel really weird on the inside like it’s vibrating or something. I know I will have to tell my doctor. I’m scared to death it’s Parkinsons. Does
CLB1125
in
Anxiety and Depression Support
9 months ago
Gabapentin and pain meds which one to go for?
I'm taking gabapentin 900 all day for periodic limb
movement
disorder
however I have a very painful arthritic shoulder and torn rotator cuff. The Dr has tried me on codeine but it made me very ill.
I'm taking gabapentin 900 all day for periodic limb
movement
disorder
however I have a very painful arthritic shoulder and torn rotator cuff. The Dr has tried me on codeine but it made me very ill.
Speedbuggy
in
Restless Legs Syndrome
2 months ago
Informative Read
sa=t&rct=j&q=&esrc=s&source=web&cd=&cad=rja&uact=8&ved=2ahUKEwieuNyB1YKDAxUJK0QIHVg_CbUQFnoECBMQAQ&url=https%3A%2F%2Fwww.uptodate.com%2Fcontents%2Fmanagement-of-restless-legs-syndrome-and-periodic-limb-
movement
-
disorder
-in-adults&usg=AOvVaw2aKYj6H4TZTNbKLETNsPmq&opi=89978449
sa=t&rct=j&q=&esrc=s&source=web&cd=&cad=rja&uact=8&ved=2ahUKEwieuNyB1YKDAxUJK0QIHVg_CbUQFnoECBMQAQ&url=https%3A%2F%2Fwww.uptodate.com%2Fcontents%2Fmanagement-of-restless-legs-syndrome-and-periodic-limb-
movement
-
disorder
-in-adults&usg=AOvVaw2aKYj6H4TZTNbKLETNsPmq&opi=89978449
C82021
in
Restless Legs Syndrome
6 months ago
Eye and Head Movement Tasks, poss a new diagnosis method for FMD and PPPD? To guide treatment?
Hot off the press, a brand new article published this week called: “Experimental evidence for a robust, transdiagnostic marker in functional disorders: Erroneous sensorimotor processing in functional dizziness and functional
movement
disorder
” As the authors state, the results “point towards a general
Hot off the press, a brand new article published this week called: “Experimental evidence for a robust, transdiagnostic marker in functional disorders: Erroneous sensorimotor processing in functional dizziness and functional
movement
disorder
” As the authors state, the results “point towards a general
Lady4
in
Functional Neurological Disorder - FND Hope
15 days ago
Improved sleep on anti-anxiety medication / antidepressants.
Following on from a recent post containing Andy Berkowski's video on whether Periodic Limb
Movement
Disorder
actually exists, i've been looking at alternative explanations for the non-refreshing sleep that is diagnosed as PLMD.
Following on from a recent post containing Andy Berkowski's video on whether Periodic Limb
Movement
Disorder
actually exists, i've been looking at alternative explanations for the non-refreshing sleep that is diagnosed as PLMD.
Hidden
in
Restless Legs Syndrome
4 months ago
PERIODIC LIMB MOVEMENT DISORDER
I have not shared for a while. I would like to report that I have been taking the iron supplement every other day with orange juice. Also am taking 300 Gabapentin. I did a sleep study last year and it showed that the PLMD is not disturbing my sleep as it is now at a moderate amount. The sleep study
I have not shared for a while. I would like to report that I have been taking the iron supplement every other day with orange juice. Also am taking 300 Gabapentin. I did a sleep study last year and it showed that the PLMD is not disturbing my sleep as it is now at a moderate amount. The sleep study
Maximus01
in
Restless Legs Syndrome
11 months ago
Do anyone have a movement disorder?
I haven't got lupus but have aps and from what I've been told you can have a
movement
disorder
with lupus. I have involuntary movements from what looks like I'm being electrocuted (like whole body spasms that bring my whole body in) tics, left side facial spasms (also tongue) and hand movements.
I haven't got lupus but have aps and from what I've been told you can have a
movement
disorder
with lupus. I have involuntary movements from what looks like I'm being electrocuted (like whole body spasms that bring my whole body in) tics, left side facial spasms (also tongue) and hand movements.
Charts
in
LUPUS UK
7 months ago
Botox Injections to relieve RLS
I asked my current neurologist at Banner Research Institute
Movement
Disorder
, and at this time, he dismissed it. I can only tolerate a small dose of methadone, due to GI problems, and after 25 + years with RLS, occurring nightly, I am intrigued if this method works.
I asked my current neurologist at Banner Research Institute
Movement
Disorder
, and at this time, he dismissed it. I can only tolerate a small dose of methadone, due to GI problems, and after 25 + years with RLS, occurring nightly, I am intrigued if this method works.
vikkitennis
in
Restless Legs Syndrome
4 months ago
Anyone else dealing with Rapid Eye Movement Behavior Disorder? I am trying to learn more about preventative measures.
Anyone else dealing with Rapid Eye
Movement
Behavior
Disorder
? I am trying to learn more about preventative measures.
Anyone else dealing with Rapid Eye
Movement
Behavior
Disorder
? I am trying to learn more about preventative measures.
JackBruce2024
in
Cure Parkinson's
5 months ago
I ran out of C/L extended release 50/200 tablet, can I take take 2 C/L immediate release 25/100 pills b4 bed to make up for the ExtRel
My
Movement
Disorder
doctor is on vacation and I noticed that I only have 1 Carbidopa/Levodopa Extended Release 50 mg/200 mg tablet left. For many years I have always taken 1 such pill before bed to get me through the night since it's extended release.
My
Movement
Disorder
doctor is on vacation and I noticed that I only have 1 Carbidopa/Levodopa Extended Release 50 mg/200 mg tablet left. For many years I have always taken 1 such pill before bed to get me through the night since it's extended release.
RJworldTour
in
Cure Parkinson's
4 days ago
Periodic Limb Movement Disorder
Hello everyone. Several weeks ago I started taking Pregabalin whilst weaning off Pramipexole. I’m now on 150mg of Pregab. 3 weeks ago, I took my last Pram! Yayyyyyy!!!!! Since then, the RLS has almost completely gone, which is a lovely result. However, my night time PLMD is quite bad. Sleep deprivation
Hello everyone. Several weeks ago I started taking Pregabalin whilst weaning off Pramipexole. I’m now on 150mg of Pregab. 3 weeks ago, I took my last Pram! Yayyyyyy!!!!! Since then, the RLS has almost completely gone, which is a lovely result. However, my night time PLMD is quite bad. Sleep deprivation
Theonlypetied
in
Restless Legs Syndrome
1 year ago
Private movement disorder neurologist with understanding of aps?
I have some sort of
movement
Disorder
and looking to go private as the waiting time with nhs is 1 year I just found out.
I have some sort of
movement
Disorder
and looking to go private as the waiting time with nhs is 1 year I just found out.
Charts
in
Hughes Syndrome APS Forum
10 months ago
The Endotoxin Hypothesis of Parkinson's Disease
Movement Disorders published by Wiley Periodicals LLC on behalf of International Parkinson and
Movement
Disorder
Society.
Full Article:
https://movementdisorders.onlinelibrary.wiley.com/doi/full/10.1002/mds.29432
Movement Disorders published by Wiley Periodicals LLC on behalf of International Parkinson and
Movement
Disorder
Society.
Full Article:
https://movementdisorders.onlinelibrary.wiley.com/doi/full/10.1002/mds.29432
Bolt_Upright
in
Cure Parkinson's
7 months ago
BREAKING NEWS. New Draft Guidelines by American Sleep Academy for RLS
65f0805ba96cc4630a4616b5&ss_email_id=65f0fe1e0dc01b00c518c64f&ss_campaign_name=Big+News%21+2024+AASM+Guidelines+for+RLS+Have+Been+Released&ss_campaign_sent_date=2024-03-13T01%3A15%3A13Z https://aasm.org/aasm-invites-public-comment-on-draft-guideline-for-the-treatment-of-restless-legs-syndrome-and-periodic-limb-
movement
-
disorder
65f0805ba96cc4630a4616b5&ss_email_id=65f0fe1e0dc01b00c518c64f&ss_campaign_name=Big+News%21+2024+AASM+Guidelines+for+RLS+Have+Been+Released&ss_campaign_sent_date=2024-03-13T01%3A15%3A13Z https://aasm.org/aasm-invites-public-comment-on-draft-guideline-for-the-treatment-of-restless-legs-syndrome-and-periodic-limb-
movement
-
disorder
Joolsg
in
Restless Legs Syndrome
3 months ago
low back pain
My
movement
disorder
specialist says it’s an unusual effect of Parkinson’s. NO Diagnosis, so No relief. What can I do now? Appreciate suggestions!
My
movement
disorder
specialist says it’s an unusual effect of Parkinson’s. NO Diagnosis, so No relief. What can I do now? Appreciate suggestions!
Ep0522
in
Cure Parkinson's
7 months ago
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