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Lynch syndrome
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All about Lynch Syndrome webinar - Monday 4 September
The project is working to improve the identification and management of
Lynch
Syndrome
, bridging the gap in testing and diagnosis of
Lynch
Syndrome
and supporting the early detection of cancer and access to personalised care.
The project is working to improve the identification and management of
Lynch
Syndrome
, bridging the gap in testing and diagnosis of
Lynch
Syndrome
and supporting the early detection of cancer and access to personalised care.
TheOvacomeTeam
Partner
in
My Ovacome
10 months ago
What's on at Ovacome next week? (week commencing 4 September 2023)
Monday 4 September
- Coventry and Warwickshire ovarian cancer support group between 1pm - 2:30pm: https://www.ovacome.org.uk/Event/coventry-support-group - All about
Lynch
syndrome
webinar between 5:30pm - 6:30pm: https://www.ovacome.org.uk/event/all-about-
lynch
-
syndrome
Tuesday 5 September
Monday 4 September
- Coventry and Warwickshire ovarian cancer support group between 1pm - 2:30pm: https://www.ovacome.org.uk/Event/coventry-support-group - All about
Lynch
syndrome
webinar between 5:30pm - 6:30pm: https://www.ovacome.org.uk/event/all-about-
lynch
-
syndrome
Tuesday 5 September
OvacomeSupport
My Ovacome Team
in
My Ovacome
9 months ago
*NEW online session - 6th February* Our stories: having a hereditary increased risk of ovarian cancer
This session will feature Ovacome members Hilary and Sue, who will share their experiences of having a hereditary increased risk of ovarian cancer (
Lynch
syndrome
and BRCA).
This session will feature Ovacome members Hilary and Sue, who will share their experiences of having a hereditary increased risk of ovarian cancer (
Lynch
syndrome
and BRCA).
OvacomeSupport
My Ovacome Team
in
My Ovacome
4 months ago
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Sacral insufficiency fractures
It also turned out there was a genetic element to my cancer -
Lynch
Syndrome
- which has now been thoroughly investigated. My children have been offered genetic testing and thankfully they have not inherited the gene!
It also turned out there was a genetic element to my cancer -
Lynch
Syndrome
- which has now been thoroughly investigated. My children have been offered genetic testing and thankfully they have not inherited the gene!
Poir
in
Pelvic Radiation Disease Association
6 months ago
Anyone Diagnosed With Lynch Syndrome?
Anyone in this forum under 50 and diagnosed with hereditary colorectal/bowel cancer due to
Lynch
Syndrome
? I would love to chat. Thanks.
Anyone in this forum under 50 and diagnosed with hereditary colorectal/bowel cancer due to
Lynch
Syndrome
? I would love to chat. Thanks.
Gorsundar
in
Colon Cancer Connected
1 year ago
Lynch hell
I was diagnosed with HNPCC (
lynch
syndrome
) in 2003 and have been asking for a full historectomy since then, after repeated referrals from my GP I was eventually seen on 6th June 2023 only to be told I should have had it 20years ago and now the waiting list is 3 years minimum so will be nearly 60 I'm
I was diagnosed with HNPCC (
lynch
syndrome
) in 2003 and have been asking for a full historectomy since then, after repeated referrals from my GP I was eventually seen on 6th June 2023 only to be told I should have had it 20years ago and now the waiting list is 3 years minimum so will be nearly 60 I'm
Ashtonlan3
in
Lynch Syndrome UK
11 months ago
VIDEO NOW AVAILABLE from our recent Webinar: "Understanding Lynch Syndrome"
Lynch
syndrome
can be linked to uterine cancer, as well as other cancers. Learn more from leading
Lynch
syndrome
expert, Heather Hampel, as she discusses genetic testing, hereditary cancer risk, prevention, and the latest updates for
Lynch
syndrome
care.
Lynch
syndrome
can be linked to uterine cancer, as well as other cancers. Learn more from leading
Lynch
syndrome
expert, Heather Hampel, as she discusses genetic testing, hereditary cancer risk, prevention, and the latest updates for
Lynch
syndrome
care.
Kitty_SHARE
Partner
in
SHARE Uterine Cancer Support
1 year ago
Aside from easing motor symptoms of Parkinson’s disease, deep brain stimulation (DBS) may also slow disease progression
https://parkinsonsnewstoday.com/news/dbs-reduces-toxic-clumping-parkinsons-rat-brain-cells-study/
https://parkinsonsnewstoday.com/news/dbs-reduces-toxic-clumping-parkinsons-rat-brain-cells-study/
Farooqji
in
Cure Parkinson's
4 days ago
COVID between cycles and impact on egg quality ... Any knowledge/ experience?
Hey all - so I was meant to start my next cycle of IVF in 3 weeks time. I have been so healthy; haven't caught a cold or even a sniffle for the past 12 months but have somehow managed to pick up COVID from somewhere. I've had 3 vaccines and COVID once before but am still testing very positive 6 days
Hey all - so I was meant to start my next cycle of IVF in 3 weeks time. I have been so healthy; haven't caught a cold or even a sniffle for the past 12 months but have somehow managed to pick up COVID from somewhere. I've had 3 vaccines and COVID once before but am still testing very positive 6 days
Rubylou01
in
Fertility Network UK
4 days ago
Lixisenatide as a treatment for early Parkinson’s disease progression
In this randomized controlled trial, lixisenatide reduced motor disability progression in Parkinson’s patients. 2. Individuals in the lixisenatide group experienced greater gastrointestinal side effects rates than individuals in the placebo group. Evidence Rating Level: 1 (Excellent) https:/
In this randomized controlled trial, lixisenatide reduced motor disability progression in Parkinson’s patients. 2. Individuals in the lixisenatide group experienced greater gastrointestinal side effects rates than individuals in the placebo group. Evidence Rating Level: 1 (Excellent) https:/
Farooqji
in
Cure Parkinson's
12 days ago
Stimulation period and exercise
Hello everyone,I am doing IVF through the NHS and I am now waiting for the next stage which is ovarian stimulation. The doctor told me in the first appointment that during stimulation I won't be able to do any exercise because of the ovarian torsion. I understood this was for two weeks but I have been
Hello everyone,I am doing IVF through the NHS and I am now waiting for the next stage which is ovarian stimulation. The doctor told me in the first appointment that during stimulation I won't be able to do any exercise because of the ovarian torsion. I understood this was for two weeks but I have been
Amarillo-
in
Fertility Network UK
14 days ago
Thyroid Dysfunction and PD
So I thought I'd cross-search some of my health challenges and whadyaknow: https://academic.oup.com/cei/article/208/3/372/6578682. Shut your mush and take your Ldopa, though I'm non-responsive. Doc, I'm photophobic, can't open my eyes in the morning ALO, blepharospasm...Read it's predictive years before
So I thought I'd cross-search some of my health challenges and whadyaknow: https://academic.oup.com/cei/article/208/3/372/6578682. Shut your mush and take your Ldopa, though I'm non-responsive. Doc, I'm photophobic, can't open my eyes in the morning ALO, blepharospasm...Read it's predictive years before
Dabaa
in
Cure Parkinson's
15 days ago
MTHFR and Lupus
I noticed that some members have both of these diagnosis as well as Sjogrens. No one ever checked my homocysteine level until after I had Complete Heart Block and was implanted with a Pacemaker/defibulator. I have always felt that if the MTHFR was diagnosed before all the other autoimmune diseases, I
I noticed that some members have both of these diagnosis as well as Sjogrens. No one ever checked my homocysteine level until after I had Complete Heart Block and was implanted with a Pacemaker/defibulator. I have always felt that if the MTHFR was diagnosed before all the other autoimmune diseases, I
DogHospiceMom
in
LUPUS UK
19 days ago
Nafarelin/Synarel down reg - when did you get period?
Hi I'm currently doing the above nasal spray for my down regulation as I was told there is a nationwide shortage of buserelin which I used in my first cycle. I started on Saturday 4th May and was told I should get a period in around a week but still no period or signs of it. Has anyone done the same
Hi I'm currently doing the above nasal spray for my down regulation as I was told there is a nationwide shortage of buserelin which I used in my first cycle. I started on Saturday 4th May and was told I should get a period in around a week but still no period or signs of it. Has anyone done the same
Prettypenny1
in
Fertility Network UK
23 days ago
Heartburn
I know that PPIs are taboo but what about famotidine and it's cousins? I am in need of something longer lasting than Gaviscon. Thanks.
I know that PPIs are taboo but what about famotidine and it's cousins? I am in need of something longer lasting than Gaviscon. Thanks.
Whippetmama
in
Restless Legs Syndrome
27 days ago
Can you help regarding symptoms?
Full disclosure here. My ability to determine my health status is lacking. I either over-react or under-react. I never believed I had PMR but I also didn't believe I had a ruptured appendix. I am a hard worker, managing a small farm so I do feel sore at times. I am presently on 10 mgs prednisone. I
Full disclosure here. My ability to determine my health status is lacking. I either over-react or under-react. I never believed I had PMR but I also didn't believe I had a ruptured appendix. I am a hard worker, managing a small farm so I do feel sore at times. I am presently on 10 mgs prednisone. I
FreeWolf
in
PMRGCAuk
1 month ago
Light compression gloves
Hi everyone, does anyone have any recommendations for light compression gloves? Not the type with splint inserted. I have a swelling in my right hand (at the outer side below my wrist joint) which is very painful, am waiting to see my RA specialist but haven't received the appointment yet. I take 20mg
Hi everyone, does anyone have any recommendations for light compression gloves? Not the type with splint inserted. I have a swelling in my right hand (at the outer side below my wrist joint) which is very painful, am waiting to see my RA specialist but haven't received the appointment yet. I take 20mg
Manzana1
in
NRAS
1 month ago
Update
I’m now down to 15mg and my stomach is still swollen but cause seems to be Serositis. My pleural effusion are 200/300mls left side and zero right side with now minimal around pericardial so steroids are definitely working indicating cause is definitely autoimmune and possibly PMR . I still don’t feel
I’m now down to 15mg and my stomach is still swollen but cause seems to be Serositis. My pleural effusion are 200/300mls left side and zero right side with now minimal around pericardial so steroids are definitely working indicating cause is definitely autoimmune and possibly PMR . I still don’t feel
Numptybrain
in
PMRGCAuk
2 months ago
Anesthesia and PD
I’m planning on having Morton’s neuroma surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility. Has anyone had that operation, or have experience with different
I’m planning on having Morton’s neuroma surgery in a few weeks, unless I chicken out! I’m concerned about any negative effects because of anesthesia . I’m going to check to see if doing some type of block instead of General, is a possibility. Has anyone had that operation, or have experience with different
Ob6842
in
Cure Parkinson's
2 months ago
Worrying blood test results ...
Hello, This is my first post - last week I noticed some quite dark patches under both arms. Was seen by GP in an hour ... gave me Clotrimazole Cream which has reduced the tone of my skin. GP said it was acanthosis nigricans... ,?? Sent me for bloods including LFT and various tests FBC. These came
Hello, This is my first post - last week I noticed some quite dark patches under both arms. Was seen by GP in an hour ... gave me Clotrimazole Cream which has reduced the tone of my skin. GP said it was acanthosis nigricans... ,?? Sent me for bloods including LFT and various tests FBC. These came
Apollo14lmp
in
British Liver Trust
2 months ago
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