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CAR-T Clinical Trial for CLL
My wife (who has aggressive follicular lymphoma) received an NIH CAR-T infusion (NCT02659943) on March 2, 2016 - she has been in complete remission since the infusion. NCT02659943 is accepting new B-cell lymphoma and CLL patients.
My wife (who has aggressive follicular lymphoma) received an NIH CAR-T infusion (NCT02659943) on March 2, 2016 - she has been in complete remission since the infusion. NCT02659943 is accepting new B-cell lymphoma and CLL patients.
wmay13241
in
Non Hodgkin's Lymphoma Friends
6 years ago
My Mom has just been diagnosed with Lymphoma.... what should I expect?
I am new here. My mother has just been diagnosed with Lymphoma. Our first specialist appointment is Friday and just wondering what to expect. I am a bit overwhelmed right now and trying to be strong for her and inform my self so I know what I should ask when we go. Any help would be awesome.....
I am new here. My mother has just been diagnosed with Lymphoma. Our first specialist appointment is Friday and just wondering what to expect. I am a bit overwhelmed right now and trying to be strong for her and inform my self so I know what I should ask when we go. Any help would be awesome.....
My-Mom-Lymphoma
in
Lymphoma Canada
6 years ago
11q, 17p deletion and Trisomy 12
Hi all..went to my Hematologist yesterday. Red cells holding. Found out I'm not 11q or 17p deletion but am Trisomy 12 and unmutated. Looked up Trisomy 12 and it made me a little nervous. Also, doctor said better to be mutated than unmutated. I told her I'm CD38 positive and zap-70 positive. She
Hi all..went to my Hematologist yesterday. Red cells holding. Found out I'm not 11q or 17p deletion but am Trisomy 12 and unmutated. Looked up Trisomy 12 and it made me a little nervous. Also, doctor said better to be mutated than unmutated. I told her I'm CD38 positive and zap-70 positive. She
Ladydi49
in
CLL Support
6 years ago
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Do I have leukemia?
Hi, I got my blood work done last week and below are the reports. I am worried that I might have leukemia (I am a 23 year old male). Complete Blood Count Hemoglobin - 16.30 (14.0 - 17.50 g/dL) Total Leucocytes (pWBC) count - 9,800 (4000-10000/μL) Platelet count - 192,000 (150000 - 450000 /μL) Red blood
Hi, I got my blood work done last week and below are the reports. I am worried that I might have leukemia (I am a 23 year old male). Complete Blood Count Hemoglobin - 16.30 (14.0 - 17.50 g/dL) Total Leucocytes (pWBC) count - 9,800 (4000-10000/μL) Platelet count - 192,000 (150000 - 450000 /μL) Red blood
root55AA
in
CLL Support
6 years ago
Dark Urine with Imbruvica ?
Back in 09 learned I had stage 4 CLL & went through 6 mo of FCR chemo....all went well until Aug of 17 when my white count started rising 10k per month... in Nov I started Imbruvica & my swollen neck glands went down in the first week while my WBC rose 30k... for the last mo my WBC has been slowly
Back in 09 learned I had stage 4 CLL & went through 6 mo of FCR chemo....all went well until Aug of 17 when my white count started rising 10k per month... in Nov I started Imbruvica & my swollen neck glands went down in the first week while my WBC rose 30k... for the last mo my WBC has been slowly
emarine
in
CLL Support
6 years ago
Vitamin D status and clinical outcomes in Follicular Lymphoma
There's always the possibility that it could be relevant in other indolent
lymphomas
although we can't know without the studies being done : https://www.nature.com/articles/bcj201770
There's always the possibility that it could be relevant in other indolent
lymphomas
although we can't know without the studies being done : https://www.nature.com/articles/bcj201770
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
6 years ago
Diet during chemotherapy for BC
hello doctors/experts, my mother is expected to start chemo process from late next week. Its stage two triple negative BC. lymph node positive.. just preparing for diet plan to follow during chemotherapy.. i read in internet (US cancer authorized websites) that say to restrict raw nuts and raw fruits
hello doctors/experts, my mother is expected to start chemo process from late next week. Its stage two triple negative BC. lymph node positive.. just preparing for diet plan to follow during chemotherapy.. i read in internet (US cancer authorized websites) that say to restrict raw nuts and raw fruits
jaiganesh156
in
Breast Cancer India
6 years ago
CLL/Lymphoma in second remission
Hello, I was diagnosed w/ CLL in 10/12 and was treated with BR for only 2 months because of suspected side effects. However, I responded well and went into remission for 5 years. I had a recurrence in 7/17 and received only Rituxin for 4 weeks, 1 day/week. I had another great response to Rituxan and
Hello, I was diagnosed w/ CLL in 10/12 and was treated with BR for only 2 months because of suspected side effects. However, I responded well and went into remission for 5 years. I had a recurrence in 7/17 and received only Rituxin for 4 weeks, 1 day/week. I had another great response to Rituxan and
BarbLorraine
in
CLL Support
6 years ago
Looking for answers.
Hi, I live in the UK and last week had a routine blood test which showed my Creatinine level was 92 (marker 40-84) my Doctor seemed concerned an asked me to do another blood test for full kidney function. I had a message left today to say satisfactory bloods and no further tests. However when I rang
Hi, I live in the UK and last week had a routine blood test which showed my Creatinine level was 92 (marker 40-84) my Doctor seemed concerned an asked me to do another blood test for full kidney function. I had a message left today to say satisfactory bloods and no further tests. However when I rang
Hidden
in
Hughes Syndrome APS Forum
6 years ago
Venetoclax Plus Rituximab Is Superior to Bendamustine Plus Rituximab (Murano Study)
Today on the ASH 2017 Meeting, the results of the Murano Study were published: https://ash.confex.com/ash/2017/webprogram/Paper109076.html I was one of the 389 participants in this trial and off course I am very happy with the conclusion, demonstrating that treatment with VR resulted in outcomes superior
Today on the ASH 2017 Meeting, the results of the Murano Study were published: https://ash.confex.com/ash/2017/webprogram/Paper109076.html I was one of the 389 participants in this trial and off course I am very happy with the conclusion, demonstrating that treatment with VR resulted in outcomes superior
Korstiaan
in
CLL Support
6 years ago
Christmas
To all who have used Health Unlocked in 2017, Robert Louis Stevenson was the author of Treasure Island. He also wrote the following: O God, our loving Father, help us Rightly to remember the birth of Jesus, That we may share in the song of the Angels, the gladness of the shepherds And the worship
To all who have used Health Unlocked in 2017, Robert Louis Stevenson was the author of Treasure Island. He also wrote the following: O God, our loving Father, help us Rightly to remember the birth of Jesus, That we may share in the song of the Angels, the gladness of the shepherds And the worship
Kevin53
in
LUPUS UK
6 years ago
T Cell Lymphomas
Research into new treatments for T cell
lymphomas
from Science Daily: http://tinyurl.com/y99qwazv
Research into new treatments for T cell
lymphomas
from Science Daily: http://tinyurl.com/y99qwazv
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
Value of bone marrow biopsies in Follicular Lymphoma
Hope everyone is having a good weekend and feeling well. I go for my six monthly checkup on Tue 28th. Bloods look ok so hoping nothing else will crop up. This is a short blog post summarising results of a study re value of bone marrow biopsies in follicular lymphoma patients. https://cornell-lymphoma.com
Hope everyone is having a good weekend and feeling well. I go for my six monthly checkup on Tue 28th. Bloods look ok so hoping nothing else will crop up. This is a short blog post summarising results of a study re value of bone marrow biopsies in follicular lymphoma patients. https://cornell-lymphoma.com
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
6 years ago
Inflammatory Breast Cancer with Her2+ and ErPr -
My wife diagnosed with the above carcinoma and has been administered TCH two cycles.Clinically the response seems to be good.She has been advised six cycles of TCH if response is good then followed by surgery. Need to bounce it off from this community regarding the prognosis of such carcinoma with the
My wife diagnosed with the above carcinoma and has been administered TCH two cycles.Clinically the response seems to be good.She has been advised six cycles of TCH if response is good then followed by surgery. Need to bounce it off from this community regarding the prognosis of such carcinoma with the
vikrantparhi
in
Breast Cancer India
7 years ago
Rejection of claim for daycare rituximab cancer treatment by United India Insurance Co
I had stage IV mantle cell Non hodgkins lymphoma. Got chemotherapy treatment at mumbai . Now under full remission but i am taking rituximab inj in day care every 2 months.All my earlier chemo costs were paid by United India Insurance under their gold policy. I am 61 yrs old male. I have coverage of 6.5
I had stage IV mantle cell Non hodgkins lymphoma. Got chemotherapy treatment at mumbai . Now under full remission but i am taking rituximab inj in day care every 2 months.All my earlier chemo costs were paid by United India Insurance under their gold policy. I am 61 yrs old male. I have coverage of 6.5
munjalbom8
in
Breast Cancer India
7 years ago
Lymphoma
Just got results from my pet scan, all my lymph nodes have got bigger, my biggest one is 7cm goi gang to see my Dr next week to talk about treatment, anyone know what treatment I’ll need???
Just got results from my pet scan, all my lymph nodes have got bigger, my biggest one is 7cm goi gang to see my Dr next week to talk about treatment, anyone know what treatment I’ll need???
Esther66
in
Non Hodgkin's Lymphoma Friends
7 years ago
Triple Negative came back in lymph nodes.
Hello, my wife was diagnosed with triple negative stage 1. She had chemo first A/C then Taxol was told nothing in the nodes. After chemo she had a full mass where then they told us 3 nodes showed signs the next 12 was clear. Then they said she would need radiation which she did. A few months later she
Hello, my wife was diagnosed with triple negative stage 1. She had chemo first A/C then Taxol was told nothing in the nodes. After chemo she had a full mass where then they told us 3 nodes showed signs the next 12 was clear. Then they said she would need radiation which she did. A few months later she
Chad-23
in
Breast Cancer India
7 years ago
Epstein-Barr virus and lymphoma
How the Epstein-Barr virus can lead to some
lymphomas
: https://www.sciencedaily.com/releases/2017/05/170502204538.htm
How the Epstein-Barr virus can lead to some
lymphomas
: https://www.sciencedaily.com/releases/2017/05/170502204538.htm
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
Lenolidamide
I had a relapse of CD20 positive large B Cell lymphoma in left forearm last October after being in remission for 8 years following R-CHOP. Recently finished 5 months of Bendamustine/Rituximab infusions followed by 18 days of radiation. Oncologist is starting me on Lenalidamide (Revlamid) regimen in
I had a relapse of CD20 positive large B Cell lymphoma in left forearm last October after being in remission for 8 years following R-CHOP. Recently finished 5 months of Bendamustine/Rituximab infusions followed by 18 days of radiation. Oncologist is starting me on Lenalidamide (Revlamid) regimen in
Howie40
in
Lymphoma Canada
7 years ago
Starting Allopurinol with Ibrutinib?
Hello, My Father was just diagnosed with stage 2 unmutated CLL. He has enlarged nodes on his neck, his spleen is enlarged, and his WBC has gone from 42,000 to 72,000 in less than a month and 91% are lymphocytes so they are rushing to start Ibrutinib. He asked his Dr. about protecting his kidneys and
Hello, My Father was just diagnosed with stage 2 unmutated CLL. He has enlarged nodes on his neck, his spleen is enlarged, and his WBC has gone from 42,000 to 72,000 in less than a month and 91% are lymphocytes so they are rushing to start Ibrutinib. He asked his Dr. about protecting his kidneys and
CLLdaughters
in
CLL Support
7 years ago
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