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Experiences with
Leflunomide
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new boy
The first few months were hell ,had about 15 flares from feb to august with only one steroid injec and diflfenic,PAIN oh the pain,started on methatex8 in august and I felt fantastic but have just been told ,my Liver doesnt like it so I think im being put on
Leflunomide
,just want to get back to work as
The first few months were hell ,had about 15 flares from feb to august with only one steroid injec and diflfenic,PAIN oh the pain,started on methatex8 in august and I felt fantastic but have just been told ,my Liver doesnt like it so I think im being put on
Leflunomide
,just want to get back to work as
tone13
in
NRAS
13 years ago
leflunomide
Due to start on
leflunomide
this week,bit nervous as I was doing well on methtex8, pity me liver didnt like it.
Due to start on
leflunomide
this week,bit nervous as I was doing well on methtex8, pity me liver didnt like it.
tone13
in
NRAS
13 years ago
First Blog
Right now it is methotrexate, plaquenil,
leflunomide
and steroids. I have not been able to work now for almost two years. I am in total awe of anyone with RA still working.
Right now it is methotrexate, plaquenil,
leflunomide
and steroids. I have not been able to work now for almost two years. I am in total awe of anyone with RA still working.
salem974
in
NRAS
13 years ago
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Just when you think things are on the up ...
July 25th Got my Methotrexate back last month, restarted on 7.5mg, and stopped the
Leflunomide
which didn’t seem to be doing anything anyway.
July 25th Got my Methotrexate back last month, restarted on 7.5mg, and stopped the
Leflunomide
which didn’t seem to be doing anything anyway.
Hidden
in
NRAS
13 years ago
My Living Rheum :)
I have
Leflunomide
added to the mix and now I wait … I will have to live with the joint damage caused by years of relatively uncontrolled disease. Some of that can be repaired by surgery.
I have
Leflunomide
added to the mix and now I wait … I will have to live with the joint damage caused by years of relatively uncontrolled disease. Some of that can be repaired by surgery.
Hidden
in
NRAS
13 years ago
I am the one and only
Start
Leflunomide
. Flare while waiting for Lef to kick in. Lef not very effective after 3 months so start Plaquenil 12 days ago. Tuesday last week I developed two huge cold sores. Wednesday I developed diarrhoea which got progressively worse as the week went on.
Start
Leflunomide
. Flare while waiting for Lef to kick in. Lef not very effective after 3 months so start Plaquenil 12 days ago. Tuesday last week I developed two huge cold sores. Wednesday I developed diarrhoea which got progressively worse as the week went on.
Catwoman66
in
NRAS
13 years ago
Leflunomide - skin rash!
Hi - I've posted before about various side effects I've had with
leflunomide
(low white blood counts, weight loss etc).
Hi - I've posted before about various side effects I've had with
leflunomide
(low white blood counts, weight loss etc).
heatherp
in
NRAS
13 years ago
Hi - has anyone experienced unexplained weight loss on leflunomide?
I've read it can be a side effect, but don't know what in
leflunomide
causes it, or if it's serious?
I've read it can be a side effect, but don't know what in
leflunomide
causes it, or if it's serious?
heatherp
in
NRAS
13 years ago
Hi - has anyone had continual problems with low white blood counts resulting in having to come off various RA medications?
Started
leflunomide
6 weeks ago and have now passed the level in white cell count where it's recommended to come off that! Since the whole point of these meds is to reduce the immune system, surely they will all do the same?
Started
leflunomide
6 weeks ago and have now passed the level in white cell count where it's recommended to come off that! Since the whole point of these meds is to reduce the immune system, surely they will all do the same?
heatherp
in
NRAS
13 years ago
Rheumatology ... ... DIY?
Clearly the
Leflunomide
isn’t doing the business so I can come off that if I wish. She could put me on Rituximab but if I am still sero-negative it may not be as effective as it could otherwise be. If it turns out I’m now ‘positive’ it could be a different story!
Clearly the
Leflunomide
isn’t doing the business so I can come off that if I wish. She could put me on Rituximab but if I am still sero-negative it may not be as effective as it could otherwise be. If it turns out I’m now ‘positive’ it could be a different story!
Hidden
in
NRAS
13 years ago
Today I am absolutely positive!
, gold injections (highly toxic and rarely used these days), sulphasalasine, Hydroxychloroquine,
Leflunomide
(tried twice), Methotrexate (tried twice) and Infliximab ... all failed!
, gold injections (highly toxic and rarely used these days), sulphasalasine, Hydroxychloroquine,
Leflunomide
(tried twice), Methotrexate (tried twice) and Infliximab ... all failed!
Hidden
in
NRAS
13 years ago
Onward and upward?
Leflunomide
holds the disease back but doesn't stop it from spreading so two weeks ago I discussed anti TNFs with my consultant. I researched both Enbrel and Humira but to be honest I just don't want to move up the chain so quick.
Leflunomide
holds the disease back but doesn't stop it from spreading so two weeks ago I discussed anti TNFs with my consultant. I researched both Enbrel and Humira but to be honest I just don't want to move up the chain so quick.
Catwoman66
in
NRAS
13 years ago
Drug free time but not pain free!
Was put on
Leflunomide
before Christmas didn't suit so was told to stop it, was on Sulfasalazine before which started to fail, now have not been on anything until last Thursday when went back onto Methotrexate, which will obviously take a while to 'kick in'.
Was put on
Leflunomide
before Christmas didn't suit so was told to stop it, was on Sulfasalazine before which started to fail, now have not been on anything until last Thursday when went back onto Methotrexate, which will obviously take a while to 'kick in'.
Ockle
in
NRAS
12 years ago
Shall i risk having the Rhufliximib infusion as Humira and Infliximib did not work .
Have been taking Hydroxchloriquine for more years than i can remeber , never sure if it works but live in hope . was on Methatrexate until recently when put on
Leflunomide
seemed to help but it makes me itch on my arms . also Celecoxib .Had infusion of Iflxiamib four years ago , did not work .
Have been taking Hydroxchloriquine for more years than i can remeber , never sure if it works but live in hope . was on Methatrexate until recently when put on
Leflunomide
seemed to help but it makes me itch on my arms . also Celecoxib .Had infusion of Iflxiamib four years ago , did not work .
pottypam
in
NRAS
13 years ago
Prednisolone
Stopped
leflunomide
at the same time, and am currently just on pred and hydroxy, but feeling joint pains returning in many joints! And don't even have that feeling of loads of energy / insomnia etc that many seem to get from pred! I've been more exhausted on it than I have been for a while!
Stopped
leflunomide
at the same time, and am currently just on pred and hydroxy, but feeling joint pains returning in many joints! And don't even have that feeling of loads of energy / insomnia etc that many seem to get from pred! I've been more exhausted on it than I have been for a while!
heatherp
in
NRAS
13 years ago
Side effects of Leflunomide
I was reluctant to start on
Leflunomide
as the side effects looked horrendous and the most worrying thing was the possibility of raising my blood pressure, already on medication to control high blood pressure.
I was reluctant to start on
Leflunomide
as the side effects looked horrendous and the most worrying thing was the possibility of raising my blood pressure, already on medication to control high blood pressure.
Ockle
in
NRAS
12 years ago
Leflunomide
Having RA for thirty years I am about to start
Leflunomide
, I have taken, Methotrexate and Sulfasalazine in the past, I also take medication for an under active thyroid and high blood pressure. Looking at the side effects has put the fear of god in me!!
Having RA for thirty years I am about to start
Leflunomide
, I have taken, Methotrexate and Sulfasalazine in the past, I also take medication for an under active thyroid and high blood pressure. Looking at the side effects has put the fear of god in me!!
Ockle
in
NRAS
13 years ago
Thunder Clap Headaches Anyone?
Is it part of the problem or part of the solution- I'm on high dose Golimumab and
Leflunomide
. Ax
Is it part of the problem or part of the solution- I'm on high dose Golimumab and
Leflunomide
. Ax
AMDP
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
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