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CLL Society A patient Story: From color, such comfort!
CLL Society Patient Story: During decades of working in hospice and palliative care, CLL patient and artist True Ryndes experienced uncommon exposure to grief and loss. "I would, every so often, repaint rooms in our home, heeding some call or need." From color, such comfort! We are grateful to be able
CLL Society Patient Story: During decades of working in hospice and palliative care, CLL patient and artist True Ryndes experienced uncommon exposure to grief and loss. "I would, every so often, repaint rooms in our home, heeding some call or need." From color, such comfort! We are grateful to be able
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
Metabolic syndrome (disease) can be managed with IF.
Hi everyone, This is good news for sufferers of hereditary metabolic syndrome whose genetic makeup interferes with their metabolism resulting in obesity type 2 diabetes heart disease to name a few conditions that are of concern to sufferers and their families. Here's about Metabolic syndrome and a link
Hi everyone, This is good news for sufferers of hereditary metabolic syndrome whose genetic makeup interferes with their metabolism resulting in obesity type 2 diabetes heart disease to name a few conditions that are of concern to sufferers and their families. Here's about Metabolic syndrome and a link
Hidden
Administrator
in
Healthy Eating
3 years ago
2 years of ADT counting from end of IMRT versus first injection 6 months before?
To be clearer than my title of this question, my Urologist told me that he counts the 2 years of Eligard to start after my IMRT finished( August 2020) instead of March 2020 when I received my first injection. I was trying to process it and forgot to ask for further details. BTW, my PSA remains low at
To be clearer than my title of this question, my Urologist told me that he counts the 2 years of Eligard to start after my IMRT finished( August 2020) instead of March 2020 when I received my first injection. I was trying to process it and forgot to ask for further details. BTW, my PSA remains low at
B8ssist
in
Advanced Prostate Cancer
3 years ago
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Tibilone
My gyne is desperate for me to take some form of HRT but i'm not keen on it as ive been told not to take any form of hormones by another doctor as it will have an ill effect on my health (its a long story but i spent a week in
intensive
care
fighting for my life so i'm heeding their advice).
My gyne is desperate for me to take some form of HRT but i'm not keen on it as ive been told not to take any form of hormones by another doctor as it will have an ill effect on my health (its a long story but i spent a week in
intensive
care
fighting for my life so i'm heeding their advice).
MishC
in
Endometriosis UK
3 years ago
ADT Vacation - first month being off Firmagon. PSA was .014 & Testos. 3 - After a month vacation - PSA .08 & T159 - any thoughts?
I was a gleason 9 with lymph node involvement. No distant mets. Did HDBrachy with 25 sessions of IMRT. I was DX 2 1/2 years ago. This is my first vacation . I'm off all drugs. I've been on Firmagon for 2 1/2 years. Stopped 35 days ago. Small PSA rise and T went up considerably. I still have my
I was a gleason 9 with lymph node involvement. No distant mets. Did HDBrachy with 25 sessions of IMRT. I was DX 2 1/2 years ago. This is my first vacation . I'm off all drugs. I've been on Firmagon for 2 1/2 years. Stopped 35 days ago. Small PSA rise and T went up considerably. I still have my
Longterm101
in
Advanced Prostate Cancer
3 years ago
AMG 509 personal update
I hope everyone is having a great holiday weekend. AMG 509 is working for others, but not me. My last update was 30 days ago, and the theme was No News is Good News. Since then, back pain and neck pain have evolved to become my constant companions. My oncologist agreed to order scans at 4 weeks instead
I hope everyone is having a great holiday weekend. AMG 509 is working for others, but not me. My last update was 30 days ago, and the theme was No News is Good News. Since then, back pain and neck pain have evolved to become my constant companions. My oncologist agreed to order scans at 4 weeks instead
Philly13
in
Advanced Prostate Cancer
3 years ago
Doctor wants to take away life support, but is there a chance for my relative to recover from her brain hemorrhage?
My close relative got taken into the neurological
intensive
care
unit after I and my family members immediately noticed her hemorrhagic stroke symptoms. The stroke was in the Thalamus. For 12 days she slowly improved.
My close relative got taken into the neurological
intensive
care
unit after I and my family members immediately noticed her hemorrhagic stroke symptoms. The stroke was in the Thalamus. For 12 days she slowly improved.
uuuccc
in
ICUsteps
3 years ago
1yr 3 months Sober but still Scared
They tested me and put me in
intensive
care
for most of my time there. In the beginning they thought I had covid and wouldn’t come near me without the hazmat suites on. They couldn’t understand why I was so sick because I wouldn’t be honest with them .
They tested me and put me in
intensive
care
for most of my time there. In the beginning they thought I had covid and wouldn’t come near me without the hazmat suites on. They couldn’t understand why I was so sick because I wouldn’t be honest with them .
Justme1983
in
British Liver Trust
3 years ago
Update after a year on vacation
I dont have much to contribute in terms of research and so , but from time to time I update on my situation in hope others can learn from my experience Background: DX April 2018 PSA 23 Gleason 9 Pet CT PSMA SCAN April 20 2018: Bones clear, visceral organs clear ,uptake in prostate escaping the capsule
I dont have much to contribute in terms of research and so , but from time to time I update on my situation in hope others can learn from my experience Background: DX April 2018 PSA 23 Gleason 9 Pet CT PSMA SCAN April 20 2018: Bones clear, visceral organs clear ,uptake in prostate escaping the capsule
dorke
in
Advanced Prostate Cancer
3 years ago
Combating long-term effects of COVID
“Pinpointing exactly how this damage occurs brings us an important step closer to developing treatments that can be administered while patients are still in
intensive
care
.
“Pinpointing exactly how this damage occurs brings us an important step closer to developing treatments that can be administered while patients are still in
intensive
care
.
2greys
in
Lung Conditions Community Forum
3 years ago
Treatment opinions for my father in India
Hi, I am posting this on behalf of my father. We are currently located in south india. I wanted to see if current treatment option suggested is the right one Timeline: * My father ( 69 yrs ) saw a urologist about 10 weeks ago urinary blockage, pelvic and rectum pain. * Urologist did a psa test
Hi, I am posting this on behalf of my father. We are currently located in south india. I wanted to see if current treatment option suggested is the right one Timeline: * My father ( 69 yrs ) saw a urologist about 10 weeks ago urinary blockage, pelvic and rectum pain. * Urologist did a psa test
meowlicious99
in
Advanced Prostate Cancer
3 years ago
Cirrhosis and Movement
My mum was diagnosed last year following significant symptoms (heart attack, ascites & HE) and a period in
intensive
care
. She has been hospitalized several times since, due to her reluctance to give up alcohol.
My mum was diagnosed last year following significant symptoms (heart attack, ascites & HE) and a period in
intensive
care
. She has been hospitalized several times since, due to her reluctance to give up alcohol.
AlexJ91
in
British Liver Trust
3 years ago
Many COVID-19 patients produce immune responses against their body's tissues or organs
These results were compared to a control group of 32 patients who were in
intensive
care
for another reason other than COVID-19. https://medicalxpress.com/news/2021-06-covid-patients-immune-responses-body.html Clinical & Experimental Immunology.
These results were compared to a control group of 32 patients who were in
intensive
care
for another reason other than COVID-19. https://medicalxpress.com/news/2021-06-covid-patients-immune-responses-body.html Clinical & Experimental Immunology.
2greys
in
Lung Conditions Community Forum
3 years ago
Last Legs Keytruda(Pemberolizumab)
How many of my fellow Prostate cancer sufferers have had this drug prescribed. I have been on it for 6months and I dont think it is doing me any good a tall. I am on the point of cancelling treatment tomorrow when I visit my oncologist and just heading straight into palliative care which may include
How many of my fellow Prostate cancer sufferers have had this drug prescribed. I have been on it for 6months and I dont think it is doing me any good a tall. I am on the point of cancelling treatment tomorrow when I visit my oncologist and just heading straight into palliative care which may include
DunandDusted
in
Advanced Prostate Cancer
3 years ago
Androgen receptor (AR) heterogeneity ... and therapy resistance
New paper below [1]. Back in 2004, PubMed had the findings of a few studies that looked at PCa androgen receptor [AR] at diagnosis & in hormone refractory prostate cancer (HRPC), as CRPC was then called. At diagnosis - meaning before treatment - the AR was essentially 'wild type'. From a
1995[/
New paper below [1]. Back in 2004, PubMed had the findings of a few studies that looked at PCa androgen receptor [AR] at diagnosis & in hormone refractory prostate cancer (HRPC), as CRPC was then called. At diagnosis - meaning before treatment - the AR was essentially 'wild type'. From a
1995[/
pjoshea13
in
Advanced Prostate Cancer
3 years ago
When to start
Gleason 3+4. I had robotic prostatectomy in 2010 , PSA in 2018 was 1.5. All scans including clinical trial PSMA 18F were clear. IMRT and 4 months Eligard and Casodex. PSA was reported to be less than 0.1. Past three years PSA has risen from 0.03 to 0.05. (.03, .04, .04, .05, .02 and .05) PSA
Gleason 3+4. I had robotic prostatectomy in 2010 , PSA in 2018 was 1.5. All scans including clinical trial PSMA 18F were clear. IMRT and 4 months Eligard and Casodex. PSA was reported to be less than 0.1. Past three years PSA has risen from 0.03 to 0.05. (.03, .04, .04, .05, .02 and .05) PSA
Coupe31
in
Advanced Prostate Cancer
3 years ago
First ten days in hospice
Another update on our journey... (Brief background: after over a year of failing multiple treatments to control his cancer, my husband decided in April that he did not wish to continue pursuing treatments other than palliative care. On May 27 we were accepted into a Medicare hospice program.) So far
Another update on our journey... (Brief background: after over a year of failing multiple treatments to control his cancer, my husband decided in April that he did not wish to continue pursuing treatments other than palliative care. On May 27 we were accepted into a Medicare hospice program.) So far
WildRose6
in
Advanced Prostate Cancer
3 years ago
Is drug treatment the only way to go?
Are my MO's doing the right thing? At 67, both Fox Chase and Moffit oncologists are of the same opinion that I should/can hold off starting any further treatment until doubling time is less than 6-9 months. Original PSA 7.4, Gleason 3+3, surgery 5/2007. Had slight PSA rise and had IMRT 3/2008. PSA still
Are my MO's doing the right thing? At 67, both Fox Chase and Moffit oncologists are of the same opinion that I should/can hold off starting any further treatment until doubling time is less than 6-9 months. Original PSA 7.4, Gleason 3+3, surgery 5/2007. Had slight PSA rise and had IMRT 3/2008. PSA still
mickeypb
in
Advanced Prostate Cancer
3 years ago
Dad in icu with covid 8 weeks. Doctor talking about end of life care
Hi all my dad has been in
intensive
care
for 8 weeks during this time he had bipap for a week then his lung collapsed and he was placed on a ventilator 24 hours later we were called to the hospital as his organs were failing but after being placed on dialysis he got a bit better.
Hi all my dad has been in
intensive
care
for 8 weeks during this time he had bipap for a week then his lung collapsed and he was placed on a ventilator 24 hours later we were called to the hospital as his organs were failing but after being placed on dialysis he got a bit better.
Mrs_blounty
in
ICUsteps
3 years ago
Latest PSA 0.019
I was diagnosed last April, 2020 with locally advanced PC. Gleason 8. Stage: T3, N1, M0. Presenting PSA: 93. Had a PSMA/PET: no sign of mets other than three small pelvic LN's. Treatment with ADT: Lupron, Zytiga, Prednisone in June 2020 followed by IMRT to prostate and pelvic nodes. PSA is now 0.019
I was diagnosed last April, 2020 with locally advanced PC. Gleason 8. Stage: T3, N1, M0. Presenting PSA: 93. Had a PSMA/PET: no sign of mets other than three small pelvic LN's. Treatment with ADT: Lupron, Zytiga, Prednisone in June 2020 followed by IMRT to prostate and pelvic nodes. PSA is now 0.019
dexy1234
in
Advanced Prostate Cancer
3 years ago
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