Search
Search
About
Log in
Join
Experiences with
Intensive care
Read more...
Posts
Communities
2,363 public posts
Filter results
New Study - Men on adt for 6 months- 75% recover Testosterone BUT median time is 18 MONTHS!!!????-Orgovyxx may be different? Yes I Hope??
New Meta Analysis From Marcap Consortium says :
Men on adt for 6 months -75% recover Testosterone BUT the median recovery time is 18 months !!!
AND THE OTHER 25% -NEVER!??
I TOOK ORGOVYXX FOR 4 MONTHS ???? THEY SAY IT MAY BE DIFFERENT FOR ORGOVYXX??
P.S. Any studies
New Meta Analysis From Marcap Consortium says :
Men on adt for 6 months -75% recover Testosterone BUT the median recovery time is 18 months !!!
AND THE OTHER 25% -NEVER!??
I TOOK ORGOVYXX FOR 4 MONTHS ???? THEY SAY IT MAY BE DIFFERENT FOR ORGOVYXX??
P.S. Any studies
JWS13
in
Advanced Prostate Cancer
8 months ago
SIB/Flame Protocol
The RO recommends Simultaneous Integrated Boost (SIB) as part of my treatment. PSA was 19.76 (4/2023), then 21.78 (5/2023 to confirm initial PSA). He is concerned that the PSA does not match the Gleason score (4+3, grade 3) as PSA has surpassed 20. Multiplanar MRI and PSMA PET indicated no metastasis
The RO recommends Simultaneous Integrated Boost (SIB) as part of my treatment. PSA was 19.76 (4/2023), then 21.78 (5/2023 to confirm initial PSA). He is concerned that the PSA does not match the Gleason score (4+3, grade 3) as PSA has surpassed 20. Multiplanar MRI and PSMA PET indicated no metastasis
805guy
in
Prostate Cancer Network
8 months ago
Gleason 10 Stage 4 Metastatic Responding Well to Treatment
At this time I feel well with minimal side effects. Feel free to ask questions. Here's a time line of my experience this summer: Investigative Procedures: 22-Mar - PSA test: 26.5 ng/mL 18-Apr - Repeat PSA test: 25.0 ng/mL 1-May - MRI scan of pelvic region for biopsy planning 19-Mar - Transperineal
At this time I feel well with minimal side effects. Feel free to ask questions. Here's a time line of my experience this summer: Investigative Procedures: 22-Mar - PSA test: 26.5 ng/mL 18-Apr - Repeat PSA test: 25.0 ng/mL 1-May - MRI scan of pelvic region for biopsy planning 19-Mar - Transperineal
Brad70
in
Advanced Prostate Cancer
8 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Failed tumour surgery, what are my options now?
Hello all, I wondered if there is anyone in our community who has/is having a similar experience to mine and has any ideas or guidance on next steps. To summarise, I was diagnosed with a stage 2/3 poorly differentiated Mullerian tumour arising in endometriosis with concurrent Stage 1A LGSOC in the
Hello all, I wondered if there is anyone in our community who has/is having a similar experience to mine and has any ideas or guidance on next steps. To summarise, I was diagnosed with a stage 2/3 poorly differentiated Mullerian tumour arising in endometriosis with concurrent Stage 1A LGSOC in the
Peony13
in
My Ovacome
1 year ago
Post op update.
The observation bit was normal the 12 sticky pad were not so much, yet another eeg, then the anesthesiologist drH and his young apprentice came to see me, with quite a lot of information about my bypass drugs and
intensive
care
treatment, I may be on the cancer track but my quad cabg is being considered
The observation bit was normal the 12 sticky pad were not so much, yet another eeg, then the anesthesiologist drH and his young apprentice came to see me, with quite a lot of information about my bypass drugs and
intensive
care
treatment, I may be on the cancer track but my quad cabg is being considered
Rogo23
in
British Heart Foundation
11 months ago
rehab question
We’ve been told that he will now need to move onto a continuing
care
/slow stream rehab from
intensive
. I am concerned about this next stage as he is still making great progress where he is, but we are being told funding can’t continue for intensive rehab.
We’ve been told that he will now need to move onto a continuing
care
/slow stream rehab from
intensive
. I am concerned about this next stage as he is still making great progress where he is, but we are being told funding can’t continue for intensive rehab.
B17D
in
Headway
17 days ago
HIP XRAYS- Will they effect my recovery or effect my Prostate Cancer-I am now 7 months post IMRT Treatment and healing fine.
Docs want me to take hip xrays ... I am healing well 7 months post IMRT 20 TX now . no major Urinary and rectal issues. Worried that hip xrays may effect my recovery. I know it's not much radiation but I am doing so well...dont want to "POKE THE BEAR"... Thanks JWS All thoughts welcome!!! 62 20
Docs want me to take hip xrays ... I am healing well 7 months post IMRT 20 TX now . no major Urinary and rectal issues. Worried that hip xrays may effect my recovery. I know it's not much radiation but I am doing so well...dont want to "POKE THE BEAR"... Thanks JWS All thoughts welcome!!! 62 20
JWS13
in
Prostate Cancer Network
8 months ago
Air fryer?
I've been eating LCHF for 4 years, and have experienced many health benefits from it. But while eating high fat, I have never turned to deep fried foods. That's mostly because I am not prepared to deep fry in my home, and outside the oil is mostly seed oils, that is highly recycled. Thus I have been
I've been eating LCHF for 4 years, and have experienced many health benefits from it. But while eating high fat, I have never turned to deep fried foods. That's mostly because I am not prepared to deep fry in my home, and outside the oil is mostly seed oils, that is highly recycled. Thus I have been
atrax_robustus
in
Low-Carb High-Fat (LCHF)
6 months ago
1st post-IMRT PSA = 2.1
I completed IMRT on 5/22/23. My last recorded PSA from 1/23 was 4.31. My 1st PSA draw on 8/22/23 came back 2.12. I've read and have been told that PSA doesn't go down immediately with radiation, unlike surgery, and can take up to 2 years to hit its nadir. The RO NP was happy and pretty much said that
I completed IMRT on 5/22/23. My last recorded PSA from 1/23 was 4.31. My 1st PSA draw on 8/22/23 came back 2.12. I've read and have been told that PSA doesn't go down immediately with radiation, unlike surgery, and can take up to 2 years to hit its nadir. The RO NP was happy and pretty much said that
EJC61
in
Prostate Cancer Network
9 months ago
Radiation
I had the standard IMRT for my pca back in 2013. I was told it was a lifetime dose. Is that true with the newer forms of radiation treatment? I am faced with starting a six dose regimen of taxotere now since ADT does not seem to be working according to PSMA scans. My psa remains at 1.8 even though the
I had the standard IMRT for my pca back in 2013. I was told it was a lifetime dose. Is that true with the newer forms of radiation treatment? I am faced with starting a six dose regimen of taxotere now since ADT does not seem to be working according to PSMA scans. My psa remains at 1.8 even though the
sillyoyster
in
Advanced Prostate Cancer
9 months ago
support
hello, my partner has been in
intensive
care
coming up to 5 months now. I feel incredibly lonely, and would love to speak to someone going through a similar thing and maybe be able to support each other.
hello, my partner has been in
intensive
care
coming up to 5 months now. I feel incredibly lonely, and would love to speak to someone going through a similar thing and maybe be able to support each other.
Xoxoxok
in
ICUsteps
1 year ago
What would be next?
From my hx, Gleason 9 RP. PSA went to 0.2 8 months later. PSMA 4 hot spots. IMRT, Lupron and Zytiga. Doing great thus far. MO said if recurrence, Provenge next. Agree? No scan till PSA rise. Agree?thank you
From my hx, Gleason 9 RP. PSA went to 0.2 8 months later. PSMA 4 hot spots. IMRT, Lupron and Zytiga. Doing great thus far. MO said if recurrence, Provenge next. Agree? No scan till PSA rise. Agree?thank you
rfgh20
in
Advanced Prostate Cancer
9 months ago
Well, so much for feeling normal....
Some of you may have read my long story on the Enhertu infusion. I have it in my lungs, spine and then it spread to my liver and the next treatment (Xeloda, I think) and after three months still progression. If you have the time, grab a cup of coffee and read. OR, if you are having trouble sleeping
Some of you may have read my long story on the Enhertu infusion. I have it in my lungs, spine and then it spread to my liver and the next treatment (Xeloda, I think) and after three months still progression. If you have the time, grab a cup of coffee and read. OR, if you are having trouble sleeping
kearnan
in
SHARE Metastatic Breast Cancer
1 year ago
New bone met
I have a consult with radiation oncologist on Wednesday and wanted to ask if any of you have had very targeted radiation therapy to one small new spot on bone when your systemic treatment (Ibrance and Letrozole) is still working on other mets. I saw there is SBRT and IMRT. Are these appropriate options
I have a consult with radiation oncologist on Wednesday and wanted to ask if any of you have had very targeted radiation therapy to one small new spot on bone when your systemic treatment (Ibrance and Letrozole) is still working on other mets. I saw there is SBRT and IMRT. Are these appropriate options
Trissh
in
SHARE Metastatic Breast Cancer
9 months ago
Imaging Guidelines - Salvage IMRT Planning
I'm planning to start my post-op salvage treatment after my PSA breached 0.1 few weeks ago. I'm OK with the extent of the treatment proposed, which is 5 weeks of IMRT (VMAT) to the prostatic fossa and pelvic LNs. However, I'm not confident with the accuracy of radiation delivery to the target area. Knowing
I'm planning to start my post-op salvage treatment after my PSA breached 0.1 few weeks ago. I'm OK with the extent of the treatment proposed, which is 5 weeks of IMRT (VMAT) to the prostatic fossa and pelvic LNs. However, I'm not confident with the accuracy of radiation delivery to the target area. Knowing
Rams91
in
Prostate Cancer Network
9 months ago
Androgens & colorectal cancer
.· 2function perioperative medicine and
intensive
care
, karolinska university hospital, stockholm, sweden. richard.shore@regionstockholm.se.· 3department of medical epidemiology and biostatistics (meb), karolinska institutet, stockholm, sweden.· 4department of surgical sciences
.· 2function perioperative medicine and
intensive
care
, karolinska university hospital, stockholm, sweden. richard.shore@regionstockholm.se.· 3department of medical epidemiology and biostatistics (meb), karolinska institutet, stockholm, sweden.· 4department of surgical sciences
pca2004
in
Fight Prostate Cancer
11 months ago
Am I too late?
I was discharged from the
intensive
care
unit after 6 days, with a planned follow up with the neurosurgeons 5 to 6 weeks later. My report says that they were happy with my progress after this follow up and didn’t plan any further follow ups.
I was discharged from the
intensive
care
unit after 6 days, with a planned follow up with the neurosurgeons 5 to 6 weeks later. My report says that they were happy with my progress after this follow up and didn’t plan any further follow ups.
Mike442
in
Headway
7 days ago
Update post follow up PSMA PET/CT
Just updated my profile to include recent events. In brief, in March 2023 I had a PSMA PET/CT which Dr. Kwon at Mayo clinic somehow got my insurance to pay for even though my PSA was undetectable. It defined a abdominal retro-aortic mass that was significantly avid. Underwent 4 weeks of standard
Just updated my profile to include recent events. In brief, in March 2023 I had a PSMA PET/CT which Dr. Kwon at Mayo clinic somehow got my insurance to pay for even though my PSA was undetectable. It defined a abdominal retro-aortic mass that was significantly avid. Underwent 4 weeks of standard
slpdvmmd
in
Advanced Prostate Cancer
9 months ago
3 Months post ADT (Orgovyx) Still having hot flashes and fatigue-doing blood test in two weeks..for hopefully nadir..
Stopped taking Orgovyx May 30th .... August 30th will be my 90 day blood test I presume to see if my Testosterone is BACK TO NORMAL (I hope) and my PSA is less than .o2 ?? I understand that the Testosterone back to NORMAL is more possible in the short term (90 days) than longer term use of adt? Is
Stopped taking Orgovyx May 30th .... August 30th will be my 90 day blood test I presume to see if my Testosterone is BACK TO NORMAL (I hope) and my PSA is less than .o2 ?? I understand that the Testosterone back to NORMAL is more possible in the short term (90 days) than longer term use of adt? Is
JWS13
in
Prostate Cancer Network
9 months ago
Change from Ropinerole to Rigotine patches
I saw a new Neurologist at my local hospital last week as my RLS has been made worse by the chemo I am on. I am stage 4 and Palliative care for Sarcoma with mets in liver, chest wall and spine. I told him I can’t wean off Ropinerole so he suggested changing to Rigotine patches which, as I also have IBS
I saw a new Neurologist at my local hospital last week as my RLS has been made worse by the chemo I am on. I am stage 4 and Palliative care for Sarcoma with mets in liver, chest wall and spine. I told him I can’t wean off Ropinerole so he suggested changing to Rigotine patches which, as I also have IBS
Ruffabug
in
Restless Legs Syndrome
1 year ago
1
...
9
10
11
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
488 results
Diabetes India
235 results
Lung Conditions Community Forum
151 results
View top 10 communities
Sort by
Most Relevant
Newest