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Ibrance
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Hi - I'm new here. Diagnosed with Lobular MBC -- mets to abdomen
I also have thinning hair from the
Ibrance
. Overall, I'm blessed with a wonderful husband and a tremendous health plan to cover these crazy expensive meds. My work and class mates are super supportive too. Just wanted to say Hi!
I also have thinning hair from the
Ibrance
. Overall, I'm blessed with a wonderful husband and a tremendous health plan to cover these crazy expensive meds. My work and class mates are super supportive too. Just wanted to say Hi!
tab78FN
in
SHARE Metastatic Breast Cancer
6 years ago
MDAnderson recomendation
They want to change me to
ibrance
/faslodex. Am not happy with my current onco at DF and want to go For second opinion to MD Anderson. Any recommendations for breast cancer onco / neuro oncologist at MDAnderson. ? Thank you !
They want to change me to
ibrance
/faslodex. Am not happy with my current onco at DF and want to go For second opinion to MD Anderson. Any recommendations for breast cancer onco / neuro oncologist at MDAnderson. ? Thank you !
Joey1965
in
SHARE Metastatic Breast Cancer
5 years ago
Lowering Ibrance dosage
I have been on
Ibrance
100 mg for about a year and a half. I take it for 21 days and get 14 days off so my blood counts can somewhat recover. The doctor said he was considering giving me 3 weeks off because the counts are still low.
I have been on
Ibrance
100 mg for about a year and a half. I take it for 21 days and get 14 days off so my blood counts can somewhat recover. The doctor said he was considering giving me 3 weeks off because the counts are still low.
PODLESNY
in
SHARE Metastatic Breast Cancer
6 years ago
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Faslodex/Ibrance ...last PET/CT scan
My last scan in August showed new activity in T4 and a possible (probable-new tumor in T3. ) I had been treated with
Ibrance
/Letrozole which worked for about 20 months.
My last scan in August showed new activity in T4 and a possible (probable-new tumor in T3. ) I had been treated with
Ibrance
/Letrozole which worked for about 20 months.
DinNorCal
in
SHARE Metastatic Breast Cancer
5 years ago
Ulcerative colitis
So far no diarrhea on
Ibrance
, but occasionally loose stools. Just wondering if there is anyone out there with ulcerative colitis on
Ibrance
and what your experience has been.
So far no diarrhea on
Ibrance
, but occasionally loose stools. Just wondering if there is anyone out there with ulcerative colitis on
Ibrance
and what your experience has been.
Purple60
in
SHARE Metastatic Breast Cancer
6 years ago
Rash on chest on Ibrance-Letrozole
I have a light, dry rash on my chest that is quite sore and burns (vs itching). My oncologist doesn’t seem concerned. I haven’t read of this specific location as a side effect. Does anyone else have such a rash?
I have a light, dry rash on my chest that is quite sore and burns (vs itching). My oncologist doesn’t seem concerned. I haven’t read of this specific location as a side effect. Does anyone else have such a rash?
Buffwright
in
SHARE Metastatic Breast Cancer
5 years ago
Ibrance expensive
How do you guys pay for
Ibrance
? I start Medicare in january and phizer won’t give discounts to Medicare pts. They are upping my monthly drug prescription part D to 1000.00 per month because of this drug.
How do you guys pay for
Ibrance
? I start Medicare in january and phizer won’t give discounts to Medicare pts. They are upping my monthly drug prescription part D to 1000.00 per month because of this drug.
worldtravel75
in
SHARE Metastatic Breast Cancer
6 years ago
How long have you been on ibrance? If you care to share other details, like type of Mets, side effects, tolerancec etc I’m moving to California in June & think I’m going to either Stanford univ or UCLA (both “Comprehensive Cancer Care” centers. Right now I’m @ MGH (Massachusetts General Hospital) & DANA FARBER CANCER INSTITUTE. Any advice on California docs is welcome-I’ll be living in San Luis Obispo (Central Calif.)😍 Also any advice on teenagers I have 17 yo boy who is a senior with the typical issues of that age plus my do & moving to Calif.? Thx all!!
Share your story ask questions?
Share your story ask questions?
Bailey3266
in
SHARE Metastatic Breast Cancer
5 years ago
My story & place for others to share experiences!
Currently on my 16th cycle
Ibrance
/letraziole; ct Scans every 3 mos.
Currently on my 16th cycle
Ibrance
/letraziole; ct Scans every 3 mos.
Bailey3266
in
SHARE Metastatic Breast Cancer
6 years ago
THAT HAIR ISSUE AGAIN!
Hello, MBC friends taking
Ibrance
. I’ve been on the
Ibrance
/Letrozole combo for almost a year and would guess my hair has thinned about 50%. For those of you on same protocol for longer period (2 years? 3 years? 4 years? More?) is there any end in sight? Does it ever stop?
Hello, MBC friends taking
Ibrance
. I’ve been on the
Ibrance
/Letrozole combo for almost a year and would guess my hair has thinned about 50%. For those of you on same protocol for longer period (2 years? 3 years? 4 years? More?) is there any end in sight? Does it ever stop?
SeattleMom
in
SHARE Metastatic Breast Cancer
6 years ago
Dehydration and Ibrance
Hi everyone, I have been using
Ibrance
and Fulvestrant injection since July aside facts have been tolerable but this last month I have been getting dehydrated I drink plenty of fluids but still dehydrated and I've never had that problem before.
Hi everyone, I have been using
Ibrance
and Fulvestrant injection since July aside facts have been tolerable but this last month I have been getting dehydrated I drink plenty of fluids but still dehydrated and I've never had that problem before.
Villazon
in
SHARE Metastatic Breast Cancer
6 years ago
Besides fatigue, I tolerate Ibrance well, until my week off! Then I'm a bit nauseous. Anyone else?
Feeling worse on my week off
Ibrance
!
Feeling worse on my week off
Ibrance
!
Hidden
in
SHARE Metastatic Breast Cancer
6 years ago
Feeling sad
Right now,
Ibrance
makes me feel tired all day long. I’m finding it hard to get out of bed, the house, etc. I find a way to do so, but it’s so challenging. I see a counselor and exercise, etc. but I’m really in a rut right now.
Right now,
Ibrance
makes me feel tired all day long. I’m finding it hard to get out of bed, the house, etc. I find a way to do so, but it’s so challenging. I see a counselor and exercise, etc. but I’m really in a rut right now.
Hidden
in
SHARE Metastatic Breast Cancer
6 years ago
Affinitor and Exenamestine (Aromasin)
After taking
Ibrance
and Faslodex for 10 months, they stopped working. I am being started on Affinitor and Exenamestine. I am wondering how these meds are tolerated and what side effects are related to the meds. Any problem with mouth sores and if so how were they treated.
After taking
Ibrance
and Faslodex for 10 months, they stopped working. I am being started on Affinitor and Exenamestine. I am wondering how these meds are tolerated and what side effects are related to the meds. Any problem with mouth sores and if so how were they treated.
Imtired
in
SHARE Metastatic Breast Cancer
6 years ago
Faslodex
I am currently taking
Ibrance
/Letrozole. Blessings, Hannah.
I am currently taking
Ibrance
/Letrozole. Blessings, Hannah.
hdhonda
in
SHARE Metastatic Breast Cancer
5 years ago
Correct Protocol for Ibrance in U.K??
I've been told it is not actually the
Ibrance
doing that it is the Letrozole and the
Ibrance
is only there to prolong the time Letrozole works.
I've been told it is not actually the
Ibrance
doing that it is the Letrozole and the
Ibrance
is only there to prolong the time Letrozole works.
Hidden
in
SHARE Metastatic Breast Cancer
6 years ago
NO MORE IBRANCE
We stopped
Ibrance
yesterday and started on IV fusion of Navilbine. Has anyone been on Navilbine?
We stopped
Ibrance
yesterday and started on IV fusion of Navilbine. Has anyone been on Navilbine?
Hidden
in
SHARE Metastatic Breast Cancer
6 years ago
Ibrance, and back pain
I am on my last week of my second round of
ibrance
. The last week or so I have been experiencing sharp back pain in my lower back. I also have joint pai in my joints. Has anyone else experienced this? I have mets in my spine, but not in the same area that I am having pain.
I am on my last week of my second round of
ibrance
. The last week or so I have been experiencing sharp back pain in my lower back. I also have joint pai in my joints. Has anyone else experienced this? I have mets in my spine, but not in the same area that I am having pain.
shannamilton
in
SHARE Metastatic Breast Cancer
6 years ago
Higher Temps on Ibrance
I have been
Ibrance
and Letrozole 100mg now for 8 months now. I check my temp a couple times a day and it always seems to stay about 99.1 to 99.5. IS that normal while on these medicines?
I have been
Ibrance
and Letrozole 100mg now for 8 months now. I check my temp a couple times a day and it always seems to stay about 99.1 to 99.5. IS that normal while on these medicines?
lmiller046
in
SHARE Metastatic Breast Cancer
6 years ago
Slight Progession - abandon Ibrance?
Started
Ibrance
, Letrozol and Lupin shots in March due to Liver Mets, chest wall and lymph progression with some small pulmonary lung. Responded great 1st scan showed deceases or totally gone -excluding Liver which was stubborn.
Started
Ibrance
, Letrozol and Lupin shots in March due to Liver Mets, chest wall and lymph progression with some small pulmonary lung. Responded great 1st scan showed deceases or totally gone -excluding Liver which was stubborn.
Magsue
in
SHARE Metastatic Breast Cancer
6 years ago
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