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Hydrea
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Hydrea
Am on HU and had a small lump come up on my face had it removed and just had letter from dermatologist to confirm it was basil cell carcinoma I now have to wait till end of April to speak to my hemotologist has anyone e else had this and did you have to change meds thankyou
Am on HU and had a small lump come up on my face had it removed and just had letter from dermatologist to confirm it was basil cell carcinoma I now have to wait till end of April to speak to my hemotologist has anyone e else had this and did you have to change meds thankyou
Chel1
in
MPN Voice
2 months ago
Starting Hydrea
I’m nervous about starting
Hydrea
and would love to hear what to really expect. I enjoy the outdoors so I’m really worried about sun exposure with more sensitive skin caused by
hydrea
. Any feedback is appreciated!
I’m nervous about starting
Hydrea
and would love to hear what to really expect. I enjoy the outdoors so I’m really worried about sun exposure with more sensitive skin caused by
hydrea
. Any feedback is appreciated!
FiestyJuan
in
Fight MPN
2 months ago
Meylofibrosis/Hydrea
On
Hydrea
and blood counts within normal limits within weeks. Now on 1000mg per day except mon&tue - 500mg. All is well.Since last week I have been battling with painful right arm. Diagnosed with frozen shoulder. Anybody that might have heard of similar problems? Is it the
Hydrea
?
On
Hydrea
and blood counts within normal limits within weeks. Now on 1000mg per day except mon&tue - 500mg. All is well.Since last week I have been battling with painful right arm. Diagnosed with frozen shoulder. Anybody that might have heard of similar problems? Is it the
Hydrea
?
RietFontein
in
MPN Voice
2 months ago
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Pegasys & Hydrea
I asked my doctor if we could try a small dose of
Hydrea
maybe 500 twice a week to see if this will lower my HCT so I can go more than 2 months without a phlebotomy.
I asked my doctor if we could try a small dose of
Hydrea
maybe 500 twice a week to see if this will lower my HCT so I can go more than 2 months without a phlebotomy.
russkatt
in
MPN Voice
2 months ago
stem cell for et?
I cannot take the
Hydrea
or Anagralide. Thanks for your feed back
I cannot take the
Hydrea
or Anagralide. Thanks for your feed back
Preacherswife
in
MPN Voice
2 months ago
Droxia vs Hydrea
I saw that
hydrea
does not come in a lower dose but droxia which appears to be a form of hydroxyurea does so am thinking maybe I should switch to droxia? I've never heard of anyone taking droxia and only read that
hydrea
is prescribed for PV.
I saw that
hydrea
does not come in a lower dose but droxia which appears to be a form of hydroxyurea does so am thinking maybe I should switch to droxia? I've never heard of anyone taking droxia and only read that
hydrea
is prescribed for PV.
ERei
in
MPN Voice
7 days ago
essential thrombocytosis
Or had side effects from
Hydrea
or Anagralie?
Or had side effects from
Hydrea
or Anagralie?
Preacherswife
in
MPN Voice
3 months ago
Strokes, ET, treatment options
The hematologist increased the
Hydrea
doses somewhat. The platelet count decreased slightly to around 800. The hematologist further increased the
Hydrea
doses to one pill each day and two pills on Wednesday, Saturday, and Sunday. About ten days ago, I collapsed again.
The hematologist increased the
Hydrea
doses somewhat. The platelet count decreased slightly to around 800. The hematologist further increased the
Hydrea
doses to one pill each day and two pills on Wednesday, Saturday, and Sunday. About ten days ago, I collapsed again.
sandor13
in
MPN Voice
1 day ago
CALR Trial (INCA033989)
Gotlib at Standford) just informed me that I could be eligible for this trial because I have an intolerance to
Hydrea
. I've been doing some research on it and I was hoping I could find someone currently in the trial. Thank you
Gotlib at Standford) just informed me that I could be eligible for this trial because I have an intolerance to
Hydrea
. I've been doing some research on it and I was hoping I could find someone currently in the trial. Thank you
Zeppelin11
in
MPN Voice
27 days ago
Newly diagnosed with PV and nervous about starting Hydrea
I would love to hear feedback about starting
Hydrea
. I am anxious because i love to be in the outdoors. I have already had a lot of sun exposure in my life and it will be hard for me to avoid it now. I am also worried about the potential tiredness and nausea. Any feedback would be great!
I would love to hear feedback about starting
Hydrea
. I am anxious because i love to be in the outdoors. I have already had a lot of sun exposure in my life and it will be hard for me to avoid it now. I am also worried about the potential tiredness and nausea. Any feedback would be great!
FiestyJuan
in
MPN Voice
2 months ago
Cataract surgery?
I'm about to be changed over to Pegasys from
Hydrea
, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
I'm about to be changed over to Pegasys from
Hydrea
, and also about to have cataract surgery. Some of the things I've read seem to indicate that may be a problem.
dogsandhorses
in
MPN Voice
3 months ago
Pegasys and Sun
Hello, while on Pegasys do we still have to avoid or minimise sun exposure like on
Hydrea
? Or that's okay to hike in sunny days ?Just wondering as I live in Australia where most of the year is really hot and sunny. Thank you
Hello, while on Pegasys do we still have to avoid or minimise sun exposure like on
Hydrea
? Or that's okay to hike in sunny days ?Just wondering as I live in Australia where most of the year is really hot and sunny. Thank you
kamiilos
in
MPN Voice
4 months ago
Pegasys starting dose for PMF
Now, because of my age(41 yrs old) want to put me on Pegasys but with a starting dose of 135 mcg/week and 500 mg
Hydrea
/day. I have read that must begin with a lower dose of interferon because of the adverse effects. Now platelets have reached 1200 because the reduction of
Hydrea
.
Now, because of my age(41 yrs old) want to put me on Pegasys but with a starting dose of 135 mcg/week and 500 mg
Hydrea
/day. I have read that must begin with a lower dose of interferon because of the adverse effects. Now platelets have reached 1200 because the reduction of
Hydrea
.
Goldie41
in
MPN Voice
5 months ago
New member - Post ET MF (Australia)
I'm currently participating in the INCA033989 CAL-R antibody trial but also on
Hydrea
to try to control my platelets. My platelets are still around 1.8 million.
I'm currently participating in the INCA033989 CAL-R antibody trial but also on
Hydrea
to try to control my platelets. My platelets are still around 1.8 million.
Hatchie
in
MPN Voice
14 days ago
ET, hydrea and feeling fatigued and depressed
The results of my blood counts from January to February showed that with the increase in
hydrea
and lowering of red meat, my haemoglobin and hematocrit went down significantly. My tastebuds haven't been the same since starting
hydrea
last year.
The results of my blood counts from January to February showed that with the increase in
hydrea
and lowering of red meat, my haemoglobin and hematocrit went down significantly. My tastebuds haven't been the same since starting
hydrea
last year.
Deya08
in
MPN Voice
2 months ago
Pegassis start
Hello All I'm 63 years old and I have polycythemia vera,the doctor suggested that after 13 years of
hydrea
to start treatment with pegassis. What do you think? Does it have side effects? What problems have you encountered in treatment with it? Thank you
Hello All I'm 63 years old and I have polycythemia vera,the doctor suggested that after 13 years of
hydrea
to start treatment with pegassis. What do you think? Does it have side effects? What problems have you encountered in treatment with it? Thank you
cata
in
MPN Voice
5 months ago
Any help with hair loss dues to low iron and PV
Hi All, I was diagnosed with PV about 4 years ago and recently started on
Hydrea
(1 x 500mg tab daily). I have tolerated it really well but have some hair loss. I always had hair loss due to low iron but since taking the
Hydrea
it's got worse.
Hi All, I was diagnosed with PV about 4 years ago and recently started on
Hydrea
(1 x 500mg tab daily). I have tolerated it really well but have some hair loss. I always had hair loss due to low iron but since taking the
Hydrea
it's got worse.
Woodcut
in
MPN Voice
7 months ago
ET + Anagrelide
I have ET+CALR, became resistant to
Hydrea
and couldn't tolerate the side effects of Interferon. Now that I'm on Anagrelide (0.5mg twice a day) my platelets are in the 600,000's and I seem to tolerate it ok. However I deal with rapid heartbeats, headaches, fatigue, mood swings and dizziness.
I have ET+CALR, became resistant to
Hydrea
and couldn't tolerate the side effects of Interferon. Now that I'm on Anagrelide (0.5mg twice a day) my platelets are in the 600,000's and I seem to tolerate it ok. However I deal with rapid heartbeats, headaches, fatigue, mood swings and dizziness.
Zeppelin11
in
MPN Voice
1 month ago
PV Iron deficiency and Endurance
I am on
Hydrea
and all blood counts are now normal. My usual activity has included a lot of bicycling, often long hilly rides (50 miles or more) and multiple days in a row. I asked MD if there was anything that might make me feel more tired than in the past (e.g.
I am on
Hydrea
and all blood counts are now normal. My usual activity has included a lot of bicycling, often long hilly rides (50 miles or more) and multiple days in a row. I asked MD if there was anything that might make me feel more tired than in the past (e.g.
FourSeasonLover
in
MPN Voice
2 months ago
E.T. and Headaches.
I have ET JAK2+ diagnosed six years ago and been on 500 mg
Hydrea
which has kept bloods in normal range and haven’t had headache problem till now. I saw the Nurse practitioner at my GP’s a week ago and prescribed antibiotics as it was thought might be sinus inflamed.
I have ET JAK2+ diagnosed six years ago and been on 500 mg
Hydrea
which has kept bloods in normal range and haven’t had headache problem till now. I saw the Nurse practitioner at my GP’s a week ago and prescribed antibiotics as it was thought might be sinus inflamed.
azaelea
in
MPN Voice
1 month ago
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