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Bam ibs
I got diagnosed with bam in January but i noticed i always seem to get styes on eyes and cold sores on lips and skin on face is dry patchy little blisters that cluster together anyone else suffer with these conditions with bile acid malabsorption as i know its some form of ibd and an auto immune condition
I got diagnosed with bam in January but i noticed i always seem to get styes on eyes and cold sores on lips and skin on face is dry patchy little blisters that cluster together anyone else suffer with these conditions with bile acid malabsorption as i know its some form of ibd and an auto immune condition
Netbet22
in
IBS Network
6 months ago
autoimmunity
I went to Laurie Mischley’s alumni camp in August. One of the Labs that I decided to get done called Nuro zoomer I believe, had an interesting result. Turns out I have auto immunity to my glycine receptors. There’s not a whole lot about this online, but apparently in some cases it can cause parkinsonism
I went to Laurie Mischley’s alumni camp in August. One of the Labs that I decided to get done called Nuro zoomer I believe, had an interesting result. Turns out I have auto immunity to my glycine receptors. There’s not a whole lot about this online, but apparently in some cases it can cause parkinsonism
rebtar
in
Cure Parkinson's
7 months ago
Being taking off Pegasys. :( Looking for alternatives
Hi all, I have ET & PV with Jak2. I am 40. I have been on aspirin for over 10 years, but had to start Pegasys 3 months ago. I haven't tolerated it well. Severe shortness of breath etc. My hematologist reduced my dose to 30 per week, but I am suffering with hypertension (150 to 69/96 on average) and
Hi all, I have ET & PV with Jak2. I am 40. I have been on aspirin for over 10 years, but had to start Pegasys 3 months ago. I haven't tolerated it well. Severe shortness of breath etc. My hematologist reduced my dose to 30 per week, but I am suffering with hypertension (150 to 69/96 on average) and
JustKeepSw1mming
in
MPN Voice
8 months ago
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immune system
Hi Everyone Can anyone tell me what affect Pegasys has on the immune system. A few tears ago I had a positive ANA and Anti-Ro blood test, was seen by a Rheumatologist who said I had Sicca symptoms but not Sjogrens. Another recent blood test has shown the same, positive ANA and Anti Ro. Now I am having
Hi Everyone Can anyone tell me what affect Pegasys has on the immune system. A few tears ago I had a positive ANA and Anti-Ro blood test, was seen by a Rheumatologist who said I had Sicca symptoms but not Sjogrens. Another recent blood test has shown the same, positive ANA and Anti Ro. Now I am having
lindyloulou
in
MPN Voice
8 months ago
Dry achey eyes
I have ET Calr diagnosed 5 years ago on Hydroxycarbamide. Recently I have had problems with my eyes. Very achey, dry, frequent styes. My GP gave me eyedrops for the dry eyes, which have helped but the eye ache is still a problem. Anyone else experienced this?
I have ET Calr diagnosed 5 years ago on Hydroxycarbamide. Recently I have had problems with my eyes. Very achey, dry, frequent styes. My GP gave me eyedrops for the dry eyes, which have helped but the eye ache is still a problem. Anyone else experienced this?
Pippapot
in
MPN Voice
9 months ago
Pegasys --> Besremi and HCT
Hi, What a great forum - thanks to you all for contributing. I'm a 37 year old male - diagnosed with PV 3 years ago. I recently made the jump from Pegasys to Besremi. I was on 135ug every 9 days without need of supporting venesection (at least for the last 8 months or so). Since switching medication
Hi, What a great forum - thanks to you all for contributing. I'm a 37 year old male - diagnosed with PV 3 years ago. I recently made the jump from Pegasys to Besremi. I was on 135ug every 9 days without need of supporting venesection (at least for the last 8 months or so). Since switching medication
Swede99
in
MPN Voice
9 months ago
diabetic eye infections
partner is losing his sight due to diabetes, he has started on injections had them once a month for 5 months had no issues until the last one on Friday he was fine until this morning, his eye is red and he says it’s burning , also has black floating things in his eye, he hates hospitals, any advice
partner is losing his sight due to diabetes, he has started on injections had them once a month for 5 months had no issues until the last one on Friday he was fine until this morning, his eye is red and he says it’s burning , also has black floating things in his eye, he hates hospitals, any advice
Fozzy81
in
iDEAL Diabetes
1 year ago
Coping in the heat
Hi, i have finally got a diagnosis of ET and have started on pegasys, fourth injection this week. It has been warm here the last couple of days and I have found work to be extremely exhausting. Does anyone else suffer in the heat? I work in a lab so need to wear a labcoat. I have asked for an occupational
Hi, i have finally got a diagnosis of ET and have started on pegasys, fourth injection this week. It has been warm here the last couple of days and I have found work to be extremely exhausting. Does anyone else suffer in the heat? I work in a lab so need to wear a labcoat. I have asked for an occupational
Scarlett500
in
MPN Voice
9 months ago
pegasys and migraines
I see from a recent post response that there are others on Pegasys who have suffered from migraines. I have been on 45 mcg weekly for a few months and have just had an excruciatingly painful migraine. I have had a few less painful ones. I’m hoping some patients will share their experience on this
I see from a recent post response that there are others on Pegasys who have suffered from migraines. I have been on 45 mcg weekly for a few months and have just had an excruciatingly painful migraine. I have had a few less painful ones. I’m hoping some patients will share their experience on this
Smithjoa
in
MPN Voice
10 months ago
Advice on Cataract surgery / narrow angle
Hi all, First I must apologise, I am new to Glaucoma and looking to get some guidance from ideally someone who may have had a similar experience. I am a 44 year old male who was diagnosed with narrow angles following a routine eye exam. My eyesight is pretty good and I only wear reading glasses occasionally
Hi all, First I must apologise, I am new to Glaucoma and looking to get some guidance from ideally someone who may have had a similar experience. I am a 44 year old male who was diagnosed with narrow angles following a routine eye exam. My eyesight is pretty good and I only wear reading glasses occasionally
Martyn321
in
Glaucoma UK
3 hours ago
Pegasys Side Effects
Hello All - Two months ago I started injecting 45mcg of Pegasys weekly. During this time I have developed dry mouth which is most pronounced in the morning. I drink what I think is a lot of water, and even during the night I awaken several times to drink water. So the issue doesn't seem to be very
Hello All - Two months ago I started injecting 45mcg of Pegasys weekly. During this time I have developed dry mouth which is most pronounced in the morning. I drink what I think is a lot of water, and even during the night I awaken several times to drink water. So the issue doesn't seem to be very
Proton_1
in
MPN Voice
18 hours ago
Uvetis and Glaucoma and detached retinas
Hi, wondering what treatment people are having if they have uveitis and secondary glaucoma as result of this? I'm asthmatic so only one type of drop is suitable for me. Can't have drugs or SLT to bring pressure down. I heard GATT had successful outcomes but not sure if available outside of Birmingham
Hi, wondering what treatment people are having if they have uveitis and secondary glaucoma as result of this? I'm asthmatic so only one type of drop is suitable for me. Can't have drugs or SLT to bring pressure down. I heard GATT had successful outcomes but not sure if available outside of Birmingham
Wholeofthe
in
Glaucoma UK
1 day ago
Bolts Brainwave Entrainment Protocol
So... on today's Zoom call I was asked to re-post the link to the 40 HZ brainwave entrainment audio file I created and have been using. So here it is, plus some info:
I apologize for going off of memory, but there are a number of reasons for using this audio file (or something like it or something
So... on today's Zoom call I was asked to re-post the link to the 40 HZ brainwave entrainment audio file I created and have been using. So here it is, plus some info:
I apologize for going off of memory, but there are a number of reasons for using this audio file (or something like it or something
Bolt_Upright
in
Cure Parkinson's
2 days ago
Cataract surgery
I often read the experiences on CLL shared by our group on HealthUnlocked, and it's reassuring. I was diagnosed with CLL in 2013. After a long period of watch and wait (W&W), I was given only 2 cycles of chemo (BR) in 2019 instead of the planned 6 cycles due to severe side effects. Fortunately, I experienced
I often read the experiences on CLL shared by our group on HealthUnlocked, and it's reassuring. I was diagnosed with CLL in 2013. After a long period of watch and wait (W&W), I was given only 2 cycles of chemo (BR) in 2019 instead of the planned 6 cycles due to severe side effects. Fortunately, I experienced
attarintiki
in
CLL Support
2 days ago
DVLA Esterman test
I am 73 and as my licence was coming up for renewal I received a letter from the DVLA to apply for a new one. In the letter it stated that I could simply complete the online questionaire or, if I had any of the listed conditions (one being Glaucoma) I should complete the form and return it to them
I am 73 and as my licence was coming up for renewal I received a letter from the DVLA to apply for a new one. In the letter it stated that I could simply complete the online questionaire or, if I had any of the listed conditions (one being Glaucoma) I should complete the form and return it to them
monks100
in
Glaucoma UK
2 days ago
Post Preserflo implant
I recently had a Preserflo implant and have been applying the steroid and antibiotic drops. Is it okay to use dry eye drops as well? The eye is itchy and it could do with some extra lubrication.
I recently had a Preserflo implant and have been applying the steroid and antibiotic drops. Is it okay to use dry eye drops as well? The eye is itchy and it could do with some extra lubrication.
hirsey12
in
Glaucoma UK
2 days ago
Normal pressure glaucoma -having a rant
I’ve just recently been diagnosed with normal pressure glaucoma. I’ve always been very short sighted so Ive always had regular eye checks from a contact lens optician and a different specs optician. I go to the same place every year. About 18months ago my contact lens optician said that the thinning
I’ve just recently been diagnosed with normal pressure glaucoma. I’ve always been very short sighted so Ive always had regular eye checks from a contact lens optician and a different specs optician. I go to the same place every year. About 18months ago my contact lens optician said that the thinning
WaitandSee
in
Glaucoma UK
6 days ago
Photosensitivity, eye pain and headache.
I have been photosensitive for about three years now but this year I seem to be struggling with quite intense eye pain and subsequent headache (around the forehead) when outside. The headache goes upon going into deep shade or into the house. I do however, find myself squinting even in the home. I do
I have been photosensitive for about three years now but this year I seem to be struggling with quite intense eye pain and subsequent headache (around the forehead) when outside. The headache goes upon going into deep shade or into the house. I do however, find myself squinting even in the home. I do
RosieA
in
LUPUS UK
7 days ago
Nafarelin/Synarel down reg - when did you get period?
Hi I'm currently doing the above nasal spray for my down regulation as I was told there is a nationwide shortage of buserelin which I used in my first cycle. I started on Saturday 4th May and was told I should get a period in around a week but still no period or signs of it. Has anyone done the same
Hi I'm currently doing the above nasal spray for my down regulation as I was told there is a nationwide shortage of buserelin which I used in my first cycle. I started on Saturday 4th May and was told I should get a period in around a week but still no period or signs of it. Has anyone done the same
Prettypenny1
in
Fertility Network UK
8 days ago
Eye surgery
my doctor told me he wants to do surgery on my eye to straighten out a crease on the retina membrane. At the same time he said he will do a procedure that might eliminate the need for the injections I’ve been having for AMD. is anyone familiar with this?
my doctor told me he wants to do surgery on my eye to straighten out a crease on the retina membrane. At the same time he said he will do a procedure that might eliminate the need for the injections I’ve been having for AMD. is anyone familiar with this?
Blindbasset
in
Macular Society
9 days ago
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