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Cardiolipin antibodies
Hi guys, I’m very new to this but wondering if anyone could help me out with info on Cardiolipin antibodies levels, I have just had a result of 45 and awaiting a doctors appointment. Having been ill for years with systemic symptoms, blocked blood vessels, small bowel resection,, Addisons disease with
Hi guys, I’m very new to this but wondering if anyone could help me out with info on Cardiolipin antibodies levels, I have just had a result of 45 and awaiting a doctors appointment. Having been ill for years with systemic symptoms, blocked blood vessels, small bowel resection,, Addisons disease with
BenBiscuit
in
Hughes Syndrome APS Forum
8 months ago
Advice please
Hi, I am due to have a hysterectomy in October. Ovaries are going too and there's a strong chance of bowel resection due to recto sigmoid endometriosis. If anyone has any advice for recovery or can share their experience I would be grateful. Thank you Aimee
Hi, I am due to have a hysterectomy in October. Ovaries are going too and there's a strong chance of bowel resection due to recto sigmoid endometriosis. If anyone has any advice for recovery or can share their experience I would be grateful. Thank you Aimee
Aimv
in
Endometriosis UK
9 months ago
Hypogastric nerve involvement
Hi guys Saw the consultant/surgeon yesterday. I had my consent form signed on his part for surgery, collected my bowel prep and antibiotics for surgery. But still no date. He wrote in a letter after that he'd rather do the surgery sooner rather than later. Feel like I'm close but still yet a million
Hi guys Saw the consultant/surgeon yesterday. I had my consent form signed on his part for surgery, collected my bowel prep and antibiotics for surgery. But still no date. He wrote in a letter after that he'd rather do the surgery sooner rather than later. Feel like I'm close but still yet a million
Annabelannabel
in
Endometriosis UK
9 months ago
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Missing bank holiday again
Hi, does anyone else feel they are missing out on another bank holiday? I hope you all are feeling much better than me today, but I’m feeling so frustrated that I’m again in bed on tramadol and ibuprofen with my hot water bottle and have had to miss out as usual as I can’t get out the house with my
Hi, does anyone else feel they are missing out on another bank holiday? I hope you all are feeling much better than me today, but I’m feeling so frustrated that I’m again in bed on tramadol and ibuprofen with my hot water bottle and have had to miss out as usual as I can’t get out the house with my
Poppyg16
in
Endometriosis UK
9 months ago
Surgery Cost Endo
Hi im just seeing if anyone has had surgery with Mr David Rowland (Spire Wirral) I previously had endo surgery 2 years ago in spain cost around €7000.00 & NHS have put me on a year waiting list for follow up appointment even though i waited 2 years for first appointment, but ive been on a feeding tube
Hi im just seeing if anyone has had surgery with Mr David Rowland (Spire Wirral) I previously had endo surgery 2 years ago in spain cost around €7000.00 & NHS have put me on a year waiting list for follow up appointment even though i waited 2 years for first appointment, but ive been on a feeding tube
mjo44
in
Endometriosis UK
10 months ago
1st recurrence
I had my first recurrence after 4.5 years. It was a shock as I thought I was going to be ok. Two tumours appeared in the pelvic area. The surgeon did her best and managed to remove both tumours. But I had to have a bowel resection as well. For that I had to have an ilestoma for six weeks. That was very
I had my first recurrence after 4.5 years. It was a shock as I thought I was going to be ok. Two tumours appeared in the pelvic area. The surgeon did her best and managed to remove both tumours. But I had to have a bowel resection as well. For that I had to have an ilestoma for six weeks. That was very
Bluesparrow
in
My Ovacome
10 months ago
How to cancel social events
Hi ladies. Hope your flare free.I'm looking for advice on social events. I know this is so minor in comparison to other issues, but I'm really struggling. I'm currently waiting on my 3rd surgery for hysterectomy and bowel resection. My life is tough at the moment holding down a stressful full time job
Hi ladies. Hope your flare free.I'm looking for advice on social events. I know this is so minor in comparison to other issues, but I'm really struggling. I'm currently waiting on my 3rd surgery for hysterectomy and bowel resection. My life is tough at the moment holding down a stressful full time job
KM1986
in
Endometriosis UK
10 months ago
MMF with Adoport
Hello, long story short: 2yrs 7 mths post transplant, awful 2 yrs of repeated bile duct infections, stenting, leading to bile duct reconstruction & bowel resection. Kidneys now struggling with Adoport. Level reduced & yesterday told I’m going through bout of rejection but can’t increase Adoport due
Hello, long story short: 2yrs 7 mths post transplant, awful 2 yrs of repeated bile duct infections, stenting, leading to bile duct reconstruction & bowel resection. Kidneys now struggling with Adoport. Level reduced & yesterday told I’m going through bout of rejection but can’t increase Adoport due
Braveheart65
in
British Liver Trust
11 months ago
adhesions
I have had a bowel resection due to diverticulitis causing abscess. It was 5 years ago , bag for 3 months , successful reversal, then about a year later adhesions from surgeries causing me to have appendectomy . My question is, had anyone had adhesions? I think I have more. Pain Around belly button
I have had a bowel resection due to diverticulitis causing abscess. It was 5 years ago , bag for 3 months , successful reversal, then about a year later adhesions from surgeries causing me to have appendectomy . My question is, had anyone had adhesions? I think I have more. Pain Around belly button
Gardeningbuff
in
Bowel Disease Support
11 months ago
Hysterectomy & bowel re-section advice
Hi I have recently been diagnosed after suffering bleeding problems and cysts on & off for about 20 years. The recent MRI showed that I have a significant nodule on my bowel so if I opt for a hysterectomy then they will haev to do a bowel re-section. I am currently on zoladex which is helping with the
Hi I have recently been diagnosed after suffering bleeding problems and cysts on & off for about 20 years. The recent MRI showed that I have a significant nodule on my bowel so if I opt for a hysterectomy then they will haev to do a bowel re-section. I am currently on zoladex which is helping with the
Bookish_Girl
in
Endometriosis UK
1 year ago
Hormone therapy for Endometriosis
Hello, I hope you're all doing ok. I was wondering if anyone has any advice, tips or experience in hormone therapy for endometriosis. Long story short I was diagnosed with stage 4 endometriosis 5 years ago, I had a lap in Dec 2018 to remove endometrioma and check my tubes. In Nov 2019 I had a bowel
Hello, I hope you're all doing ok. I was wondering if anyone has any advice, tips or experience in hormone therapy for endometriosis. Long story short I was diagnosed with stage 4 endometriosis 5 years ago, I had a lap in Dec 2018 to remove endometrioma and check my tubes. In Nov 2019 I had a bowel
Violet89
in
Endometriosis UK
1 year ago
Preparing myself for a full hysterectomy, bowel resection and stents in bladder......
Has anyone been through this or similar? I'm desperate for support and I'm terrified about this operation. I have been given a 50% chance of a better quality of life. It's a lot to go through for those stats.....
Has anyone been through this or similar? I'm desperate for support and I'm terrified about this operation. I have been given a 50% chance of a better quality of life. It's a lot to go through for those stats.....
NMPW
in
Endometriosis UK
1 year ago
Bowel resection
Due to radiation 40 yrs ago, I was just recently diagnosed with radiation colitis. I 'm having surgery next month to remove 8 inch section of bowel because it may become cancerous.Any info would be helpful. How long was recovery etc.
Due to radiation 40 yrs ago, I was just recently diagnosed with radiation colitis. I 'm having surgery next month to remove 8 inch section of bowel because it may become cancerous.Any info would be helpful. How long was recovery etc.
Red1959
in
Pelvic Radiation Disease Association
1 year ago
Shoulder pain during period
Hi all, I was wondering if anyone else experiences pain in their right shoulder when they are on or due their period? I have been diagnosed with stage 4 Endo In my bowel and I’m waiting for a bowel resection with specialists this year (terrified!)I had my diagnostic lap with a specialist also and
Hi all, I was wondering if anyone else experiences pain in their right shoulder when they are on or due their period? I have been diagnosed with stage 4 Endo In my bowel and I’m waiting for a bowel resection with specialists this year (terrified!)I had my diagnostic lap with a specialist also and
IB15
in
Endometriosis UK
1 year ago
chemo
I had a bowel resection in February (sigmoid) and found out that the part they removed for analysis was stage 3T N1 that means stage 3 and into 1 lymph node. I have been told to strongly consider Chemotherapy both Intravenous and oral: oxaliplatin and cepecitabine. I am looking for anyone who has
I had a bowel resection in February (sigmoid) and found out that the part they removed for analysis was stage 3T N1 that means stage 3 and into 1 lymph node. I have been told to strongly consider Chemotherapy both Intravenous and oral: oxaliplatin and cepecitabine. I am looking for anyone who has
Abellee
in
Colon Cancer Connected
1 year ago
Possible CRPS?
I was diagnosed with Small Bowel Crohn’s Disease in the early 1970’s and had 18” of small intestine removed. I was on steroids for a while, then codeine for diarrhoea. Later diagnosed with Bile Salt Malabsorption. When I was around fifty the joint pain which I’d always suffered from since childhood began
I was diagnosed with Small Bowel Crohn’s Disease in the early 1970’s and had 18” of small intestine removed. I was on steroids for a while, then codeine for diarrhoea. Later diagnosed with Bile Salt Malabsorption. When I was around fifty the joint pain which I’d always suffered from since childhood began
Morganalefaye
in
Pain Concern
1 year ago
recurrence of diverticulitis after surgery?
Has anyone had a recurrence of diverticulitis after bowel resection. I feel like I’m having a diverticulitis attack but I can’t get into see my GP because it’s so difficult to get into see them at the moment. I’m very dismay because my operation was quite complex. Any answers very gratefully received
Has anyone had a recurrence of diverticulitis after bowel resection. I feel like I’m having a diverticulitis attack but I can’t get into see my GP because it’s so difficult to get into see them at the moment. I’m very dismay because my operation was quite complex. Any answers very gratefully received
Gardeningbuff
in
Bowel Disease Support
1 year ago
low sodium After bowel resection.
I had a bowel resection in 2017,Due to diverticulitis and a ruptured bowel causing an abscess, An iliostomy for three months After resection and then A successful reversal and bowel rejoined minus part of My sigmoid. My problem is that ever since this I have had low sodium in my blood tests. The
I had a bowel resection in 2017,Due to diverticulitis and a ruptured bowel causing an abscess, An iliostomy for three months After resection and then A successful reversal and bowel rejoined minus part of My sigmoid. My problem is that ever since this I have had low sodium in my blood tests. The
Gardeningbuff
in
Bowel Disease Support
1 year ago
Seeking advice from Lynparza, Rubraca or Zejula patients.
Hello all, I'm here in search of some guidance as this is my 1-year mark since I began maintenance treatment with Lynparza. About 2 years ago I was diagnosed with ovarian high grade mullerian carcinoma - stage 3b. After a left oophorectomy, I began a regimen of 6 rounds of the combo Taxol/Carboplatin
Hello all, I'm here in search of some guidance as this is my 1-year mark since I began maintenance treatment with Lynparza. About 2 years ago I was diagnosed with ovarian high grade mullerian carcinoma - stage 3b. After a left oophorectomy, I began a regimen of 6 rounds of the combo Taxol/Carboplatin
TinaTina2020
in
SHARE Ovarian Cancer Support
1 year ago
Finally got a surgery date!
Been waiting 18 months, finally getting my surgery 24th march. I will be having excision, bowel resection, uretal stents, hopefully keeping ovaries and uterus but who knows what they will find 🤷 Been rereading all the info they sent me ages ago, looks like I'll be staying in for up to 5 days. I am a
Been waiting 18 months, finally getting my surgery 24th march. I will be having excision, bowel resection, uretal stents, hopefully keeping ovaries and uterus but who knows what they will find 🤷 Been rereading all the info they sent me ages ago, looks like I'll be staying in for up to 5 days. I am a
Petalgirl
in
Endometriosis UK
1 year ago
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