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Cyclophosphamide
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Hi everyone,
My name is Sarah my lovely 61 year old dad is going for his first FCR treatment for CLL on Monday am. I thought I'd write to see if any one had any recommendations on someone receiving their first FCR treatment - and although it's highly individual anything we should expect. I have prepared a chemo
My name is Sarah my lovely 61 year old dad is going for his first FCR treatment for CLL on Monday am. I thought I'd write to see if any one had any recommendations on someone receiving their first FCR treatment - and although it's highly individual anything we should expect. I have prepared a chemo
Whitehouse_77
in
CLL Support
7 years ago
Questions about stopping Imbruvica due to infection
Hi, my husband is a stage 4, SLL/CLL survivor, he was first diagnosed as a healthy 49 year old man and after 6 months completed 6 grueling rounds of FCR which gave him a fantastic and healthy 10 years with no detectable cancer. About a year ago after struggling with a 6 month respiratory infections
Hi, my husband is a stage 4, SLL/CLL survivor, he was first diagnosed as a healthy 49 year old man and after 6 months completed 6 grueling rounds of FCR which gave him a fantastic and healthy 10 years with no detectable cancer. About a year ago after struggling with a 6 month respiratory infections
bellasmom
in
CLL Support
7 years ago
Diagnosed
Diagnosed with polymyositis with organised pneumonia and referred by local hospital to guys hospital I was put on 3 days IV stetiods follows by started iv
cyclophosphamide
for 6 months as so severe. Already muscle do not hurt, swelling in hands gone plus skin back to normal.
Diagnosed with polymyositis with organised pneumonia and referred by local hospital to guys hospital I was put on 3 days IV stetiods follows by started iv
cyclophosphamide
for 6 months as so severe. Already muscle do not hurt, swelling in hands gone plus skin back to normal.
Kimevans
in
Myositis UK
7 years ago
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Reaction to FCR or Medicine.
I had my first cycle of FCR in August. I had an allergy to something. Most likely the bactrim (sulfur) and was hospitalized twice. I also had a severe rash that covered my entire body except for my face (thank god!). My Oncologist has decided to put off any further treatments at this time. My WBC
I had my first cycle of FCR in August. I had an allergy to something. Most likely the bactrim (sulfur) and was hospitalized twice. I also had a severe rash that covered my entire body except for my face (thank god!). My Oncologist has decided to put off any further treatments at this time. My WBC
Jemisavs5
in
CLL Support
7 years ago
When should we expect hair loss and how can we reduce it?
I had
cyclophosphamide
on what docs say is a small dose, about 6 months ago expected to lose lots of hair then but didn't it has been steady hair loss over a year but may be why I'm still losing hair.
I had
cyclophosphamide
on what docs say is a small dose, about 6 months ago expected to lose lots of hair then but didn't it has been steady hair loss over a year but may be why I'm still losing hair.
HannahLupus
in
LUPUS UK
7 years ago
Aciclovir
Hi all During my FCR treatment I've had itching in my scalp, neck, back and chest. It did subside a lot over the last few weeks but now this week it's come back with a vengeance! I had a new prescription last Tuesday for Aciclovir and it wasn't until today I noticed I had 200mgs instead of the usual
Hi all During my FCR treatment I've had itching in my scalp, neck, back and chest. It did subside a lot over the last few weeks but now this week it's come back with a vengeance! I had a new prescription last Tuesday for Aciclovir and it wasn't until today I noticed I had 200mgs instead of the usual
sallyplest
in
CLL Support
7 years ago
UPDATE ON: Help! 31yr old newly diagnosed CLL.
UPDATE: hi everyone.... Just wanted to post an update on my brother and say thank you to everyone for all the info.... Really helped us have intelligent and productive conversations with our new doctor at Yale today. We saw the new doc. He was amazing. We spent 2+hrs explaining everything anyone ever
UPDATE: hi everyone.... Just wanted to post an update on my brother and say thank you to everyone for all the info.... Really helped us have intelligent and productive conversations with our new doctor at Yale today. We saw the new doc. He was amazing. We spent 2+hrs explaining everything anyone ever
Jade263
in
CLL Support
7 years ago
FCR 18 months later
I finished up 4 rounds of FCR in March of 2015. I realize it is not always suggested for unmutated patients, but I had it anyway. I am Zap 70, trisomy 12, CD 38 positive. Except for infection issues, for which I receive IVIG, I am doing great. I am wondering if anyone else who is unmutated received
I finished up 4 rounds of FCR in March of 2015. I realize it is not always suggested for unmutated patients, but I had it anyway. I am Zap 70, trisomy 12, CD 38 positive. Except for infection issues, for which I receive IVIG, I am doing great. I am wondering if anyone else who is unmutated received
beanlake14
in
CLL Support
7 years ago
FCR DIET?
I'm at end of first week/4th cycle. Don't eat meat but do eat dairy (butter/cheese). Hearing on here about FCR diet. What is that please? Get well everybody!
I'm at end of first week/4th cycle. Don't eat meat but do eat dairy (butter/cheese). Hearing on here about FCR diet. What is that please? Get well everybody!
bendintheroad1
in
CLL Support
7 years ago
In the arms of an angel
Three days ago my beloved father passed away peacefully in his sleep. He is now in a better place, resting, free of pain. I want to thank all of you for your precious help, especially Chis and Neil, and wish all the best with your treatments. Here is the CLL journey of my father: October 2015- Dx with
Three days ago my beloved father passed away peacefully in his sleep. He is now in a better place, resting, free of pain. I want to thank all of you for your precious help, especially Chis and Neil, and wish all the best with your treatments. Here is the CLL journey of my father: October 2015- Dx with
NickiePaG
in
CLL Support
7 years ago
What next
OH has now had 4 cycles of FCR, and last blood test show almost complete (but not quite total) success. Haematologist is now saying stop, as treatment is more toxic than residual problem. Question - any ideas how long a remission is likely to last? Also how long before he is going to be firing on
OH has now had 4 cycles of FCR, and last blood test show almost complete (but not quite total) success. Haematologist is now saying stop, as treatment is more toxic than residual problem. Question - any ideas how long a remission is likely to last? Also how long before he is going to be firing on
shoppingtrolley
in
CLL Support
7 years ago
FlAIR trial screening advised for me follow up to previous posts.
Hi everyone after several consultations with my centre of care and a second opinion I am going for FLAIR screening permitting. Treatment needed now was difficult for me to accept as I have no symptoms and feel great. My genetic tests so far are good 17p non deleted still waiting for IgVH.So first line
Hi everyone after several consultations with my centre of care and a second opinion I am going for FLAIR screening permitting. Treatment needed now was difficult for me to accept as I have no symptoms and feel great. My genetic tests so far are good 17p non deleted still waiting for IgVH.So first line
annmcgowan
in
CLL Support
7 years ago
Starting FCR for CLL
Has anyone done an FCR treatment and if so how were the side effects? Any warnings about FCR that should steer away from going through with treatment?
Has anyone done an FCR treatment and if so how were the side effects? Any warnings about FCR that should steer away from going through with treatment?
Fbarcia
in
CLL Support
7 years ago
CLL with p53,17 deletion
Hello, my husband has CLL with a p53 and 17 deletion. He has a failed FCR. Our Doctor has ordered Ibrutinib for him to begin 2 tabs daily this week. Does insurance and Medicare recognize this as chemo? Is it covered? If you've taken Ibrutinib, we would appreciate hearing from you. Sincerely, farrpottery
Hello, my husband has CLL with a p53 and 17 deletion. He has a failed FCR. Our Doctor has ordered Ibrutinib for him to begin 2 tabs daily this week. Does insurance and Medicare recognize this as chemo? Is it covered? If you've taken Ibrutinib, we would appreciate hearing from you. Sincerely, farrpottery
Farrpottery
in
CLL Support
7 years ago
Latest update....
Wow where do I start, so much seems to have happened in the last couple of weeks. Whilst hubby was having transfusions his HB markers were climbing....100 two weeks ago....went back for blood tests on Wednesday.....HB dropped to 96 (no transfusion for 2 weeks) and Platelets have climbed from 76 to 276
Wow where do I start, so much seems to have happened in the last couple of weeks. Whilst hubby was having transfusions his HB markers were climbing....100 two weeks ago....went back for blood tests on Wednesday.....HB dropped to 96 (no transfusion for 2 weeks) and Platelets have climbed from 76 to 276
Susiecarer
in
CLL Support
7 years ago
Life or death... Or IVIG.
Thanks to you lovely people and great support group advice, I have my first IVIG INFUSION in two days in Portland, Oregon. I had FCR six years ago.... Cll/SLL Stage 4, Rai II. My FCR was stopped by the 5th month because I was so very toxic. Very aggressive FCR and I just never recovered. Always had
Thanks to you lovely people and great support group advice, I have my first IVIG INFUSION in two days in Portland, Oregon. I had FCR six years ago.... Cll/SLL Stage 4, Rai II. My FCR was stopped by the 5th month because I was so very toxic. Very aggressive FCR and I just never recovered. Always had
Kimsome
in
CLL Support
7 years ago
Just putting a tentative toe in the on line world!
Although I am new to the on line community I was diagnosed as having CLL a bit over nine years ago now, was treated was chlorambucil and then with FCR the following year. I guess I was lucky in that I only needed three courses rather than the usual six for my white cell count to come right down. And
Although I am new to the on line community I was diagnosed as having CLL a bit over nine years ago now, was treated was chlorambucil and then with FCR the following year. I guess I was lucky in that I only needed three courses rather than the usual six for my white cell count to come right down. And
Patientgill
in
CLL Support
7 years ago
Flu vaccine
Hello friends, I finished 6 rounds of FCR in March. I was so disappointed to discover last month that my white cell count and neuts were lower than when I was going through chemo. Had bloods checked last week and still the same. I've just returned to work at a school but am nervous now I've heard all
Hello friends, I finished 6 rounds of FCR in March. I was so disappointed to discover last month that my white cell count and neuts were lower than when I was going through chemo. Had bloods checked last week and still the same. I've just returned to work at a school but am nervous now I've heard all
Kenn123
in
CLL Support
7 years ago
nausea returned 4 months post FCR
Hi everyone. I am new to this community and so glad to be able to connect with you all. I had 4 series of FCR treatment and am 4 months out since the last one. After each series (3 days each) I experienced about 3-4 days of nausea. After that my only symptom was fatigue. Surprisingly, about 3 weeks
Hi everyone. I am new to this community and so glad to be able to connect with you all. I had 4 series of FCR treatment and am 4 months out since the last one. After each series (3 days each) I experienced about 3-4 days of nausea. After that my only symptom was fatigue. Surprisingly, about 3 weeks
Hidden
in
CLL Support
7 years ago
Neutrophils staying low
My OH has just completed a 4th cycle of FCR - however each cycle has been reduced from the previous one, initially due to low platelet figures, now it's low neutrophils. Full set of blood tests today, so waiting to hear what happens next. Only symptom is fatigue, but this is debilitating and depressing
My OH has just completed a 4th cycle of FCR - however each cycle has been reduced from the previous one, initially due to low platelet figures, now it's low neutrophils. Full set of blood tests today, so waiting to hear what happens next. Only symptom is fatigue, but this is debilitating and depressing
shoppingtrolley
in
CLL Support
7 years ago
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