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Airing Pain 141: Living with Childhood and Young Adult Cancer
Pain Concern is delighted to announce that the second edition of our mini-series on the lasting impact of childhood pain is OUT NOW
Airing Pain 141: Living with Childhood and Young Adult Cancer
This edition of Airing Pain sheds light on the unique challenges of living with cancer as a child
Pain Concern is delighted to announce that the second edition of our mini-series on the lasting impact of childhood pain is OUT NOW
Airing Pain 141: Living with Childhood and Young Adult Cancer
This edition of Airing Pain sheds light on the unique challenges of living with cancer as a child
PainConcernProjects
Pain Concern
in
Pain Concern
5 months ago
Update and no news from hospital
It's been a few weeks now since I embarked on my calorie deficit healthy eating and coffee journey. I had a birthday in June and I did say bad eating for a week. Well in turned into 2 ½ weeks as I was taken out by friends several times. However, I have now lost 10kg. I am so happy with this progress.
It's been a few weeks now since I embarked on my calorie deficit healthy eating and coffee journey. I had a birthday in June and I did say bad eating for a week. Well in turned into 2 ½ weeks as I was taken out by friends several times. However, I have now lost 10kg. I am so happy with this progress.
LilacPoppy
in
British Liver Trust
10 months ago
Finally a specialist appointment...
I am looking forward to an appt in 2 days with a specialist in proctology and she is a colon surgeon and does pelvic floor therapy as well. My hemerrhoids - or whatever this is - are not getting better. Keeping the constipation under control with diet, water, miralax and occasional stool softener.
I am looking forward to an appt in 2 days with a specialist in proctology and she is a colon surgeon and does pelvic floor therapy as well. My hemerrhoids - or whatever this is - are not getting better. Keeping the constipation under control with diet, water, miralax and occasional stool softener.
NewEnglander
in
IBS Network
5 months ago
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Vertigo and Venclexta?
My husband is starting cycle 12 of Venclexta, reduced to 200mg /day due to 2 bouts of Neutropenia, and has recently experienced Vertigo twice. The first time, I did not associate this with the treatment; however, it seemed peculiar when it happened a second time, only eight weeks later. He was advised
My husband is starting cycle 12 of Venclexta, reduced to 200mg /day due to 2 bouts of Neutropenia, and has recently experienced Vertigo twice. The first time, I did not associate this with the treatment; however, it seemed peculiar when it happened a second time, only eight weeks later. He was advised
lisakc1
in
CLL Support
10 months ago
waiting for a hearing test to check for acoustic neuroma
Hi, I’ve had hearing aids for 8 years due to tinnitus. Recently my left ear feels very different from my right. It feels blocked and very deaf. I’ve also had 2 episodes of really loud tinnitus that I’ve never had before. When the tinnitus calmed down I had a migraine later. I’ve been having more migraines
Hi, I’ve had hearing aids for 8 years due to tinnitus. Recently my left ear feels very different from my right. It feels blocked and very deaf. I’ve also had 2 episodes of really loud tinnitus that I’ve never had before. When the tinnitus calmed down I had a migraine later. I’ve been having more migraines
Dancenut
in
Acoustic Neuroma Support
10 months ago
Haven’t posted for a while 😊
Well I have a a hard time these past couple of months I had my mother in law in and out of hospital she got cancer on one of her kidneys and had removed them in her bladder got that removed and now we are gonna start some type of therapy! As for my mom she has been ok we’re still with a low dose of
Well I have a a hard time these past couple of months I had my mother in law in and out of hospital she got cancer on one of her kidneys and had removed them in her bladder got that removed and now we are gonna start some type of therapy! As for my mom she has been ok we’re still with a low dose of
Eirinik
in
CLL Support
5 months ago
Dry Matter in the corner of eyes.
Does anyone have problems with dry matter in the inside corner of their eyes? I know Glaucoma can be associated with dry eyes and fortunately, so far, I have not had too much of a problem.. However lately I have noticed an occasional sharp pain in the corner of my eye as a piece of matter comes out.
Does anyone have problems with dry matter in the inside corner of their eyes? I know Glaucoma can be associated with dry eyes and fortunately, so far, I have not had too much of a problem.. However lately I have noticed an occasional sharp pain in the corner of my eye as a piece of matter comes out.
Tschuggen
in
Glaucoma UK
10 months ago
Prolia
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
I have just received an email from my GP who has arranged for a F2F appointment to see me beginning January to discuss me starting to take Prolia. My last Dexascan in 2021 did show that I have osteoporosis, and I did take Alendronic Acid for the first two years of having Polymyalgia. Since then I have
Purplegloss
in
PMRGCAuk
5 months ago
Precancerous polyps removed, new symptoms 8 years later
So 8 years ago I had a colonoscopy due to severe constipation, a backup in my bowels, mucus and slight bleeding. They removed seven polyps, four of which were pre-cancerous, the largest polyp being 7 mm. They told me to be checked again in 4 years which I was, and it came back clear. Lately, I'd say
So 8 years ago I had a colonoscopy due to severe constipation, a backup in my bowels, mucus and slight bleeding. They removed seven polyps, four of which were pre-cancerous, the largest polyp being 7 mm. They told me to be checked again in 4 years which I was, and it came back clear. Lately, I'd say
Incogkneetoe
in
Colon Cancer Connected
5 months ago
MRI and injuries
I'm Dx with PV jak2 and have been on low dose aspirin 2x daily/phlebotomies every 3 months or so for the last 20 years. My question has to do with inflammation and seemingly lengthy time it takes to heal when injured. I've been dealing with a lingering glute muscle injury obtained during golfing for
I'm Dx with PV jak2 and have been on low dose aspirin 2x daily/phlebotomies every 3 months or so for the last 20 years. My question has to do with inflammation and seemingly lengthy time it takes to heal when injured. I've been dealing with a lingering glute muscle injury obtained during golfing for
ritaandscooter1
in
MPN Voice
10 months ago
Ovarian cancer recurrence
Firstly, hi to anyone who may stumble across my post. Long story short, I was diagnosed with stage 4 ovarian cancer back in 2020. I had an ultra radical debulking surgery in August that year, followed by 6 rounds of carbo/taxol and maintenance via olaparib. I had a CT scan back in August which highlighted
Firstly, hi to anyone who may stumble across my post. Long story short, I was diagnosed with stage 4 ovarian cancer back in 2020. I had an ultra radical debulking surgery in August that year, followed by 6 rounds of carbo/taxol and maintenance via olaparib. I had a CT scan back in August which highlighted
Guitarplayinghobbit
in
My Ovacome
5 months ago
Any advice for gastro symptoms which respond to steroids, but no diagnosis? Does normal colonoscopy cover the small bowel?
hi all, I hope it's ok to post here - I don't have a diagnosis of crohn's or colitis but am looking for information. I'm diagnosed coeliac (6+ years ago) and autoimmune hypothyroid, with ongoing and increasing gastro symptoms - the main problem being that I feel extremely unwell like I've got flu
hi all, I hope it's ok to post here - I don't have a diagnosis of crohn's or colitis but am looking for information. I'm diagnosed coeliac (6+ years ago) and autoimmune hypothyroid, with ongoing and increasing gastro symptoms - the main problem being that I feel extremely unwell like I've got flu
Megaloo
in
Crohn's and Colitis Support
5 months ago
LOADED BOWEL
September I had a bowel impaction and after various doses of laxido and other laxitives plus three trips to A&E still not sorted! Blood test CT scan showed nothing amiss just loaded bowel .I have continued with a maintenace dose of laxido and senna which makes me go most days but still feel like there
September I had a bowel impaction and after various doses of laxido and other laxitives plus three trips to A&E still not sorted! Blood test CT scan showed nothing amiss just loaded bowel .I have continued with a maintenace dose of laxido and senna which makes me go most days but still feel like there
Shopnow1
in
IBS Network
5 months ago
Constipation post lap!
Hello ladies. I am 3 days post my surgery in which they took out my left ovary and excised all the endo they coud find. Now i am not in a lot of pain but i cannot poo, it is killing me. It is already the fourth day i haven't empty my bowels and i feel i need to go but when i am there i cannot push it
Hello ladies. I am 3 days post my surgery in which they took out my left ovary and excised all the endo they coud find. Now i am not in a lot of pain but i cannot poo, it is killing me. It is already the fourth day i haven't empty my bowels and i feel i need to go but when i am there i cannot push it
Pisi
in
Endometriosis UK
5 months ago
pain in my lower pelvic area.
I suffer from pain in my lower pelvic area sometimes at the front and sides as it tends to move about,it mainly happens after I've been lying down, i also suffer from constipation,I've had a ct scan, endoscopy and gastrostomy all came back clear,I am at a loss what to do next.
I suffer from pain in my lower pelvic area sometimes at the front and sides as it tends to move about,it mainly happens after I've been lying down, i also suffer from constipation,I've had a ct scan, endoscopy and gastrostomy all came back clear,I am at a loss what to do next.
Lawnmow
in
Pelvic Pain Support Network
5 months ago
Dry mouth
Hi, I'm on Besremi, now at 150 every two weeks (down from 180 as WBC got too low). I have had dry eyes for awhile, but suddenly I'm noticing my mouth is really dry. I also have frequent urination, and have had for sometime which is driving me crazy. I do see urologist next week about that issue
Hi, I'm on Besremi, now at 150 every two weeks (down from 180 as WBC got too low). I have had dry eyes for awhile, but suddenly I'm noticing my mouth is really dry. I also have frequent urination, and have had for sometime which is driving me crazy. I do see urologist next week about that issue
Elizka
in
MPN Voice
10 months ago
Question for PCa patients using Estradiol transdermal patch for bone protection and SEs
As I noted in an earlier now deleted post, I've been using the lowest dose E2 patch and saw an unexpected reduction in my glucose level from a recent blood test. What I am trying to ask are there any PCa patients using E2 transdermally in the group who have seen their usually elevated above range glucose
As I noted in an earlier now deleted post, I've been using the lowest dose E2 patch and saw an unexpected reduction in my glucose level from a recent blood test. What I am trying to ask are there any PCa patients using E2 transdermally in the group who have seen their usually elevated above range glucose
NewPotatoCaboose
in
Advanced Prostate Cancer
10 months ago
serum Alkaline phospharase abnormally high
hi My SLT results are usually all over the pace and dance around the 200/300 mark, but recently had a reading of over 600! I started taking Colysterimine for the itch (which is still driving me to distraction) and I’m thinking it’s this that is affecting the SLT result. I’ve swapped how I take my dose
hi My SLT results are usually all over the pace and dance around the 200/300 mark, but recently had a reading of over 600! I started taking Colysterimine for the itch (which is still driving me to distraction) and I’m thinking it’s this that is affecting the SLT result. I’ve swapped how I take my dose
mrsreddave
in
PBC Foundation
10 months ago
warm eye masks
can anyone recommend a type of warm eye mask? I have dry tired eyes and would like to try a warm mask but have seen some to put in microwave and some usb ones, Can anyone recommend please. I had slt laser bout 3 months ago -not worked and totally regret it.Eyes not felt same since. - back on Monopost
can anyone recommend a type of warm eye mask? I have dry tired eyes and would like to try a warm mask but have seen some to put in microwave and some usb ones, Can anyone recommend please. I had slt laser bout 3 months ago -not worked and totally regret it.Eyes not felt same since. - back on Monopost
swanlady123
in
Glaucoma UK
10 months ago
Short of breath
On Orgovyx, Nubeqa and Megace for last three months. Completing 27 of 27 fractions of radiation tomorrow. I am short of breath most of the time. A walk up a flight of stairs leaves me gasping. I continue to workout including running (slower and shorter since radiation started), hiking and weights
On Orgovyx, Nubeqa and Megace for last three months. Completing 27 of 27 fractions of radiation tomorrow. I am short of breath most of the time. A walk up a flight of stairs leaves me gasping. I continue to workout including running (slower and shorter since radiation started), hiking and weights
SLOJIM
in
Advanced Prostate Cancer
10 months ago
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