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Latest update on son
Hi all, some good news & some bad. First bad news - since my last post son has had further problems following catheter insertion error. He had quite a lot of bleeding & discharge which resulted in a 14 hour stint in A & E & urgent follow up referral with urology. Falsepassage way error had resulted
Hi all, some good news & some bad. First bad news - since my last post son has had further problems following catheter insertion error. He had quite a lot of bleeding & discharge which resulted in a 14 hour stint in A & E & urgent follow up referral with urology. Falsepassage way error had resulted
Nanapal
in
Headway
1 year ago
females & prednisone
does anybody notice vaginal odor while taking prednisone & methotrexate? I remember when on chemotherapy years ago I had a body odor. your thoughts? My gynecologist suggested probiotics with Lactobacillus acidophilus.
does anybody notice vaginal odor while taking prednisone & methotrexate? I remember when on chemotherapy years ago I had a body odor. your thoughts? My gynecologist suggested probiotics with Lactobacillus acidophilus.
Pass7
in
PMRGCAuk
1 year ago
Gastroenterologist Consultation
After waiting since last autumn I've finally spoken to a gastroenterology consultant.This was an a phone appointment with my local hospital - something I've not done before, but it worked really well, much better than I expected. The conclusion, for the time being, is that my IBSd is definitely related
After waiting since last autumn I've finally spoken to a gastroenterology consultant.This was an a phone appointment with my local hospital - something I've not done before, but it worked really well, much better than I expected. The conclusion, for the time being, is that my IBSd is definitely related
Hetchins1946
in
IBS Network
1 year ago
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Fennel Seeds
Hi everyone, I've recently done some research into fennel seeds, and I've read that apparently it contains a compound called Anethole, which helps to relax the muscles in your digestive tract. I was just wondering if anyone here has eaten fennel seeds before and can verify this. I am looking for ways
Hi everyone, I've recently done some research into fennel seeds, and I've read that apparently it contains a compound called Anethole, which helps to relax the muscles in your digestive tract. I was just wondering if anyone here has eaten fennel seeds before and can verify this. I am looking for ways
Crescendo251
in
IBS Network
2 months ago
Lymph node Metastasis
After 7 years, and multiple PSMA scans, my husband had a FDG CT scan and it showed what they quoted as “several” metastasis In the lymphs In the para aortic area in abdomen. One doc wants to biopsy to check if cancer DNA has changed from original pathology in 2017. Another doc says… No to biopsy due
After 7 years, and multiple PSMA scans, my husband had a FDG CT scan and it showed what they quoted as “several” metastasis In the lymphs In the para aortic area in abdomen. One doc wants to biopsy to check if cancer DNA has changed from original pathology in 2017. Another doc says… No to biopsy due
JolleySprings
in
Advanced Prostate Cancer
2 months ago
Gemzar was tough
I spent many years on Avastin since 2008 diagnosis. When I came out of remission from it. I was put on carbo/Gemzar. I had a bad reaction to the Carbo, so I had 10 treatments of Gemzar. I finally had to ask Onco to stop because I was losing my quality of life. Now that I’m off Gemzar, I’m hoping
I spent many years on Avastin since 2008 diagnosis. When I came out of remission from it. I was put on carbo/Gemzar. I had a bad reaction to the Carbo, so I had 10 treatments of Gemzar. I finally had to ask Onco to stop because I was losing my quality of life. Now that I’m off Gemzar, I’m hoping
Leniko
in
My Ovacome
1 year ago
Question 🤷🏻♀️
Could anyone on here give me an answer to this question. Do you now have to go through a GP/ Consultant to get a general urine test. I have go through quite a lot of stomach pain,and on the odd occasion it’s been due to a water infection. Now when I get pain that I feel is different or unbearable
Could anyone on here give me an answer to this question. Do you now have to go through a GP/ Consultant to get a general urine test. I have go through quite a lot of stomach pain,and on the odd occasion it’s been due to a water infection. Now when I get pain that I feel is different or unbearable
Breathless1943
in
IBS Network
1 year ago
When to introduce ADT after RP failure
I'm progressing well on Triplet Therapy coming up 12 months after Chemo and comparing myself to my brothers situation. He doesn't belong on this advanced prostate group but I hope his cancer does not advance to the point that he does! [i]Diagnoses[/i] [i]Biochemical failure following radical prostatectomy
I'm progressing well on Triplet Therapy coming up 12 months after Chemo and comparing myself to my brothers situation. He doesn't belong on this advanced prostate group but I hope his cancer does not advance to the point that he does! [i]Diagnoses[/i] [i]Biochemical failure following radical prostatectomy
LakeT
in
Advanced Prostate Cancer
8 months ago
Genetic therapy: for solid malignancy hopefully soon
ok, I post them also because they are fellow Italians! But the platform is very promising even if clinical use has been approved only for glioma and glioblastoma at the moment. But there are clinical trials going on for solid tumors, prostate included. https://www.genenta.com/wp-content/uploads/2021
ok, I post them also because they are fellow Italians! But the platform is very promising even if clinical use has been approved only for glioma and glioblastoma at the moment. But there are clinical trials going on for solid tumors, prostate included. https://www.genenta.com/wp-content/uploads/2021
Maxone73
in
Advanced Prostate Cancer
6 months ago
Bladder & Urethra Issue
RP 2007 and EBRT 2009. I've had intermittent hematuria for many years and on 3 occasions blood clots have caused obstruction and inability to urinate. I've learned to self catheterize in these situations which has usually resolved the issue after a few days. This time it's more severe. Heavy bleeding
RP 2007 and EBRT 2009. I've had intermittent hematuria for many years and on 3 occasions blood clots have caused obstruction and inability to urinate. I've learned to self catheterize in these situations which has usually resolved the issue after a few days. This time it's more severe. Heavy bleeding
AllenMarco
in
Advanced Prostate Cancer
11 months ago
should I take her to hospital?
Hello - my 11 yr old daughter has had long term issues with constipation and soiling. We have muddled along for years with patchy use of Macrogol She continues to soil occasionally and usually passes a mega poo once a week. But tonight she was very uncomfortable and told me that she stopped herself
Hello - my 11 yr old daughter has had long term issues with constipation and soiling. We have muddled along for years with patchy use of Macrogol She continues to soil occasionally and usually passes a mega poo once a week. But tonight she was very uncomfortable and told me that she stopped herself
Worriedmum222
in
ERIC
9 months ago
Bit off topic
Diagnosed with bladder tumour Thursday, had me in pre op assessment on Monday. Anyone know what the usual waiting time for this type of op is please as I cant get an answer from the clinic. I appreciate there are so many variables but one week from doctors referral to diagnosis it may be one that's a
Diagnosed with bladder tumour Thursday, had me in pre op assessment on Monday. Anyone know what the usual waiting time for this type of op is please as I cant get an answer from the clinic. I appreciate there are so many variables but one week from doctors referral to diagnosis it may be one that's a
Davidc1075
in
AF Association
1 year ago
suprapubic catheter
Hi ,I’m looking to learn and get in touch with anyone who has experienced a suprapubic catheter.I’ve been doubly incontinent since I had spinal surgery with very little support this happened in 2007 .Since 2018 I have suffered with constant urine infections I am also disabled.I am now due to have a
Hi ,I’m looking to learn and get in touch with anyone who has experienced a suprapubic catheter.I’ve been doubly incontinent since I had spinal surgery with very little support this happened in 2007 .Since 2018 I have suffered with constant urine infections I am also disabled.I am now due to have a
J-68
in
Bladder Health UK
1 year ago
Three Different Types of β-Glucans Enhance Cognition: The Role of the Gut-Brain Axis
https://www.frontiersin.org/articles/10.3389/fnut.2022.848930/full# Results: All three supplementations with β-glucans enhanced the temporal order recognition memory. Brain-derived neurotrophic factor (BDNF) and the post-synaptic protein 95 (PSD95) increased in the PFC. Furthermore, mushroom β-glucan
https://www.frontiersin.org/articles/10.3389/fnut.2022.848930/full# Results: All three supplementations with β-glucans enhanced the temporal order recognition memory. Brain-derived neurotrophic factor (BDNF) and the post-synaptic protein 95 (PSD95) increased in the PFC. Furthermore, mushroom β-glucan
JayPwP
in
Cure Parkinson's
10 months ago
Is my recovery typical or more novel
I had 7=4+3 prostate cancer PSA=5.4 with a Gleason of 0.7. MRI showed the tumor had not compromised the wall of the prostate. It was an aggressive cancer genetically and was at stage three. Bad news but apparently ample margin for victory. I had ADT from 7/22 till 12/22 and received Proton beam therapy
I had 7=4+3 prostate cancer PSA=5.4 with a Gleason of 0.7. MRI showed the tumor had not compromised the wall of the prostate. It was an aggressive cancer genetically and was at stage three. Bad news but apparently ample margin for victory. I had ADT from 7/22 till 12/22 and received Proton beam therapy
Hidden
in
Advanced Prostate Cancer
9 months ago
Varian Trubeam Rapidarc to do VMAT
In a previous post my daughter AppleTree43 posted a query about radiotherapy. I have prostate cancer with local and some distant nodes in the back. Tall Allen told her all are within dimensions used for NRG Oncology. Mo at Kaiser and second opinion from UCSF are hopeful radiotherapy of prostate, local
In a previous post my daughter AppleTree43 posted a query about radiotherapy. I have prostate cancer with local and some distant nodes in the back. Tall Allen told her all are within dimensions used for NRG Oncology. Mo at Kaiser and second opinion from UCSF are hopeful radiotherapy of prostate, local
pj1121
in
Advanced Prostate Cancer
9 months ago
Prostate Cancer (stage IV) identified in January and Small Cell Carcinoma (Neuro endocrine) in liver in August. Any suggestions?
In January, my dad was diagnosed with Prostate Cancer (Acinar Adenocarcinoma Prostate) stage 4, with PSA of 687. PCa had reached bones but not other major organs. He was put on Abiraterone and Degarelix. In August, PSA test showed that PSA had dropped to 2.7 and there was decrease in size and PSMA avidity
In January, my dad was diagnosed with Prostate Cancer (Acinar Adenocarcinoma Prostate) stage 4, with PSA of 687. PCa had reached bones but not other major organs. He was put on Abiraterone and Degarelix. In August, PSA test showed that PSA had dropped to 2.7 and there was decrease in size and PSMA avidity
RindaMan
in
Advanced Prostate Cancer
9 months ago
Repeat Lutetium/ Pluvicto treatment
Hello all, I am just curious if anyone has experience doing additional lutetium treatments. I did three lutetium treatments from September 2021 to January 2022. My Denver oncologist is concerned about bone marrow toxicity , but he does not have enough experience with this treatment to say for sure.
Hello all, I am just curious if anyone has experience doing additional lutetium treatments. I did three lutetium treatments from September 2021 to January 2022. My Denver oncologist is concerned about bone marrow toxicity , but he does not have enough experience with this treatment to say for sure.
Eugmn
in
Advanced Prostate Cancer
3 months ago
Financial Toxicity
I was following a trail of links regarding new and developed radiotherapies for advanced PCa. I found a new term that I had not seen before: Financial Toxicity. The one paper said that higher FT was linked to more aggressive cancers. Well, DUH! I've not seen anywhere where the cost of treatments
I was following a trail of links regarding new and developed radiotherapies for advanced PCa. I found a new term that I had not seen before: Financial Toxicity. The one paper said that higher FT was linked to more aggressive cancers. Well, DUH! I've not seen anywhere where the cost of treatments
maggiedrum
in
Fight Prostate Cancer
1 year ago
Radiation
I had the standard IMRT for my pca back in 2013. I was told it was a lifetime dose. Is that true with the newer forms of radiation treatment? I am faced with starting a six dose regimen of taxotere now since ADT does not seem to be working according to PSMA scans. My psa remains at 1.8 even though the
I had the standard IMRT for my pca back in 2013. I was told it was a lifetime dose. Is that true with the newer forms of radiation treatment? I am faced with starting a six dose regimen of taxotere now since ADT does not seem to be working according to PSMA scans. My psa remains at 1.8 even though the
sillyoyster
in
Advanced Prostate Cancer
9 months ago
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