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Azatadine
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help , fatigue, shortness of breath
i am stuck Age 50 Symptoms since 2020 Diagnosed 2022 Started on C/L 100/25x3 Worked well for 6 months Started mild dyskinesia after 9 months, now it is wearing off fast,Ii get severe fatigue so changed it to half pill every 3 hours, dyskinesia is less but fatigue, wearing off dyspnea is killing
i am stuck Age 50 Symptoms since 2020 Diagnosed 2022 Started on C/L 100/25x3 Worked well for 6 months Started mild dyskinesia after 9 months, now it is wearing off fast,Ii get severe fatigue so changed it to half pill every 3 hours, dyskinesia is less but fatigue, wearing off dyspnea is killing
Rupa88
in
Cure Parkinson's
6 days ago
My current usage of C/L
I take 1 25/100 and 2 rytary(48.75/195) at 8am, 3 rytary at 11am, 2 rytary at 2pm and 2 rytary at 5pm. I have very little off time. I was diagnosed two years ago at age 51 but it probably had Parkinson’s since I’ve been 40 years old. I was curious if I could get your opinion on if you guys think this
I take 1 25/100 and 2 rytary(48.75/195) at 8am, 3 rytary at 11am, 2 rytary at 2pm and 2 rytary at 5pm. I have very little off time. I was diagnosed two years ago at age 51 but it probably had Parkinson’s since I’ve been 40 years old. I was curious if I could get your opinion on if you guys think this
BPW1
in
Cure Parkinson's
24 days ago
Bang for your buck
Supplements, medication, procedures Can someone tell me what supplements should be used with Parkinsons Among the various therapies that have shown at least some effect in the animal and/or human model are Carbadopa/Levadopa Actylcholine Actigal/Ursolic acid Adderil (amphetamine) Alcohol Alpha
Supplements, medication, procedures Can someone tell me what supplements should be used with Parkinsons Among the various therapies that have shown at least some effect in the animal and/or human model are Carbadopa/Levadopa Actylcholine Actigal/Ursolic acid Adderil (amphetamine) Alcohol Alpha
heartinmotion
in
Cure Parkinson's
27 days ago
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does anyone have experience of Benzatropine?
My doctor prescribed Benzatropine for dystonia, he didn’t have time to explain at my visiting. Also I know what he prescribed until I see it at CVS pharmacy. I googled it, seems I should stop taking other med include Amantadine and Rasagiline . Does anyone have knowledge and experience of Benzatropine
My doctor prescribed Benzatropine for dystonia, he didn’t have time to explain at my visiting. Also I know what he prescribed until I see it at CVS pharmacy. I googled it, seems I should stop taking other med include Amantadine and Rasagiline . Does anyone have knowledge and experience of Benzatropine
Grandsonlover
in
Cure Parkinson's
2 months ago
foot flop
I take sinamet comtan and amantadine. Recently my foot flop has gotten worse. I can’t tell if I should take my medicine sooner than usual.
I take sinamet comtan and amantadine. Recently my foot flop has gotten worse. I can’t tell if I should take my medicine sooner than usual.
Blake0488
in
Cure Parkinson's
2 months ago
Swapping Rasagiline for Safinamide - Hobson’s Choice or out of the frying pan and into the fire?
I have been on Rasagiline from the start. 8 years as my staple bedrock of my cocktail of PD drugs principally Ropinirole, Amantadine and of course Co-Careldopa. I have a pacemaker and take Atorvastatin and Ramipril for heart issues. Now the pharmacy says Rasagiline is in short supply in the UK and likely
I have been on Rasagiline from the start. 8 years as my staple bedrock of my cocktail of PD drugs principally Ropinirole, Amantadine and of course Co-Careldopa. I have a pacemaker and take Atorvastatin and Ramipril for heart issues. Now the pharmacy says Rasagiline is in short supply in the UK and likely
Lyricist
in
Cure Parkinson's
4 months ago
Amantadine questions
For those who are taking amantadine or have taken this drug, a few questions... I'm on carbidopa/levodopa, entacapone and amantadine (100 mg 3x/day). Do you find it causes swelling in the feet, lower legs and hands? If you came off the drug, what was the upside and the downside? How did you come
For those who are taking amantadine or have taken this drug, a few questions... I'm on carbidopa/levodopa, entacapone and amantadine (100 mg 3x/day). Do you find it causes swelling in the feet, lower legs and hands? If you came off the drug, what was the upside and the downside? How did you come
Zardoz
in
Cure Parkinson's
4 months ago
Amantadine for fatigue
Hi everyone,I was diagnosed with Seronegative Autoimune Encephalitis in April 2020. Fatigue has been a major issue for me and my Neurologist suggested trying the Parkinndons drug, Amantadine to see if it help. Has anyone experience of this? Many thanks, Gràinne
Hi everyone,I was diagnosed with Seronegative Autoimune Encephalitis in April 2020. Fatigue has been a major issue for me and my Neurologist suggested trying the Parkinndons drug, Amantadine to see if it help. Has anyone experience of this? Many thanks, Gràinne
Gramch
in
Encephalitis Society
6 months ago
Drug induced Dyskinesia - some measures to control
Dear all, My mom is 59 years old, diagnosed Parkinson's two years back post COVID, takes the below set of medications currently. Levodopa/Carbidopa
CR
100/25 mg - 1/2-1/4-1/4-1/2 (6.30am-11am-3.30pm-6.30pm) Ropinirole
CR
2mg 1-0-0-1 (10:00am - 8.00pm) Safinamide 100 mg (1-0-0-1) (
Dear all, My mom is 59 years old, diagnosed Parkinson's two years back post COVID, takes the below set of medications currently. Levodopa/Carbidopa
CR
100/25 mg - 1/2-1/4-1/4-1/2 (6.30am-11am-3.30pm-6.30pm) Ropinirole
CR
2mg 1-0-0-1 (10:00am - 8.00pm) Safinamide 100 mg (1-0-0-1) (
gdineshnathan
in
Cure Parkinson's
6 months ago
Has anybody found a way to reduce dyskinesia without Amantadine?
For many years, sinemet worked fine for me, but now I'm one of those people who gets dyskinesia from it. I've tried different combinations of amantadine and GoCovri (extended release). but it doesn't have much effect. So I take as little Sinemet as I can get away with. First dose at noon. There are
For many years, sinemet worked fine for me, but now I'm one of those people who gets dyskinesia from it. I've tried different combinations of amantadine and GoCovri (extended release). but it doesn't have much effect. So I take as little Sinemet as I can get away with. First dose at noon. There are
craigwharris
in
Cure Parkinson's
7 months ago
Levodopa vs Other Parkinson medicines against Fatigue
Does Sinemet does a good job in improving fatigue compared to other Parkinson's medications? Case history: My mom, 58 years old was diagnosed with Parkinson's two years back. Her major symptom is Fatigue and drug induced dystonia. Then the neurologist prescribed the following set of tablets: Sinemet
Does Sinemet does a good job in improving fatigue compared to other Parkinson's medications? Case history: My mom, 58 years old was diagnosed with Parkinson's two years back. Her major symptom is Fatigue and drug induced dystonia. Then the neurologist prescribed the following set of tablets: Sinemet
gdineshnathan
in
Cure Parkinson's
7 months ago
pisa syndrome
My dad has parkinson since 2015. His symptoms were under control until September 22'. In september he started developing pisa syndrome. He leans to the right side and walks like a drunken sailor. It affected his gait and his balance. His decline went downhill until March where he was hospitilised in
My dad has parkinson since 2015. His symptoms were under control until September 22'. In september he started developing pisa syndrome. He leans to the right side and walks like a drunken sailor. It affected his gait and his balance. His decline went downhill until March where he was hospitilised in
lisa103
in
Cure Parkinson's
8 months ago
what to do?
a few months ago, I finally decided to try meditation, specifically C/L. I had no reaction to instant release, so we tried titrating up on CR C/L 25/100. I got up to 2 pills three times a day. I was on this dose 3-4 weeks and I happened to have a neurologist appointment. They said there’s no reason to
a few months ago, I finally decided to try meditation, specifically C/L. I had no reaction to instant release, so we tried titrating up on CR C/L 25/100. I got up to 2 pills three times a day. I was on this dose 3-4 weeks and I happened to have a neurologist appointment. They said there’s no reason to
MomoP
in
Cure Parkinson's
8 months ago
Night time Hallucinations, a poem composed and narrated by my husband.
My husband wrote this when the night time Hallucinations were present. He found it was caused by an extra Amantadine but reduced it and they stopped! He’s very pleased he no longer sees the dog on our landing at night. Although it was friendly! https://parkinsons.art/parkinsons-art-poetry/sleepless-in-south-woodford-by-john-smith
My husband wrote this when the night time Hallucinations were present. He found it was caused by an extra Amantadine but reduced it and they stopped! He’s very pleased he no longer sees the dog on our landing at night. Although it was friendly! https://parkinsons.art/parkinsons-art-poetry/sleepless-in-south-woodford-by-john-smith
Zella23
in
Cure Parkinson's
9 months ago
Vistagen Receives Notice of Allowance for AV-101 Canadian Patent for Treatment of Dyskinesia Related to Levodopa
Vistagen Receives Notice of Allowance for AV-101 Canadian Patent for Treatment of Dyskinesia Related to Levodopa Therapy for Parkinson’s Disease Published preclinical data in widely used MPTP non-human primate model of Parkinson's disease show AV-101 reduced levodopa-induced dyskinesias without
Vistagen Receives Notice of Allowance for AV-101 Canadian Patent for Treatment of Dyskinesia Related to Levodopa Therapy for Parkinson’s Disease Published preclinical data in widely used MPTP non-human primate model of Parkinson's disease show AV-101 reduced levodopa-induced dyskinesias without
nednedned
in
Cure Parkinson's
10 months ago
Ropinirole ( Requip) Ontario Parkinson's
I have Parkinsons and I have been using Ropinirole also known as Requip for about 13 years. It is an Agonist , that helps the effects of Levadopa last longer. I also have been using Amantadine for the same thing but its effectiveness may have worn off. I was doing OK and then the company GlaxoSmithKline
I have Parkinsons and I have been using Ropinirole also known as Requip for about 13 years. It is an Agonist , that helps the effects of Levadopa last longer. I also have been using Amantadine for the same thing but its effectiveness may have worn off. I was doing OK and then the company GlaxoSmithKline
Gymsack
in
Cure Parkinson's
1 year ago
amantadine
Has anyone tried this med? Dr added to carbo-levodopa for HwP..
Has anyone tried this med? Dr added to carbo-levodopa for HwP..
fel3k
in
Cure Parkinson's
1 year ago
MS uodate
ok, I’ve been called out on being missing. Life is good. Busy as always. Saw my neuro two weeks ago. He had me increase my baclofen to help with pain in my legs. The good news is it’s helping a ton!! The bad news is it’s increased my fatigue a ton too. So I’m getting back on amantadine tomorrow to
ok, I’ve been called out on being missing. Life is good. Busy as always. Saw my neuro two weeks ago. He had me increase my baclofen to help with pain in my legs. The good news is it’s helping a ton!! The bad news is it’s increased my fatigue a ton too. So I’m getting back on amantadine tomorrow to
StacyHayward
in
My MSAA Community
1 year ago
Alternative and adjunct medications for RLS
Here's an interesting article on some of the less common medications for RLS. It may be of interest to members who have exhausted all other medication options. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9983500/ Keywords: clonidine, dipyridamole, perampanel, amantadine, ketamine, carbamazepine,
Here's an interesting article on some of the less common medications for RLS. It may be of interest to members who have exhausted all other medication options. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9983500/ Keywords: clonidine, dipyridamole, perampanel, amantadine, ketamine, carbamazepine,
Hidden
in
Restless Legs Syndrome
1 year ago
Miraculous Story of a person who underwent stem cell transplant in 1999
I have taken this portion of the the report from the article elaborating the results of double blind trial in 1999. "Patient 133 (video segments 17–19) developed parkinsonism at age 42 in 1986. His major problems were wearing-off episodes as well as levodopa-induced dyskinesias, particularly of the
I have taken this portion of the the report from the article elaborating the results of double blind trial in 1999. "Patient 133 (video segments 17–19) developed parkinsonism at age 42 in 1986. His major problems were wearing-off episodes as well as levodopa-induced dyskinesias, particularly of the
Farooqji
in
Cure Parkinson's
1 year ago
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