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Thyroid issues
Hi I haven't been on here awhile due to ill health I have osteoporosis in my spine and I broke my back last year in 4 places, I'm still recovering and started treatment. Since November after a bout on steroids due to poor asthma my body has been in a go fast , palpitations,lost weight, tremors, shakes
Hi I haven't been on here awhile due to ill health I have osteoporosis in my spine and I broke my back last year in 4 places, I'm still recovering and started treatment. Since November after a bout on steroids due to poor asthma my body has been in a go fast , palpitations,lost weight, tremors, shakes
Geordieclaire12573
in
Thyroid UK
4 months ago
need advice
Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my levels to normal but hasn’t changed my symptoms. She then prescribed blood tests for parietal cell antibodies and intrinsic factor antibodies. Both were negative. She says therefore I only need B12 orally and not injections
Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my levels to normal but hasn’t changed my symptoms. She then prescribed blood tests for parietal cell antibodies and intrinsic factor antibodies. Both were negative. She says therefore I only need B12 orally and not injections
Tiredycake
in
Pernicious Anaemia Society
4 months ago
Unexpected early end to ADT
I have been on Orgovyx for 14 months. Intended to complete 18 months and then stop. When I re-applied to the Orgovyx Patient Assistance Program for the 2024 year, I provided my 2022 tax return. The reviewer would not accept it and asked for my 2023 tax return, which, being self employed, will not be
I have been on Orgovyx for 14 months. Intended to complete 18 months and then stop. When I re-applied to the Orgovyx Patient Assistance Program for the 2024 year, I provided my 2022 tax return. The reviewer would not accept it and asked for my 2023 tax return, which, being self employed, will not be
Prostateless2020
in
Prostate Cancer Network
4 months ago
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De-escellation of ADT with modern RT treatment
A bit of rethinking of the standard of care for intermediate and high-risk PCa cases - of long-term ADT adjunctive and after high-dose radiation treatment. By Mark Storey Radiation Oncologist https://open.substack.com/pub/protons101/p/high-risk-prostate-cancer?r=1mt4ed&utm_campaign=post&utm_medium=
A bit of rethinking of the standard of care for intermediate and high-risk PCa cases - of long-term ADT adjunctive and after high-dose radiation treatment. By Mark Storey Radiation Oncologist https://open.substack.com/pub/protons101/p/high-risk-prostate-cancer?r=1mt4ed&utm_campaign=post&utm_medium=
Don_1213
in
Prostate Cancer Network
4 months ago
Pelvic Pain and spotting 9+ years post hysterectomy
Hi my mum had a full hysterectomy following a diagnosis of Stage 1C clear cell OC. 6 months of Chemo followed this. Since treatment and op she has been suffering with what has been described as chronic pelvic pain ever since. She had been told she cannot go on HRT as her cancer was Clear Cell. She
Hi my mum had a full hysterectomy following a diagnosis of Stage 1C clear cell OC. 6 months of Chemo followed this. Since treatment and op she has been suffering with what has been described as chronic pelvic pain ever since. She had been told she cannot go on HRT as her cancer was Clear Cell. She
Livkatt90
in
OvaCare
4 months ago
Can we trust AI analysis?
Like many of you I was faced with two major decisions when I was diagnosed with Intermediate high risk prostate cancer. Surgery vs Radiation and ADT short term vs long term. In short I chose radiation and short term ADT - 2 months prior to radiation and 4 months post. In addition I chose to have my
Like many of you I was faced with two major decisions when I was diagnosed with Intermediate high risk prostate cancer. Surgery vs Radiation and ADT short term vs long term. In short I chose radiation and short term ADT - 2 months prior to radiation and 4 months post. In addition I chose to have my
Mgtd
in
Prostate Cancer Network
4 months ago
Which treatment option best for recurrent oligo?
In addition to SBRT for the two mets that make me join the happy recurrent crowd, what would be my best treatment option? I have had no SOC medication for 2.5 years. My T is 4 European scale 110 US scale. 1 Only ADT for seven months. This is what MO recommends, besides SBRT, since stronger/longer
In addition to SBRT for the two mets that make me join the happy recurrent crowd, what would be my best treatment option? I have had no SOC medication for 2.5 years. My T is 4 European scale 110 US scale. 1 Only ADT for seven months. This is what MO recommends, besides SBRT, since stronger/longer
Purple-Bike
in
Advanced Prostate Cancer
4 months ago
biotin supplements
Hi all! My hair is thinning again , I think due to hrt I’ve changed and I remembered seeing many of you are taking biotin for hair loss. Can anyone advise me as to what dosage and make has worked for you? Looking on Amazon , there’s a wide array of strengths and prices …. It’s very confusing! Thank you
Hi all! My hair is thinning again , I think due to hrt I’ve changed and I remembered seeing many of you are taking biotin for hair loss. Can anyone advise me as to what dosage and make has worked for you? Looking on Amazon , there’s a wide array of strengths and prices …. It’s very confusing! Thank you
LinaM
in
NRAS
4 months ago
stage 4 prostrate cancer
I read many ways to approach prostrate cancer, I was diagnosed 2021, stage 4- Gleason 9, Mets- bones- lymph nodes, both lungs, so weak I barely got to MO with a Cain over 2 year’s later I’m running steps -refused chemo- took ADT 18 months read Dr. Dach book- cracking cancer toolkit- glad I did
I read many ways to approach prostrate cancer, I was diagnosed 2021, stage 4- Gleason 9, Mets- bones- lymph nodes, both lungs, so weak I barely got to MO with a Cain over 2 year’s later I’m running steps -refused chemo- took ADT 18 months read Dr. Dach book- cracking cancer toolkit- glad I did
bubbacora
in
Advanced Prostate Cancer
4 months ago
Treatment going forward
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
good2go
in
Advanced Prostate Cancer
4 months ago
ArteraAI Test
it seems that all prostate cancer patients with localized tumor(s) with Intermediate Risk should receive the ArteraAI test to prognosticate/predict how ADT would impact 5, 10, 15 years metastasis. It seems about 2/3 of these patients do not receive any added benefit from ADT therapy. There are many
it seems that all prostate cancer patients with localized tumor(s) with Intermediate Risk should receive the ArteraAI test to prognosticate/predict how ADT would impact 5, 10, 15 years metastasis. It seems about 2/3 of these patients do not receive any added benefit from ADT therapy. There are many
Bourbon2024
in
Prostate Cancer Network
4 months ago
Rising PSA on ADT
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
MGBman
in
Advanced Prostate Cancer
4 months ago
If PSA is Suppressed by Doublet ADT, Will Salvage IMRT Cause a PSA Rise?
Hello everyone, My husband is nearing completion of his extended pelvic salvage IMRT with boost to retrocaval lymph nodes. His radiation oncologist said it may take several months before the psa calms down, so he would like to see him in July. My question is that, since he is already undetectable due
Hello everyone, My husband is nearing completion of his extended pelvic salvage IMRT with boost to retrocaval lymph nodes. His radiation oncologist said it may take several months before the psa calms down, so he would like to see him in July. My question is that, since he is already undetectable due
103532
in
Advanced Prostate Cancer
2 months ago
No period dr says might be due to blockage at uterus entrance, any experience?
Hi friends After a heavy surgery for removing Adenomyosis endo and many fibroids last year dr put a barrier in my uterus to prevent adhesions and I was on decapeptal to prevent endo coming back. After stopping decapeptyl and when hrt stoppd I got my periods back regularly but then after 3 month I
Hi friends After a heavy surgery for removing Adenomyosis endo and many fibroids last year dr put a barrier in my uterus to prevent adhesions and I was on decapeptal to prevent endo coming back. After stopping decapeptyl and when hrt stoppd I got my periods back regularly but then after 3 month I
Bebe294
in
Fertility Network UK
4 months ago
Decapeptyl injection and marina coil
i have always been told that having endometriosis, i could not get the copper coil? i am currently getting the 3 monthly decapeptly injections and taking body identical HRT. i am not coping well with the progesterone and my doc has now suggested i continue with the injections and also get the marina
i have always been told that having endometriosis, i could not get the copper coil? i am currently getting the 3 monthly decapeptly injections and taking body identical HRT. i am not coping well with the progesterone and my doc has now suggested i continue with the injections and also get the marina
vjhm
in
Endometriosis UK
4 months ago
THC Gummies and psilocybin
Has anyone tried THC/CBD gummies or psilocybin for mitigating some of the side effects of ADT and Orgovyx? Were they beneficial?
Has anyone tried THC/CBD gummies or psilocybin for mitigating some of the side effects of ADT and Orgovyx? Were they beneficial?
Worked_the_World
in
Advanced Prostate Cancer
4 months ago
considering stopping adt/abiraterone to see what happens
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
Nowhereman9
in
Advanced Prostate Cancer
4 months ago
Decapeptyl injection with Tibolone HRT
Hi there, I went to the GP for extreme emotions and pain around my periods, and severe cramps/bleeding induced when exercising. I was put on an 6 year waiting list (Northern Ireland) so had to pay for private healthcare to see a gynaecologist. I was given the first monthly dose of decapeptyl on
Hi there, I went to the GP for extreme emotions and pain around my periods, and severe cramps/bleeding induced when exercising. I was put on an 6 year waiting list (Northern Ireland) so had to pay for private healthcare to see a gynaecologist. I was given the first monthly dose of decapeptyl on
CorganCat
in
Endometriosis UK
4 months ago
Hypo and Menopausal
Good morning you lovely people does anyone have any information surrounding thyroid meds and HRT? Since taking HRT I feel more hypo and my main symptom is a lot of hair loss. GP is trying to help but doesn’t really understand and still only goes by TSH. Do the hormones interfere with each other? I make
Good morning you lovely people does anyone have any information surrounding thyroid meds and HRT? Since taking HRT I feel more hypo and my main symptom is a lot of hair loss. GP is trying to help but doesn’t really understand and still only goes by TSH. Do the hormones interfere with each other? I make
Pixie50
in
Thyroid UK
4 months ago
The Dark Time Came Again: Dealing with MDD and ECT/TMS Decision
I have been well for a while, but recently, my depression hit again like it hasn't hit for some time. My doctor is suggesting either TMS or ECT, as my medicine is not working as well as I would want. I have a dual diagnosis of bipolar disorder and borderline, and I have been seeing doctors since college
I have been well for a while, but recently, my depression hit again like it hasn't hit for some time. My doctor is suggesting either TMS or ECT, as my medicine is not working as well as I would want. I have a dual diagnosis of bipolar disorder and borderline, and I have been seeing doctors since college
SilentWiseman
in
Major Depressive Disorder (MDD) Support
7 months ago
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